What quality of life did they expect Jaxon to have? The dad saying “he throws up and has seizures several times a day, he gets very excited though and smiles and mimics word” how DELUSIONAL, these people are sick 😭
It seems to me that the parents didn’t care about his quality of life…they were more concerned with the donations that were rolling in..for Jaxon’s “medical care”. They both quit their jobs, took about 6-8 vacations in a year’s time. High end purses and clothes for her. They each got a new car. Moved into a new house…he was a cash cow. Nothing more. And when the foundation was being investigated, the donations started drying up. So do they say “to hell with it…I love my son and I’ll take care of him for the rest of my life”…NOPE. They put him in a nursing home. Permanently. When he stopped earning his keep (donations) they had no use for him anymore. Those parents and anyone else involved in the sham should be ashamed of themselves.
@Eustace Bagge you dont know his parents or their reasoning for keeping their child, so you are way out of line for calling them horrible people. The dad has said that realistically, they know they might outlive him, and even with his medical complications they still want to give him the best life possible before that happens. That sounds like love to me.
The parents of Jaxon should be absolutely ashamed of themselves for using their child for money, fame and attention. The Facebook page is all but gone, the foundation has been closed and I’ve found multiple sources that show it was just a front for them to get more money for themselves. They made almost $180,000 from their overdrawn go fund me campaign alone. There hasn’t been anything recent to even show if poor Jaxon is still technically alive. I believe the parents separated and possibly divorced after getting fancy new clothes, cars and housing with their ill gotten gain from donations. The videos are staged where they make it look like Jaxon is walking, talking and eating. He physically can’t do any of those things. It’s cruel to keep him alive just to torture for their own gain. He’s heavily medicated and suffers near constant seizures. Each life is a gift but this is cruelty on their part. The mom didn’t even comfort him or attend to him while he was having awful seizures in the videos. They see $$$ not a kid.
Cruel to keep him alive?!! What would you do with him if you were his parent? Have him put down. If they've done wrong through this then God will deal with them. He has nearly 0 chance to survive. Most of the kids with such severe disabilities don't make it to birth or they don't live very long after their birth..there's a reason God has let this baby live. But apparently you know more than God does..You think they should put a pillow over his face, starve him? I'm scared to even imagine what you would do to him if he was your own.
Host: He was squealing when he came in. He was having a rough time. Mother: (smiling) He was excited! She is a horrible person. That poor little boy is constantly having seizures and she cheers him on like his suffering is something to be celebrated. There's a special place in hell for " Christians" like these people.
The mother might just be trying to motivate Jackson It's only that people criticize others because they don't understand that person. Meaning you Katie Johnson have taken it too far...
if you notice the mother is intently focused on every gesture the husband says and does, shes controlling the situation then when he finishes talking she does a little nod as if shes thinking yep thats okay for our image and story
Chow Chowfluffy indeed. She keeps staring at him. She is so cold. No warmth for her husband or Jaxon. Oh well, they are divorced now and the kid is in a care facility
last I heard was that the foundation was a scam, the parents separated, the mother is with someone else and the kid is seizing the days away in some institution
Most of us have more sympathy for him than his parents did. Any intelligent person sees through this spectacle and aside from the fraud part, they should have been prosecuted for child abuse and neglect after those videos they posted online.
@@CP-ir3ft I’ve seen that one. And I CANNOT find it on RUclips anymore. It’s where he’s playing with “Mr. Turtle”…it’s one of the worst seizures I’ve seen a baby have. And mom is in the background “oh my boy is so excited! He is loving his toys today! My sweet boy is so excited!”….it is pathetic. The lengths they went to to keep that money rolling in. He was nothing more than a cash cow to them.
i can’t believe their poor baby is still alive. they’re too ignorant to see that they’ve kept him alive just to suffer more and more. i would feel sympathy for them, but they’re really just taking advantage of a being who has little to no advantages in the first place. :( i really hate this is also being normalized in the eyes of the public. disgusting. edit: got updated about the situation, i have no sympathy for the parents. they used him and dumped him into a care facility, but they’re being investigated for charity fraud, so they got what they deserved,
This isn’t cute. He was suffering. They just wanted to be a special case and didn’t think about what they were causing him to deal with. Should’ve stopped the pregnancy.
The only miracle here is that he even survived so long. His life isn't a "blessing", not to him. He doesn't have a consciousness, he can't recognise stimulus, all he knows is suffering. It was cruel to knowingly bring him into the world.
So he doesn't have a consciousness, but he's suffering? Or it was "suffering" for you? Cmon, pick up your damn mind. You're nobody to tell somebody to raise or to not raise their children.
@@milicadjordjevic4498 pain is caused by nerves stimulation that's it. He had no brain , he wasn't aware of himself at all... it's science not an "opinion"
@@milicadjordjevic449820% if a brain stem, does not consciousness make, he can feel pain but other then some struggling to work body parts. There's nothing there.
Devastating for the child-he has virtually no concept of anything. What's truly abhorrent about the situation is that his monster parents have glossed over his "challenges" and used his disability to their own monetary benefit and social currency.
Curious. What would you advise them to do? Put him to sleep like an animal? Leave him in an institution? It is heartbreaking to watch - hard to watch - it appears he is suffering in some videos. But, I just don’t know what I would do in a similar situation… My niece was diagnosed with this condition before birth - we were told she drowned during delivery … we never even got to see her. It haunts me.
so explain to me the purpose of an ultrasound early in pregnancy..from my understanding this is a tool to help you make an informed and sometimes difficult decisions..im not for abortions myself, but that said I wouldn't bring such a terribly sick and possibly suffering child into the world..his parents say he's so strong, and he can do some things,..no he can't, and he has seizures all the time..
plenty of "normal" people have seizures daily, does that mean people who have seizures can't do things? I have a friend who was born missing part of their brain, and they have up pretty bloody capable. Has their own car, and a full time job. I myself have a brain malformation... Type A Non-Symptomatic Chiari Malformation.... What about those parents who have a completely normal baby in the womb but the child has full blown Autism?? There's not much difference between this child and a full blown Autistic child who is non verbal.... except the parents chose to have a child knowing they had a condition that could effect the childs life. Parents of extreme ASD chidlren, never got that choice...
It’s called “Hope” that the machine is wrong and everything will turn out just fine and if not, they put forth their faith that a miracle will take place. The patents will love him unconditionally, no matter what he looks like. LOVE is the greatest of ALL!!
debbie rogers then tell me why the parents are divorced? the sperm is spending foundations money. The uterus dumped the baby in a facility and moved out of state.
Lisa Matts Yes but these weirdos did because somehow in their pea brains I guess they thought he would grow up normal. I'm pro-life just like they are but that is one reason not to bring a child in the world and I wouldnt.
With all the money they took from strangers, the least they could have done is buy that guy a shirt that fits his big belly. I'm surprised the buttons didn't pop off during the interview.
Barney Rivera He does it on purpose. When people seriously started catching onto their scam - that Jaxon has never been able to crawl, walk, talk, eat, etc., the use of funds so both could quit their jobs, buy a new house, furniture, cars, go on multiple vacations, not donate to research like they said, he wants to appear they’re so destitute that he can’t even afford a new shirt.
@@gabe-po9yi Great point! They TRIED appear to be selfless parents who were living on nothing in order to care for Jaxon. Look how matronly Brittany looks. I can't stand how she stares daggers at Addy when he speaks. It's a relief to see him sedated here instead of "excited." RIP, Jaxon Buell. Brandon and Brittany: how do you sleep at night knowing what he endured for 5 years only to profit off of him?
Heidi Clark I saw another video where she was shooting daggers at him. It’s pretty obvious she’s resentful and possibly despises him. I’ve long had the opinion that this scam was all Addy’s idea and he talked her into it. In the early videos of Jaxon she appears hesitant to lie, is more truthful, but later on she gets right into it. She posted that one video of Jaxon seizing like crazy and screeching, which I heard Addy got very upset with her about. Maybe some subconscious hostility toward her husband.
