The Secret Life of Seb: Multiple Sclerosis and Sleep
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- Опубликовано: 26 сен 2024
- If you have Multiple Sclerosis, it's no surprise to hear me talk about how much it disrupts your sleep! At night it's like all our symptoms come out and we have a secret life. Multiple Sclerosis has many faces, and it's definitely not a pleasant face to encounter at night...
To learn more about Multiple Sclerosis, stay connected with "Life of Seb". LIKE, COMMENT, and SHARE. Don't forget to hit the SUBSCRIBE button and the BELL 🔔 so that you never miss any updates. Thanks for watching :)
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What is Multiple Sclerosis ❓
Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system). In MS, the immune system attacks the protective sheath (myelin) that covers nerve fibers and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerves. Signs and symptoms of MS vary widely and depend on the amount of nerve damage and which nerves are affected. Some people with severe MS may lose the ability to walk independently or at all, while others may experience long periods of remission without any new symptoms. There's no cure for multiple sclerosis. However, treatments can help speed recovery from attacks, modify the course of the disease, and manage symptoms.
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⚠️ DISCLAIMER:
My channel is in no way supposed to provide medical advice or guidance and I do not claim any medical knowledge of Multiple Sclerosis. I merely discuss MS-related topics from a patient's point of view. If you have a serious medical condition, please consult your medical practitioner immediately. By using this channel you do so at your own risk. "Life of Seb" RUclips channel accepts no liability in part or in full for any damages or injury caused by the use of any content provided.
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Sleeping does not happen for me,you are not alone! I appreciate you vlogging. I end up being up all night & sleeping during the day. Be well!
🙏🏻❤️
Yeah....me either!
OMG Seb I've waited for this moment. Being the 1st 🤭 thanks for all you do. Have a blessed day.
Hahaha thanks Gabby!!
Thank u for sharing 💕🙏
Hello Seb 🙂
Bladder problems, in my case, come only in the morning after waking . It doesn't go.
Insomnia is my major "headache".
My legs in the morning are "wooden". Nerve in my left leg twitches.
I practice taiji yang, and after that my body becomes much better.
I have feeling of heaviness in my left forearm, and my English is very bad.
Your English is fine 😉
Thanks 😊
You so best! Love the subject.
💙
Much love to you. Hope you're doing fine!!
Same to you!!
@@LifeofSebMS thanks Seb. Trying to stay positive :)
This is true
Magnesium Direct for healthy muscles & nervous system
What is magnesium direct?
@@williseric2012 www.diasporal.com/products/diasporal-300-granules-for-oral-solution
May God continue to uplift and bless you, Seb. Now and forever.
🙏🏻🧡
Thanks for sharing, Seb. I'm very fortunate in that I usually sleep well, though if something affects my sleep (I need at least 8 hours too) I certainly feel it the next day. I'm so glad that you have found some calm and acceptance around your experiences. It makes all the difference.
What's causing my hardship right now is dealing with low immunity and constant viruses, here in the Australian winter. I'm at home sick again from work with something that will take longer to heal and will continue to impact me on unseen levels. I've had some lucky winter seasons but this one has been really rough. I'm looking forward to September, the change into spring and the hope that my body will heal and recover from this. xx
Yeah illness is another terrible aspect of MS. I’ve made many videos about that. Hope the spring will go easy on you 🙏🏻
Omg yes this is so me!! I just uploaded a video too that is called 5 Things I wish I knew about MS when I was first diagnosed. Sleep and spasms are a great one to add to that list I created!
Saw it!! Thanks for sharing and I agree!
Whats the name of your channel?
@@williseric2012 fallbeforefear
Love ya gal ❤ wishing you and your family all the strength and peace. You got this ❤
🥰🧡
I'm still mourning the loss of easy sleeping. I use to be a champion sleeper, 8-9 hours each night was so easy for me even 10 hours on the weekends. My partner used to chide me for sleeping so much. Now, I sleep about 5.5-6 hours a night and he's worried that I'm not sleeping enough. I read some comments below, with good suggestions I will try. Thanks for this video!
I know, it’s the worst! Mourning is the correct word for it 😔
Seb, thanks for your info on your journey with MS. I was diagnosed for the second time and given the info that it was definitely MS, after my previous Neurologist, 12months after original diagnosis did another test, and said no it's not MS. I asked what was this incredible dizziness then. He said he had no idea, and so I went away thinking that it was just another bout of depression. That was in 2007 and I continued on with visits to Psychiatrists etc, and thought I must just be crazy. Fast forward to 2018 when I was very involved and loving it with my Church and Children's programs involving a fair bit of activity. This was beginning ot exhaust me, and I'd spend the afternoon sleeping it off. I let it go and finally saw my GP who gave me a referral to my 2007 neurologist. Couldnt get an appointment for 3 yrs, and they couldn't find my records.......GRRRR! Found a new one, and only 9mths to see him. Finally, somewhere in 2019 I got to see him and I went through the MRI on my brain......He looked at the previous ones from 2007 and said he could see lesions around spine, so had MRI on spine as well. Results showed I do have MS, and would have had it all that time. I started on Tecfidera medication 26th September 2019. I'm still getting dizzy, but have accepted that this is my journey, and as it's slow progression I am grateful. Problem is, seeing Neurologist next week, and I am feeling worse. Husband and daughter feel it's because I don't walk enough and don't do enough. With Covid, I haven't ventured out much and have enjoyed doing craft I haven't been able to do for years. But the tiredness, is awful, and I'm back doing Pilates, and go to Church in person once a week now, whereas have been Zooming lots of stuff. I guess this has made the pain worse in my back and arms and my ha nds fingers, and right leg especially, and my arm. My General Practioner(GP) says it could be Carpel tunnel. Having support from an MS nurse, and she has suggested i get something to help me sleep in the night, to stop me fr om being exhausted before I start. Sorry Seb, I've raved on here.
