Although I watch your vids pretty religiously, I don't respond as often as I would like, but felt I had to summon the energy this time. First off, just watching you two in this vid LIFTS my spirits! You two are so cute and sweet! Thank you! I'm so glad to see you feeling better and more optimistic, Neil! And Teresa, I absolutely adore your little tree, and hope you might share vids with us showing more of your decorations! I've been living with "probable MS" for 20+ years. I was given an "official" diagnosis this past May, after ending up in hospital with a horrendous attack of vertigo (with additional neuro symptoms). They gave me the "official" diagnosis based ONLY on brain MRI - no Lumbar puncture, no evoked potentials, no other MS diagnostic tests. I was in the hospital 8 days, and was given 5 days of Solu-medrol infusions. While that treatment put the brakes on the terrible vertigo (75% improvement after only one infusion), it caused my blood pressure and blood glucose numbers to skyrocket. It was 4 weeks after I came home, before I could drive. And it took nearly 5 months of adjusting and changing blood pressure meds to get my blood pressure mostly under control. My blood glucose numbers are almost back to "normal for someone without diabetes), so that's good. Just wondering if you had problems with either high blood pressure or high blood glucose following any of your steroid treatments? Wishing you both the happiest of Holidays!!!! From Texas!
Hello there, and thank you so much for your message and your kind words. My apologies for the late response, had a bit of a busy week and I'm slowly catching up on messages. Wow 20 years with probable MS, that must have been very hard for you. Similarly, I lived with that myself for a while, but now I'm in that grey area whereby they aren't actually sure what they're dealing with. I am however so pleased you've now got the official diagnosis, but as you say it's peculiar based only upon a brain MRI. Having said that, this is how I was originally diagnosed as well, mainly only my clinical exam and MRI results. I'm pleased to hear that your blood pressure and sugar levels are behaving themselves a little more now. Yes, the steroids will play merry hell with both of these and they have done with me as well. My wife Teresa is Diabetic (I'm not) but I do use her blood sugar testing kit to keep an eye on my own sugar. The other day I was a bit worried as it was 14.5 when it should be between 4 - 6! I've been monitoring it since, and it has now come down thankfully. Blood pressure not too bad now. It's really nice to hear from you, wishing you a lovely Christmas. All the best - Neil & Teresa.
Hi Neil & Teresa, I woke up this morning, 09-12-20, feeling quite unwell. I turned my phone on & the first thing I saw was your face Neil, as RUclips sent me a notification of your video. I just wanted to say how lovely it is to see you looking better & feeling so much more happy & positive - it really cheered me up & made me feel better too. I'm so glad you're receiving a course of IV steroids Neil - I know they always give you the boost that you need & make you feel so much better. I just wanted to say how sorry I am that Teresa has a bleed in her eye - as if you both haven't got enough on your plate already! I think I said in another comment that my other half Dave has MS & type 1 diabetes. He has had several bleeds in both of his eyes over the years, caused by micro aneurysms in the small retinal capillaries, despite keeping very good control of his blood glucose levels. If it makes Teresa feel any better, all the eye bleeds Dave has had, resolved on their own & have not caused any permanent damage to his eyesight. Like you Neil, Dave has also had optic neuritis in his right eye in 2015. It has left some deficits in colour saturation & contrast in the affected eye & the usual blurring when his body gets hot (such as after a bath or in hot weather) - Uhthoff's phenomenon which I know you're familiar with Neil! 🤒 Despite this his eyesight on the whole is still pretty good - he's only had one cyclist on the bonnet of the car this month! 😂 I love your Christmas tree Teresa, it's beautiful & has put me in the Christmas spirit! I'll have to get a move on, I haven't got one tree up yet - let alone five! 🎄 On a different note, I often watch your videos & photos of your beloved cat Molly, bless her sweet soul. I cried when she crossed over to Rainbow's Bridge. She had a wonderful life filled to the brim with love, happiness & contentment, which can never be taken away. We are both cat lovers! We have our little man Whisper! We adopted him from the Blue Cross on 3rd April 2012. He was found as a stray cat & taken into their rehoming centre - their vet estimated he was about one year old. He was so nervous, very thin & his fur was dirty & unkempt. The staff at the Blue Cross think he may have been dumped by an unscrupulous breeder. He is a pure white long-haired cat - his left eye is blue & his right eye is green. Needless to say he has only known love since he came into our lives & he is treated like royalty - one of his many nicknames is Lord Whisper! 💜🐈🐾 I'm sorry I have gone off at a tangent again - I just wanted to share that with you both. I find it almost impossible to write short messages - especially to such a lovely couple that I can relate to. I think I may have even broken your record Neil, for the longest short message! I won't go into my health issues, apart from saying I have had two chest x-rays & I have an abdominal ultrasound at 8.00am tomorrow, 10-12-20. Wishing you both the very best of everything, you truly deserve it. Love & best wishes to you both. Sally X 💜💞🐈🐾
Hello Sally, how nice to hear from you as always.. my apologies for the delay in responding to your lovely message, it's been a bit of a hectic week at the hospital so I'm rather behind. I have to say, switching on your phone and seeing my face first thing would have surely been quite a shock!! 😉lol Especially first thing in the morning ha ha. Yes, I do recall you telling me about Dave having MS .. and thank you so much for telling us about the bleeds he's experienced as well, this has helped put Teresa's mind at rest. In fact, we've had a similar thing whereby we went and got the bleed checked out and it had resolved itself. So we are hoping this will be the case this time. Both Teresa and I are very switched on with monitoring and controlling her sugar levels, so it's not like continued high sugars have caused it. It's always a worry though. Had to smile about the "only one cyclist" on his bonnet this month!! The optic neuritis is a worry though, I'm quite worried about my vision because since being on the Prednisilone (25mg tablets everyday) it's effected my distance vision terribly. All my life I've had perfectly crystal clear sharp vision, up until this last 18 months, and it's quite distressing. Once again, it's about trying to achieve that balance between the drug side effects, and the good it's doing. Difficult. No Christmas tree's up yet? Sally, I think it could be time :) It wouldn't surprised me if my dear wife is searching for her 6th! Ahh thank you Sally, your words about Molly have really touch me .. she really was a beautiful cat and we loved her so much. It's amazing to think that she was only a few days off her 20th birthday!! It's also incredible to think that in just over a month's time she's been the other side of that Rainbow Bridge now for three years. We also had a Staffy Cross Dog "Bess" whom we lost in 2015, I didn't start my channel until 2016 which is why she was never featured in any videos. She was such an Angel, we miss them both so much. Lord Whisper!! I like it, and he sounds absolutely adorable! He sounds well and truly pampered, and very much loved. I don't know how people can be so cruel to animals, it's all greed and just for money isn't it. I always say, I don't trust anybody who can be cruel to an animal! Very pleased he's come to a lovely home and fine people such as yourselves. Ha ha about the longest short message, I've certainly put together some Essays myself over the years on this channel, I also don't do short but quite often when I have such an overwhelming response to a video, I have to keep them brief otherwise it's takes me forever to answer everybody. I have to try and discipline myself lol. I realise you've now had your scans three days ago, but I do hope everything went well. It sounds like you're also dealing with some serious issues there yourself Sally, and I'm sorry to hear this. If ever you wish to chat about these, it really isn't a problem and we'd be more than happy to listen. Both Teresa and I hope you and Dave have a wonder Christmas. Sending much love and warmth to you guys. 🙏💞
This is fantastic news!!! You both look so much different than the last video! You know this from the past that the IV Steroid Treatments work very well for a period of time, so that is definitely something to be excited about. Also this possible new medication that they want to try you on is new hope 💜 I can’t tell you how happy I am for the both of you!! Like you said Teresa, “you get to have your Neil back”....you couldn’t ask for more 💕 Please as usual, keep us updated. Love your tree Teresa ❤️ Take care and talk with you soon!! Kelly your friend from USA 🇺🇸 xoxo
Thanks Kelly, it's been a busy week hence the late reply. Since having the steroids I've been up and down. Keeping my fingers cross for this new treatment. Take care.