He definitely was. The interviewer made a throwaway comment like, "he had a tumultuous morning". Jaxon was probably seizing uncontrollably so the parents doped him up
@@Karmen2010 I think Brit loves him but didnt want to possibly give birth but felt pressured to. Caring for children like Jaxon costs an astronomical amt of money. But I think she did her best and just couldnt take it anymore.
THE PARENTS ARE DIVORCED AND THEY DON'T EVEN TAKE CARE OF HIM ANYMORE..THEY USED HIS DISABILITY TO GET MONEY FROM PEOPLE. THEY BEEN INVESTIGATING THEM FOR A WHILE.
@@lisalee3837, how do you know they are divorced? How do you know they don't take care of him anymore? What are your sources? I've tried and tried to get an update, but there is very little information to be found. So unless you know the family in person, I doubt that you know what you are talking about. BTW, it is rude and desperate to scream in all caps. Just sayin'.
My cousin has had many seizures and I'll tell you what he has told me: IT. HURTS. He said that his entire body would hurt. There were times when he had no idea where he was or who anyone around him was for a couple minutes, there were times where half his body was paralyzed, or when just half his face was paralyzed. How do they know that Jaxon isn't having these types of seizures? I'm the type of person who says that unless there is a real need for an abortion (rape, incest, the mother has a high chance of dying, or the baby will live with no quality of life or in chronic pain), but I am 100% on board with assisted suicide and ending the life of someone who is a) brain dead b) dying anyway and wants to end their life on their own terms or c) cases like this. It's so obvious that while yes, this is a person and he has a soul, he has absolutely no quality of life. The videos where he's "crawling" or whatever that was looked like he was just having seizures that they managed to pass off as him moving. This poor little guy is (or should I say *was*) a huge scam! Does anyone even know if they have done tests to see if he can even respond to pain? Even people who are brain dead look like they're still alive.
I'm not even sure if he has a soul. From what I heard, he only has the parts of his brain needed for the body to survive, but nothing that is capable of supporting a conscious mind or a soul with identity. If that's true, there is likely no suffering for him... but I'm not sure if that makes the situation any better.
Yes seizures are extremely painful (I am diagnosed with a seizure disorder and suffer from major seizures frequently). On top of the fact that I have hit my head on just about everything imaginable from collapsing, and one of my first seizures I ever had was before I knew I could never drive again, and yes I did have it behind the wheel but fortunately a friend was there to grab the wheel. I have never gotten my license renewed since then, just an id. But yes, not only can you injure yourself on things, but when you come to, your are often dazed and confused, and can be very foggy in the head for quite a while after the seizure, and your muscles burn and ache tremendously when you come out of it, due to them spasming so badly. But yes they are terrible. Very very painful. Oddly enough I have gotten very good at picking out my "aura". For me, I feel like I have a head cold, like stuffy, I will get sharp painful shocks that feel like they come up my spinal cord, andi get a very strong nauseating smell of burnt coffee (imagine at an office if someone left out old coffee they made from the day before and let it just ferment. So, that). I am also high functioning autistic and for a while my family lied about it, instead letting me believe I was just a social outcast weirdo. It was not until my teen years when I found this out. My seizures came out about 5 years ago, so age 25. I suppose that is late, but if I miss a dose of my medication I know I am in for a brutal one. So I have to stay on 3 anti seizure medications (lyrica, clonazepam, toperimate and depakote, but I recently quit the depakote). I can only imagine what the seizures were like for this kid. If I am an adult and can hardly stand them I can't imagine a baby who doesn't even know what, where, or who he is and what that is like if he was able to be cognizant enough to recognize unease.
Dreadful existence. He seized from birth til death. His brain couldnt interpret the stimuli his body was experiencing. Probably sensory overload and EXTREMELY painful. Notice how he panics when in water or receiving alot of touching or hearing loud sounds or bright lights. That's his body saying "my nerves are cranked up to 11 and reality is encumbered by incredible amounts of pain." It was most likely a feedback loop like a bad dream of sensations puzzled and mashed together in a brain randonly firing off like fireworks or a psychic hedgemaze of delirum for 5 long HORRIBLE years. If he could talk he would probably curse his mother for not aborting him. I'm not cruel. His parents are. On top of the pain he seizes every 10 min or so. Like a computer constantly rebooting itself. We all need to rethink these "miracles" it is most likely that he was in a TON OF PAIN. Jaxons life was the epitome of "better off d3ad" I mean that in the most honest wholesome way ever..
A book too? They've used every avenue to milk as much money as they could from this unfortunate baby. He's their personal little winning lottery ticket.
If he was doing all they said he did this proves he is just a body with no knowledge of anything around hinhe just sits there and drools and looks at nothing and doesn't even move...
To all of you people defending the Buells and Jaxon's right to life....I challenge you to trade places with him!!!! None of you would EVER want to live that way.
Mobile Leprechaun I agree. I wouldn‘t want to be paraded around by fanatic parents, dragged into the spotlights. Everybody takes the liberty to touch him, stare into his face, talk to him. Poor thing.
Dingus Kahn his parenys have did that. he is in a care home and the parents are divorced and live in different states. they cant scam people out of money anymore
Stop Whining You are a responsible parent. The Buells on the other hand used their kid to exploit others out of money until it no longer became profitable. Even parents of kids with similar neural tube defects similar to Jaxon have spoken out against the Buells and didnt want them as the face representing them
So I wonder now that he's 6 feet under and thankfully out of his misery how the devout Christians who divorced after this was aired are doing. The cash cow is gone. Is there a fund somewhere that is still going for the couple of people with blinders on can still donate to? I would certainly hope not but nothing surprises me. Those 2 should actually be in prison for child abuse for all of the videos they made where he seized and she called it "him being so excited" and made him "perform" for the camera just to have that cash flow in. Had that cash been used for a good cause it might have been a little more excusable but it all went for the 2 devout Christian's new clothes, cars, vacations and basically and whim that they may have wanted at any given moment such as her tattoos. She failed short though when it came to doing some plastic surgery to reduce that forehead of hers. There should definitely be a place in hell for these two that used that empty shell of a child for their financial gain. I really hope they are still not capitalizing on his misfortune.
There are rumours going around the parents are fraudsters. That they divorced and Jaxon was put in a facility. It's not confirmed though and I can't find anything about it other than youtube comments.
The parents are only out for money! The kid has massive seizures and the parents dont show these! The kid is suffering like hell, being kept alive through force feeding! And the parents constantly say “smart” “smart p” The kid longs for one thing... that this medical experiment with him is stopped!
People in the comments keep saying that the parents separated and they left a baby in a home and are using the money from the fundraiser to live off of it. Idk of this is true, but hope this helps.
I can't believe this, all this cruelty to your own Baby. He is not my child and I'm crying like a Baby myself. Please tell me this is not so.. Had I been around this Precious Boy I would of Loved him like my own, and let them keep all the money the parents were to get from others because of him. This is where the love of money becomes dangerous 1 Timothy 6-10 . But Our Heavenly Father is watching. He only gives His Blessings when we are pure in heart. Not full of so much Evil towards an Innocent Little Human Being , who was so defensless. I don't want to Believe that they did have Love And Compassion For their Own Little Baby Boy Jaxson Strong. Please SOMEONE Please tell they did not use their Sweet Baby Boy Jaxson this sat
I don't know that he's sedated. He's missing most of his brain and can't really perceive the world. Newborns operate more on reflex actions than thought and if you watch enough of Jaxson's videos, you realize they're carefully crafted to create the impression he's progressing more than he really is.
bryede bryede I agree with most of your statement. However, he has almost constant seizures. When not seizing, he is crying out. I’m a pediatric nurse of 13 years. I’ve cared for similar children. He’s sedated for the interview, I believe due to the issues upon arrival at the station. The anchor says at the end, “He was squealing on his way in. He was having some trouble.”
at first i thought this kid is much more clever than parents, but considering the fact that they were using him for gaining money changes the whole game, cynical monsters
Im convinced these parents used this baby for attention and money. He’s clearly not aware of what’s happening. It’s selfish to have a baby knowing he won’t make it long, and would be suffering during that time. Maybe he’s not even suffering bc he doesn’t even know what life is supposed to entail, he doesn’t know what normal is. He doesn’t even know what IS. At least he’s no longer suffering anymore
Using the poor kids disability, to folk out money from others, just amazing. His not going to live long, so why does the parents want to see him suffer? I know i sound rude, but thats sad truth
This video is from 2016. Is this baby still alive in 2018? Also , I'm sorry that abortion or termination is so stigmatized. Since it is so, they didn't choose this it was the default option. This poor infant cannot eat without a tube, then he vomits? Which is very scary for kids. And seizes all the time. And they must continue the charade of normalcy because they never had a choice.
