Documented 15 year late chronic Lyme patient, after a 18 month antibiotic/antiviral protocol and a SOT treatment a lot of symptoms have fallen off. Mentally I’m still not well, I have a MRI scheduled soon. It’s important to stay positive but also have an open mind that irreversible damage in Late patients is common. I’ve lost a lot of good years, undermined starting a family, career, very possibly learning problems all the way back to the 2nd grade (early 40’s now). It’s a terrible disease. 💚
@@stellaancimer8505 they tested me with a vibrant 2.0. Positive for Borrelia, Babesia, strep, Epstein Barr, and parvo. Im blessed with a clean MRI but I know I’m a neuroborreliosis case based on symptoms I’ve had for years. I had a IV antibiotic and an ozone treatment a few days ago, I feel better, will continue once a month.
@@donaldpasserelli3529 I was told I wasn’t a good candidate for both but originally hyperbaric was an option, stem cells was rated one of the worst on treatments. A basic Sauna rated much higher.
not all brain damage is irreversible please I urge you to get into Ketamine Therapy its repaired much of my frontal lobe damage i was once told were called Dead cells which is a farce they just damaged not dead. And Ketamine can revitalize the functions and starts within 15 secs of first use.
I recently wen't to Amen Clinic for brain scans, because my body has been giving up on my brain. For example, I can no longer MAKE myself shower, my limbs flair all about in sleep, eyes/ face twitching, forgetting names, forgetting to shut my car door till someone else realized??? Forgetting where to turn my car when I've been on route million times, loss in all perception (again On/Off all my driving life) of distance?? I found a tick crawling on me approximately a year ago, but was ignored while in hospital for 9 days past November. The Rosephen (close enough) 6 week antibiotic; treated myself last 5 weeks via PICC line at home, has made me Significantly Sicker. Well to the point that I was driven to Reston Virginia for brain scans and beginning blood tests. I know, this is in my body, not just "it's all up here"; as NP at PCP's office tried telling me.
I believe I suffer from undiagnosed Lyme disease for the past 4+ years. My doctors have mentioned it multiple times but never tested me, it's ruined my life and now I cannot work. Do you have any resources for those like me who can no longer afford to allow doctors to aimlessly guess while offering no relief?
First suggestion would be to find a clinic that specializes in treating Lyme. Their testing options will be much better. There are also several different organizations that offer grants for those needing help to treat Lyme. I would start by looking at the state level.
CHeck your blood results of any medical blood labs if your IFN-α test, Now if you already done a round of antibiotics as they do, than if you are able to clear lymes, they return to normal, however IF YOURS STAY elevated they will never go back down if your LATENT LONG TERM LYME DISEASE . THis is CDC reported and has yet to be unproven and many are trying hard to unprove this. The sources are any medical report from any blood labs you ever got, As getting these also shows when and around you contracted lymes. And can back a western dot or ELISA in conjunction with the Study for disabliltiy. WHen using a LYME disease lawyer to argue it. Its the fastes check to see if your persuing the correct path in my mind and shows I contracted in 2017 and that was when my decline started, and this is all so 2023 new research so few even know and will take years to spread the info, october 2023 for anyone researching. Of every person in the study this was so predominant as fact of 100% yet because size of the study was so small unde a 100 or something like that they say we need more, but truth is i followed up and they quickly started researching and still were able to utilize this as evidence from LLD going over the labs of their clients that indeed it was true, so if not true they are suffering just not LLD related, why i say following antibiotics is cause other infections also can raise the levels of IFN-α and reccomended not to test it for a few months as the levels taper off of those cured with ANTIS lower and lower til none after 6 months with measurable differnece detection dependable after two months, I did not get antibiotics til 4 years misdiagnosed and a heart attack so, after the antibiotics did not work i got Hep from second story lav malfuntcion in hotel that came rushing into my room thru lights qutie the signt none the less 5 months after so I had thos labs confirming that the antibiotics did not work as the elevation was their so collected my yearly bloodwork luckily that test was standard and is for many blood labs showing the elevation which is usually or for me was dismissed a spike recovering from infection and was never to alert or alarm nor compare as a marker for anythign had it stayed elevated , I will say like this tho, this needs to be implemented into medical world as computers can start flagging all misses or possible infections of Latent Lyme Disease Which they want and are now calling the official Name PTLDS and for anyone to get help or need help USING THIS TERM will help, because doctors that dont know search, and if they are not searching POST TREATMENT LYME DISEASE SYNDROME than you can and most likely will be denied health anything as far as insuance goes as it took a long time to be logged by CDC so need to go by that and use PTLDS every post we make and get a chance so those out their can get help. As well as stay updated with latest .
