Why I Said No to Radiation as My First Treatment Option for My Prostate Cancer Battle

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  • Опубликовано: 17 ноя 2024

Комментарии • 105

  • @gregorysmith1021
    @gregorysmith1021 2 месяца назад +10

    Great topic Ty. I too chose RP. My Gleason was 9 with 2 cells on the walls and 1 dead center. I chose surgery to stop the cancer in its tracks. I was also told if it returned, my only option would be radiation. Had I done radiation first, I risked being too old or out of shape to have surgery. So, for me radiation was the back plan..... Thanks for your insight and for your post.

    • @Flyty911
      @Flyty911  2 месяца назад +1

      @gregorysmith1021 Thank you. I appreciate you sharing your perspective and adding depth to the video.

  • @jstewardjr
    @jstewardjr 20 дней назад +1

    Thanks Thank you. My decision is running along those same lines and I was glad to hear your thoughts.

    • @Flyty911
      @Flyty911  20 дней назад

      @jstewardjr Thank you for sharing. I am wishing you the very best with your treatment and recovery.

  • @danmagoo
    @danmagoo Месяц назад +3

    Great points, Ty. I went with prostatectomy for mainly the same reasons, and when my PSA started to climb afterward, I was happy to have radiation as the back-up treatment. It was easy (easier than the course of radiation they would give as the first treatment), and now, since PET scans show nothing outside the area, they are telling me that the combination will likely mean I am "cured". I like that your first reaction in telling the doc your priorities, was "I want my penis to work" -- which I think is a natural first thought, until it sinks in that also "I'm not ready to die yet, and I sure don't want to die from cancer." Anyway I think you made the right choice. Good luck to you!

    • @Flyty911
      @Flyty911  Месяц назад +1

      @danmagoo First let me congratulate you on being prostate cancer free. Thank you for sharing your journey. It is encouraging to see that the decision that I made has worked for someone else in real time. Our situations are all different but your message has helped me and I am sure it will help others feel better about their treatment decision. I laughed at your comment about my "wanting my penis to work" statement to my doctor. I may be short sighted but I always claimed that I would live through this so my thoughts were always geared toward having a great quality of life with the time that I have left. I am wishing you well on your recovery. Your comment made my day!

  • @CarlT916
    @CarlT916 Месяц назад +1

    Great video and glad I came across this channel. I had locally advanced cancer, and although radiation was an option, the radiologist tried to steer me away from the treatment, and so I didn’t really have much choice, but at the end of the day I’m glad I went down that road. Although I had a bad first few months, I feel so much better than what I hear from guys who have had radiation at the support group I attend

    • @Flyty911
      @Flyty911  Месяц назад

      @CarlT916 Thank you for sharing your journey. I am sure that your post will help someone with their decision making. I appreciate it. I am wishing you the very best in your recovery going forward.

  • @georgemejias9978
    @georgemejias9978 2 месяца назад +3

    Thank you for sharing your thoughts !!!! God bless you for your family. The idea of having additional options is a very strong viewpoint.

    • @Flyty911
      @Flyty911  2 месяца назад

      @georgemejias9978 Thank you. I appreciate you adding your thoughts.

  • @anthonystroman8407
    @anthonystroman8407 Месяц назад +1

    I'm so blessed to stumble upon your channel I'm going to have the surgery myself that was my choice but you really confirmed that I had made the right choice thank you so much.

    • @Flyty911
      @Flyty911  Месяц назад

      @anthonystroman8407 Thank you for sharing. I know how difficult it is to make that decision, so I applaud you. I am wishing you the very best with your procedure and your recovery.

    • @anthonystroman8407
      @anthonystroman8407 Месяц назад +1

      ​@@Flyty911thank you Ty and may God bless you and your family.

    • @Flyty911
      @Flyty911  Месяц назад

      @anthonystroman8407 I am not sure when you surgery is scheduled but I am wishing you the very best outcome.
      Hang in there.. Keep Moving Forward.

  • @dl-dh3oz
    @dl-dh3oz 2 месяца назад +3

    Ty, you may never know how many you have helped, rest assured you’ve helped at least one, ME! Just had prostate removed last week. Like you, am saving radiation if becomes needed. Love your insight and suggestions/advice. Have applied much, including Kegels prior to surgery. Seems to have helped! Keep up the great ministry you're putting out there. Thank you from me and my family. Blessings always!

    • @Flyty911
      @Flyty911  2 месяца назад

      @dl-dh3oz I appreciate it and thank you for sharing. Congratulation on being one week prostate cancer free. That is a blessing to be able to say so allow yourself to feel that. I know you are probably waiting on the pathology report but I am going to claim that for you. Hang in there!! I am wishing you the best on your recovery.