0:46 >>>Absolutely...it would've been BETTER for this poor little person if he shouldn't be here today Doctors say "well, pain and suffering not necessarily doesn't mean the same". Hello??? That little guy hasn't a brain which operates as some kind of "puffer" which could did the job filtering the incoming input- but hey who fkng cares about a bunch of slightly seizures every day...? THESE creatures AREN'T everything else but damn "caring & loving parents", these are monsters or in other words and more correctly, soulless entity's quite the opposite of the little boy in whose eyes one can see HIS gigantic & and strongly present soul... And hey, "Mum": is it REALLY necessary patting the (help-and defenseless) child on the head all the time...?
I just watched a video clip where the parents said he spoke a few words at 2years old including "i love you". Has anybody seen any evidence that he could speak at all? Of what i understand of his condition it would be impossible that he learned to speak. Where is the information of the controversy that the parents were abusive, using jaxon for money, using the money only for themselves, they put jaxon in a home etc? Other than people's comments on youtube videos, i haven't seen anything, i haven't spent much time looking either.
I don't think it's possible for him to speak , he only has a Brain stem and no brain . Now I'm pro life , but they should've aborted him when they noticed something wrong in the ultra sound. He didn't need to suffer for the 5 years he was alive.
1:38 “Smart baby”….ummm…he was one step up from a corpse. There was nothing smart about him. NOTHING. Because the void in his head is missing the part that would allow him to learn….these parents make me sick. Seriously. 🤢🤮
What's that tube hanging out and no he doesn't try to mimic words and he not holding his head up. Can't get the big stations to bring you on anymore good for them there sick of all your games
@Montse Used legal loopholes to hang on to every dollar of that charity money, then quit their jobs, bought a nice house, and went on exotic vacations. Jaxon's parents also ended their marriage during this time ; they kept quiet about it, because they didn't want to lose their pro-life Christians conservative mar- er, supporters. They also deleted any criticisms or questions in their Facebook group as to where the money was going, and would send their army of supporters to stalk and harass anyone who tried to expose them. Horrible, disgusting people.
@Ralph i know that..i was just saying that's what he looked like.. He looked mad and if he was regular he wouldn't talk if he was mad... I know there is noone in there.. He just lookes mad. Ok
Only 180,000. They appointed themselves employees so they can be paid what they wish frim the tax free find legally. Meanwhile they abandoned their kid once irs and the state wouldn't let them have any more funds. Pure evil
his parents are divorced & discarded him in a care facility since he wasn't making them any more money neither wanted him after they broke up meaning neither wanted him in the 1st place if they really loved him.
Wtjx....this video is OLD. How about an update....on the parents divorce....about how jaxon still cannot walk or talk, or swallow or eat, or see or hear. And he never will. How about a story about how brandon buell now owns a pretty nice house with screened in pool, how he hobknobs with pro golfers, how he vacations continuously, how he flaunts his UNEARNED wealth on his fb page for all to see. The only job it seems he has is giving speeches about his self proclaimed miracle child on the nrl circuit. And it seems, now jaxon is in a long term care facility. Show us where all the donations people made to the buells went. It is not a pretty story. They are not exactly "good" christians, as they think they are. Show us the truth instead of old fake news.
Jaxon brought inspiration? Huh? Being inspired kinda means to me that the person you’re talking about is admirable and you would like to achieve (whatever it may be) it as well someday… Who would want ANYTHING to do with what this kid has?the constant seizing? The ear-piercing screams? And not even knowing WHY he’s screaming? Is it pain? Is it part of the seizure?… These people are delusional. And that goes for every single person that had anything to do with this “foundation”. They didn’t spend a dime on funding a cure or his medical needs. They partied with that money. Mama Brittany was out buying Michael kors purse. They each got themselves a new car. They took about 6 vacations in a years time…did I mention they both quit their jobs? That kid was a cash cow for them. And when people started questioning the foundation, people quit donating. NOW he’s really useless. So they throw him in a nursing home. Permanently. He lived a physically agonizing life. Because his parents need/want for a child was more important that the quality of life for said child. The Buells were/are frauds.
Unfortunately, they may have "inspired" other couples to carry similarly disabled children to full term. And families like this absolutely "inspire" our more bullheaded Congressional critters and judges to believe that abortion should never happen, under any circumstances. 😡
Why bother with ultrasounds and diagnostic testing if you’re not going terminate an unhealthy child? I understand that a child has the right to live but this is selfishness on their part. The baby isn’t aware or thriving...WHY?!!
The poor thing still suffering , i know they love him but I dont think this ismuch of a life for him an wouldnt be happy for my son to live with daily vomiting seizures and basically not able to do much an likely never will
You notice how he keeps emphasizing on the fact that he just wrote the book to raise awareness? he keeps saying it over, and over again... There's something else going on here I think they're using their kid as a cash cow.
My daughter born 6-8-08 had this same birth defect.. She was a full term stillborn..I carried her the whole 9 months and she died in my belly...I went to all my prenatal appts,had ultrasounds and her deformity was never seen..I was devestated.. Ioved my baby sooooo much and had she lived i would have brought her home and took care if she had lived...So to all tbe ppl saying that they should have aborted is just WRONG..Until you have walked a mile in these shoes dont Judge period!
Its better like that. Be happy your kid will never suffer. Its not your fault that it died. It had to be like that sadly. But the most important thing is, that it will never suffer and have a horrible life. Your kid is not a plant. Its not an octopus. Yoir kid NEEDS a brain
The only thing I disagree with us this you wanted to give your baby a change at I've so why are you begging for money to take care of him .shame on you you know before he was born that he is what he is. He will never be any Thing more.stay out of the spot light and just live your lives like we all do .I'm tired of hearing about your need for money.you wanted him take the responsibility of taking care of him 100% without the need of us
This poor boy is missing 80% of his brain; he cannot see, hear, or express emotion, or speak for himself. In my religious belief, he is an innocent, and for his "parents" to be allowing him to exist in this state is nothing short of horrific. And to think they are profiting off him is even more frightening, and downright sickening. They should be brought up on some kind of criminal charges. I agree with so many others, in that the humane thing to do was to terminate the pregnancy; but no, the mother most likely couldn't bear the thought of losing her first (and only at this point) child - in other words, thinking selfishly, thinking of only her feelings in the matter. And they care so-called "devout Christians"?? This is just about the most un-Christian-like thing I have EVER heard!
Delusional parents. This kid was suffering from the start. If they had any sympathy they would’ve let him die within the first few days. He didn’t live any life whatsoever. He wasn’t thriving, he wasn’t conscious of anything around him and in constant pain and seizures. It’s better he’s at peace and not suffering anymore.
It is astounding to me, especially as a disabled person how many people think that that disabled people are worthless in the comments. Being different, having challenges or struggles or pain doesn't mean we are not important or don't want to be alive. Just because it is hard sometimes, doesn't mean it isn't worth it.
ferretsnax no, thats not what anyone is saying. They’re mad at how these parents are clearly being deceptive in these videos trying to say that this brainless thing is doing things that it medically and scientifically cannot do. All to entice gullible religious nuts into donating them money. THATS where all of this hatred is stemming from.
