The more I go through life the more people are starting to explain my life experiences from a scientific perspective, experiences that were once poo pooed and discarded by sooo many people in my life. I really must learn to believe in myself better.
I could not click fast enough to listen! As a licensed professional counselor AND a person with EDS, seeing Dr. Porges on here was GOLD! I’ve done quite a number of his CEUs on polyvagal theory. I get so exhausted trying to talk with clinicians (behavioral health and medical) about EDS. I cannot be more thrilled someone as respected as Stephen Porges in the behavioral field is bringing EDS to the table. Thank you both!!! ❤🎉
Been telling my Docs that it all started from a brain injury and progressively got worse . Drs call you a lìar and say your imagining it. Now im getting POTS about 10 times a week and my anxiety is thru the roof. This was so nice to hear
@@derekamanwiththegivennamej1082 are you hypermobile all over I've had fatigue from birth then I had a fall 17 caused chronic pain now got more fybromyalgia pain do you have much pain I had pots 2006 2008 Ive had sinus surgeries mcas and haitus hernia opp my mum has severe ms had prolapses and detached retinas OCD do you have much pain
That’s absolutely it! I know my “anxiety” is physical, not psychological! It feels as though, out of nowhere, my insides are running for a bus they’ll never be able to catch. I’m so happy to hear this video…..thank you.
@@Chloe-vi5mb mines shoulders armpits constant triggerpoints etc heal.pain from rest but goes off intermittent shin tightness and pelvic pain is anything helping you check out Dr schubiner tms do you have Asperger's or adhd
Thank you for this. Absolutely facilitating! I am a nurse so I find this such a useful insight into the mind and body connection and how we can best understand our patients, so that we can best treat our patients. I am also someone who has struggled to get Drs to listen or understand what is going on for me as who someone that is still struggling after an accident where I suffered multiple spinal fractures, cervical, thoracic and lumber. I also suffered hypoxia in this accident and it took me a very long time to regain my speech and cognitive function. I have been left with a chronic pain disorder, osteoarthritis, and hyperkyphosis after a failed fusion , also there is a ptsd component. I suffer from bouts of anxiety that come from no where and Drs are blaming my symptoms on the anxiety which I know isn’t the case, it is more of a physiological anxiety, rather than a fear or an anxiety of things happening to me, I just feel dreadful, I have balance problems, digestive problems, nausea, brain fob, swallowing problems, low mood, respiratory problems due to the inability to breath properly due to spinal deformity and lack of space on my chest, palpitations , digestive issue, dizziness, postural hypotension with a very elevated heart rate increase on standing. I haven’t fainted yet, but been close. shortness of breath. I am now doing research into how the combination of injuries and symptoms fits together. There is definitely something not right. I really do feel that the injury was the trigger that started off a chain reaction. I don’t know what’s up but it’s more than just in my mind as I feel drs think is what is happening and I feel that is such a poor excuse for basically saying I don’t have no clue what’s going on and I don’t have time to spend looking into this, which I’m a way is not their fault, but it’s sad because you feel so dismissed and when your life suddenly comes to a Gault in your early 40s after being a very fit, healthy, vivacious, fun independent goal oriented and hard working to someone who is a shell of their former self, sad, has no social life, l”unable to work and that has a financial toll, the worst is not being able to be the mother to my children I once was and that breaks my heart. Sorry debriefing here, hopefully no one will read this anyway. Thank you this was insightful and helpful
Most folks with hypomobility have eds have Asperger's ADHD had CFS chronic pain now fybromyalgia 27 years since a fall Dr schubiner says it's sycosomatic with our brains being perfectionist IC in hypomobility Dr lenz says it's low end on dopamine just hope we all find ease to this pain
I had cancer of the bowel and had my large intesines messed with. Im convinced that my vagal nerve was sliced somehow during the surgery. I am also a yrsuma survivor and am goung through a difficult siruation rifht now. Ive made tremendous strides in my personal development and am enrolled in Mental.Health and Drug Counseling at this time. I am.also in full.remission from cancer almost 10 years now! I tried an out of body polyvagal stimulator worn on my outer ear and the results I found phenomenol! There is definately something to.this.