    • @dl-dh3oz
      @dl-dh3oz 2 месяца назад +1

      Ty-just a followup. Pathology came up wonderful. All appears contained in the prostate. No lymph node or other involvement noted. Please continue to keep up your great advice on this for other men to be as encouraged as I was from watching your 'sermons'! All glory is His, but you are a wonderful messenger. Thanks again.

    • @Flyty911
      @Flyty911  Месяц назад

      @dl-dh3oz Thank you for sharing. That is awesome news. Take your time and be patient with yourself as you recover. Best wishes.

    • @Flyty911
      @Flyty911  Месяц назад

      @dl-dh3oz Hang in there.. Keep Moving Forward

  • @edwardtaylor1177
    @edwardtaylor1177 Месяц назад +2

    Hey Ty, I was gonna chose radiation, but after listening to my family members who've had prostate cancer surgery, It was an easy choice & I'm glad I made that decision, Thanks for your support helping me through this journey 🙏👏😎

    • @Flyty911
      @Flyty911  Месяц назад

      @edwardtaylor1177 Thank you for sharing. I appreciate it. I am wishing you the very best with your recovery.

    • @GalaxyCat001
      @GalaxyCat001 Месяц назад +2

      So you had surgery? What swayed you?

    • @Flyty911
      @Flyty911  Месяц назад

      @@GalaxyCat001 Thank you for reaching out. @edwardtaylor1177 I believe this question is for you.

    • @edwardtaylor1177
      @edwardtaylor1177 Месяц назад +1

      @GalaxyCat001 What swayed me was the radiation wasn't gonna get rid of my prostate, only shrink it & I wasn't taking that chance it's been ( 7) weeks since my surgery and I'm feeling better.

  • @24hourgmtchannel64
    @24hourgmtchannel64 29 дней назад +1

    The discussion of radiation and prostate salavage removal being more difficult if radiation failed down the road, was enough for me to choose surgical removal and be done. I'm now three years this month post robotic prostatectomy and was back to normal functions by month seven. In retrospect, while I am 100% back to normal with erections and continence, and sex still feels good, I did greatly miss ejaculation, more than I thought though my understanding is even with radiation, that can stop for some as well. Thanks for the video.

    • @Flyty911
      @Flyty911  29 дней назад +1

      @24hourgmtchannel64 Congratulations on being three years prostate cancer free. Thank you for sharing your journey. I agree about the ejaculation part. You never get used to it. I am glad all is well. I am wishing you continued good health on your journey.

  • @denissparks2133
    @denissparks2133 2 месяца назад +3

    Just for the record, my Oncologist told me they are having better long term results with hormone therapy with radiation than with radical prostatectomy. I personally know three people who have had the latter, and then had the cancer return anyway. I chose radiation, am almost halfway through a 44 treatment plan. Best wishes and luck to everyone as they make this decision on their own. No choices are easy.

    • @Flyty911
      @Flyty911  2 месяца назад

      @denissparks2133 Thank you for sharing. I appreciate you sharing a different perspective. That is always welcome because as you said, the treatment options are personal decisions and everyone has a reason for the option that they select. As I always say, the treatment options are all bad.. so pick the bad that you can live with. I am wishing you the very best outcomes on your treatment and recovery.. You are almost there... Hang in there.

  • @josephsimoncicjr3910
    @josephsimoncicjr3910 23 дня назад +1

    im 3x4 and going brachytherapy, it was my choice as doctor and radiologist never mentioned it, i researched it and found a very experienced doctor and from looking over my images i was perfect candidate for it and said i will around 90% chance cancer free in 15 years and i can get beam if necessary if by chance it comes back, that with very low chance of ED and continence. from my research 30-50% chance reoccurrence with removal not for me.

    • @Flyty911
      @Flyty911  23 дня назад

      @josephsimoncicjr3910 Thank you for sharing. The treatment decision for prostate cancer is personal and I applaud you researching and picking the option that works for you. I am wishing you the very best with your procedure and subsequent recovery.

  • @doug6259
    @doug6259 Месяц назад +1

    This type of decision depends on your own individual circumstances and what is important to you. My Urologist told me he thought I would respond well to either surgery or radiation. I researched both extensively and ultimately chose radiation. My reasoning was partly due to the fact that my father also had radiation for prostate cancer 25 years ago. He responded well to it and is still going at 88. I also did not want to deal with recovery from a major operation with urinary incontinence. I felt I could cope with the radiation option better. I had a Barrigel procedure (barrier) placed in front of the rectum to minimize side effects there and just started the treatment.

