I have RP and this is the best depiction of what I've been dealing with. People see me with a white cane and then I pick up my phone or read a menu at a restaurant. I get some funny looks and have heard horror stories of RP patients being attacked or harassed because people think we are faking. Vision loss is very varied and so many people don't understand that. Thanks for a great short and thanks to Yvonne!
That's so true, people see I am faking too, when I say yeah! I saw you keeping my things in your pocket.(hahaha) I have RP and it's a beautiful thing, glad I see less.
What an amazing video. I have RP and this is the best video I’ve ever seen describing my condition. Thank you for putting this out there, it’s educational value is tremendous.
@@Nitin-vq4yr I don’t believe an eye transplant is possible at this point in time. You can transplant a cornea, but not a retina or whole eye. Additionally there is no real treatment for RP but hopefully there will be someday soon.
@@Nitin-vq4yr eyes cannot (and will likely never) be "transplanted" - the optic nerve to the brain is not something we can "connect" - in layman's terms
Wow, I had no idea! The second I heard the analogy of seeing blindness as a light switch I feel like my eyes were opened and I've been so wrong for so long, but no more!
Thank you SO much for creating this video! I have RP, and this is the best description of having this visual impairment that I have ever seen. I have shared it widely, and am so grateful to have this resource for describing the impacts of RP. Great job, James, and thanks to the New York Times for supporting this important work!
This was very inspiring, I don’t have this condition but when she talked about the assumptions we make about people based on what we see, that really touched me
I've a condition that causes symptoms which are similar to RP and this is the best simulation I've ever seen of my visual field. I can relate so much to Yvonne's story and feelings. This video deserves broad sharing. Great job NYT!
Utter class. This woman is a total gem of a human. Hats off to you madam and congrats to the director for making such a fantastically engaging and poignant video!
Thank you. A friend with RP shared your video and it helped me understand much better her condition and also the process a number in my family with macular degeneration are going through. Your art is wonderful. I appreciate your sharing it as part of your journey.
It isn’t all bad, one thing they cover in the video is the adaptations we go through. In my experience I have learned that as I am forced to take things slower it allows me the opportunity to appreciate things differently. I’ve found so many different ways to express emotion as a reflex of the initial shock of my diagnosis. It’s rough but you can gain so much more than you would expect.
An excellent interview and production. Thank you for collaborating & bringing RP to the forefront; highlighting its progressive nature, vision cues /symptoms, and how to overcome fear of the unknown (w/love).
I have RP as well and have been sending this to all my loved ones to help explain my situation. The absolute best visualization I have “seen” ;) My daughter’s first reaction was utter shock that I can’t see her full face yet I call her beautiful everyday.
I also have RP, this video accurately describes what it's like. Yvonne, thank you for sharing your story with us all. And to James for putting this film together.
This is just outright amazing!!! Well done Yvonne and thanks so much to all those involved in making this 😊 I have macular degeneration so not the same pattern of vision loss but it’s the closest I’ve ever seen to how I see - and to how I feel. Congratulations 👏 xx
Im registered blind i have oculocutaneous albinism and i use a cane its the best thing it lets other people know that you cant see properly. I see everything blurred and dont see detail and cant see much of anything on a night so my vision fluctuates in different light. I GET THE SAME YOU DONT LOOK BLIND that winds me up 🤨 i dont recognise people unless i either recognise their voice or they are within a few metres of me and at night they would have to be within a metre. So blindness is total sight loss
I've been diagnosed with a rare eye disease called choroideremia. Because of this life changing disease, I'm completely blind in my right eye and what sight I have remaining in my left eye is like looking through a straw. I'm told that there is help and that there isn't. I don't know what to think or do. I've even reached across the globe for help to only end up empty-handed.
Keep seeing ophthomolgists. Ive seen about 9 doctors the last year, as I had a cornea transplant and cataract surgery at the same time and ended up with a detatched cornea. I am legally blind in the other eye. I finally went back to my original ophthalmologist that Ive been seeing for 20 years, and she sent me to an outside ophthalmologist and optometrist with the Lions club and lighthouse for the blind. I’m also seeing an occupational therapist. The last ophthalmologist might perform surgery. I’m grateful to finally see doctors to understand what I’m seeing.
You are amazing, I can completely connect with you, you are an amazing soul. I am going through the same with a big smile. thanks for sharing the video.