You both look so much better since the last video. Mental health is so important. You really deserved some positive things happening in your live. The IV steroids are the cherry 🍒 on the 🍰. I think a nice walk outside with Christmas lies ahead. I wish you a very happy Christmas!! It really feels good to see you happy🌞. Greetings from the Netherlands
Greetings from the UK Peter, and as always very nice to hear from you. Thank you for your kind words, and here's wishing you a Merry Christmas also. Best - Neil.
I’m happy to hear you’ll be getting the steroid treatment again! I hope it has the usually results and picks you up and makes life easier. It’s great to see you two and get an update. Take care!❤️
Hope. It always causes one to become more uplifted. Without it, we go into a sort of pit. And what makes matters worse, is sensing that no one really cares (no return calls, etc). But this video is a BIG LIFT for us out here who care about you both. I'm truly "cheery" along with you that the clinic/hospital has actually made contact with you and want to help you. Yes, there's Hope. It's a beautiful thing. Hold it tightly guys. God bless.
Thank you Elaine, yes sometimes HOPE is we've got isn't it.. and I've had that thought many times in the last few years. It's been a busy week, hence the late reply.. I'm a bit up and down after having the treatment, but fingers crossed. Take care.
Neil, I am sorry that I have not commented in rather a while. This does not mean that I don't watch every one and worry about how you are doing when there are long delays between each. I think you and your wife are both an inspiration in terms what is possible when there is love, support and understanding.Your help with my introspection and stop me moaning when I see how bravely you deal with all of the ups and downs - like true champions, both of you! I hope you get the second line therapy and I really hope it works for you, so you can live comfortably, peacefully and do the things that are important to both of you in your lives. My very best wishes and take care.
Thank you Steve, for you lovely comment.. Teresa and I both very much appreciate your very kind words. Please don't worry about not commenting, it's always good to hear from you as and when you are feeling up to it. As for moaning, well .. this is something I feel I do all of the time too, but Teresa re-assures me that it's not moaning at all. When you have such a debilitating illness such as we do, it sure doesn't make you feel happy about things does it! So having a good old moan to somebody that understands and is prepared to listen to you is perfectly ok in my book. Best wishes to you also my friend. 💞🙏
Neil and Teresa, it's great to see the both looking happy. Neil I hate to say this but I'm almost hoping your diagnosis goes back to ms. Based on what I've heard from you and others that NMO is a very tricky and nasty disease. I'm not. sayingms isn't but it seems like there are alot more treatment options for it. Great to see you both looking like a million bucks and happy. You guys just made my night. God bless you both.
Hey Robert, and thanks for your message. Don't worry, I've had the same thoughts.. if I had to choose I would definitely go for the MS. To be honest, in my experience and research, pretty much any of the auto-immune diseases it's all about suppressing the immune system to help prevent the body, effectively attacking itself. It just has to be done differently depending on what you're diagnosed with. So pleased your enjoying the video, blessings to you.
Ahh thank you so much J .. yes good news, I do feel a little bit more upbeat knowing I might start to feel a bit better soon, even if it usually is short lived. 🙏💞
Quick comment, I had some jasmine leaf tea with a stroopwafel while watching this. Ms Teresa relaxes properly, with trees maintained by Neil! Wish you luck!!
Good to see you again Neil. Didn't know if you got my reply last time. I had Solu- Medrol last three days 1000mg IV so it really does a good jolt for me and I feel great and it helps greatly. Say hi to Theresa and you guys are in my prayers. Talk soon.
Hi Bodhi, good to hear from you also .. apologies if I missed a previous comment from you, I will have to go track it down. Whilst I was having the Solu-Medrol I started to feel it's benefits, but a few days later (now I'm catching up on comments) once again I'm not feeling so great unfortunately. All the best to you.
So glad to hear they are going to go ahead and give you some IV steroids! Hope to hear that you are doing better soon after the IV's get started. You had me in tears last video, Neal. I imagine that it touched everyone deeply, hence the many comments. We all feel like we know you both so well from all of your videos, we all are hoping you get some relief and better mobility from the IVs.
Thank you so much Rona .. as I'm sure you too are very much aware it all gets a bit too much sometimes doesn't it, that feeling of you just can't take anymore, and then something else comes along to test you even further. Blessings to you. x
Good to see you see the both of you !! It's good to see you on my birthday, The tablet that they MS Nurse said you were tapering off do you have to have that medication out of you system in order to start possibly start the Rituximab Second line treatment ? And would you still be able to receive the IV of Methylprednisolone with it in a certain amount of time frame like a couple of months a part maybe ? Or only be able to possibly start Rituximb Second Treatment when ever things get started for you and take you off the IV of Methylprednisolone ? I am going to Google on the Internet what is Rituximab to see how it helps the body of Chronic Pain or what else it can do to help the body ? Tell Teresa I seen the tree in the corner before she had showed it I like it !! You should keep your five trees up all year if you have the room and even add more !! And before I go I just have to say a bag of chips can be romantic why not :) :) And I hope next week you treatment for your steroids will help you feel better !! To the both of you Take Care !!!
Happy Belated Birthday Wishes Amanda, I truly hope you had a great day. The tablet I'm slowly tapering of is called Prednisilone and it's a steroid. I was only meant to be on this tablet whilst another one (Azathioprine - Immunosuppressant) settled into my system which can take up to six months. But because I've been so bad, they kept me on the tablet steroid as well which I'm not really happy about because long term the side effects aren't nice. I suspect I will definitely have to stop the Azathioprine (Immunosuppressant) if I get approved for Rituximab because they both suppress my immune system. It's my understanding that because the Rituximab is more aggressive, I have to go into hospital for the whole day because they give me Steroids, Antihistamine and finally the Rituximab, and I think this would be every six month possibly three depending on its effect. I will indeed tell Teresa, but she also reads every comment to rest assured she will be well aware of your kind words, thank you. Best - Neil & Teresa.