    • @Flyty911
      @Flyty911  Месяц назад

      @doug6259 Thank you for sharing. I always welcome the opposite perspective so that everyone can get a full picture of the individual way that our treatment decisions were made and the outcomes on the other side. I appreciate it. I am wishing you the very best on your Prostate Cancer Journey and recovery.

  • @kafka8886
    @kafka8886 Месяц назад +4

    Yeah. I'm at the decision making point and am leaning towards surgery as the cancer is contained and the enlarged prostate is causing urinary issues, so the way I see it is, get it out and it's (hopefully) two birds with one stone.

    • @Flyty911
      @Flyty911  Месяц назад

      @kafka8886 Thank you for sharing. I am wishing you the best outcomes from whichever treatment option that you select.

  • @daleward7322
    @daleward7322 2 месяца назад +2

    Thanks for sharing your truth!

    • @Flyty911
      @Flyty911  2 месяца назад

      @daleward7322 Thank you. I appreciate it.

  • @MichaeldeCiutiis
    @MichaeldeCiutiis Месяц назад +3

    Thank you Ty. I chose surgery as well. Glad I did. I wanted maximum elimination of the cancer. Radiation is still an option if I need to in the future. I'm six weeks post op. Improving on all fronts. Take care.

    • @Flyty911
      @Flyty911  Месяц назад

      @MichaeldeCiutiis Thank you for sharing. Congratulations on being a month and a half prostate cancer free. I am wishing you the very best outcomes on your recovery. Hang in there!

    • @Flyty911
      @Flyty911  Месяц назад

      @MichaeldeCiutiis Hang in there... Keep Moving Forward.

    • @MichaeldeCiutiis
      @MichaeldeCiutiis Месяц назад +1

      @@Flyty911 Thanks Ty. Getting better. Slowly but surely. :) You stay well.

  • @ronaldcumpsty5605
    @ronaldcumpsty5605 Месяц назад +1

    10 years ago at age 70 my Urologist advised me that Radiation first would mean he could not go back and remove it in the future. I had it removed and it only had 3% in there. PSA numbers were extremely low but over the years have climbed to 0.4. Now I have been told it is back and asked to take part in an intense hormone treatment study. Unfortunately the operation did leave me with mild incontinence and impotence which the latter has been very difficult to deal with. Even this study has possible major side effects but family responsibilities make it necessary.

    • @Flyty911
      @Flyty911  Месяц назад +1

      @ronaldcumpsty5605 Thank you for sharing. I am sorry to hear about your recurrence. I have heard some good things about the Hormone treatment, so I am hopeful that it works out for you. I have heard that it may change you some and have some side effects, so just be aware of that going into it. I am wishing you the very best with the procedure and your recovery.

  • @iconoclast6994
    @iconoclast6994 18 дней назад

    Gathering info on choices is a good thing. Yup. a treatment option that “I can live with”. For me at 69, that means quality of life to be fully functioning, while have as many follow up choices if recurrence happens. And, once the homework is done, recurrence happens with all forms of treatment. I chose not to have RP because of the risk of erectile disfunction and incontinence. I chose not to do radiation for the reasons you mentioned, and also because it accompanied hormone therapy. Hormone therapy is also known as … chemical castration. I have decided on Tulsa Pro. If i have a recurrence, I can still have RP or Radiation. If I get 5 years without a recurrence, I’m happy.

    • @Flyty911
      @Flyty911  18 дней назад

      @iconoclast6994 Thank you for sharing your journey. Your perspective on how you made your decision is needed and much appreciated. Your post adds depth to the difficulty we have when we are making your treatment decision. I am wishing you the very best with your treatment and recovery.

  • @tomp8922
    @tomp8922 Месяц назад +1

    Hey Ty, 2 days post RP, and my thought process was the same in coming to a decision. Good chat on the pros and cons most of us mull over deciding which way to go. May you never play the big joker!

    • @Flyty911
      @Flyty911  Месяц назад

      @tomp8922 Thank you for sharing. I appreciate it. I am wishing you very best outcomes in your recovery.

    • @Flyty911
      @Flyty911  Месяц назад

      @tomp8922 Almost a month prostate cancer free.. Hang in there. Keep Moving Forward.