This is a fantastic video. I don’t use my cane that much because I don’t want people to know that I have RP. So much of this video felt so familiar. Thank you for sharing
Interesting... My auntie's elderly lovebird was mostly blind towards the end, and she scanned the room in vertical strips to be able to see stuff. I use a headtorch while cooking and eating, mainly because my lights are in the wrong places to illuminate what I'm doing sufficiently for me to focus on it. I could live with being mostly blind - although yes, it'd make working very much more difficult. What I'd struggle with more is being deaf. Music is too important, the sounds of nature like the worms scooting back into the ground when I shine a light at them at night after it's rained, even just hearing the echo of my footsteps as I walk past a tree - I'm very perceptive like that, for a sighted person. Family history suggests I will gradually lose my hearing from the top downwards as I age. Thankfully I like bassy music, but one day I probably won't be able to hear the bats, those worms, or my footsteps reflecting off the trees. There's always some beauty in the world to see or to hear or to feel or to smell almost every day. I make conscious efforts to stop and appreciate those moments of beauty, because those are what makes life worth living.
you should do one about tinnitus and hearing loss. i wish my generation would do a better job of taking care of their ears. constantly hearing ringing is maddening
Whoever's reading this, i pray that whatever you're going through gets better and whatever you're struggling with or worrying about is going to be fine and that everyone has a fantastic day! Amen
I have RP and have the blindspots the video depicts. However, they are not gray or fuzzy, that area just isnt there. It's like an invisibility cloak covering that area. I can put my hand out in front of me and to the side and it just isnt there, but it isnt fuzzy or a black spot. I still pick up things farther out in periphery. So hard to describe but this video certainly helps explain our issues. Love reading the comments and seeing the understanding everyone has shown. Thanks for creating the video.
The longer they wait to make poverty increase changes the higher the amount would have to be cause poverty levels keep getting higher. So how long are they going to continue to play around. If they were in our shoes they would speed it up faster. Fixed income is no joke especially if you have to live on 943.00 a month.
DOVETE USCIRE TUTTI DALLA MIA VITA E TORNEREMO A PARLARCI ONLINE NON POTETE TOCCARE NEL PRIVATO E SOLO LA VOSTRA CONSERVAZIONE NON COMPRENDE LO SCUDO A FIRENZE DOBBIAMO SALUTARCI-⛔️
Ukraine fired 12 times at the Zaporozhye nuclear power plant, as a result, more than 50 explosions of artillery shells and five kamikaze drones were recorded; - As a result of the shelling of the Zaporizhzhya NPP, the auxiliary support systems of the station, the life support facilities of Energodar were damaged; - The Russian Federation is ready to provide the IAEA with photographs proving that Russian weapons are not located on the territory of the Zaporizhzhya NPP; - The United States keeps silent about the shelling of nuclear power plants by Kyiv, contributing to the possible development of a nuclear catastrophe in Europe; - Ukraine intends to stage a provocation of a man-made disaster at a nuclear power plant until August 19;
Salvation prayer : Dear God, I know I am a sinner. I believe You sent your son, Jesus Christ, to die on the cross for my sins, and the sins of the whole world. I believe He was buried and rose from the dead 3 days later. I confess with my mouth, "Jesus is Lord," and believe in my heart that You rose Him from the dead. Today, i repent for my sins known and unknown, and accept Jesus Christ as my personal Lord and Savior. In Jesus name I pray, amen
I have RP and this is the best depiction of what I've been dealing with. People see me with a white cane and then I pick up my phone or read a menu at a restaurant. I get some funny looks and have heard horror stories of RP patients being attacked or harassed because people think we are faking. Vision loss is very varied and so many people don't understand that. Thanks for a great short and thanks to Yvonne!
That's so true, people see I am faking too, when I say yeah! I saw you keeping my things in your pocket.(hahaha) I have RP and it's a beautiful thing, glad I see less.
What an amazing video. I have RP and this is the best video I’ve ever seen describing my condition. Thank you for putting this out there, it’s educational value is tremendous.
quick question is this somthing an eye transplant can fix ?
@@Nitin-vq4yr I don’t believe an eye transplant is possible at this point in time. You can transplant a cornea, but not a retina or whole eye.
Additionally there is no real treatment for RP but hopefully there will be someday soon.
@@TexasRox always!
@@Nitin-vq4yr eyes cannot (and will likely never) be "transplanted" - the optic nerve to the brain is not something we can "connect" - in layman's terms
Wow, I had no idea! The second I heard the analogy of seeing blindness as a light switch I feel like my eyes were opened and I've been so wrong for so long, but no more!
Thank you SO much for creating this video! I have RP, and this is the best description of having this visual impairment that I have ever seen. I have shared it widely, and am so grateful to have this resource for describing the impacts of RP. Great job, James, and thanks to the New York Times for supporting this important work!