🎊🎊🥳🥳🎈🎉🎉 Hello my friends! This is wonderful news!! Praise God! I am very happy for you both. And you know what? It has me smiling for the rest of the day. I'll continue to keep you in my prayers, much blessings for you both and for this week's journey. I have an appointment myself, and hopefully I'll have good news as well. Sending a big celebration hug 🙂💖🌻
Hello Jay, ahh thank you so much.. your kind words mean so much to both Teresa and I. Oh you have an appointment yourself this week, I hope it goes really well and the news is positive and good. Maybe you will share. Blessings to you my friend 💞🙏
So good to see you both! Somehow I missed the last video. I am so sorry you've been having a rough go of it. Prayers that next weeks treatment will have you feeling much, much better. Prayers for you both and lots of love from the USA.
I am very curious about the difference between IV prednisone and the pill version. I just had to stop faking clonazepam because my insurance stopped covering it for a time.I had to go "cold turkey"and my body has not done well. I have spent a lot of time in the recliner. I need to speak with my doctor but my appointment is not until January 7. I am looking toward a quiet holiday. I love Treena's five trees. I would love to have that many. Have a blessed holiday. May your IV go well, Neil. I hope you see some improvement. I am working on an advent craft which I am enjoying. I also have a new puppy named Coconut. I wish I could sendy ou a photo of her. She has brought me so much joy. Until next time, Kerri
Hi Kerri, I've asked that question at the hospital about the difference between the IV and the pill version and they say there is no difference. But I've had both and I felt the pill version did nothing, whilst I've always had good results with the IV. The IV obviously is straight into the blood stream, which I feel has got to be more beneficial as it doesn't have to deal with the GI (Digestion). As for the Clonazepam, I've tried to come off this drug but when I do the PAIN in my stiff back muscles start up again, and it is absolutely crippling for me. I'm not on a high dose, but whenever I've tried to come off it, the pain is unbearable. Ahh it's lovely to hear you have a new Puppy, I'm sure Coconut will bring you lots of joy and smiles. I also hope you enjoying your crafting, it's important to have something you really enjoy doing, a distraction. All the best to you - Neil & Teresa 💞🙏
I was just thinking of you two last night, wondering when we would hear from you. Good to see you guys. You are looking well. Great that they will start treatment that will help and paying more attention to Neil's case. Teresa, love your nail color, it's bright and shiny as you are. Both of you make me smile. Thank you for the update.
Hey there Sheri, and thank you for your lovely message. Yes, had the three days of treatment Tue, Wed, and Thu this week so it's been a bit hectic hence the late reply. I'm a bit up and down at the moment, but fingers crossed I'll pick up. Take care. 💞🙏
@@NeilBradleyMS oh Neil I’m so happy to hear you are getting your IV steroids! So it will be a very Methylprednisolone Christmas for you! You definitely look brighter already too so hopefully you are feeling better- how can you not look better with all those Christmas trees! 🌲 I’m so pleased to meet another tree fanatic Tree! 😂 Haven’t got ours up yet but put up our Nativity Set which here is know as the “Presépio” I have to add the hay today. I’d send you a photo if I could! Our tree is about 3 metres. We always had a real one in the U.K. but they oddly are impossible to find here....except growing on the mountains! Anyhow it usually takes us 3 days to decorate....I have my Mum’s, and my grandmothers’ beautiful old decorations that are fragile..so am wary this year too with Romeo our newer Siamese as I have visions of shattered glass....and him instead of my Angel at the top! My hands are still numb and sore so I made a quick visit to my osteopath who said that I have a lot of inflammation deep inside and has given me new exercises and I will be having a full treatment on the 10th...so I’ll be thinking of you while she inflicts pain on me! 😂 Much, much love to you both, good luck for next week and feel better soon! 😷🎄🎄☃️❣️❤️❣️☃️🎄🎄😷
Hi Susan, thank you for your message. Your Tree sounds lovely, my Tree (Teresa) doesn't need more encouragement, we've already got five tree's up lol and I think she's thinking about a 6th!! Ha ha .. I'm just happy if she's happy, I actually encourage her to do what she loves which is what it's all about really isn't it. I hope your treatment goes well. Best to you with much love - Neil & Tree xx
Hi great to see your smiling faces again , I do love watching and listening to you both and following your journey, great news about you getting the iv treatment you need, so important to be able to get the right treatment that works for you, Have a Wonderful Christmas 🎅🤶🌲❤😊🇦🇺
Hi Karen, as a rule they are magical for me but not so much at the moment.. haven't been feeling so good this last day or so. I know about the risks of Osteoporosis, and I'm on a bone protector drug to help with that, but we have to weigh up risks don't we against quality of life. I find myself doing this all the time, one of the biggest problems I'm having at the moment which I feel is steroid related is poor vision (distance). It's actually quite distressing. I hope all is well with yourself.
Good to see you both I'm sorry I didn't see your last video will have to take a look back. Well at least things are moving for you which is great. Have yourselves a great Christmas with all those trees and hope the steroids give you some better days. Adrian 😉
Why hello you two ❤ 🐦 🐦!!! So great to see you both again so soon & even better that you're going in this coming Tuesday for your IV steroids! I love Teresa's Xmas tree! 💖💖💖
Neil , I’m not gay, but I got to say it, I think you’re quite a very handsome looking bloke ✊ I love watching your videos bruv , always very enlightening and beautiful. I adore Teresa ♥️ she polishes all ur videos likes makes it even more beautiful
Hey Patrick, and thank you for your lovely message.. that's very kind of you to say. My apologies for the late reply, we've had a very busy week (3 trips to the hospital) so I'm only just getting around to responding to comments again. Once again, thank you for your kind words, more videos to come. Take care friend 💞🙏
@@NeilBradleyMS You’re welcome, Neil. I totally understand you and please don’t ever feel obligated to respond; you are number 1 . It’s always nice to hear from you and Tree. And I’m always rooting for both of you to get better 🙏♥️🦋🎄
I have been on Rituximab for the past 1.5 years and it seems to be doing it's job. The nice thing is that I have found there are almost no side effects. You almost don't even notice it other than the fact you don't encounter relapses. I hope you have the same experience!
Hey James, apologies for the late reply.. it's been a bit of a hectic week for us. Thank you for this information, it is VERY re-assuring for me as I have to admit I'm a little worried about any kind of new treatment. Appreciate it.
Wow, another vid already! Your spoiling us lol Brilliant news with the steroids Neil, something to look forward too. Just wanted to say, the love between you both is wonderful to watch. Your made for each other. Btw the 5 Christmas trees made me laugh, think you can push it to 6 Teresa?? 😂
Hi Adele, ahh and thank you for your kind words.. it's lovely to hear from you, I hope you are keeping well also. Teresa doesn't need any encouragement for yet another Christmas tree LOL, in fact it certainly wouldn't surprise me if number 6 arrives at some point soon. I hope you have a good Christmas, take care. 💞🙏
Hi Michelle, thanks for the check in. I’d like to say things are better, but unfortunately they’re not great. I have been approved for some new treatment however, so fingers crossed. Hope is all is well with you.
Long time no see, I've had a few of those side effects without any medication , still no diagnosis for me I'm afraid, new neurologist at Stoke, various tests emg ,Had a hour long mri 8 weeks ago head & spine about an hour.....( & Datscan a month before that , inconclusive result) & eversince halfway through MRI had NON - STOP tinnitus,high pitch hiss/ ringing in head ( more than ears )discomfort in head & neck round ears & at times pulsing in exact time with heart etc ever since which has got me down BIG time, & a few additional symptoms during the year, Fasciculations in my legs mainly & muscle aches , more giddy. Been referred to a spine specialist too as I'd got these hemangioma in my spine ,which previous Neuro ignored & said they were nothing& I have had them all my life( dont know how he would know that ???) a year later new neurologist said he thinks they are not good.....(wish they all read from the same hymn sheet) Anyway,.... NOT wanting to bring you down with my misery, just wondering if anyone else who reads these messages has had tinnitus after mri & similar experiences?( just a lonely 6 year journey for me so far esp with the huge gaps between appointments & contradictions& discrepancies between 'professionals ' could do with a wonderful partner too( you are very lucky😉) ANYHOW.... SO... GLAD you are getting the steroids👍👍👍💥, hope you feel ALOT better, take care both, stay safe & if I don't write before then sending you both Christmas blessings x
Hello Just Me, yes it's been a while hasn't it but it's nice to hear from you again. I'm sorry to hear that you have somehow acquired Tinnitus, not being able to switch a noise off in your head is soul destroying! I know, because I've experienced it many years ago (for a couple of years), and still quite often do from time to time even though it's settled down now. Now word of a lie, I was fearful of my very first MRI of this exact thing (Tinnitus) happening to me. I was very nervous about sitting inside a huge magnet and the effect it would have on my body. In 2012, because of what was happening with my health I no longer had a choice though, and I had my first MRI, and I was in fact fine once I settled into it. Since then, my current MRI count is now 11. Christmas blessing to you also, take care - Neil & Teresa 🙏💞
Cold is very bad for people with myelin lesions, it worsen the symptoms a lot. Wim himself says his program works wonders for healthy people but ill people should be very careful.
Still... Methylprednisolone has some serious potential side effects... If I was you I would definitely be hoping for Rituximab... I know one MS patient who was treated for years on Methylprednisolone, he now has two new hips and is treated with Ocrevus (about the same as Rituximab)
I think he is aware of the side effects but since he has been so bad lately he just wants to feel better. I personally hate methylprednisolone and hope I'll never have to take it again, but it works very well with Neil, and I understand his excitement since it's the only thing working for him at the moment.
@@kara7197 As do I (understand him)... However my MS-friend thought and acted the same... Now he has experienced the side effects and decided: never again.
@@blak4001 I know, short term side effect were enough for me to say that probably I won't take it anymore (also because it didn't seem to stop the inflammation with me). If I were Neil however I will think what's the point of having healthy bones if still I cannot walk? Add the pain, the discomfort, the insomnia, the depression, if you watch his previous video he clearly is in despair and this one thing, no matter how bad the potential long term effect may be, bring him back to life. Side effects can also be monitored and in some way prevented, and not everyone will develop them. Theres always a risk-benefit evaluation with every medication and I think Neil has made this decision in his best interest.
Yes indeed, unfortunately I am painfully aware of the side effects of continued steroid use, not only the weakening of the bones, heart and blood pressure, muscle wastage, eye sight issues (such as Glaucoma & Cataracts) to be honest the list is endless. But, I am trying to achieve some kind of balance between my quality of life and this soul destroying disease I have. When I see myself going down hill further and further without any improvement at all, that "dark cloud" of depression starts to loom, and it's very real.. and dangerous. I'm trying to be the best version that I can be, not only for myself, but for my wife, family and loved ones despite the risks I'm taking.
Although I watch your vids pretty religiously, I don't respond as often as I would like, but felt I had to summon the energy this time.
First off, just watching you two in this vid LIFTS my spirits! You two are so cute and sweet! Thank you! I'm so glad to see you feeling better and more optimistic, Neil! And Teresa, I absolutely adore your little tree, and hope you might share vids with us showing more of your decorations!
I've been living with "probable MS" for 20+ years. I was given an "official" diagnosis this past May, after ending up in hospital with a horrendous attack of vertigo (with additional neuro symptoms). They gave me the "official" diagnosis based ONLY on brain MRI - no Lumbar puncture, no evoked potentials, no other MS diagnostic tests.
I was in the hospital 8 days, and was given 5 days of Solu-medrol infusions. While that treatment put the brakes on the terrible vertigo (75% improvement after only one infusion), it caused my blood pressure and blood glucose numbers to skyrocket.
It was 4 weeks after I came home, before I could drive. And it took nearly 5 months of adjusting and changing blood pressure meds to get my blood pressure mostly under control.
My blood glucose numbers are almost back to "normal for someone without diabetes), so that's good.
Just wondering if you had problems with either high blood pressure or high blood glucose following any of your steroid treatments?
Wishing you both the happiest of Holidays!!!!
From Texas!
Hello there, and thank you so much for your message and your kind words. My apologies for the late response, had a bit of a busy week and I'm slowly catching up on messages.
Wow 20 years with probable MS, that must have been very hard for you. Similarly, I lived with that myself for a while, but now I'm in that grey area whereby they aren't actually sure what they're dealing with. I am however so pleased you've now got the official diagnosis, but as you say it's peculiar based only upon a brain MRI. Having said that, this is how I was originally diagnosed as well, mainly only my clinical exam and MRI results.
I'm pleased to hear that your blood pressure and sugar levels are behaving themselves a little more now. Yes, the steroids will play merry hell with both of these and they have done with me as well. My wife Teresa is Diabetic (I'm not) but I do use her blood sugar testing kit to keep an eye on my own sugar. The other day I was a bit worried as it was 14.5 when it should be between 4 - 6! I've been monitoring it since, and it has now come down thankfully. Blood pressure not too bad now.
It's really nice to hear from you, wishing you a lovely Christmas.
All the best - Neil & Teresa.
Hi Neil & Teresa, I woke up this morning, 09-12-20, feeling quite unwell. I turned my phone on & the first thing I saw was your face Neil, as RUclips sent me a notification of your video. I just wanted to say how lovely it is to see you looking better & feeling so much more happy & positive - it really cheered me up & made me feel better too. I'm so glad you're receiving a course of IV steroids Neil - I know they always give you the boost that you need & make you feel so much better.
I just wanted to say how sorry I am that Teresa has a bleed in her eye - as if you both haven't got enough on your plate already! I think I said in another comment that my other half Dave has MS & type 1 diabetes. He has had several bleeds in both of his eyes over the years, caused by micro aneurysms in the small retinal capillaries, despite keeping very good control of his blood glucose levels. If it makes Teresa feel any better, all the eye bleeds Dave has had, resolved on their own & have not caused any permanent damage to his eyesight.
Like you Neil, Dave has also had optic neuritis in his right eye in 2015. It has left some deficits in colour saturation & contrast in the affected eye & the usual blurring when his body gets hot (such as after a bath or in hot weather) - Uhthoff's phenomenon which I know you're familiar with Neil! 🤒 Despite this his eyesight on the whole is still pretty good - he's only had one cyclist on the bonnet of the car this month! 😂
I love your Christmas tree Teresa, it's beautiful & has put me in the Christmas spirit! I'll have to get a move on, I haven't got one tree up yet - let alone five! 🎄
On a different note, I often watch your videos & photos of your beloved cat Molly, bless her sweet soul. I cried when she crossed over to Rainbow's Bridge. She had a wonderful life filled to the brim with love, happiness & contentment, which can never be taken away.
We are both cat lovers! We have our little man Whisper! We adopted him from the Blue Cross on 3rd April 2012. He was found as a stray cat & taken into their rehoming centre - their vet estimated he was about one year old. He was so nervous, very thin & his fur was dirty & unkempt. The staff at the Blue Cross think he may have been dumped by an unscrupulous breeder. He is a pure white long-haired cat - his left eye is blue & his right eye is green. Needless to say he has only known love since he came into our lives & he is treated like royalty - one of his many nicknames is Lord Whisper! 💜🐈🐾
I'm sorry I have gone off at a tangent again - I just wanted to share that with you both. I find it almost impossible to write short messages - especially to such a lovely couple that I can relate to. I think I may have even broken your record Neil, for the longest short message!
I won't go into my health issues, apart from saying I have had two chest x-rays & I have an abdominal ultrasound at 8.00am tomorrow, 10-12-20.
Wishing you both the very best of everything, you truly deserve it. Love & best wishes to you both. Sally X 💜💞🐈🐾
Hello Sally, how nice to hear from you as always.. my apologies for the delay in responding to your lovely message, it's been a bit of a hectic week at the hospital so I'm rather behind.
I have to say, switching on your phone and seeing my face first thing would have surely been quite a shock!! 😉lol Especially first thing in the morning ha ha.
Yes, I do recall you telling me about Dave having MS .. and thank you so much for telling us about the bleeds he's experienced as well, this has helped put Teresa's mind at rest. In fact, we've had a similar thing whereby we went and got the bleed checked out and it had resolved itself. So we are hoping this will be the case this time. Both Teresa and I are very switched on with monitoring and controlling her sugar levels, so it's not like continued high sugars have caused it. It's always a worry though.
Had to smile about the "only one cyclist" on his bonnet this month!! The optic neuritis is a worry though, I'm quite worried about my vision because since being on the Prednisilone (25mg tablets everyday) it's effected my distance vision terribly. All my life I've had perfectly crystal clear sharp vision, up until this last 18 months, and it's quite distressing. Once again, it's about trying to achieve that balance between the drug side effects, and the good it's doing. Difficult.
No Christmas tree's up yet? Sally, I think it could be time :) It wouldn't surprised me if my dear wife is searching for her 6th!
Ahh thank you Sally, your words about Molly have really touch me .. she really was a beautiful cat and we loved her so much. It's amazing to think that she was only a few days off her 20th birthday!! It's also incredible to think that in just over a month's time she's been the other side of that Rainbow Bridge now for three years. We also had a Staffy Cross Dog "Bess" whom we lost in 2015, I didn't start my channel until 2016 which is why she was never featured in any videos. She was such an Angel, we miss them both so much.
Lord Whisper!! I like it, and he sounds absolutely adorable! He sounds well and truly pampered, and very much loved. I don't know how people can be so cruel to animals, it's all greed and just for money isn't it. I always say, I don't trust anybody who can be cruel to an animal! Very pleased he's come to a lovely home and fine people such as yourselves.
Ha ha about the longest short message, I've certainly put together some Essays myself over the years on this channel, I also don't do short but quite often when I have such an overwhelming response to a video, I have to keep them brief otherwise it's takes me forever to answer everybody. I have to try and discipline myself lol.
I realise you've now had your scans three days ago, but I do hope everything went well. It sounds like you're also dealing with some serious issues there yourself Sally, and I'm sorry to hear this. If ever you wish to chat about these, it really isn't a problem and we'd be more than happy to listen.
Both Teresa and I hope you and Dave have a wonder Christmas.
Sending much love and warmth to you guys. 🙏💞
This is fantastic news!!! You both look so much different than the last video! You know this from the past that the IV Steroid Treatments work very well for a period of time, so that is definitely something to be excited about. Also this possible new medication that they want to try you on is new hope 💜 I can’t tell you how happy I am for the both of you!! Like you said Teresa, “you get to have your Neil back”....you couldn’t ask for more 💕 Please as usual, keep us updated. Love your tree Teresa ❤️ Take care and talk with you soon!! Kelly your friend from USA 🇺🇸 xoxo
Thanks Kelly, it's been a busy week hence the late reply. Since having the steroids I've been up and down. Keeping my fingers cross for this new treatment. Take care.
You both look so much better since the last video. Mental health is so important. You really deserved some positive things happening in your live. The IV steroids are the cherry 🍒 on the 🍰. I think a nice walk outside with Christmas lies ahead. I wish you a very happy Christmas!! It really feels good to see you happy🌞. Greetings from the Netherlands
Greetings from the UK Peter, and as always very nice to hear from you. Thank you for your kind words, and here's wishing you a Merry Christmas also. Best - Neil.
I’m happy to hear you’ll be getting the steroid treatment again! I hope it has the usually results and picks you up and makes life easier. It’s great to see you two and get an update. Take care!❤️
Thank you Amber, you take care also. 💞🙏
It’s so nice to see both of you smile. God bless you and merry Christmas.🎄🎁 ❤️
Thanks Mary, I do feel a bit more upbeat knowing some treatment is round the corner. Merry Christmas to you also 🙏💞
Her smile lights up the room!! You two are lovely, best wishes from Wisconsin USA!!
Hi Brielle, and thank you so much for your kind message about Teresa. She's the best thing that has ever happened to me. Many blessings to you. 💞🙏
Hope. It always causes one to become more uplifted. Without it, we go into a sort of pit. And what makes matters worse, is sensing that no one really cares (no return calls, etc). But this video is a BIG LIFT for us out here who care about you both.
I'm truly "cheery" along with you that the clinic/hospital has actually made contact with you and want to help you. Yes, there's Hope.
It's a beautiful thing. Hold it tightly guys. God bless.
Thank you Elaine, yes sometimes HOPE is we've got isn't it.. and I've had that thought many times in the last few years. It's been a busy week, hence the late reply.. I'm a bit up and down after having the treatment, but fingers crossed. Take care.
Neil, I am sorry that I have not commented in rather a while. This does not mean that I don't watch every one and worry about how you are doing when there are long delays between each. I think you and your wife are both an inspiration in terms what is possible when there is love, support and understanding.Your help with my introspection and stop me moaning when I see how bravely you deal with all of the ups and downs - like true champions, both of you! I hope you get the second line therapy and I really hope it works for you, so you can live comfortably, peacefully and do the things that are important to both of you in your lives. My very best wishes and take care.
Thank you Steve, for you lovely comment.. Teresa and I both very much appreciate your very kind words. Please don't worry about not commenting, it's always good to hear from you as and when you are feeling up to it. As for moaning, well .. this is something I feel I do all of the time too, but Teresa re-assures me that it's not moaning at all. When you have such a debilitating illness such as we do, it sure doesn't make you feel happy about things does it! So having a good old moan to somebody that understands and is prepared to listen to you is perfectly ok in my book. Best wishes to you also my friend. 💞🙏
Neil and Teresa, it's great to see the both looking happy. Neil I hate to say this but I'm almost hoping your diagnosis goes back to ms. Based on what I've heard from you and others that NMO is a very tricky and nasty disease. I'm not. sayingms isn't but it seems like there are alot more treatment options for it. Great to see you both looking like a million bucks and happy. You guys just made my night. God bless you both.
Hey Robert, and thanks for your message. Don't worry, I've had the same thoughts.. if I had to choose I would definitely go for the MS. To be honest, in my experience and research, pretty much any of the auto-immune diseases it's all about suppressing the immune system to help prevent the body, effectively attacking itself. It just has to be done differently depending on what you're diagnosed with. So pleased your enjoying the video, blessings to you.
OH MY GOD!! YES YES YES!!!! Good news! You both look so much better. As if a weight came off your backs. Good!! I'm so happy for you!! Hugs and love!
Ahh thank you so much J .. yes good news, I do feel a little bit more upbeat knowing I might start to feel a bit better soon, even if it usually is short lived. 🙏💞
Quick comment, I had some jasmine leaf tea with a stroopwafel while watching this. Ms Teresa relaxes properly, with trees maintained by Neil! Wish you luck!!
Thanks Andrew, I hope you enjoy the tea!
Your spirits have been lifted and that's great for you both.happy days
Thank you Michelle. Best to you.
Good to see you again Neil. Didn't know if you got my reply last time. I had Solu- Medrol last three days 1000mg IV so it really does a good jolt for me and I feel great and it helps greatly. Say hi to Theresa and you guys are in my prayers. Talk soon.
Hi Bodhi, good to hear from you also .. apologies if I missed a previous comment from you, I will have to go track it down. Whilst I was having the Solu-Medrol I started to feel it's benefits, but a few days later (now I'm catching up on comments) once again I'm not feeling so great unfortunately. All the best to you.
The love is beaming of the screen when i'm waching you guys!
Love from Belgium~
Ahh thank you so much 🙏💞
So glad to hear they are going to go ahead and give you some IV steroids! Hope to hear that you are doing better soon after the IV's get started. You had me in tears last video, Neal. I imagine that it touched everyone deeply, hence the many comments. We all feel like we know you both so well from all of your videos, we all are hoping you get some relief and better mobility from the IVs.
Thank you so much Rona .. as I'm sure you too are very much aware it all gets a bit too much sometimes doesn't it, that feeling of you just can't take anymore, and then something else comes along to test you even further. Blessings to you. x
Good to see you see the both of you !! It's good to see you on my birthday, The tablet that they MS Nurse said you were tapering off do you have to have that medication out of you system in order to start possibly start the Rituximab Second line treatment ? And would you still be able to receive the IV of Methylprednisolone with it in a certain amount of time frame like a couple of months a part maybe ? Or only be able to possibly start Rituximb Second Treatment when ever things get started for you and take you off the IV of Methylprednisolone ? I am going to Google on the Internet what is Rituximab to see how it helps the body of Chronic Pain or what else it can do to help the body ? Tell Teresa I seen the tree in the corner before she had showed it I like it !! You should keep your five trees up all year if you have the room and even add more !! And before I go I just have to say a bag of chips can be romantic why not :) :) And I hope next week you treatment for your steroids will help you feel better !! To the both of you Take Care !!!
Happy Belated Birthday Wishes Amanda, I truly hope you had a great day.
The tablet I'm slowly tapering of is called Prednisilone and it's a steroid. I was only meant to be on this tablet whilst another one (Azathioprine - Immunosuppressant) settled into my system which can take up to six months. But because I've been so bad, they kept me on the tablet steroid as well which I'm not really happy about because long term the side effects aren't nice. I suspect I will definitely have to stop the Azathioprine (Immunosuppressant) if I get approved for Rituximab because they both suppress my immune system. It's my understanding that because the Rituximab is more aggressive, I have to go into hospital for the whole day because they give me Steroids, Antihistamine and finally the Rituximab, and I think this would be every six month possibly three depending on its effect.
I will indeed tell Teresa, but she also reads every comment to rest assured she will be well aware of your kind words, thank you.
Best - Neil & Teresa.
Brilliant news I’m so happy for you both XX
Thank you Jackie. xx
🎊🎊🥳🥳🎈🎉🎉
Hello my friends!
This is wonderful news!! Praise God!
I am very happy for you both.
And you know what? It has me smiling for the rest of the day.
I'll continue to keep you in my prayers, much blessings for you both and for this week's journey. I have an appointment myself, and hopefully I'll have good news as well.
Sending a big celebration hug 🙂💖🌻
Hello Jay, ahh thank you so much.. your kind words mean so much to both Teresa and I. Oh you have an appointment yourself this week, I hope it goes really well and the news is positive and good. Maybe you will share. Blessings to you my friend 💞🙏
Wonderful.
Now you can have a very merry Christmas 🎄!!!
Thank you Carlie, and Merry Christmas to you also. 🙏
Great news! You both look well and happy this update. I adore your tree. :)
Thank you so much Lorien - Neil & Teresa 💞🙏
So good to see you both! Somehow I missed the last video. I am so sorry you've been having a rough go of it. Prayers that next weeks treatment will have you feeling much, much better. Prayers for you both and lots of love from the USA.
Thank you so much Martha, I very much appreciate your kind words. x
Neil! You are looking much, much better! Both of you are really, I can feel the happiness. Lots of ❤ to you both.
Thank you Laura that's very kind. Much love 💞🙏
I am very curious about the difference between IV prednisone and the pill version. I just had to stop faking clonazepam because my insurance stopped covering it for a time.I had to go "cold turkey"and my body has not done well. I have spent a lot of time in the recliner. I need to speak with my doctor but my appointment is not until January 7. I am looking toward a quiet holiday. I love Treena's five trees. I would love to have that many. Have a blessed holiday. May your IV go well, Neil. I hope you see some improvement. I am working on an advent craft which I am enjoying. I also have a new puppy named Coconut. I wish I could sendy ou a photo of her. She has brought me so much joy. Until next time, Kerri
Hi Kerri, I've asked that question at the hospital about the difference between the IV and the pill version and they say there is no difference. But I've had both and I felt the pill version did nothing, whilst I've always had good results with the IV. The IV obviously is straight into the blood stream, which I feel has got to be more beneficial as it doesn't have to deal with the GI (Digestion). As for the Clonazepam, I've tried to come off this drug but when I do the PAIN in my stiff back muscles start up again, and it is absolutely crippling for me. I'm not on a high dose, but whenever I've tried to come off it, the pain is unbearable.
Ahh it's lovely to hear you have a new Puppy, I'm sure Coconut will bring you lots of joy and smiles. I also hope you enjoying your crafting, it's important to have something you really enjoy doing, a distraction.
All the best to you - Neil & Teresa 💞🙏
good to see your doing well 👍
Thank you so much.
Glad you are having the treatment so look forward to your videos I see spine nurse on 23 Dec happy Christmas to you both lv ann
Hello Ann, and thank you .. I hope your appointment with the Spine Nurse goes well. Merry Christmas to you also. 💞🙏
Lovely to see you both...keep smiling ❤️.and incase you don't upload for Christmas 🤶🎄🎅 have a fabulous Christmas 💕
Thank you, and we hope you have a lovely Christmas too. Take care. 💞🙏
Hi, so glad to see you both again so soon! Glad to hear you are getting some treatment. Sounds like it will be helpful🙂👍. Take care😊🥰
Thank you so much LW, appreciate it. 💞🙏
I was just thinking of you two last night, wondering when we would hear from you. Good to see you guys. You are looking well. Great that they will start treatment that will help and paying more attention to Neil's case. Teresa, love your nail color, it's bright and shiny as you are. Both of you make me smile. Thank you for the update.
Hey there Sheri, and thank you for your lovely message. Yes, had the three days of treatment Tue, Wed, and Thu this week so it's been a bit hectic hence the late reply. I'm a bit up and down at the moment, but fingers crossed I'll pick up. Take care. 💞🙏
@@NeilBradleyMS good luck, Neil.
Just great to see you! And smiling! More comments later!
Hey Susan, nice to hear from you!
@@NeilBradleyMS oh Neil I’m so happy to hear you are getting your IV steroids! So it will be a very Methylprednisolone Christmas for you! You definitely look brighter already too so hopefully you are feeling better- how can you not look better with all those Christmas trees! 🌲 I’m so pleased to meet another tree fanatic Tree! 😂 Haven’t got ours up yet but put up our Nativity Set which here is know as the “Presépio” I have to add the hay today. I’d send you a photo if I could! Our tree is about 3 metres. We always had a real one in the U.K. but they oddly are impossible to find here....except growing on the mountains! Anyhow it usually takes us 3 days to decorate....I have my Mum’s, and my grandmothers’ beautiful old decorations that are fragile..so am wary this year too with Romeo our newer Siamese as I have visions of shattered glass....and him instead of my Angel at the top!
My hands are still numb and sore so I made a quick visit to my osteopath who said that I have a lot of inflammation deep inside and has given me new exercises and I will be having a full treatment on the 10th...so I’ll be thinking of you while she inflicts pain on me! 😂
Much, much love to you both, good luck for next week and feel better soon! 😷🎄🎄☃️❣️❤️❣️☃️🎄🎄😷
Hi Susan, thank you for your message. Your Tree sounds lovely, my Tree (Teresa) doesn't need more encouragement, we've already got five tree's up lol and I think she's thinking about a 6th!! Ha ha .. I'm just happy if she's happy, I actually encourage her to do what she loves which is what it's all about really isn't it.
I hope your treatment goes well.
Best to you with much love - Neil & Tree xx
I love the smiles on both of your faces. God will continue to bless you🙏🏾 Merry Christmas🎄🎄🎄🎄🎄Love the Five trees🥰 -Trice
Thank you so much 🙏 Merry Christmas to you also.. there a very good possibility my wife is secretly planning a 6th Tree lool.
Sounds like your getting somewhere fingers crossed x
Thank Julie, hopefully .. slowly but sure at the moment, but time will tell as usual. 💞🙏
Hi great to see your smiling faces again , I do love watching and listening to you both and following your journey, great news about you getting the iv treatment you need, so important to be able to get the right treatment that works for you, Have a Wonderful Christmas 🎅🤶🌲❤😊🇦🇺
Thank you Elisabeth, we hope you too have a wonderful Christmas. 🙏💞
We've missed you!!❤
Ahh Thank you Melinda 💞🙏
Glad to see you smiling. Steroids are magical! The downfall is any benefit is temporary and they cause hip necrosis.
Hi Karen, as a rule they are magical for me but not so much at the moment.. haven't been feeling so good this last day or so. I know about the risks of Osteoporosis, and I'm on a bone protector drug to help with that, but we have to weigh up risks don't we against quality of life. I find myself doing this all the time, one of the biggest problems I'm having at the moment which I feel is steroid related is poor vision (distance). It's actually quite distressing. I hope all is well with yourself.
@@NeilBradleyMS I'm sorry 😞
Good to see you smiling again.
Thank you Ray, hope you're well.
Good to see you both I'm sorry I didn't see your last video will have to take a look back. Well at least things are moving for you which is great. Have yourselves a great Christmas with all those trees and hope the steroids give you some better days.
Adrian 😉
Thanks Adrian, appreciate it. I hope you're doing better yourself, and you too have a good Christmas. Best to you.
You both look really relieved 👍, glad you’re getting steroids & new treatment, hope it all goes well, take care , Grace 😊
Thank you so much Grace. 💞🙏
Why hello you two ❤ 🐦 🐦!!! So great to see you both again so soon & even better that you're going in this coming Tuesday for your IV steroids! I love Teresa's Xmas tree! 💖💖💖
Thanks Susannah, and yes Teresa loves to show off her Trees 🌲 😆 ❤️
Neil , I’m not gay, but I got to say it, I think you’re quite a very handsome looking bloke ✊
I love watching your videos bruv , always very enlightening and beautiful. I adore Teresa ♥️ she polishes all ur videos likes makes it even more beautiful
Hey Patrick, and thank you for your lovely message.. that's very kind of you to say. My apologies for the late reply, we've had a very busy week (3 trips to the hospital) so I'm only just getting around to responding to comments again. Once again, thank you for your kind words, more videos to come. Take care friend 💞🙏
@@NeilBradleyMS
You’re welcome, Neil. I totally understand you and please don’t ever feel obligated to respond; you are number 1 . It’s always nice to hear from you and Tree. And I’m always rooting for both of you to get better 🙏♥️🦋🎄
@@patrickpatel5527 Do u have MS??
Glad to see you both again keep smiling👍💐🌺🌸🌷
Thank you so much. 💞🙏
I have been on Rituximab for the past 1.5 years and it seems to be doing it's job. The nice thing is that I have found there are almost no side effects. You almost don't even notice it other than the fact you don't encounter relapses. I hope you have the same experience!
Hey James, apologies for the late reply.. it's been a bit of a hectic week for us. Thank you for this information, it is VERY re-assuring for me as I have to admit I'm a little worried about any kind of new treatment. Appreciate it.
Wow, another vid already! Your spoiling us lol Brilliant news with the steroids Neil, something to look forward too. Just wanted to say, the love between you both is wonderful to watch. Your made for each other. Btw the 5 Christmas trees made me laugh, think you can push it to 6 Teresa?? 😂
Hi Adele, ahh and thank you for your kind words.. it's lovely to hear from you, I hope you are keeping well also. Teresa doesn't need any encouragement for yet another Christmas tree LOL, in fact it certainly wouldn't surprise me if number 6 arrives at some point soon. I hope you have a good Christmas, take care. 💞🙏
Excellent Guys😎 I had a Laugh at Tree’s comment about Making a cup of Tea! Like my wife Tea is the remedy for everything 😂😂👍x
Hi Gordon, and thanks .. I know what you mean about the "cuppa" lol 🙏xx
Hang in there..hope you and your wife are doing better
Hi Michelle, thanks for the check in. I’d like to say things are better, but unfortunately they’re not great. I have been approved for some new treatment however, so fingers crossed. Hope is all is well with you.
Great news Neil. Well done Best wishes to you both! Nic :0)
Thanks Nic, I hope you're doing well.
Long time no see, I've had a few of those side effects without any medication , still no diagnosis for me I'm afraid, new neurologist at Stoke, various tests emg ,Had a hour long mri 8 weeks ago head & spine about an hour.....( & Datscan a month before that , inconclusive result) & eversince halfway through MRI had NON - STOP tinnitus,high pitch hiss/ ringing in head ( more than ears )discomfort in head & neck round ears & at times pulsing in exact time with heart etc ever since which has got me down BIG time, & a few additional symptoms during the year, Fasciculations in my legs mainly & muscle aches , more giddy. Been referred to a spine specialist too as I'd got these hemangioma in my spine ,which previous Neuro ignored & said they were nothing& I have had them all my life( dont know how he would know that ???) a year later new neurologist said he thinks they are not good.....(wish they all read from the same hymn sheet)
Anyway,.... NOT wanting to bring you down with my misery, just wondering if anyone else who reads these messages has had tinnitus after mri & similar experiences?( just a lonely 6 year journey for me so far esp with the huge gaps between appointments & contradictions& discrepancies between 'professionals ' could do with a wonderful partner too( you are very lucky😉)
ANYHOW....
SO...
GLAD you are getting the steroids👍👍👍💥, hope you feel ALOT better, take care both, stay safe & if I don't write before then sending you both Christmas blessings x
Hello Just Me, yes it's been a while hasn't it but it's nice to hear from you again. I'm sorry to hear that you have somehow acquired Tinnitus, not being able to switch a noise off in your head is soul destroying! I know, because I've experienced it many years ago (for a couple of years), and still quite often do from time to time even though it's settled down now.
Now word of a lie, I was fearful of my very first MRI of this exact thing (Tinnitus) happening to me. I was very nervous about sitting inside a huge magnet and the effect it would have on my body. In 2012, because of what was happening with my health I no longer had a choice though, and I had my first MRI, and I was in fact fine once I settled into it. Since then, my current MRI count is now 11.
Christmas blessing to you also, take care - Neil & Teresa 🙏💞
Two for the price of one. The pairing is perfect.
Thank you Michelle. We hope you have a good Christmas, blessings to you.
You guys are lovely and so cool. Hope you're both well?
Hey there, thank you for your kind message. We aren’t too bad, thank you for asking. I hope you too, are well. 🙏
@@NeilBradleyMS I'm not too bad thanks. All the best to you.
have you ever tried the Wim hoff method using breathing and the cold ?
Hi there, I haven’t tried it no but I think I saw a program or documentary on it a while back on tv.
Cold is very bad for people with myelin lesions, it worsen the symptoms a lot. Wim himself says his program works wonders for healthy people but ill people should be very careful.
Love ya Neil
Thanks Chip .. I hope you are well and have yourself a good Christmas my friend. Much love to you also - Neil & Teresa. 🙏💞
Still... Methylprednisolone has some serious potential side effects... If I was you I would definitely be hoping for Rituximab... I know one MS patient who was treated for years on Methylprednisolone, he now has two new hips and is treated with Ocrevus (about the same as Rituximab)
I think he is aware of the side effects but since he has been so bad lately he just wants to feel better. I personally hate methylprednisolone and hope I'll never have to take it again, but it works very well with Neil, and I understand his excitement since it's the only thing working for him at the moment.
@@kara7197 As do I (understand him)... However my MS-friend thought and acted the same... Now he has experienced the side effects and decided: never again.
@@blak4001 I know, short term side effect were enough for me to say that probably I won't take it anymore (also because it didn't seem to stop the inflammation with me). If I were Neil however I will think what's the point of having healthy bones if still I cannot walk? Add the pain, the discomfort, the insomnia, the depression, if you watch his previous video he clearly is in despair and this one thing, no matter how bad the potential long term effect may be, bring him back to life. Side effects can also be monitored and in some way prevented, and not everyone will develop them. Theres always a risk-benefit evaluation with every medication and I think Neil has made this decision in his best interest.
@@kara7197 True, I understand the reasoning :-)
Yes indeed, unfortunately I am painfully aware of the side effects of continued steroid use, not only the weakening of the bones, heart and blood pressure, muscle wastage, eye sight issues (such as Glaucoma & Cataracts) to be honest the list is endless. But, I am trying to achieve some kind of balance between my quality of life and this soul destroying disease I have. When I see myself going down hill further and further without any improvement at all, that "dark cloud" of depression starts to loom, and it's very real.. and dangerous. I'm trying to be the best version that I can be, not only for myself, but for my wife, family and loved ones despite the risks I'm taking.
...yayyyyyyyyyyyyy!!!!!!!!! go intravenous steroids:)
Thank you Willow. 🙏💞