  • @shadowsonthecheap8361
    @shadowsonthecheap8361 Месяц назад +1

    I had the same idea so opted for prostatectomy. A year later the cancer came back in my lymph nodes, was put on hormone drugs (for 2 years) and 33 days of radiation, so I got the radiation anyway but without my prostate. All was well to begin with, but the after effects are terrible. I have never felt so ill in my life, fatigue, urinary incontinence, diahorea for 6 weeks so far and must wait another 6 weeks now to see if the cancer has been beaten. It is a hard road to travel. I'd still do it again though, otherwise by now I would probably be checking out, like an aquaintance who refused all treatment and was gone in 9 months.

    • @Flyty911
      @Flyty911  Месяц назад

      @shadowsonthecheap8361 Thank you for sharing your journey. Your story is one that our entire community need to see because we often find ourselves thinking about this disease in a vacuum and we think that our circumstance and outcome are the worst there has ever been. I want to send you well wishing from myself and everyone in our community that may not see this post before your doctor's visit. I will claim for you that your cancer has been beaten. I applaud the fighter in you. My condolences on the loss of your friend. Hang in there!! Bend but Don't Break.

  • @joegregory7345
    @joegregory7345 2 месяца назад +2

    Very well said and explained! Exactly why I had a rp.

    • @Flyty911
      @Flyty911  2 месяца назад

      @joegregory7345 Thank you. I appreciate it.

  • @wastedyearsss28
    @wastedyearsss28 Месяц назад +1

    I chose to have radical prostatectomy two years ago surgery was successful cancer free now. My wife of 20 years decided to leave me 3 months ago! Having regrets now.

    • @Flyty911
      @Flyty911  Месяц назад

      @wastedyearsss28 Congratulations on being prostate cancer free for two years. Thank you for your sharing that part of your journey. I'm sorry to hear about your relationship. I know that was tough and unexpected. I'm right along with you at the two year mark. I'm starting to feel like myself again and I hope you are as well. Hang in There. Bend Don't Break!!!

  • @spikebbc
    @spikebbc 2 месяца назад +6

    Just had my radical prostatectomy today. I refused radiation because, FOR ME I didn’t want the remotest risk of it spreading. I just wanted it out!

    • @ericfortier983
      @ericfortier983 2 месяца назад +5

      Same here man ! Wish you a great recovery

    • @tabcobra
      @tabcobra 2 месяца назад +4

      Even though you had your Prostate removed, it can still spread.. I had my Prostate removed and my Oncologist suggested radiation, but my Urologist said to “tap the brakes” on that. All I want to do is monitor PSAs from here on out.

    • @spikebbc
      @spikebbc 2 месяца назад +3

      @@tabcobraI understand that. This is still my biggest fear

    • @Flyty911
      @Flyty911  2 месяца назад +2

      @spikebbc Thank you for sharing. I hope your recovery is going well so far. Hang in there!!!

    • @Flyty911
      @Flyty911  2 месяца назад +1

      @ericfortier983 Thank you for sharing.

  • @jaimer.2484
    @jaimer.2484 Месяц назад +2

    Ty, I just want to let you know I that the radiation doctor told me that I should have a PETCT scan that uses a new imaging product called PMSA. It seems to pick up all cancer in and around the prostate gland. I did get a MRI scan that showed a tumor that was confirm by my biopsy. I feel the if the PETCT scan shows it outside of the prostate, I think radiation might be a better way for me. This what I was told by my radiation doctor. It is not an easy decision for me. But if things are clear I am going for surgery because of my age and also radiation therapy can help in case if I need it. Thanks for all the info. God bless.

    • @Flyty911
      @Flyty911  Месяц назад +1

      @jaimer.2484 Thank you for sharing. The PET CT is a great way to confirm and see the cancer. I had one after my diagnosis as well. I applaud you on doing your diligence before making a decision. I really wish you the very best outcomes on whichever decision that you make. Either way, you will be ready.

  • @johnrmeyer1674
    @johnrmeyer1674 Месяц назад +1

    Ty, my prostate cancer journey was very similar to yours. I was deathly afraid of surgery and heard a lot of horror stories. Remember, urologists are surgeons and radiation oncologists just perform radiation, so they both talk up their specialties. My urologist was very open to me talking to a radiation oncologist, which I did, Like you, I was blown away. With surgery, you get the side effects up front (incontinence, ED). With radiation, those side effects hit later, maybe 2 to 4 years down the road. Also with radiation, you can get additional side effects like fatigue, and also (but not completely common), radiation proctitis and / or radiation cystitis. Again, with todays technology, there's a fairly low chance one will get it, (under 10%). Some guys that do radiation report having almost no issues. Still, I felt that I did not want to take that chance, and also, I trusted my urologist/surgeon. Also with surgery, they remove lymph nodes surrounding the prostate as well as the seminal vesicles to check to see if the cancer has spread. They can't do that with radiation. I'm now 7 months post-op and cancer free. Incontinence is only a minor issue now and while ED is still there, my friend is starting to show signs of life. I'm satisfied with my decision. It's not the worst decision I've made. The worst decision I've made was marrying my ex-wife. LOL.