Beautiful. Thank you so much for sharing a bit of you with us, Yvonne. You’ve left me with food for thoughts.
This was very inspiring, I don’t have this condition but when she talked about the assumptions we make about people based on what we see, that really touched me
I've a condition that causes symptoms which are similar to RP and this is the best simulation I've ever seen of my visual field. I can relate so much to Yvonne's story and feelings. This video deserves broad sharing. Great job NYT!
Utter class. This woman is a total gem of a human. Hats off to you madam and congrats to the director for making such a fantastically engaging and poignant video!
Thank you. A friend with RP shared your video and it helped me understand much better her condition and also the process a number in my family with macular degeneration are going through.
Your art is wonderful. I appreciate your sharing it as part of your journey.
That's scary, becoming blind is very scary and I hope we get more research on this.
Then share this video and draw more attention.
It isn’t all bad, one thing they cover in the video is the adaptations we go through. In my experience I have learned that as I am forced to take things slower it allows me the opportunity to appreciate things differently. I’ve found so many different ways to express emotion as a reflex of the initial shock of my diagnosis.
It’s rough but you can gain so much more than you would expect.
@@TeamTriplehorn disability isn’t bad but come on, no one wants it if given an option not to. We should get rid of it.
Well done James and thank you Yvonne for letting us into your world 🤗 - inspirational!
An excellent interview and production. Thank you for collaborating & bringing RP to the forefront; highlighting its progressive nature, vision cues /symptoms, and how to overcome fear of the unknown (w/love).
"Though they suffer, they are blessed. Though they're blind, they move forward."
Really happy to see NYT feature more of James's work. Can't wait for the next video in this series. Very enlightening and poignant stuff :^)
This is a brilliantly made and touching video of Yvonne Shortt and her condition - thank you!
appreciate the audio description
I echo the other fellow RPers, this is a phenomenal description. Thank you all for the work on this subject.
I believe you were chosen, not to be blind, but to be the one with help be the best voice to your disease.
I have RP as well and have been sending this to all my loved ones to help explain my situation. The absolute best visualization I have “seen” ;)
My daughter’s first reaction was utter shock that I can’t see her full face yet I call her beautiful everyday.
This was a beautiful video. Great job NYT.
I also have RP, this video accurately describes what it's like. Yvonne, thank you for sharing your story with us all. And to James for putting this film together.
Does Yvonne have a website. She is amazing. I want to support her.
This is just outright amazing!!! Well done Yvonne and thanks so much to all those involved in making this 😊 I have macular degeneration so not the same pattern of vision loss but it’s the closest I’ve ever seen to how I see - and to how I feel. Congratulations 👏 xx
Im registered blind i have oculocutaneous albinism and i use a cane its the best thing it lets other people know that you cant see properly. I see everything blurred and dont see detail and cant see much of anything on a night so my vision fluctuates in different light. I GET THE SAME YOU DONT LOOK BLIND that winds me up 🤨 i dont recognise people unless i either recognise their voice or they are within a few metres of me and at night they would have to be within a metre. So blindness is total sight loss
“In love with the smell of snow” - this could be the title of her book, and I would read it.
This is my cousin who i have not seen in years awesome video EV God bless you your story hit me a certain way😢
What a beautiful human she is. 😍
One of the strongest women I know. Thank you for sharing your story🥺❤️
I’m legally blind… I mean I try to imagine perfect vision..
That was brilliantly done. Made me tear up. Well done, NYT!!
I've been diagnosed with a rare eye disease called choroideremia. Because of this life changing disease, I'm completely blind in my right eye and what sight I have remaining in my left eye is like looking through a straw. I'm told that there is help and that there isn't. I don't know what to think or do. I've even reached across the globe for help to only end up empty-handed.
Keep seeing ophthomolgists. Ive seen about 9 doctors the last year, as I had a cornea transplant and cataract surgery at the same time and ended up with a detatched cornea. I am legally blind in the other eye. I finally went back to my original ophthalmologist that Ive been seeing for 20 years, and she sent me to an outside ophthalmologist and optometrist with the Lions club and lighthouse for the blind. I’m also seeing an occupational therapist. The last ophthalmologist might perform surgery. I’m grateful to finally see doctors to understand what I’m seeing.
Great video. She is such a lovely person! I appreciate her sharing her story.
Really Good video, thanks for that. I sending love and hug for my RP sisters and brothers❤️ Grettings from Poland 🇵🇱
You are amazing, I can completely connect with you, you are an amazing soul. I am going through the same with a big smile. thanks for sharing the video.