I used body scanning and the yogic breathing method to help me with ptsd and it worked. I use it now as a dancer. I am fine when I dance to music - I ve known this for years - the doctor asked me if I want to get an assessment - but I need space in my life with peace - too many untrained people, interfering which makes me worse
Great podcast! I have EDS, and I also have all the baggage that comes along with it: chronic pain, bruising, sprains, heart murmur, weird heart beat, asperger's, face blindness, etc. And anxiety, all my life. Which was made horribly worse after I was traumatized at age 36 by something that happened to me.
Being told "It's all in your head" is so destructive. Anxiety is a normal response to being under chronic threat. Pain & dysfunction, especially undiagnosed is going to cause stress. I've had other medical issues that needed surgery dismissed as anxiety for years bc you get labelled. Then you over analyse yourself trying to find the "cause of your anxiety" when it was physical all along, causing more emotional stress.
Dr. Porges is a gift to humanity! The InsyteILS therapy helped my son resolve sympathetic dominance due to PTSD and dysautonomia, pain. This is real, and finally we have gifted doctors unifying their various disciplines toward real healing. We are so thankful 🙏🙏🙏🙏💝💝💝💝🕊️🕊️🕊️🕊️
Our brain may…..experience ptsd cptsd coping mechanisms ocd anxiety fear worry betrayal trauma medical trauma. Then the ANS malfunctions in different ways creating pain and or symptoms
My GP is constantly pushing me over to psychiatry and don’t need to go there. I need less to do and support for not overwhelming me. Others cause my problems by being pushy and not believing me
Cant thank this Dr enough, this all started with a brain injury and my bowels just stopped working. Add a second brain injury because of lack of balance from the first one, and the bowel and stomach pain went thru the roof, 24/7. Then i developed leaky bowel with overblown inflammation then causing dislocations of joints. Thanks a ton Dr
i'm confused by porges saying the eds caused by a trauma trigger. People are either born with the genetic makeup or not. So does he mean ancesteral trauma? Or that the problems it causes are introduced after life trauma? Or that the whole thing could appear completely after a life trauma, in which the college was normal previous to it?
My feeling is the problems become induced after the EDS is coupled with a trauma somehow. For instance I had signs of EDS and autism early on, also had some traumas growing up. My nervous system crashed after I gave birth, blamed it on lack of sleep etc. But npw looking back my body felt very structurally out of whack after (loose ligaments are a feature of pregnancy so mine were extra dysfunctional by the end of it). I also breastfed putting further stress on my posture. I couldn't go for walks for ages as my hips were in such pain and loose, popping etc. I saw an osteopath for awhile and got some better physically but the nervous system was on high alert after that, hasn't stopped. My body has never felt the same structurally and I never got pregnant again. I feel there's a strong EDS/nervous system connection for sure. This is just my own emerging theory of my chronic health issues but it feels supported by the info in this video.
@@vintage_violetyes but we tend to be there early with the OCD without trauma maybe three the genes past it's possible just list my mum to severe ms heds started after nans funeral so for sure my grandfather told me our types can stand no stress check out Dr lenz ADHD fybromyalgia eds connection have you found anything that helps
Subconscious is a psychological concept vs autonomic physiological state leads to both physical symptoms and we can react emotionally/cognitively to this state of alarm and lack of safety as “anxiety.” “Anxiety is that interpretation of that physiological state.”
The more I go through life the more people are starting to explain my life experiences from a scientific perspective, experiences that were once poo pooed and discarded by sooo many people in my life. I really must learn to believe in myself better.
I could not click fast enough to listen! As a licensed professional counselor AND a person with EDS, seeing Dr. Porges on here was GOLD! I’ve done quite a number of his CEUs on polyvagal theory. I get so exhausted trying to talk with clinicians (behavioral health and medical) about EDS. I cannot be more thrilled someone as respected as Stephen Porges in the behavioral field is bringing EDS to the table. Thank you both!!! ❤🎉
Been telling my Docs that it all started from a brain injury and progressively got worse . Drs call you a lìar and say your imagining it. Now im getting POTS about 10 times a week and my anxiety is thru the roof. This was so nice to hear
@@derekamanwiththegivennamej1082 hugs to you!!
@@derekamanwiththegivennamej1082 are you hypermobile all over I've had fatigue from birth then I had a fall 17 caused chronic pain now got more fybromyalgia pain do you have much pain I had pots 2006 2008 Ive had sinus surgeries mcas and haitus hernia opp my mum has severe ms had prolapses and detached retinas OCD do you have much pain
That’s absolutely it! I know my “anxiety” is physical, not psychological! It feels as though, out of nowhere, my insides are running for a bus they’ll never be able to catch. I’m so happy to hear this video…..thank you.