JoAnn Kirk indeed. his parents have put him in a care facility and split up since they can no longer grift or keep up with the lies. its too obvious now that he will not progress and that the parents are full of it
You'd think that if your going to be on tv that you'd wear clothes that fit properly instead of clothes to small where the buttons look like they are about to bust off any second. By the looks of his shirt, he would have struggled to get that done up.
A healthy child would make eye contact and be engaging with his parents and the presenter but this poor thing is literally a vegetable. That they are profiting off of. And the people around them including this presenter and the American tv and media, are endorsing and condoning it. The whole thing is beyond disturbing
@@WS-tj7zp You think it's natural to have nutrients injected into you? They're always trashing doctors and saying how wrong they are but they sure as heck don't mind them when it suits their narrative of Jaxon thriving. They are so very ungrateful.
They are scammers. This child hasn’t made any progress all this movement and crawling is seizures. I’m epileptic so I know. This child is suffering and they know it. They claim what a blessing he is. Yet their “blessing” was thrown in a care facility where his parents don’t even see him. They knew people were catching on that they were getting scammed and the money started disappearing and since they weren’t profiting off him anymore he was no use to them and just dumped into a facility.
What ever happened to Jaxon? Is he still alive or did he pass away? There is only 1 page left on Facebook and there's only 1 picture and a few links on it.
as far as people know he is still alive but not living with his parents who divorced & discarded him in to facility since he wasn't making them any more free money
I have had a few seizures in my life. They don't hurt but they are scary and horrible on the body. I'd like to know more about what the brain can and cannot do when limited. All parents think their baby is beautiful. Jaxon is cute. I personally don't agree with his parents for bringing him into the world when they thought he might die so early on. But they did it anyway so I can only hope he is not suffering.
To expand on my comment about seizures ; I have had about 4 grad mal seizures, which anyone could have if their threshold is low (mine being from severe exhaustion due to insomnia.) Jaxon's seizures are different. His parents give very little information as to his condition because they don't want negative press about their decision to have carried him to term. But if you want to know if he suffers...just look up 'startle seizures.' Jason's seizures are the product of startle epilepsy. More then half of people with that form of epilepsy lose movement in half of their body. So, yes, I'd say be is in pain. He can definitely hear; the seizures are from loud noise or sudden touch.
I have a feeling Jaxon is with Brittany and its been said that the "devout Christian father" took the money and ran and rarely sees his so called miracle. Brittney has a new man and a healthy baby but she, along with the newscasters were as in on the scam as Addy was. How anybody fell for this is beyond my comprehension. Some people were shocked when they found out the parents split up because they apparently saw "so much love between them" but I see no love or happiness in any video, especially this one. I see Ma staring down Addy hoping he doesn't screw up the narrative and a lot of resentment and I sense no love in this family.
@@Karmen2010 Not sure. However, all threads are saying the child was placed in Nursing home. Mom has new boyfriend and some are saying she is pregnant.
What quality of life did they expect Jaxon to have? The dad saying “he throws up and has seizures several times a day, he gets very excited though and smiles and mimics word” how DELUSIONAL, these people are sick 😭
It’s delusional to think that baby is cute. Looks like an alien baby. They’re just trying to be positive, biased maybe bc they’re it’s parents
It seems to me that the parents didn’t care about his quality of life…they were more concerned with the donations that were rolling in..for Jaxon’s “medical care”. They both quit their jobs, took about 6-8 vacations in a year’s time. High end purses and clothes for her. They each got a new car. Moved into a new house…he was a cash cow. Nothing more. And when the foundation was being investigated, the donations started drying up. So do they say “to hell with it…I love my son and I’ll take care of him for the rest of my life”…NOPE. They put him in a nursing home. Permanently. When he stopped earning his keep (donations) they had no use for him anymore.
Those parents and anyone else involved in the sham should be ashamed of themselves.
@@user-bn4np2qz3tама че си идиот! И ти и тази коментиращата.
@@missyann7588they divorced as well. He passed away at age 5. Poor kid did not even know he was alive.
@missy are you serious???
OMG!He throws up several times a day? Has seizures several times a day? Why on earth would you do this to a living being?
Probably cuz his equilibrium is out of whack... 😿
Poor baby is only a brain stem
Alec Daniel yeah he literally cant interpret the world around him. doubt he even knows his parents.
He smiles several times a day . It takes love to be his parents , you would not have what it takes .
@Eustace Bagge you dont know his parents or their reasoning for keeping their child, so you are way out of line for calling them horrible people. The dad has said that realistically, they know they might outlive him, and even with his medical complications they still want to give him the best life possible before that happens. That sounds like love to me.
@@heatherhersh1291 i totally agree with you.
The parents of Jaxon should be absolutely ashamed of themselves for using their child for money, fame and attention. The Facebook page is all but gone, the foundation has been closed and I’ve found multiple sources that show it was just a front for them to get more money for themselves. They made almost $180,000 from their overdrawn go fund me campaign alone. There hasn’t been anything recent to even show if poor Jaxon is still technically alive. I believe the parents separated and possibly divorced after getting fancy new clothes, cars and housing with their ill gotten gain from donations. The videos are staged where they make it look like Jaxon is walking, talking and eating. He physically can’t do any of those things. It’s cruel to keep him alive just to torture for their own gain. He’s heavily medicated and suffers near constant seizures. Each life is a gift but this is cruelty on their part. The mom didn’t even comfort him or attend to him while he was having awful seizures in the videos. They see $$$ not a kid.
Cruel to keep him alive?!! What would you do with him if you were his parent? Have him put down. If they've done wrong through this then God will deal with them. He has nearly 0 chance to survive. Most of the kids with such severe disabilities don't make it to birth or they don't live very long after their birth..there's a reason God has let this baby live. But apparently you know more than God does..You think they should put a pillow over his face, starve him? I'm scared to even imagine what you would do to him if he was your own.
They left him in a facility
I can't find any sources to confirm what you are saying. Where did you find this info?
swampratzozzle electronic footprints the mothers Twitter, and Facebook and the fathers facebook
You are pathetic.
Host: He was squealing when he came in. He was having a rough time.
Mother: (smiling) He was excited!
She is a horrible person. That poor little boy is constantly having seizures and she cheers him on like his suffering is something to be celebrated. There's a special place in hell for " Christians" like these people.
They useing the baby for attention
Does your mother know your using her account?
@@NauticalNinja oof
The mother might just be trying to motivate Jackson
It's only that people criticize others because they don't understand that person.
Meaning you Katie Johnson have taken it too far...
Exactly, that child was just suffering, it is pretty evident in the clips.
This is disgusting. They're using this kid for donations, they don't work anymore and are always on vacation. Cruel and selfish punishment.
if you notice the mother is intently focused on every gesture the husband says and does, shes controlling the situation then when he finishes talking she does a little nod as if shes thinking yep thats okay for our image and story
Chow Chowfluffy indeed. She keeps staring at him. She is so cold. No warmth for her husband or Jaxon. Oh well, they are divorced now and the kid is in a care facility
MsFlamingFlamer cant believe that. so sad
She's like that in all of their videos. People are blind if they don't notice something is so off about these two.
last I heard was that the foundation was a scam, the parents separated, the mother is with someone else and the kid is seizing the days away in some institution
Strangers in this comment section love that baby more than his parents do.
Most of us have more sympathy for him than his parents did. Any intelligent person sees through this spectacle and aside from the fraud part, they should have been prosecuted for child abuse and neglect after those videos they posted online.
@@Karmen2010 Child abuse and neglect??
What videos??
@@TradBarbie in some videos he's seen "playing" when in reality he was having seizures.