    • @Flyty911
      @Flyty911  Месяц назад +1

      @johnrmeyer1674 Thank you for sharing. I appreciate you adding a lot of depth to the post. I am sure that information will help someone as they consider their treatment options. Congratulations on being 7 months cancer free. Remembering to keep your sense of humor front and center is awesome. I am wishing you the very best outcomes in your recovery.

  • @Retiredinthechi24
    @Retiredinthechi24 2 месяца назад +1

    I too chose to save the big joker with no regrets bro…16 months post surgery 🙏🏽

    • @Flyty911
      @Flyty911  2 месяца назад

      @Retiredinthechi24 Thank you for sharing. Congratulations on being almost a year and a half prostate cancer free. I am at 21 months so you are right behind me in your recovery. Keep moving forward!!

    • @Flyty911
      @Flyty911  Месяц назад

      @Retiredinthechi24 Hang in there.. Keep Moving Forward.

  • @wolfemanbog4176
    @wolfemanbog4176 2 месяца назад +1

    I missed a few days kinda feeling down !! Not working needed help !!

    • @Flyty911
      @Flyty911  2 месяца назад +1

      @wolfemanbog4176 Thank you for sharing. Hang in there!! I made a video called Bend but Don't Break that you can use for these types of moments when you are feeling down. I won't pretend that it not a tough recovery but a lot of us are standing tall after having when through it and you can do it too. One step at a time. Try to be patient with yourself. Bend but Don't Break!!

    • @Flyty911
      @Flyty911  Месяц назад

      @wolfemanbog4176 Hang in there. Keep Moving Forward

  • @rlsretired2024
    @rlsretired2024 Месяц назад +1

    I had surgery 8 years ago and watched my psa slowly drift up. I had salvage radiation 3 years ago, psa is still not detectable. Side effects some dribbles, radiation damage to bladder neck so i might pass some blood in the urine but it only happens a couple times a year.

    • @Flyty911
      @Flyty911  Месяц назад

      @rlsretired2024 Thank you for sharing your journey. It is very much appreciated to have you provide us with a view into that treatment option. I am wishing you the very best outcomes on your continued recovery.

    • @michaelgohlke3168
      @michaelgohlke3168 13 дней назад +1

      Where was the radiation? Prostate bed?

    • @Flyty911
      @Flyty911  12 дней назад

      @michaelgohlke3168 Thank you... @rlsretired2024 I believe this question was meant for you.

  • @jazandriz
    @jazandriz 2 месяца назад +3

    Well, I just got a biochemical recurrence 4 months after the prostatectomy. Which probably means they didn't get it all during the surgery..in retrospect, I probably should have listened to the advice from PCRI that for most high risk patients, raditation is probably the better option... now i will not only face lingering ED from the surgery but also side effects from radiation. I wish I had just done radiation to start with.

    • @spikebbc
      @spikebbc 2 месяца назад +2

      @@jazandriz So sorry to hear this. I hope you can get to a successful outcome.

    • @Flyty911
      @Flyty911  2 месяца назад +1

      @jazandriz Thank you for sharing that part of your journey. It may be of little consequence for your situation but your post about having gone through this will be very valuable to the treatment plan someone else selects. I am truly sorry to hear about this circumstance. We will be here to encourage and help you through. Bend but Don't Break!!

    • @jaimer.2484
      @jaimer.2484 Месяц назад +2

      Stay strong!

    • @Flyty911
      @Flyty911  Месяц назад

      @jazandriz I hope this email finds you well. I know you have a lot on your plate but I wanted to send you some well wishes. Hang in there. Keep Moving Forward. One step at a time.

    • @jazandriz
      @jazandriz Месяц назад +1

      @@Flyty911 thank you my friend! it means a lot to have you in my corner. CAT scan is tomorrow so they can take all the measurements for radiation. trying to stay positive and focus on things i can control.

  • @kurtiswiesjahn2579
    @kurtiswiesjahn2579 18 дней назад

    Thats what I understood get it out use radiation as a backup my joker also thats what my radiation oncologist explained get it out

    • @Flyty911
      @Flyty911  17 дней назад

      @kurtiswiesjahn2579 Thank you for sharing your journey. May you never have to play your big joker...

  • @sandblast5636
    @sandblast5636 Месяц назад +1

    No excuse for ignorants in 2024.