Bravo 👏🏻 artistic inspiration for visual arts comes from within perspective of the soul 👍🏼🌹🎨
Thank you. What an interesting, eloquent and talented woman!
What a wonderful video, I would like to see more of her sculptures, they are amazing. Anyone knows her last name or where the sculptures are at?
I'm going to quit feeling sorry for myself. If only for a few minutes.
This is a fantastic video. I don’t use my cane that much because I don’t want people to know that I have RP. So much of this video felt so familiar. Thank you for sharing
Interesting... My auntie's elderly lovebird was mostly blind towards the end, and she scanned the room in vertical strips to be able to see stuff. I use a headtorch while cooking and eating, mainly because my lights are in the wrong places to illuminate what I'm doing sufficiently for me to focus on it.
I could live with being mostly blind - although yes, it'd make working very much more difficult. What I'd struggle with more is being deaf. Music is too important, the sounds of nature like the worms scooting back into the ground when I shine a light at them at night after it's rained, even just hearing the echo of my footsteps as I walk past a tree - I'm very perceptive like that, for a sighted person. Family history suggests I will gradually lose my hearing from the top downwards as I age. Thankfully I like bassy music, but one day I probably won't be able to hear the bats, those worms, or my footsteps reflecting off the trees.
There's always some beauty in the world to see or to hear or to feel or to smell almost every day. I make conscious efforts to stop and appreciate those moments of beauty, because those are what makes life worth living.
Good luck, and best wishes, Yvonne.
THANK-YOU
You’re beautiful Yvonne. The world is in love with you ❤️
She is beautiufl.
Beautiful, poetic and inspiring!
I have the same blindness! diagnosed at a very young age as were my three other sisters.
you should do one about tinnitus and hearing loss. i wish my generation would do a better job of taking care of their ears. constantly hearing ringing is maddening
Whoever's reading this, i pray that whatever you're going through gets better and whatever you're struggling with or worrying about is going to be fine and that everyone has a fantastic day! Amen
Thanks, made my day man. God bless.
Brilliant video.
Very powerful video.
She still is a beautiful black woman👸🏽👑❤️
6:04 the reminder “oh, this is indeed a american video”
Thanks you! [Secret] more match, one only open.
The blindspots look a lot like migraine auras. Really scary stuff.
I have RP and have the blindspots the video depicts. However, they are not gray or fuzzy, that area just isnt there. It's like an invisibility cloak covering that area. I can put my hand out in front of me and to the side and it just isnt there, but it isnt fuzzy or a black spot. I still pick up things farther out in periphery. So hard to describe but this video certainly helps explain our issues. Love reading the comments and seeing the understanding everyone has shown. Thanks for creating the video.
The longer they wait to make poverty increase changes the higher the amount would have to be cause poverty levels keep getting higher. So how long are they going to continue to play around. If they were in our shoes they would speed it up faster. Fixed income is no joke especially if you have to live on 943.00 a month.
🙏
should could use black seed oil it will help
Oops
🇻🇳🇻🇳🇻🇳❤️🇺🇸🇺🇸🇺🇸
❤️
Fantastic story about a beautiful and talented soul,
♥🌱🌱🌱
DOVETE USCIRE TUTTI DALLA MIA VITA E TORNEREMO A PARLARCI ONLINE NON POTETE TOCCARE NEL PRIVATO E SOLO LA VOSTRA CONSERVAZIONE NON COMPRENDE LO SCUDO A FIRENZE DOBBIAMO SALUTARCI-⛔️
molly burke!
Ukraine fired 12 times at the Zaporozhye nuclear power plant, as a result, more than 50 explosions of artillery shells and five kamikaze drones were recorded;
- As a result of the shelling of the Zaporizhzhya NPP, the auxiliary support systems of the station, the life support facilities of Energodar were damaged;
- The Russian Federation is ready to provide the IAEA with photographs proving that Russian weapons are not located on the territory of the Zaporizhzhya NPP;
- The United States keeps silent about the shelling of nuclear power plants by Kyiv, contributing to the possible development of a nuclear catastrophe in Europe;
- Ukraine intends to stage a provocation of a man-made disaster at a nuclear power plant until August 19;
ρяσмσѕм
Salvation prayer :
Dear God, I know I am a sinner. I believe You sent your son, Jesus Christ, to die on the cross for my sins, and the sins of the whole world. I believe He was buried and rose from the dead 3 days later. I confess with my mouth, "Jesus is Lord," and believe in my heart that You rose Him from the dead. Today, i repent for my sins known and unknown, and accept Jesus Christ as my personal Lord and Savior. In Jesus name I pray, amen