I am so happy I came across this video, especially on night when I was feeling down, that life was limited. You brought a comfort and calm to my mind and eased my worries a little. So thank you
Thank you so much Kathy for this video. It was such a good reminder of how important it is to be true to ourselves. I have heard all of these do's and don'ts about lichen sclerosus that you can get from the internet and just reading about LS telling us what we should and should not do when we have LS. When you're hurting with LS and seeking answers, you can feel very vulnerable to suggestions. I loved your message to continue to live your life and continue to do the things that you love to do and not let LS just takeover in such a negative way. As you always say, it's a journey and it's a process. We and thiis condition of LS, continue to unfold and evolve and change. We need to be flexible and loving with ourselves. Thank you for this wonderful message!❤😊
Thank you for continuing to put content out. Your messages are bringing us hope and helping us to keep our sanity. We truly appreciate it more than we can say.
Thank you Kathy , needed to hear this right now , still coming to terms with my LS diagnosis but I’m determined that LS will have to live with ME rather than the other way round ‼️ I was told to wash my Veejay with plain water but I just don’t feel clean that way , not giving up my Dove for anybody 🤣🤣. Bless you Kathy 💐
Thanks so much for the video 🤗🤗🤗 I really appreciate it. Stops my mind from going nuclear trying to control the symptoms right now. I just have to give it time and see where the symptoms come and go. Thank you!!
You are so nice. Such a good person. Sorry for my bad english. I will join your group. Cause here in Montreal,Canada we don' t have good advices, we don't have support. Doctors and gynecologists don't seem to know much and don't help. We have hudge problems with our health system here. I don't even have a doctor. LS is new for me and your videos help a lot cause I feel really alone with this. I think I have it since menopause. I have other health problems. I was told I might have a gluten and dairy problem as well. I don't know what to eat anynore.If you have any videos on what to eat and what to avoid with LS. I would be interested. Thank you so much. I really appreciate your help.
I’m new to your channel. Doctor believes I may have LS and will do a biopsy soon. I looked at recommendations for diet and started to get depressed. I have IBS, and can only eat certain foods. The idea of eliminating more food is really depressing.
According to a study done in Portugal, diet only triggers about 25% of us. Diet does nothing for me. Don't stress about diet. Your best bet is to just be observant and start taking note of things when you get triggered. I have a symptom tracker you can use if you decide you want to really start recording it. lssupport.net/symptomtracker If you do have LS, the best thing to do is figure out which treatment plan to reduce inflammation you are comfortable with. Discuss your options with your doctor. Here's an interview I did with a dietitian around LS and diet. ruclips.net/video/vBCihbuID1Y/видео.html
Kathy I'm so pleased to have found this video. I've just been diagnosed and am struggling emotionally as well as physically. It's good to hear some sense talked about not throwing out all your clothes (my clothes mean so much to me!), and about allowing things to evolve once treatment takes effect. Thank you.
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I am so happy I came across this video, especially on night when I was feeling down, that life was limited. You brought a comfort and calm to my mind and eased my worries a little. So thank you
Thank you, Sarah! It warms my heart it brought you some peace. Be sure to follow our new channel @lichensclerosussupportnetwork for new videos.
Thank you so much Kathy for this video. It was such a good reminder of how important it is to be true to ourselves. I have heard all of these do's and don'ts about lichen sclerosus that you can get from the internet and just reading about LS telling us what we should and should not do when we have LS. When you're hurting with LS and seeking answers, you can feel very vulnerable to suggestions. I loved your message to continue to live your life and continue to do the things that you love to do and not let LS just takeover in such a negative way. As you always say, it's a journey and it's a process. We and thiis condition of LS, continue to unfold and evolve and change. We need to be flexible and loving with ourselves. Thank you for this wonderful message!❤😊
You are so welcome! Thank you for receiving it. 🥰🤗
Thank you for continuing to put content out. Your messages are bringing us hope and helping us to keep our sanity. We truly appreciate it more than we can say.
You are so welcome! Happy I can help. 🤗
Thank you Kathy , needed to hear this right now , still coming to terms with my LS diagnosis but I’m determined that LS will have to live with ME rather than the other way round ‼️ I was told to wash my Veejay with plain water but I just don’t feel clean that way , not giving up my Dove for anybody 🤣🤣. Bless you Kathy 💐
😂😂😂 I HEAR that! I need my soap too. Yaaassss!!! Show LS who's boss! 🥰🤗
Thanks so much for the video 🤗🤗🤗 I really appreciate it. Stops my mind from going nuclear trying to control the symptoms right now. I just have to give it time and see where the symptoms come and go. Thank you!!
I'm so glad it helped you. Yes! Listen to your body and give it what it needs. 🤗
You are so nice. Such a good person. Sorry for my bad english. I will join your group. Cause here in Montreal,Canada we don' t have good advices, we don't have support. Doctors and gynecologists don't seem to know much and don't help. We have hudge problems with our health system here. I don't even have a doctor. LS is new for me and your videos help a lot cause I feel really alone with this. I think I have it since menopause. I have other health problems. I was told I might have a gluten and dairy problem as well. I don't know what to eat anynore.If you have any videos on what to eat and what to avoid with LS. I would be interested. Thank you so much. I really appreciate your help.
I really appreciate you help!!
You are so welcome!
I’m new to your channel. Doctor believes I may have LS and will do a biopsy soon. I looked at recommendations for diet and started to get depressed. I have IBS, and can only eat certain foods. The idea of eliminating more food is really depressing.
According to a study done in Portugal, diet only triggers about 25% of us. Diet does nothing for me. Don't stress about diet. Your best bet is to just be observant and start taking note of things when you get triggered. I have a symptom tracker you can use if you decide you want to really start recording it. lssupport.net/symptomtracker
If you do have LS, the best thing to do is figure out which treatment plan to reduce inflammation you are comfortable with. Discuss your options with your doctor.
Here's an interview I did with a dietitian around LS and diet. ruclips.net/video/vBCihbuID1Y/видео.html
Kathy I'm so pleased to have found this video. I've just been diagnosed and am struggling emotionally as well as physically. It's good to hear some sense talked about not throwing out all your clothes (my clothes mean so much to me!), and about allowing things to evolve once treatment takes effect. Thank you.
You are so welcome! Please check out our other resources on our website. lssupportnetwork.org
Hi! Did you have the “symptom tracker" available?
Yep! You can download it at
lssupport.net/symptomtracker
Hope it's helpful for you!