Myoclonic Seizures - TESS Research Foundation

Поделиться
HTML-код
  • Опубликовано: 13 дек 2024

Комментарии • 32

  • @PrincessOnyekwere
    @PrincessOnyekwere Год назад +19

    Thank you so much for sharing this video, I'm a student. Praying it goes away, she is adorable.

  • @pinkyalpaca
    @pinkyalpaca Год назад +43

    I have seizures extremely similar to that multiple times a day. They feel like being in a trance. You can't think but at the same time everything is rushing through your mind and it hurts.

  • @E3257.StudiosEverythingAwesome
    @E3257.StudiosEverythingAwesome 10 месяцев назад +1

    *gives your poor baby a hug through the screen* 😭😭😭

  • @francesb5004
    @francesb5004 2 года назад +15

    I am so sorry to see this happening to your child. My oldest has seizures and it’s been a journey through hell. I pray your daughter is healed. My isn’t

    • @Idontknowlol595
      @Idontknowlol595 Год назад

      Same I suffer and I have had three Myoclonic seizures I first had a seizure from PAM or naeglaria Fowleri but then I had epilepsy

    • @akositalee
      @akositalee Год назад

      How is your eldest now?

  • @strongsick2866
    @strongsick2866 Год назад +1

    Its hard seeing this happening to a kid anyone for that matter but a kid even harder .

  • @jay9414
    @jay9414 Год назад +1

    thanks for sharing, am a student. Hope she is well.

  • @oliviaadan8208
    @oliviaadan8208 Год назад +2

    I've never seen them last so little time as hers...my husband fell in an emergency room right onto the concrete floor busting his head pretty bad and almost 5yrs later he just started having seizures and they were crazy and lasted seemed like 4ever...his seizures was caused by the fall he had 5yrs earlier

  • @MaggieGarcia-vi3gc
    @MaggieGarcia-vi3gc 3 дня назад

    I have one too. Myoclonic seizure can shock you feel statically in your brain.

  • @craigmeechnvfofffuiivgo5119
    @craigmeechnvfofffuiivgo5119 5 месяцев назад

    My son has catastrophic epilepsy unknown genetic origin. He is now 19. He has had myo clusters since he was born, plus tonics, tonic clonics (over 7,500), absent, simple partial, complex partial, and tonic drops. Myo clusters were explained to us as the firing before a generalized seizure, the potential for. Which made sense because my son's sleeping myos were always worse when his tonic/tonic clonics were worse. Just a Momma's opinion here but this looks a lot more like a tonic clonic and less like myo clustering.

  • @Julie86Mac
    @Julie86Mac Год назад +1

    i have this and i've broken so many bones because of it. The last bone i broke was my nose from dropping/falling.

  • @theosbornfamily3115
    @theosbornfamily3115 Год назад

    This happens to my daughter but sometimes it’s only one or two at a time
    She hasn’t been diagnosed yet but had a abnormal
    Eeg for generalized background slowing

  • @OFFICALMAZERUNNI
    @OFFICALMAZERUNNI Год назад

    I have myoclonus and I twitch a lot during the day when I hear ringing sounds or just randomly and it’s uncontrollable bc I can’t stop me from twitching every hour or so and I look werid while twitching and it’s not bad but it happened when I was a baby to my mom told me and I just think it’s abt 1 sec of twitching some is 2 secs but I’m fine!

  • @Lougherybast23
    @Lougherybast23 10 месяцев назад

    I have epilepsy and I hope she's ok

  • @theratlord3
    @theratlord3 10 месяцев назад

    I feel so bad for her
    PLZ tell me she’s ok
    I actually suffered with this clonic seizures and it sucks, I hope she’s ok and having treatment for these types of seizures…

  • @ЕвгенийК-т5м
    @ЕвгенийК-т5м Год назад +1

    rolandic epilepsy with adversive sdizures, isn t it?

    • @ameenaabubakr6883
      @ameenaabubakr6883 Год назад +2

      No i guess Rolandic type makes the child waking up at night and they hv drooling but this one seems to be juvenile myoclonus epilepsy

  • @amuthanrealme8846
    @amuthanrealme8846 Год назад

    ​ will it affect marriage, child birth, sexual. My girlfriend have this for 5 year(juvenile myoclonic jerks). Now this controlled but if she stop medicine, immediately come back. Already broken her legs when it happened. I need any clarity. Still it is not curable or harmful in relationship? What steps I need to take?

    • @scrawnydawny7033
      @scrawnydawny7033 Месяц назад

      Get tested for the Mthfr gene. That could all be related.

  • @vibzzlab
    @vibzzlab Год назад

    this is clonic seizure right

  • @مصطفىالنعيمي-ب1ر

    محح