@@CP-ir3ft
I’ve seen that one. And I CANNOT find it on RUclips anymore. It’s where he’s playing with “Mr. Turtle”…it’s one of the worst seizures I’ve seen a baby have. And mom is in the background “oh my boy is so excited! He is loving his toys today! My sweet boy is so excited!”….it is pathetic. The lengths they went to to keep that money rolling in. He was nothing more than a cash cow to them.
i can’t believe their poor baby is still alive. they’re too ignorant to see that they’ve kept him alive just to suffer more and more.
i would feel sympathy for them, but they’re really just taking advantage of a being who has little to no advantages in the first place.
:( i really hate this is also being normalized in the eyes of the public. disgusting.
edit: got updated about the situation, i have no sympathy for the parents. they used him and dumped him into a care facility, but they’re being investigated for charity fraud, so they got what they deserved,
Wait, they put him in a facility ?😮 I'm just reading up on this because I wondered what happened to him 😢
0:36 "every single breath he takes is..."
Me: SUFFERING?
Narrator: a blessing :D
Me: oh...
There is nothing going on behind his eyes. Zero. Nada. He's a shell of a human. Very selfish parents.
This isn’t cute. He was suffering. They just wanted to be a special case and didn’t think about what they were causing him to deal with. Should’ve stopped the pregnancy.
The only miracle here is that he even survived so long. His life isn't a "blessing", not to him. He doesn't have a consciousness, he can't recognise stimulus, all he knows is suffering. It was cruel to knowingly bring him into the world.
So he doesn't have a consciousness, but he's suffering? Or it was "suffering" for you? Cmon, pick up your damn mind. You're nobody to tell somebody to raise or to not raise their children.
@@milicadjordjevic4498 pain is caused by nerves stimulation that's it. He had no brain , he wasn't aware of himself at all... it's science not an "opinion"
I heard that he actually can recognise stimulus.
@@milicadjordjevic449820% if a brain stem, does not consciousness make, he can feel pain but other then some struggling to work body parts. There's nothing there.
Aparently, jaxon had a seizure on stage and the mother covered his hands with a blanket and held his hands down...
Sound rite
I'd believe it, but it doesn't look like he's having a seizure.
Orribile ..che crudeltà ..che totale mancanza di amore ..😢😢😢
Devastating for the child-he has virtually no concept of anything. What's truly abhorrent about the situation is that his monster parents have glossed over his "challenges" and used his disability to their own monetary benefit and social currency.
Curious. What would you advise them to do? Put him to sleep like an animal? Leave him in an institution?
It is heartbreaking to watch - hard to watch - it appears he is suffering in some videos. But, I just don’t know what I would do in a similar situation…
My niece was diagnosed with this condition before birth - we were told she drowned during delivery … we never even got to see her. It haunts me.
I agree, saying stuff like he throws up and has seizures multiple times a day just makes me wish they would end the suffering. it does seem cruel
The only monster here is you
His head just about flopped back like a raggedy Ann doll, and the mother doesn’t even try to catch his head. Sickening. 😡🤬
so explain to me the purpose of an ultrasound early in pregnancy..from my understanding this is a tool to help you make an informed and sometimes difficult decisions..im not for abortions myself, but that said I wouldn't bring such a terribly sick and possibly suffering child into the world..his parents say he's so strong, and he can do some things,..no he can't, and he has seizures all the time..
plenty of "normal" people have seizures daily, does that mean people who have seizures can't do things?
I have a friend who was born missing part of their brain, and they have up pretty bloody capable. Has their own car, and a full time job. I myself have a brain malformation... Type A Non-Symptomatic Chiari Malformation....
What about those parents who have a completely normal baby in the womb but the child has full blown Autism??
There's not much difference between this child and a full blown Autistic child who is non verbal.... except the parents chose to have a child knowing they had a condition that could effect the childs life. Parents of extreme ASD chidlren, never got that choice...
It’s called “Hope” that the machine is wrong and everything will turn out just fine and if not, they put forth their faith that a miracle will take place. The patents will love him unconditionally, no matter what he looks like. LOVE is the greatest of ALL!!
debbie rogers then tell me why the parents are divorced? the sperm is spending foundations money. The uterus dumped the baby in a facility and moved out of state.
debbie rogers it would a perfect world if love was enough. Respect , Empty and to put our selfish feelings a side is what love is
Lisa Matts Yes but these weirdos did because somehow in their pea brains I guess they thought he would grow up normal. I'm pro-life just like they are but that is one reason not to bring a child in the world and I wouldnt.
mom found out something was wrong at 17 weeks...these parents are literally insane!
if she’s insane then so are all the lawmakers removing the option of abortion in all cases.
With all the money they took from strangers, the least they could have done is buy that guy a shirt that fits his big belly. I'm surprised the buttons didn't pop off during the interview.
Barney Rivera These people are an absolute disgrace! People need to do their homework before throwing their money to strangers
Barney Rivera He does it on purpose. When people seriously started catching onto their scam - that Jaxon has never been able to crawl, walk, talk, eat, etc., the use of funds so both could quit their jobs, buy a new house, furniture, cars, go on multiple vacations, not donate to research like they said, he wants to appear they’re so destitute that he can’t even afford a new shirt.
@@gabe-po9yi Great point! They TRIED appear to be selfless parents who were living on nothing in order to care for Jaxon. Look how matronly Brittany looks. I can't stand how she stares daggers at Addy when he speaks. It's a relief to see him sedated here instead of "excited." RIP, Jaxon Buell. Brandon and Brittany: how do you sleep at night knowing what he endured for 5 years only to profit off of him?
Heidi Clark I saw another video where she was shooting daggers at him. It’s pretty obvious she’s resentful and possibly despises him. I’ve long had the opinion that this scam was all Addy’s idea and he talked her into it. In the early videos of Jaxon she appears hesitant to lie, is more truthful, but later on she gets right into it. She posted that one video of Jaxon seizing like crazy and screeching, which I heard Addy got very upset with her about. Maybe some subconscious hostility toward her husband.
This makes me very uncomfortable. The baby is not a miracle. The poor thing is suffering, it's appalling.
The pro-life community never fails to amuse.
Its like having doll that breathe. I dont think they did good thing, he might be suffering.
It’s a creepy doll that seizes and pukes...
I am not joking , Jaxon passed away at april first at just 5 years old :(
He was probably sedated for the interview
He definitely was. The interviewer made a throwaway comment like, "he had a tumultuous morning". Jaxon was probably seizing uncontrollably so the parents doped him up
Why dont they tell the truth the child will never smile or cry and wont grow a brain even if this child reaches 18 years old.
The truth isn't exactly their MO.
Tjey love him but no parent wants to go through this
@@Karmen2010 I think Brit loves him but didnt want to possibly give birth but felt pressured to. Caring for children like Jaxon costs an astronomical amt of money. But I think she did her best and just couldnt take it anymore.
THE PARENTS ARE DIVORCED AND THEY DON'T EVEN TAKE CARE OF HIM ANYMORE..THEY USED HIS DISABILITY TO GET MONEY FROM PEOPLE. THEY BEEN INVESTIGATING THEM FOR A WHILE.
@@lisalee3837, how do you know they are divorced? How do you know they don't take care of him anymore? What are your sources? I've tried and tried to get an update, but there is very little information to be found. So unless you know the family in person, I doubt that you know what you are talking about. BTW, it is rude and desperate to scream in all caps. Just sayin'.
My cousin has had many seizures and I'll tell you what he has told me: IT. HURTS. He said that his entire body would hurt. There were times when he had no idea where he was or who anyone around him was for a couple minutes, there were times where half his body was paralyzed, or when just half his face was paralyzed. How do they know that Jaxon isn't having these types of seizures? I'm the type of person who says that unless there is a real need for an abortion (rape, incest, the mother has a high chance of dying, or the baby will live with no quality of life or in chronic pain), but I am 100% on board with assisted suicide and ending the life of someone who is a) brain dead b) dying anyway and wants to end their life on their own terms or c) cases like this.
