Life with XLH: Cheryl’s Story

Поделиться
HTML-код
  • Опубликовано: 17 окт 2024
  • When Cheryl was diagnosed with X-linked hypophosphatemia (XLH), a rare
    genetic condition, physicians told her parents that XLH was a childhood
    disease that would correct itself over time. Researchers now know that XLH
    is a progressive condition which requires life-long management. As an
    adult, Cheryl keeps active, and she’s found that having a positive attitude makes all the difference. X-linked hypophosphatemia (XLH) is a rare, progressive, and lifelong disorder caused by low levels of phosphate in
    the bloodstream.
    Read and listen to other rare disease
    experiences at UltraRareAdvocacy.com:
    ultrarareadvoc...
    Follow us on:
    Facebook: / ultragenyx
    LinkedIn: / ultra
    genyx-pharmaceutical-inc-/
    #XLH #XlinkedHypophosphatemia #RareDisease #RareStories

Комментарии •