I enjoy your posts about your journey. I have God in m y life and He keeps me almost sane. I wish you well dear Seb. Keep up your good work on here. I look forward to your nest post. I know i'm just one of many, and feel sorry you are so young darling. Friends and family get you through it. What year did you fist get diagnosed with MS?
your kitten is so beautiful!!!
Thank youuuuu 😻
I find stretching and cracking in bed. Almost bed yoga can relax me enough to sleep. But i don't know how it works!
You a the best, simlpy The best
Thank you Ulf!!
Thank you for your videos! I haven’t been officially diagnosed, waiting to get an mri done... covid 19 is delaying it. Im having extreme vestibular problems, ears clogged, ringing, blurred vision, nausea, vertigo, boat rocking feeling... all the time! And thats all vestibular but it all started with a burning feeling on my legs , palm of hands and sole of foot... itching every where, like an allergic reaction... it all started after taking bactrim, an antibiotic for sinus. Not sure if its related. Doctors thought it was an allergic reaction ... I started having very weird symptoms like sharp pain on my stomach, and a horrible pain in my ribcage. :/ life has no meaning for me now, im suffering 24/7.
Oh and tremors in my hands and heavy feeling of my legs. Going to Brazil to get my mri done and see a Dr at DrCoimbras office.
In the mornings, when I first blink my mouth moves by itself with the blinking. Even until the tenth time I blink, weird sensation.
One of the many mysteries of the brain… 🙏🏻🧡
I very seldom sleep during the night, my spasms get so bad, my legs and feet are jumping uncontrollable, my arms are burning and jumping, its absolutely miserable, i sleep during the day more than night hours cause I need to get sleep so I welcome it whenever it comes but unfortunately it does not last long!
Damn I’m sorry to hear that. Have you tried clonazepam?
@@LifeofSebMS yes Seb I have but it makes me drowsy but it doesn't put me to sleep unless I take two 2mg pills then I sleep so hard for about 5 hrs then I'm back up man. Then I'm back to square 1😔. I understand what your dealing with too! I love the kitten you called a puppy lol...feel better and keep fighting!
Hope you are ok I wanted to ask you what your symptoms are in your vision Please forgive me I'm concern I may have MS or Nistigma my vision is clear to a degree but my peripheral vision tends to shake or jiggle especially on certain surfaces like storm Sutters or door frames would move in my peripheral vision aswell Take care God bless you 🙏❤
Hello! I was reading through these comments and stumbled across yours. I thought maybe more information for you would help. I was diagnosed with MS and have Optic Neuritis. I struggle with long distance vision, but it is not shaky vision, only if I get cold. Hope this helps and makes sense!
@@fallbeforefear9978 Thank you so much for responding I really really appreciate it I pary and hope your vision is some what back to normal how are you doing so far ?
Thank you so much!! My vision has not come back, but I am staying strong and coping quite well. Best wishes to you and I hope your vision is able to be corrected!
@@fallbeforefear9978 I'm so sorry..😔do you have any hope of regaining your vision back?
I don't mean to pry so I'll understand if you are reluctant to share I've been looking up new vision technology bionic eye system and one woman scientist has cracked the mathematical code for what the human eye sends to our brains so one day soon I hope they will have the microscopic technology to implant artificial eyes.
Also another scientist in Europe is coming up with a way to replace our retinas with artificial ones grow in laboratory they found a prehistory fish in the deep trench that has the ability to regenerate its eyes and most importantly its retinas because the pressure from the deep ocean causes constant damage.
These retinas will work in theory but they still have to find a surgical procedure to take our old ones out and implant the the new ones hopefully they will find a way soon and give people around this planet the ability to see again or for the first time. 😊
I am not sure about my vision. I hope with everything I am doing it will...my doctor told me that MS is a strange disease and it's impossible to predict. Wow that is very interesting, it seems like you have done your research! I am not sure if the retina replacement would help me though because it is my Optic Nerve that is damaged!
Hello!
I have watched many of your videos
I might have missed this, but i want to know it eagerly.
Have you tried 'Anulom Vilom' - breathing exercise?
Can you please answer this!
Was it of any help?
Now i dont know if i have MS or not.
My symptoms -
internal tremors in leg, abdomen, palm.
Fasciculation all over body
Blurred vision for few minutes in my right eye.
Itching random parts of body, sometimes there is visible rash sometime not any.
Homeopathy has worked wonders for me for internal tremors.
I know people dont think that homeopathy works, but it no harm in giving it a try.
Do you think to try homeopathy in future?
I’m going through the exact same thing I’m getting my 2nd infusion today
Stay strong 💪🏻