It's so obvious that while yes, this is a person and he has a soul, he has absolutely no quality of life. The videos where he's "crawling" or whatever that was looked like he was just having seizures that they managed to pass off as him moving. This poor little guy is (or should I say *was*) a huge scam! Does anyone even know if they have done tests to see if he can even respond to pain? Even people who are brain dead look like they're still alive.
I'm not even sure if he has a soul. From what I heard, he only has the parts of his brain needed for the body to survive, but nothing that is capable of supporting a conscious mind or a soul with identity.
If that's true, there is likely no suffering for him... but I'm not sure if that makes the situation any better.
Jared Gross
He cried once, but because of pain and seizures.
Yes seizures are extremely painful (I am diagnosed with a seizure disorder and suffer from major seizures frequently). On top of the fact that I have hit my head on just about everything imaginable from collapsing, and one of my first seizures I ever had was before I knew I could never drive again, and yes I did have it behind the wheel but fortunately a friend was there to grab the wheel. I have never gotten my license renewed since then, just an id. But yes, not only can you injure yourself on things, but when you come to, your are often dazed and confused, and can be very foggy in the head for quite a while after the seizure, and your muscles burn and ache tremendously when you come out of it, due to them spasming so badly. But yes they are terrible. Very very painful. Oddly enough I have gotten very good at picking out my "aura". For me, I feel like I have a head cold, like stuffy, I will get sharp painful shocks that feel like they come up my spinal cord, andi get a very strong nauseating smell of burnt coffee (imagine at an office if someone left out old coffee they made from the day before and let it just ferment. So, that). I am also high functioning autistic and for a while my family lied about it, instead letting me believe I was just a social outcast weirdo. It was not until my teen years when I found this out. My seizures came out about 5 years ago, so age 25. I suppose that is late, but if I miss a dose of my medication I know I am in for a brutal one. So I have to stay on 3 anti seizure medications (lyrica, clonazepam, toperimate and depakote, but I recently quit the depakote). I can only imagine what the seizures were like for this kid. If I am an adult and can hardly stand them I can't imagine a baby who doesn't even know what, where, or who he is and what that is like if he was able to be cognizant enough to recognize unease.
If they weren't intervening with drugs, he would have passed peacefully already.
Dreadful existence. He seized from birth til death. His brain couldnt interpret the stimuli his body was experiencing. Probably sensory overload and EXTREMELY painful. Notice how he panics when in water or receiving alot of touching or hearing loud sounds or bright lights. That's his body saying "my nerves are cranked up to 11 and reality is encumbered by incredible amounts of pain." It was most likely a feedback loop like a bad dream of sensations puzzled and mashed together in a brain randonly firing off like fireworks or a psychic hedgemaze of delirum for 5 long HORRIBLE years. If he could talk he would probably curse his mother for not aborting him. I'm not cruel. His parents are. On top of the pain he seizes every 10 min or so. Like a computer constantly rebooting itself. We all need to rethink these "miracles" it is most likely that he was in a TON OF PAIN. Jaxons life was the epitome of "better off d3ad" I mean that in the most honest wholesome way ever..
A book too? They've used every avenue to milk as much money as they could from this unfortunate baby. He's their personal little winning lottery ticket.
If he was doing all they said he did this proves he is just a body with no knowledge of anything around hinhe just sits there and drools and looks at nothing and doesn't even move...
DITO!
To all of you people defending the Buells and Jaxon's right to life....I challenge you to trade places with him!!!! None of you would EVER want to live that way.
I challenge these Buell defenders to adopt a kid like Jaxon & not profit from him
Mobile Leprechaun I agree. I wouldn‘t want to be paraded around by fanatic parents, dragged into the spotlights. Everybody takes the liberty to touch him, stare into his face, talk to him. Poor thing.
To be honest, I want the kid to live, but I just want someone to put him in a home where he isn’t cared for by his douchebags of parents
Dingus Kahn his parenys have did that. he is in a care home and the parents are divorced and live in different states. they cant scam people out of money anymore
Stop Whining You are a responsible parent. The Buells on the other hand used their kid to exploit others out of money until it no longer became profitable. Even parents of kids with similar neural tube defects similar to Jaxon have spoken out against the Buells and didnt want them as the face representing them
So I wonder now that he's 6 feet under and thankfully out of his misery how the devout Christians who divorced after this was aired are doing. The cash cow is gone. Is there a fund somewhere that is still going for the couple of people with blinders on can still donate to? I would certainly hope not but nothing surprises me. Those 2 should actually be in prison for child abuse for all of the videos they made where he seized and she called it "him being so excited" and made him "perform" for the camera just to have that cash flow in. Had that cash been used for a good cause it might have been a little more excusable but it all went for the 2 devout Christian's new clothes, cars, vacations and basically and whim that they may have wanted at any given moment such as her tattoos. She failed short though when it came to doing some plastic surgery to reduce that forehead of hers. There should definitely be a place in hell for these two that used that empty shell of a child for their financial gain. I really hope they are still not capitalizing on his misfortune.
I'm wondering if he's still alive l can't find anything on him and the Facebook page was abandoned over a year ago nobody seems to know anything.
There are rumours going around the parents are fraudsters. That they divorced and Jaxon was put in a facility. It's not confirmed though and I can't find anything about it other than youtube comments.
He died Wednesday
@@tanyashearer4374 oh dear. Thank you for letting me know.
The parents are only out for money!
The kid has massive seizures and the parents dont show these!
The kid is suffering like hell, being kept alive through force feeding!
And the parents constantly say “smart” “smart p”
The kid longs for one thing... that this medical experiment with him is stopped!
What makes these people think that “playing God” doesn’t involve creating life, not just ending it? Lmao
ella tracy well not when it is natural creation. but forcing food into him and forcing him to live seizing and vomitting just so aweful.
Yes very well said.
Yes both of you bring up such a great point.
This is highly disturbing.These “devout Christian parents” have divorced.
he will be 4 in August. Is he still alive? we haven’t really seen or heard anything since he was 2 1/2.
People in the comments keep saying that the parents separated and they left a baby in a home and are using the money from the fundraiser to live off of it. Idk of this is true, but hope this helps.
@@ava-mj5tc oh god that's so evil wow
He died Wednesday
@@tanyashearer4374 is there an article somewhere?
@@lisashields2513 yes let me find the link
This is ethically inadmissible
Every time she says "Buddy" it's like nails on a chalkboard.
I can't believe this, all this cruelty to your own Baby. He is not my child and I'm crying like a Baby myself. Please tell me this is not so.. Had I been around this Precious Boy I would of Loved him like my own, and let them keep all the money the parents were to get from others because of him. This is where the love of money becomes dangerous 1 Timothy 6-10 . But Our Heavenly Father is watching. He only gives His Blessings when we are pure in heart. Not full of so much Evil towards an Innocent Little Human Being , who was so defensless. I don't want to Believe that they did have Love And Compassion For their Own Little Baby Boy Jaxson Strong. Please SOMEONE Please tell they did not use their Sweet Baby Boy Jaxson this sat
That poor anchorman, you can tell how awkward he feels! He was holding on to that table for dear life!
No, he's neck deep in the scam as well. He knows exactly what's going on. It's all for the money.
This child is so obviously sedated. The whole situation is incredibly disheartening.
Amberger Helper That’s exactly what I was thinking. His parents are sick.
I don't know that he's sedated. He's missing most of his brain and can't really perceive the world. Newborns operate more on reflex actions than thought and if you watch enough of Jaxson's videos, you realize they're carefully crafted to create the impression he's progressing more than he really is.
bryede bryede I agree with most of your statement. However, he has almost constant seizures. When not seizing, he is crying out. I’m a pediatric nurse of 13 years. I’ve cared for similar children. He’s sedated for the interview, I believe due to the issues upon arrival at the station. The anchor says at the end, “He was squealing on his way in. He was having some trouble.”
I think you're right 🤔 How awful!
They had to dope him up because he has painful seizures constantly. That wouldn't fit their story during the interview.