100% Yes! We know when the anxiety response is not coming from our mind - it can come from nowhere. Quite separate to our thoughts and state of mind.🌿
@@hypnopompicstate9910 thought it came from subconscious mind
Well said. Spot on!
yes physical, not psychological!!
I love that analogy, "my insides are running for a bus they'll never be able to catch"
I feel the same.
I always knew that there was a link I’m hypermobile and have anxiety that comes out of nowhere thanks for this
Do you have pain with it
@@Truerealism747 yep almost constantly
@@Chloe-vi5mb in certain areas all over though.some of my.main areas if pain have moved over time years
@@Truerealism747 my whole body hurts but my knees are by far the worst especially at night
@@Chloe-vi5mb mines shoulders armpits constant triggerpoints etc heal.pain from rest but goes off intermittent shin tightness and pelvic pain is anything helping you check out Dr schubiner tms do you have Asperger's or adhd
Extremely helpful talk! As a patient that suffers with anxiety and C-PTSD this gives me much needed hope. Sincere thanks.
That intro ❤❤❤❤ I hope this reaches many many people who need to hear this trut
I know! Such a powerful intro!
Thank you for this. Absolutely facilitating! I am a nurse so I find this such a useful insight into the mind and body connection and how we can best understand our patients, so that we can best treat our patients. I am also someone who has struggled to get Drs to listen or understand what is going on for me as who someone that is still struggling after an accident where I suffered multiple spinal fractures, cervical, thoracic and lumber. I also suffered hypoxia in this accident and it took me a very long time to regain my speech and cognitive function. I have been left with a chronic pain disorder, osteoarthritis, and hyperkyphosis after a failed fusion , also there is a ptsd component. I suffer from bouts of anxiety that come from no where and Drs are blaming my symptoms on the anxiety which I know isn’t the case, it is more of a physiological anxiety, rather than a fear or an anxiety of things happening to me, I just feel dreadful, I have balance problems, digestive problems, nausea, brain fob, swallowing problems, low mood, respiratory problems due to the inability to breath properly due to spinal deformity and lack of space on my chest, palpitations , digestive issue, dizziness, postural hypotension with a very elevated heart rate increase on standing. I haven’t fainted yet, but been close. shortness of breath. I am now doing research into how the combination of injuries and symptoms fits together. There is definitely something not right. I really do feel that the injury was the trigger that started off a chain reaction. I don’t know what’s up but it’s more than just in my mind as I feel drs think is what is happening and I feel that is such a poor excuse for basically saying I don’t have no clue what’s going on and I don’t have time to spend looking into this, which I’m a way is not their fault, but it’s sad because you feel so dismissed and when your life suddenly comes to a Gault in your early 40s after being a very fit, healthy, vivacious, fun independent goal oriented and hard working to someone who is a shell of their former self, sad, has no social life, l”unable to work and that has a financial toll, the worst is not being able to be the mother to my children I once was and that breaks my heart. Sorry debriefing here, hopefully no one will read this anyway. Thank you this was insightful and helpful
Thank God for Nurses like you.💛
Most folks with hypomobility have eds have Asperger's ADHD had CFS chronic pain now fybromyalgia 27 years since a fall Dr schubiner says it's sycosomatic with our brains being perfectionist IC in hypomobility Dr lenz says it's low end on dopamine just hope we all find ease to this pain
I had cancer of the bowel and had my large intesines messed with. Im convinced that my vagal nerve was sliced somehow during the surgery. I am also a yrsuma survivor and am goung through a difficult siruation rifht now. Ive made tremendous strides in my personal development and am enrolled in Mental.Health and Drug Counseling at this time. I am.also in full.remission from cancer almost 10 years now! I tried an out of body polyvagal stimulator worn on my outer ear and the results I found phenomenol! There is definately something to.this.
Brilliant chat between 2 eloquent experts :-) Thank you. I wish my GPs would listen to this & then they might listen to me
Do you get pain symptoms in the body GPS do not care
Very interesting and encouraging to hear this kind of discussion happening.. ❤
Finally someone understands!! Thank you!
I used body scanning and the yogic breathing method to help me with ptsd and it worked. I use it now as a dancer. I am fine when I dance to music - I ve known this for years - the doctor asked me if I want to get an assessment - but I need space in my life with peace - too many untrained people, interfering which makes me worse
Goodness we are certainly blessed w/Dr. Porges and it’s relatability w/EDS/HMS it’s lovely to bridge that Gap!
