Galactosemia is a condition that when you live with it and around it it's easy to understand but the condition is quite rare and not many people have ever met someone with Galactosemia. Lovely video
Oh my God you get me everyone called me a psychopath at school and I just come home and I cry and I just think the world is going to end but I'm I have a little bit of Hope and this video really helped me thank you so much
I’m Galatosemia too!!❤️❤️ I’m doing quite well to be honest and here’s a question I’m 12, almost 13 with Galatosemia I’m growing perfectly and puberty is fine but it takes ages to get my period or it’s just delayed but I never got my period. I know I’m young but I would like to know the treatment Thank you Grace!! ❤️❤️
Hi Grace! I am 13 years old and I have galatosemia as well!! My name is Kendall and my birthday is December 28, 2005. I almost die !! On day three my liver was failing and I had no vision. But I'm ok now!!! I'm still allowed to have da iry, just not a lo t. But I haven't gotten my period either. