Thank you for your information, my niece just told me she will start Dialysis TX soon. I was able to understand how you explained this value info. God Blees you Sir.
Glad to hear the videos have been helpful in your learnings. Exacting my mission when I first started to develop content when there were not as much out there. Thanks for watching and commenting.
I'm 41 and have been on PD for a little more than four month. Doing demo would really suck for me because of the needles. I've been told you get use to it but still. PD really is better. Yes, you have to do it everyday (most people) but it gentler on the body and can be done overnight.
Long term, the best option of treatment is typically a transplant from a living or deceased donor of possible. There are ways to minimize infection risks while on PD when swimming, however non are 100% guarantee that you will not get an infection. Also with a hemo treatment in center or at home via a fistula or graft those infections risks typically associated with catheter access studies are also typically minimized as it pertains to swimming or water activities - other infections may be possible whole on dialysis. So its something you will just want to weigh out while you on dialysis.
LIFE. OF NATURE for me it did once I learned to balance my fluids in Vs.outs as to not remove too much fluids to be dehydrated or cramp. In. Addition, PD is a slower and more gentle modality of dialysis that is done more frequently per week. I was able to get back to working full time and travels after I adjusted to PD. There are some videos done on Fluid Management of this channel if you look under videos tab.
Kidney Journeys Kyle Chang thank you for the reply .I’m on home hemo dialysis an been doing hemo for about 3 year an curious about pd dialysis. I’ve been watching you video an seen your on home hemo that is awesome but wich dialysis would you chose
@@life.ofnature3043 I have done all the different modalities at one point or another since 2013, but am now post transplant coming up to 7 months post this week. You can use this tool to help you learn more about the different dialysis modalities and it will provide suggestions to further discuss with your nephrologist since a lot is about your own individual lifestyle, what is available in ways of the clinical support by where you are at, what type of an access you have. MyDialysisChoice.org I also have a video on Home Dialysis (HHD) when I was on that for a short time before transplant that you can view also. I chose PD and stayed with that for a long time to avoid getting a fistula (personal decision).
Thanks for the question. I actually made another video about swimming and bathing while on PD that you can discuss with your PD nurse or nephrologist. ruclips.net/video/XngeNdRBV7Y/видео.html
@@daemonicstar Yes, that sometimes works. Just keep in mind that they are still not 100% protection. Just risk minimization. Also, this vidoe was made back in 2019 when most of the PD patients, clinicians and nephrologists were largely saying no to any requests for water activities. Thanks for watching the video and making a comment. Hope your PD and Kidney Journey continues to go smoothly.
I guess it depends on the person. With PD you have to do treatment everyday (most people) for the rest of their life or until they get a transplant. Transplant will require taking 3 or 4 anti-rejection meds, everyday, for the rest of the patients life. Missing the meds, even once, could make the new kidney be rejected. Transplant offers more freedom of movement. You can go anywhere in the world without having to take a dialysis machine and solution bags. I for example want to take a cruise but the country where the cruise leaves from doesn't allow imports during January - March, which is when the cruise starts, so I can't have my solution imported by Baxter and it would be too much for me to put it on a plane and handle it myself.
Yes. But make sure you clean the tub well and soak the shower head and faucet in bleach for 5 minutes every week. Currently: Can also do private chlorine pool and salt water pool. Public pools are not suggested due to the amount of bacteria from other people. You can swim in the ocean or a saltwater pool. Generally private pools is preferred. You can use a little bag like an colostomy bag as they have an adhesive that makes it water proof.
Thanks for watching my videos. I am assuming you want one of the PD groups? Peritoneal Dialysis Support Group facebook.com/groups/peritonealdialysissupportgroup/?ref=bookmarks
I take it scuba diving is out of the question? If I'm not mistaken your PD site is just a hole through the skin and that's it and you rely on waterproof tape to seal the site to the water. I have a better idea that will seal the site to the pressure caused by depth and thus permit scuba diving for us. This stuff should have been developed when PD first became available decades ago. The medical profession is sleeping on the job.
Not necessarily, completely for all PD patients. When in ocean water and diving suit, there are ways to help minimize risks with protective coverings if exit site has been deemed to have healed long enough by your own PD nurse and / or nephrologist 😜
The tegaderm will fall off I tried. Do the colostomy bags and wear a one piece or you can wear a bikini and some male swimming shorts as high waisted if you trying to be cute ❤
I would say that looking "cute" and dealing with body dysmorphia which may come along with chronic illness are not always an easy balance. I tend to advocate on the safety and minizine infection risks as priority personally.
I am stage 4, not there yet but will soon be. Thank you for helping me wrap my mind around all of this
Hope you are staying healthy and doing well still 🥰🥰
Thank you
I’m doing what I can, trying to live, without living in fear 😊
Thank you for your information, my niece just told me she will start Dialysis TX soon. I was able to understand how you explained this value info. God Blees you Sir.
Glad to hear the videos have been helpful in your learnings. Exacting my mission when I first started to develop content when there were not as much out there. Thanks for watching and commenting.
