I’m in awe of both of you and have followed your story for years. You are such a beautiful family and support system and you can tell you light each other up in the dark times by your humour and lightheartedness. I’m not a religious person but I believe in science and hope and I think with more donations, a cure is inevitable. I’m hoping upon hoping that progress is speeded up, that big donors can hear your story and spread the message. All my love to you both and your family ❤
I saw your story on the Truly channel Sohana, years ago infact, and I suddenly remembered your story and condition and wanted to see how you are. I'm glad to see you still are fighting, but as before, so sorry you are in pain. I truly do not underestimate the strength needed to deal with your discomfort. I so so so hope the research will prove successful for you. I suffer from extreme eczema and have have nights crying covered with raw cracked skin and it must be nothing compared to yours. You're so resilient, I'm proud of you. I'm only a student and haven't got the funds or social audience/reach to help you as I wish I could. I just wanted to check in here and say that I am sending you as much love and courage and good wishes to you and your family as possible. Maxine x
I share your wishes. I hope the research will be a success for Sohana to stop suffering that much. She is a strong girl, the strongest I have seen. A true fighter👑❤️✊
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Such a beautiful girl.
I’m in awe of both of you and have followed your story for years. You are such a beautiful family and support system and you can tell you light each other up in the dark times by your humour and lightheartedness. I’m not a religious person but I believe in science and hope and I think with more donations, a cure is inevitable. I’m hoping upon hoping that progress is speeded up, that big donors can hear your story and spread the message. All my love to you both and your family ❤
I saw your story on the Truly channel Sohana, years ago infact, and I suddenly remembered your story and condition and wanted to see how you are. I'm glad to see you still are fighting, but as before, so sorry you are in pain. I truly do not underestimate the strength needed to deal with your discomfort. I so so so hope the research will prove successful for you. I suffer from extreme eczema and have have nights crying covered with raw cracked skin and it must be nothing compared to yours. You're so resilient, I'm proud of you. I'm only a student and haven't got the funds or social audience/reach to help you as I wish I could. I just wanted to check in here and say that I am sending you as much love and courage and good wishes to you and your family as possible. Maxine x
Thank you so much for your very kind words. Please take care
I share your wishes. I hope the research will be a success for Sohana to stop suffering that much. She is a strong girl, the strongest I have seen. A true fighter👑❤️✊
Love you dear we all with you ❤
:D
I can relate with someone with skin thats to deal with, like me! :)
I hope you are feeling better.
Humans are some of the most resilient life forms on Earth
You can cope with just about anything