Also curious if Mayo and WHO acknowledge and accept Dr Porges Polyvagal theory
Great podcast! I have EDS, and I also have all the baggage that comes along with it: chronic pain, bruising, sprains, heart murmur, weird heart beat, asperger's, face blindness, etc. And anxiety, all my life. Which was made horribly worse after I was traumatized at age 36 by something that happened to me.
Being told "It's all in your head" is so destructive. Anxiety is a normal response to being under chronic threat. Pain & dysfunction, especially undiagnosed is going to cause stress. I've had other medical issues that needed surgery dismissed as anxiety for years bc you get labelled. Then you over analyse yourself trying to find the "cause of your anxiety" when it was physical all along, causing more emotional stress.
Dr. Porges is a gift to humanity! The InsyteILS therapy helped my son resolve sympathetic dominance due to PTSD and dysautonomia, pain. This is real, and finally we have gifted doctors unifying their various disciplines toward real healing. We are so thankful 🙏🙏🙏🙏💝💝💝💝🕊️🕊️🕊️🕊️
Wow this makes a lot of sense
Valuable indeed
Thank you for interviewing Dr Porges!
Our brain may…..experience ptsd cptsd coping mechanisms ocd anxiety fear worry betrayal trauma medical trauma. Then the ANS malfunctions in different ways creating pain and or symptoms
Thank you so much for this talk, it was so very interesting! Amazing introduction! Thank you to both speaker's.
Thank you.💛
❤ what a wonderful conversation. Thank you so much for sharing this.
My GP is constantly pushing me over to psychiatry and don’t need to go there. I need less to do and support for not overwhelming me. Others cause my problems by being pushy and not believing me
Cant thank this Dr enough, this all started with a brain injury and my bowels just stopped working. Add a second brain injury because of lack of balance from the first one, and the bowel and stomach pain went thru the roof, 24/7. Then i developed leaky bowel with overblown inflammation then causing dislocations of joints. Thanks a ton Dr
Check out Dr lenz and Dr schubiner to
Thank you both so much 🙏🏽🙏🏽 this connects the dots for me!!
What can we eat to regulate neurotransmitters that Dr. Stephen Porges mentioned at the end?? Kindly let me know
The Asperger's must be the link causing the anxiety because it's central nervous system disorder
i'm confused by porges saying the eds caused by a trauma trigger. People are either born with the genetic makeup or not. So does he mean ancesteral trauma? Or that the problems it causes are introduced after life trauma? Or that the whole thing could appear completely after a life trauma, in which the college was normal previous to it?
It comes with asperger's ADHD that's why we have week collegen in the brain to just lost my.mym.to severe ms to heds asperger's
My feeling is the problems become induced after the EDS is coupled with a trauma somehow. For instance I had signs of EDS and autism early on, also had some traumas growing up. My nervous system crashed after I gave birth, blamed it on lack of sleep etc. But npw looking back my body felt very structurally out of whack after (loose ligaments are a feature of pregnancy so mine were extra dysfunctional by the end of it). I also breastfed putting further stress on my posture. I couldn't go for walks for ages as my hips were in such pain and loose, popping etc. I saw an osteopath for awhile and got some better physically but the nervous system was on high alert after that, hasn't stopped. My body has never felt the same structurally and I never got pregnant again. I feel there's a strong EDS/nervous system connection for sure.
This is just my own emerging theory of my chronic health issues but it feels supported by the info in this video.
@@vintage_violetyes but we tend to be there early with the OCD without trauma maybe three the genes past it's possible just list my mum to severe ms heds started after nans funeral so for sure my grandfather told me our types can stand no stress check out Dr lenz ADHD fybromyalgia eds connection have you found anything that helps
I think pregnancy and childbirth can be especially difficult for us.
And the subconscious.mind is part if the body
So hes talking of the subconscious mind causing the anx?
Subconscious is a psychological concept vs autonomic physiological state leads to both physical symptoms and we can react emotionally/cognitively to this state of alarm and lack of safety as “anxiety.” “Anxiety is that interpretation of that physiological state.”
😮 fibromyalgia lupus Rheumatoid arthritis 😮 PTSD depression Anxiety ED . BDP. I need chemo therapy?!?!?
Thank you for all this information! ❤❤❤