My son has Chronic neurological Lyme and Bartonella. He is on a whole host of antibiotics, biofilm busters, supplements and tinctures. He occasionally will go into our Swedish/infrared sauna and into our hyperbaric chamber. He has epilepsy from having untreated Lyme for so long. Can his epilepsy disappear after treatment? Is there something else he should be doing to get down the inflammation in his brain?
It sounds like you’re doing all the right things. PEMF therapy is another good option to consider. As for epilepsy, I always feel that there’s hope to reverse Lyme symptoms with proper treatment. That being said, we know it’s more complex than that and a simple yes or no doesn’t work.
I live in Virginia. None of the big universities treat Lyme. I was diagnosed with MS 23 years ago and wonder if it is really Lyme. Do you have a recommendation of anywhere to go for treatment. I truly need someone who takes insurance. I’m on disability now. Thank you!
Check with ILADS. They’re your best bet at finding a practitioner. Most don’t take insurance, though, unfortunately. There are organizations that can provide grants to help with Lyme treatment.
Hi there ... I am 62 and was diagnosed by my GP and an Internist the winter of 2021 with Fibromyalgia. I went to a Naturopath to get help with beneficial supplements and long story short she felt I had Lyme and was tested through Armin and came back positive. For about 9 months I've been on herbal antimicrobials and a host of supplements and recently started taking Mistletoe injections as my immunities are very low and have bouts of pneumonia. Over and above that my moods have not been really stable since getting ill literally overnight Nov 2020. I can function ok for the most part but do get teary, overwhelmed very easy and hard to keep focussed. If inflammation is causing this are there additional supplements that are helpful to address the brain inflammation like Curcumin? LDN? I have also been wondering if an Infrared Sauna blanket would be helpful? Any thought on these or anything else that you have found helpful in your patients? Being my age I'm also thinking I will not bounce back to my former self as someone younger
Curcumin and LDN are both helpful for inflammation. Infrared sauna is also a helpful treatment. If it were me, I'd look at LDN. PEMF therapy is another good option for inflammation. Might be worth looking at other Lyme treatment options, too.
Hey been suffering for around 20 years cant afford or get along with doctors around here. Have daily headaches vision problems muscle spasms all over joints muscles and bones hurt and ache allways from wake to when i pass out and get some sleep . Have balance issues brain fog low attention span fatigue 0 energy almost bed ridden. Any meds or anything I can do ?
There are a number of herbals and other supplements mentioned in some of my other videos that don't require prescriptions. Japanese Knotweed, Cat's Claw, Cryptolepsis, even methylene blue can be bought OTC. It's best to work with a doctor for dosing, though. Low dose naltrexone is a prescription medication that a number of practitioners use - not just Lyme practitioners.
Would you, as a Dr., request a spinal tap if you presented with a slew of Lyme Disease symptoms and co infections, at birth?? After 42 years, I have every single symptom on/off. Starting with 3 week old open heart "aortic stenosis"; 6 week old "pyloric stenosis", 6 yr old bacterial endocarditis, 16 year old Histoplasmosis, 17 year old 3rd open heart "aortic and polominary" Ross Procedure, Chronic depression, Chronic suicide attempts, chronic arthritis, chronic pain, chronic depression, chronic fatigue, chronic addiction behaviors, chronic OCD, chronic SINCE LITTLE GIRL sleep disorder, chronic inflammation everywhere, chronic mood disorder, chronic anger/ rage/ temper/ chronic severe anxiety....... Currently, I am losing my eye sight (squiggly lines can't take much if any light on/off Forever), neck horrible, suddenly "sclerosis" (ZERO FAM HISTORY!), Migraines started age 9, also on/off all my life...... Curious, what would you suggest? Spinal tap, right?
I am just very scared because I feel like I am dying, because I am. I am now going bald, cannot sleep, Ecoli in blood, bladder, spine; laundry list of Dr's and hospitals, insisting "it's all in your head". I would kill myself, I'd I thought it would work. I just need answers so I can get help.
2015 my dad got Atrial fibrillation then 2017 diagnosed with dementia today i got blood test report - "IGM ANTIBODY TO BORRELIA 3.6 " which should be less then .9 what should i do now , who is a specific dr for this ?
Pulsed Electromagnetic Field Therapy. If you do a search in your area, you’re likely to find a clinic that does it. We use Magnawave brand t our clinic, so that’s another term to search.
Just yesterday,'I had a Dr. Tell me I'm Sorry I can't help. You I was looking for answers on the flare-up I'm have due to pre lymes diagnosis now I know he was a lymes illiterate DR.
@@newhopehrc How do Ii treat this? the pressure in the head, me and my son are going through these. Thank you! We are willing to do anything to get treated.
@@LS-yf6vu The above mentioned condition - pseudotumor cerebri - typically requires treatment through neurology. Diagnosis usually requires a spinal tap. A feeling of increased pressure in the head might not actually be increased spinal fluid, though. Lyme can cause plenty of head/brain symptoms, without actually increasing the spinal fluid. It's important to get to a Lyme doctor to figure it out.
I hav been doing cereset brain reset in fargo How does this effect brain inflammation and chronic neurological Lyme Also dr Gus from Walker has found Lyme black mold and scabies So prescribed drops Ho do I Ty’e this together and do i try magnetic wave therapy
I don't know much about cereset, so can't really comment on that one. In regard to magnetic wave therapy, I'm assuming PEMF? PEMF can be quite effective at helping with brain inflammation.
@@latinotruthseeker8852 Why not? How the f... should I know? What I do know is that I was so desperate to get well that I tried it for 6 months! Nothing changed, NOTHING! But hey, if you want to drink your piss, nobody is stopping you...bottoms up.
Unfortunately, a lot of "regular" doctors don't understand it. Depending on where you're at in CA, there are Lyme clinics available. Pacific Frontier Medical in the San Francisco Bay area is a good one.
I get it! They either want to write write write, until their prescription pads empty, or explain OUR symptoms away as, "It's all up here!". They get so damn angry. Please understand, this is NOT OUR faults/failures! Rather, the medical fields INADEQUACY in treating NORMAL SICK WITH TICK BORN ILLNESS patients, such as OURSELVES.
Documented 15 year late chronic Lyme patient, after a 18 month antibiotic/antiviral protocol and a SOT treatment a lot of symptoms have fallen off. Mentally I’m still not well, I have a MRI scheduled soon. It’s important to stay positive but also have an open mind that irreversible damage in Late patients is common.
I’ve lost a lot of good years, undermined starting a family, career, very possibly learning problems all the way back to the 2nd grade (early 40’s now). It’s a terrible disease. 💚
Have you looked into hyperbaric oxygen or stem cells
Can i Ask you how they diagnose you?
@@stellaancimer8505 they tested me with a vibrant 2.0. Positive for Borrelia, Babesia, strep, Epstein Barr, and parvo.
Im blessed with a clean MRI but I know I’m a neuroborreliosis case based on symptoms I’ve had for years. I had a IV antibiotic and an ozone treatment a few days ago, I feel better, will continue once a month.
@@donaldpasserelli3529 I was told I wasn’t a good candidate for both but originally hyperbaric was an option, stem cells was rated one of the worst on treatments. A basic Sauna rated much higher.
not all brain damage is irreversible please I urge you to get into Ketamine Therapy its repaired much of my frontal lobe damage i was once told were called Dead cells which is a farce they just damaged not dead. And Ketamine can revitalize the functions and starts within 15 secs of first use.
I recently wen't to Amen Clinic for brain scans, because my body has been giving up on my brain. For example, I can no longer MAKE myself shower, my limbs flair all about in sleep, eyes/ face twitching, forgetting names, forgetting to shut my car door till someone else realized??? Forgetting where to turn my car when I've been on route million times, loss in all perception (again On/Off all my driving life) of distance??
I found a tick crawling on me approximately a year ago, but was ignored while in hospital for 9 days past November.
The Rosephen (close enough) 6 week antibiotic; treated myself last 5 weeks via PICC line at home, has made me Significantly Sicker.
Well to the point that I was driven to Reston Virginia for brain scans and beginning blood tests.
I know, this is in my body, not just "it's all up here"; as NP at PCP's office tried telling me.
I am going to continue fighting and standing up for not only Myself, but for the REST OF THE TRUTH TELLERS.
he is right i can feel the inflammation in my brain
I believe I suffer from undiagnosed Lyme disease for the past 4+ years. My doctors have mentioned it multiple times but never tested me, it's ruined my life and now I cannot work. Do you have any resources for those like me who can no longer afford to allow doctors to aimlessly guess while offering no relief?
First suggestion would be to find a clinic that specializes in treating Lyme. Their testing options will be much better. There are also several different organizations that offer grants for those needing help to treat Lyme. I would start by looking at the state level.
i have so much depression all i do is cry
LYMESTOP
CHeck your blood results of any medical blood labs if your IFN-α test, Now if you already done a round of antibiotics as they do, than if you are able to clear lymes, they return to normal, however IF YOURS STAY elevated they will never go back down if your LATENT LONG TERM LYME DISEASE . THis is CDC reported and has yet to be unproven and many are trying hard to unprove this. The sources are any medical report from any blood labs you ever got, As getting these also shows when and around you contracted lymes. And can back a western dot or ELISA in conjunction with the Study for disabliltiy. WHen using a LYME disease lawyer to argue it. Its the fastes check to see if your persuing the correct path in my mind and shows I contracted in 2017 and that was when my decline started, and this is all so 2023 new research so few even know and will take years to spread the info, october 2023 for anyone researching. Of every person in the study this was so predominant as fact of 100% yet because size of the study was so small unde a 100 or something like that they say we need more, but truth is i followed up and they quickly started researching and still were able to utilize this as evidence from LLD going over the labs of their clients that indeed it was true, so if not true they are suffering just not LLD related, why i say following antibiotics is cause other infections also can raise the levels of IFN-α and reccomended not to test it for a few months as the levels taper off of those cured with ANTIS lower and lower til none after 6 months with measurable differnece detection dependable after two months, I did not get antibiotics til 4 years misdiagnosed and a heart attack so, after the antibiotics did not work i got Hep from second story lav malfuntcion in hotel that came rushing into my room thru lights qutie the signt none the less 5 months after so I had thos labs confirming that the antibiotics did not work as the elevation was their so collected my yearly bloodwork luckily that test was standard and is for many blood labs showing the elevation which is usually or for me was dismissed a spike recovering from infection and was never to alert or alarm nor compare as a marker for anythign had it stayed elevated , I will say like this tho, this needs to be implemented into medical world as computers can start flagging all misses or possible infections of Latent Lyme Disease Which they want and are now calling the official Name PTLDS and for anyone to get help or need help USING THIS TERM will help, because doctors that dont know search, and if they are not searching POST TREATMENT LYME DISEASE SYNDROME than you can and most likely will be denied health anything as far as insuance goes as it took a long time to be logged by CDC so need to go by that and use PTLDS every post we make and get a chance so those out their can get help.
As well as stay updated with latest .
My son has Chronic neurological Lyme and Bartonella. He is on a whole host of antibiotics, biofilm busters, supplements and tinctures. He occasionally will go into our Swedish/infrared sauna and into our hyperbaric chamber. He has epilepsy from having untreated Lyme for so long. Can his epilepsy disappear after treatment? Is there something else he should be doing to get down the inflammation in his brain?
It sounds like you’re doing all the right things. PEMF therapy is another good option to consider. As for epilepsy, I always feel that there’s hope to reverse Lyme symptoms with proper treatment. That being said, we know it’s more complex than that and a simple yes or no doesn’t work.
@@newhopehrc thank you for your comment about epilepsy. I have some hope that his epilepsy will improve as he heals from Lyme and Bartonella.
I had success in the past with acupuncture
@@thecoldglassofwatershow One of my friends said the same thing. I'll check out acupuncture. Thank you.
He should start colostrum at high dose, 6 hour collected, its stronger then antibiotics
I live in Virginia. None of the big universities treat Lyme. I was diagnosed with MS 23 years ago and wonder if it is really Lyme. Do you have a recommendation of anywhere to go for treatment. I truly need someone who takes insurance. I’m on disability now. Thank you!
Check with ILADS. They’re your best bet at finding a practitioner. Most don’t take insurance, though, unfortunately. There are organizations that can provide grants to help with Lyme treatment.
Thank you for sharing. My most recent MRI revealed Sclerosis between c3 -c4
Hi there ... I am 62 and was diagnosed by my GP and an Internist the winter of 2021 with Fibromyalgia. I went to a Naturopath to get help with beneficial supplements and long story short she felt I had Lyme and was tested through Armin and came back positive. For about 9 months I've been on herbal antimicrobials and a host of supplements and recently started taking Mistletoe injections as my immunities are very low and have bouts of pneumonia. Over and above that my moods have not been really stable since getting ill literally overnight Nov 2020. I can function ok for the most part but do get teary, overwhelmed very easy and hard to keep focussed. If inflammation is causing this are there additional supplements that are helpful to address the brain inflammation like Curcumin? LDN? I have also been wondering if an Infrared Sauna blanket would be helpful? Any thought on these or anything else that you have found helpful in your patients? Being my age I'm also thinking I will not bounce back to my former self as someone younger
Curcumin and LDN are both helpful for inflammation. Infrared sauna is also a helpful treatment. If it were me, I'd look at LDN. PEMF therapy is another good option for inflammation. Might be worth looking at other Lyme treatment options, too.
My brain is like a fried egg dam Lyme
NMN and KETAMINE
Herbs and carnivore diet really helps me😊
Hey been suffering for around 20 years cant afford or get along with doctors around here. Have daily headaches vision problems muscle spasms all over joints muscles and bones hurt and ache allways from wake to when i pass out and get some sleep . Have balance issues brain fog low attention span fatigue 0 energy almost bed ridden. Any meds or anything I can do ?
There are a number of herbals and other supplements mentioned in some of my other videos that don't require prescriptions. Japanese Knotweed, Cat's Claw, Cryptolepsis, even methylene blue can be bought OTC. It's best to work with a doctor for dosing, though. Low dose naltrexone is a prescription medication that a number of practitioners use - not just Lyme practitioners.
What meds criss the brain barrier
Many of them do. Minocycline, for example, is a good antibiotic for Lyme that crosses the blood brain barrier.
Has there been any progress in understanding and treating Morgellons Disease?
I haven't heard of anything new in the past several years.
Would you, as a Dr., request a spinal tap if you presented with a slew of Lyme Disease symptoms and co infections, at birth?? After 42 years, I have every single symptom on/off. Starting with 3 week old open heart "aortic stenosis"; 6 week old "pyloric stenosis", 6 yr old bacterial endocarditis, 16 year old Histoplasmosis, 17 year old 3rd open heart "aortic and polominary" Ross Procedure, Chronic depression, Chronic suicide attempts, chronic arthritis, chronic pain, chronic depression, chronic fatigue, chronic addiction behaviors, chronic OCD, chronic SINCE LITTLE GIRL sleep disorder, chronic inflammation everywhere, chronic mood disorder, chronic anger/ rage/ temper/ chronic severe anxiety.......
Currently, I am losing my eye sight (squiggly lines can't take much if any light on/off Forever), neck horrible, suddenly "sclerosis" (ZERO FAM HISTORY!), Migraines started age 9, also on/off all my life......
Curious, what would you suggest? Spinal tap, right?
I don’t know that a spinal tap would be the right test, tbh.
@@newhopehrc suggestion then??
DNA? I recently took one via CRI Genetics. Currently, awaiting my results.
I am just very scared because I feel like I am dying, because I am. I am now going bald, cannot sleep, Ecoli in blood, bladder, spine; laundry list of Dr's and hospitals, insisting "it's all in your head".
I would kill myself, I'd I thought it would work. I just need answers so I can get help.
My family, friends, basically everyone's shunned me and chalked me up as "crazy".
2015 my dad got Atrial fibrillation then 2017 diagnosed with dementia today i got blood test report - "IGM ANTIBODY TO BORRELIA 3.6 " which should be less then .9 what should i do now , who is a specific dr for this ?
Seek out a Lyme specialist. ILADS is a good source for finding a practitioner.
Where does one get pemf ..what's that?
Pulsed Electromagnetic Field Therapy. If you do a search in your area, you’re likely to find a clinic that does it. We use Magnawave brand t our clinic, so that’s another term to search.
Anywhere in Canada that's good for testings ..seems inaccurate tests l hear
If you go to your local clinic, correct, testing is likely to be inaccurate. I would search for someone trained by ILADS.
Just yesterday,'I had a Dr. Tell me I'm Sorry I can't help. You I was looking for answers on the flare-up I'm have due to pre lymes diagnosis now I know he was a lymes illiterate DR.
It’s “Lyme”, not lymes
What are some lyme disease symptoms can you have pressure in the brain?
Yes, Lyme can cause increased pressure - a condition called pseudotumor cerebri.
@@newhopehrc How do Ii treat this? the pressure in the head, me and my son are going through these. Thank you! We are willing to do anything to get treated.
@@LS-yf6vu The above mentioned condition - pseudotumor cerebri - typically requires treatment through neurology. Diagnosis usually requires a spinal tap. A feeling of increased pressure in the head might not actually be increased spinal fluid, though. Lyme can cause plenty of head/brain symptoms, without actually increasing the spinal fluid. It's important to get to a Lyme doctor to figure it out.
I hav been doing cereset brain reset in fargo
How does this effect brain inflammation and chronic neurological Lyme
Also dr Gus from Walker has found Lyme black mold and scabies
So prescribed drops
Ho do I Ty’e this together and do i try magnetic wave therapy
I don't know much about cereset, so can't really comment on that one. In regard to magnetic wave therapy, I'm assuming PEMF? PEMF can be quite effective at helping with brain inflammation.
Urine therapy will help with something like this
Nope, it won't.
@@094340 why not?
Lol no
@@latinotruthseeker8852
Why not? How the f... should I know? What I do know is that I was so desperate to get well that I tried it for 6 months! Nothing changed, NOTHING!
But hey, if you want to drink your piss, nobody is stopping you...bottoms up.
These Dr. In California are all illiterate
I had another Dr. ask me what do you want me to do for you. SMH...
Unfortunately, a lot of "regular" doctors don't understand it. Depending on where you're at in CA, there are Lyme clinics available. Pacific Frontier Medical in the San Francisco Bay area is a good one.
I get it! They either want to write write write, until their prescription pads empty, or explain OUR symptoms away as, "It's all up here!". They get so damn angry. Please understand, this is NOT OUR faults/failures! Rather, the medical fields INADEQUACY in treating NORMAL SICK WITH TICK BORN ILLNESS patients, such as OURSELVES.
I personally, just shelled out $7,500 out of pocket; I am! You are! We are all! Better than their LACK OF REALITY!
'promo sm' ⭐
Some have found redlight therapy helpful, please talk to a doctor.