He passed away last April 20th 2020. RIP
He passed on the 1st. But still RIP.
Wow. He died when Hitler was born. Kewl!
This is so beyond evil.
at first i thought this kid is much more clever than parents, but considering the fact that they were using him for gaining money changes the whole game, cynical monsters
He’s so sedated in this clip, I’m surprised he even has his “ eyes” open.
The child is suffering...
Here For the ride How so?
@@gwynnethsmith9226 can't even swallow to save from choking...that's one way. Want a list of others?
@@gwynnethsmith9226 you're kidding right?
Im convinced these parents used this baby for attention and money. He’s clearly not aware of what’s happening. It’s selfish to have a baby knowing he won’t make it long, and would be suffering during that time. Maybe he’s not even suffering bc he doesn’t even know what life is supposed to entail, he doesn’t know what normal is. He doesn’t even know what IS. At least he’s no longer suffering anymore
Using the poor kids disability, to folk out money from others, just amazing. His not going to live long, so why does the parents want to see him suffer?
I know i sound rude, but thats sad truth
Same reason that your parents didn’t give up you
@@jinseogo3338 Pinky's parents didn't see 💲💲💲💲💲 on his ultrasound like Jaxon's did.
This video is from 2016. Is this baby still alive in 2018? Also , I'm sorry that abortion or termination is so stigmatized. Since it is so, they didn't choose this it was the default option. This poor infant cannot eat without a tube, then he vomits? Which is very scary for kids. And seizes all the time. And they must continue the charade of normalcy because they never had a choice.
0:46 >>>Absolutely...it would've been BETTER for this poor little person if he shouldn't be here today
Doctors say "well, pain and suffering not necessarily doesn't mean the same". Hello??? That little guy hasn't a brain which operates as some kind of "puffer" which could did the job filtering the incoming input- but hey who fkng cares about a bunch of slightly seizures every day...?
THESE creatures AREN'T everything else but damn "caring & loving parents", these are monsters or in other words and more correctly, soulless entity's quite the opposite of the little boy in whose eyes one can see HIS gigantic & and strongly present soul...
And hey, "Mum": is it REALLY necessary patting the (help-and defenseless) child on the head all the time...?
He is doing NOTHING. Everything they have said is a lie!!!!!!
Is he still alive in 2019
Denise Nicole
they will keep him alive for as long as they can earn money from him.
When he doesnt bring in money, he will die... believe it.
Yes. But in a care home. Parents divorced.
He died Wednesday
The videos of him are a bit strange to watch I think there’s something else going on...
Brittany & Brandon Buell put their son Jaxon in a facility cause they could not care for him. They also divorced. Very Christian of them....
Poor child. He looks highly medicated
I just watched a video clip where the parents said he spoke a few words at 2years old including "i love you". Has anybody seen any evidence that he could speak at all?
Of what i understand of his condition it would be impossible that he learned to speak.
Where is the information of the controversy that the parents were abusive, using jaxon for money, using the money only for themselves, they put jaxon in a home etc? Other than people's comments on youtube videos, i haven't seen anything, i haven't spent much time looking either.
I don't think it's possible for him to speak , he only has a Brain stem and no brain . Now I'm pro life , but they should've aborted him when they noticed something wrong in the ultra sound. He didn't need to suffer for the 5 years he was alive.
1:38
“Smart baby”….ummm…he was one step up from a corpse. There was nothing smart about him. NOTHING. Because the void in his head is missing the part that would allow him to learn….these parents make me sick. Seriously. 🤢🤮
Imagine being so cruel and selfish in your ways you could justify giving birth to something like that and condemning them to a “life” of suffering.
What's that tube hanging out and no he doesn't try to mimic words and he not holding his head up. Can't get the big stations to bring you on anymore good for them there sick of all your games
It's a feeding tube, he can't swallow.
Can’t help but wonder what all these media types that worshipped the scam artists think of them now.
Vic Molucci, the reporter in this video, is a friend of theirs.
@Montse Used legal loopholes to hang on to every dollar of that charity money, then quit their jobs, bought a nice house, and went on exotic vacations. Jaxon's parents also ended their marriage during this time ; they kept quiet about it, because they didn't want to lose their pro-life Christians conservative mar- er, supporters. They also deleted any criticisms or questions in their Facebook group as to where the money was going, and would send their army of supporters to stalk and harass anyone who tried to expose them.
Horrible, disgusting people.
In this video he looks like he did something bad and his parents yelled and punished him and now he's upset and mad ..
@Ralph i know that..i was just saying that's what he looked like.. He looked mad and if he was regular he wouldn't talk if he was mad... I know there is noone in there.. He just lookes mad. Ok
Theyre pocketing funds. I gurantee it
Only 180,000. They appointed themselves employees so they can be paid what they wish frim the tax free find legally. Meanwhile they abandoned their kid once irs and the state wouldn't let them have any more funds. Pure evil
Batznblkcatz where is your proof they abandoned him? Everyone is saying that yet there is no sources anywhere
how much medication is the poor kid on here??? they really drugged up him for the interview so he would stop crying. SICK!!
They probably sedated him so he wouldn't have constant seizures. Without a functioning brain, severe epilepsy is almost inevitable.
Playing god is also keeping him alive with meds every day
He passed on April 1 😭
@@eddie_taco2350 yeah i know. Finally hes free from pain
They blew this money on vacations and new cars and split after this. Look how controlling she seems
Yeah these people are just seeing a way to make some money off of his suffering
I followed Jaxon,was wondering how he was doing,cant find on FaceBook,hope he is well
his parents are divorced & discarded him in a care facility since he wasn't making them any more money neither wanted him after they broke up meaning neither wanted him in the 1st place if they really loved him.
He died Wednesday
Wtjx....this video is OLD. How about an update....on the parents divorce....about how jaxon still cannot walk or talk, or swallow or eat, or see or hear. And he never will. How about a story about how brandon buell now owns a pretty nice house with screened in pool, how he hobknobs with pro golfers, how he vacations continuously, how he flaunts his UNEARNED wealth on his fb page for all to see. The only job it seems he has is giving speeches about his self proclaimed miracle child on the nrl circuit. And it seems, now jaxon is in a long term care facility. Show us where all the donations people made to the buells went. It is not a pretty story. They are not exactly "good" christians, as they think they are. Show us the truth instead of old fake news.
Jaxon brought inspiration? Huh? Being inspired kinda means to me that the person you’re talking about is admirable and you would like to achieve (whatever it may be) it as well someday…
Who would want ANYTHING to do with what this kid has?the constant seizing? The ear-piercing screams? And not even knowing WHY he’s screaming? Is it pain? Is it part of the seizure?…
These people are delusional. And that goes for every single person that had anything to do with this “foundation”. They didn’t spend a dime on funding a cure or his medical needs. They partied with that money. Mama Brittany was out buying Michael kors purse. They each got themselves a new car. They took about 6 vacations in a years time…did I mention they both quit their jobs? That kid was a cash cow for them. And when people started questioning the foundation, people quit donating. NOW he’s really useless. So they throw him in a nursing home. Permanently. He lived a physically agonizing life. Because his parents need/want for a child was more important that the quality of life for said child.
The Buells were/are frauds.
Unfortunately, they may have "inspired" other couples to carry similarly disabled children to full term. And families like this absolutely "inspire" our more bullheaded Congressional critters and judges to believe that abortion should never happen, under any circumstances. 😡
Why bother with ultrasounds and diagnostic testing if you’re not going terminate an unhealthy child? I understand that a child has the right to live but this is selfishness on their part. The baby isn’t aware or thriving...WHY?!!
The poor thing still suffering , i know they love him but I dont think this ismuch of a life for him an wouldnt be happy for my son to live with daily vomiting seizures and basically not able to do much an likely never will
Poor little Munster looks like a baby Yoda on Xanax in her lap. With no abilities to use the force of course.
You notice how he keeps emphasizing on the fact that he just wrote the book to raise awareness? he keeps saying it over, and over again... There's something else going on here I think they're using their kid as a cash cow.