Im only 46 n 5 weeks on hemo 3 x a week. Now thinking if i should do pd.
My daughter likes PD so much better than hemo. More freedom, don't feel as crappy
I'm 41 and have been on PD for a little more than four month. Doing demo would really suck for me because of the needles. I've been told you get use to it but still. PD really is better. Yes, you have to do it everyday (most people) but it gentler on the body and can be done overnight.
I actually live on a river. I have dock. I am fearful that i may never to be able swim in the river again.
Long term, the best option of treatment is typically a transplant from a living or deceased donor of possible.
There are ways to minimize infection risks while on PD when swimming, however non are 100% guarantee that you will not get an infection.
Also with a hemo treatment in center or at home via a fistula or graft those infections risks typically associated with catheter access studies are also typically minimized as it pertains to swimming or water activities - other infections may be possible whole on dialysis. So its something you will just want to weigh out while you on dialysis.
Hi does pd dialysis drain you like hemo dialysis or do you have lot of energy on pd dialysis
LIFE. OF NATURE for me it did once I learned to balance my fluids in Vs.outs as to not remove too much fluids to be dehydrated or cramp. In. Addition, PD is a slower and more gentle modality of dialysis that is done more frequently per week. I was able to get back to working full time and travels after I adjusted to PD. There are some videos done on Fluid Management of this channel if you look under videos tab.
Kidney Journeys Kyle Chang thank you for the reply .I’m on home hemo dialysis an been doing hemo for about 3 year an curious about pd dialysis. I’ve been watching you video an seen your on home hemo that is awesome but wich dialysis would you chose
@@life.ofnature3043 I have done all the different modalities at one point or another since 2013, but am now post transplant coming up to 7 months post this week. You can use this tool to help you learn more about the different dialysis modalities and it will provide suggestions to further discuss with your nephrologist since a lot is about your own individual lifestyle, what is available in ways of the clinical support by where you are at, what type of an access you have. MyDialysisChoice.org I also have a video on Home Dialysis (HHD) when I was on that for a short time before transplant that you can view also. I chose PD and stayed with that for a long time to avoid getting a fistula (personal decision).
Great info!!!
Thanks for watching!
Any tips for taking a shower? Need to make sure catheter is protected.
Thanks for the question. I actually made another video about swimming and bathing while on PD that you can discuss with your PD nurse or nephrologist. ruclips.net/video/XngeNdRBV7Y/видео.html
@@KidneyJourneys I have shower pouches. It takes catheter and covers the exit site entirely. They are usually posted out to me.
@@daemonicstar Yes, that sometimes works. Just keep in mind that they are still not 100% protection. Just risk minimization. Also, this vidoe was made back in 2019 when most of the PD patients, clinicians and nephrologists were largely saying no to any requests for water activities. Thanks for watching the video and making a comment. Hope your PD and Kidney Journey continues to go smoothly.
My friend on dyalisis for 6 years and he is thinking of PD . Is transplant better or PD?
I guess it depends on the person. With PD you have to do treatment everyday (most people) for the rest of their life or until they get a transplant. Transplant will require taking 3 or 4 anti-rejection meds, everyday, for the rest of the patients life. Missing the meds, even once, could make the new kidney be rejected. Transplant offers more freedom of movement. You can go anywhere in the world without having to take a dialysis machine and solution bags. I for example want to take a cruise but the country where the cruise leaves from doesn't allow imports during January - March, which is when the cruise starts, so I can't have my solution imported by Baxter and it would be too much for me to put it on a plane and handle it myself.
Taking shower is ok ?
Yes. I would say to still use some ExSept on the exit site afterward though.
Yes. But make sure you clean the tub well and soak the shower head and faucet in bleach for 5 minutes every week.
Currently: Can also do private chlorine pool and salt water pool.
Public pools are not suggested due to the amount of bacteria from other people.
You can swim in the ocean or a saltwater pool.
Generally private pools is preferred.
You can use a little bag like an colostomy bag as they have an adhesive that makes it water proof.
Can you give me link to FB support group?
Thanks for watching my videos. I am assuming you want one of the PD groups? Peritoneal Dialysis Support Group facebook.com/groups/peritonealdialysissupportgroup/?ref=bookmarks
I take it scuba diving is out of the question? If I'm not mistaken your PD site is just a hole through the skin and that's it and you rely on waterproof tape to seal the site to the water. I have a better idea that will seal the site to the pressure caused by depth and thus permit scuba diving for us. This stuff should have been developed when PD first became available decades ago. The medical profession is sleeping on the job.
Not necessarily, completely for all PD patients. When in ocean water and diving suit, there are ways to help minimize risks with protective coverings if exit site has been deemed to have healed long enough by your own PD nurse and / or nephrologist 😜
The tegaderm will fall off I tried. Do the colostomy bags and wear a one piece or you can wear a bikini and some male swimming shorts as high waisted if you trying to be cute ❤
I would say that looking "cute" and dealing with body dysmorphia which may come along with chronic illness are not always an easy balance. I tend to advocate on the safety and minizine infection risks as priority personally.