They did use him as a cash cow. Their gofundme was revealed as a scam and shut down.
If he doesn’t have a brain, is he even human? Like there’s no consciousness I’m pretty sure
He won't have a consciousness. He won't be able to comprehend anything, let alone his sense of self.
My daughter born 6-8-08 had this same birth defect.. She was a full term stillborn..I carried her the whole 9 months and she died in my belly...I went to all my prenatal appts,had ultrasounds and her deformity was never seen..I was devestated.. Ioved my baby sooooo much and had she lived i would have brought her home and took care if she had lived...So to all tbe ppl saying that they should have aborted is just WRONG..Until you have walked a mile in these shoes dont Judge period!
Its better like that. Be happy your kid will never suffer. Its not your fault that it died. It had to be like that sadly. But the most important thing is, that it will never suffer and have a horrible life. Your kid is not a plant. Its not an octopus. Yoir kid NEEDS a brain
Thank you ❤️
Is Jaxon doing OK? Haven’t heard a word for months…
Pam Asmus I heard the parents got a divorce
and his mom put Jaxon in a permanent medical facility in Florida then moved out of state...from what is written by others recently
Pam Asmus - the twit was never "okay."
Groovy Taterbug 😱
Rose Cardigan I'm absolutely shocked and so sad. At least visit him
The only thing I disagree with us this you wanted to give your baby a change at I've so why are you begging for money to take care of him .shame on you you know before he was born that he is what he is. He will never be any
Thing more.stay out of the spot light and just live your lives like we all do .I'm tired of hearing about your need for money.you wanted him take the responsibility of taking care of him 100% without the need of us
Too much inbreeding behind the cowshed
Nice thing to say for a Christian 🤡
Jaxon died in 2020
This poor boy is missing 80% of his brain; he cannot see, hear, or express emotion, or speak for himself. In my religious belief, he is an innocent, and for his "parents" to be allowing him to exist in this state is nothing short of horrific. And to think they are profiting off him is even more frightening, and downright sickening. They should be brought up on some kind of criminal charges. I agree with so many others, in that the humane thing to do was to terminate the pregnancy; but no, the mother most likely couldn't bear the thought of losing her first (and only at this point) child - in other words, thinking selfishly, thinking of only her feelings in the matter. And they care so-called "devout Christians"?? This is just about the most un-Christian-like thing I have EVER heard!
Damn, he can’t even see or hear? I didn’t know that.
😊
At least he’s free now. That is the saddest thing
Delusional parents. This kid was suffering from the start. If they had any sympathy they would’ve let him die within the first few days. He didn’t live any life whatsoever. He wasn’t thriving, he wasn’t conscious of anything around him and in constant pain and seizures. It’s better he’s at peace and not suffering anymore.
It is astounding to me, especially as a disabled person how many people think that that disabled people are worthless in the comments. Being different, having challenges or struggles or pain doesn't mean we are not important or don't want to be alive. Just because it is hard sometimes, doesn't mean it isn't worth it.
ferretsnax no, thats not what anyone is saying. They’re mad at how these parents are clearly being deceptive in these videos trying to say that this brainless thing is doing things that it medically and scientifically cannot do. All to entice gullible religious nuts into donating them money. THATS where all of this hatred is stemming from.
This is old news he is now almost 4. Not 2.
JoAnn Kirk indeed. his parents have put him in a care facility and split up since they can no longer grift or keep up with the lies. its too obvious now that he will not progress and that the parents are full of it
I’m curious, does Jackson Only Have a brainstem?
Yes.
You'd think that if your going to be on tv that you'd wear clothes that fit properly instead of clothes to small where the buttons look like they are about to bust off any second. By the looks of his shirt, he would have struggled to get that done up.
They're white trash. Couldn't be bothered.
A healthy child would make eye contact and be engaging with his parents and the presenter but this poor thing is literally a vegetable. That they are profiting off of. And the people around them including this presenter and the American tv and media, are endorsing and condoning it. The whole thing is beyond disturbing
How can you give this a chance !!!!!!!! Poor poor baby.... selfish parents!!!!!!!
"We don't play God" yet you keep it alive by feeding it thru feeding tube everyday...
Why are you calling him an It?
You feed yourself too to stay alive. Neither you or them is "playing God".
@@WS-tj7zp You think it's natural to have nutrients injected into you? They're always trashing doctors and saying how wrong they are but they sure as heck don't mind them when it suits their narrative of Jaxon thriving. They are so very ungrateful.
Selling books and lapping up the attention and lime light such genuine parents of this poor young boy!
They are scammers. This child hasn’t made any progress all this movement and crawling is seizures. I’m epileptic so I know. This child is suffering and they know it. They claim what a blessing he is. Yet their “blessing” was thrown in a care facility where his parents don’t even see him. They knew people were catching on that they were getting scammed and the money started disappearing and since they weren’t profiting off him anymore he was no use to them and just dumped into a facility.
The lights are on, but there's nobody home.
What ever happened to Jaxon? Is he still alive or did he pass away? There is only 1 page left on Facebook and there's only 1 picture and a few links on it.
as far as people know he is still alive but not living with his parents who divorced & discarded him in to facility since he wasn't making them any more free money
@@sarahmosby878 .. That is so wrong of his parents. Poor kid
I have had a few seizures in my life. They don't hurt but they are scary and horrible on the body. I'd like to know more about what the brain can and cannot do when limited. All parents think their baby is beautiful. Jaxon is cute. I personally don't agree with his parents for bringing him into the world when they thought he might die so early on. But they did it anyway so I can only hope he is not suffering.
To expand on my comment about seizures ; I have had about 4 grad mal seizures, which anyone could have if their threshold is low (mine being from severe exhaustion due to insomnia.) Jaxon's seizures are different. His parents give very little information as to his condition because they don't want negative press about their decision to have carried him to term. But if you want to know if he suffers...just look up 'startle seizures.' Jason's seizures are the product of startle epilepsy. More then half of people with that form of epilepsy lose movement in half of their body. So, yes, I'd say be is in pain. He can definitely hear; the seizures are from loud noise or sudden touch.
KTA P No, he can definitely feel. His parents said in their book Jaxon takes daily prescription medication for, "nerve pain."
KTA P I'm also certain that he feels pain even though the doctors say he doesn't
KTA P he has no brain? really? so how is he alive? even 6 year olds know their biology better than you. embarassing.
G1 Soundwave I agree, I was just wondering about that comment because obviously you can't be alive if you have no brain at all
Normal divorced parents now. Little Jaxon in Nursing home. Mom has new boyfriend.
I have a feeling Jaxon is with Brittany and its been said that the "devout Christian father" took the money and ran and rarely sees his so called miracle. Brittney has a new man and a healthy baby but she, along with the newscasters were as in on the scam as Addy was. How anybody fell for this is beyond my comprehension. Some people were shocked when they found out the parents split up because they apparently saw "so much love between them" but I see no love or happiness in any video, especially this one. I see Ma staring down Addy hoping he doesn't screw up the narrative and a lot of resentment and I sense no love in this family.
@@Karmen2010 Not sure. However, all threads are saying the child was placed in Nursing home. Mom has new boyfriend and some are saying she is pregnant.
@@leroyproud294 She did have a new baby. And apparently, she brought Jaxon home to die.
Hes seizing on camera but the mom is holding his arms wow
Doesnt look to be smiling to me just drooling with a red face
Бедное дите!! Зачем его рожали, если было известно о диагнозе на 17 неделе?!!!
This is horrible. Suffering. :(
These parents are monsters. Defied the odds? He's walking and talking now right?
Does he have a brainstem? I'm just wondering how he is breathing on his own?
Yes, he has his brain stem and a little brain matter. Like 20% not enough to form cognitive thoughts, speak, eat, play, see, hear...
@@JenikaVonLea it sounds like it's a poor quality of life :(
And that ridiculous hair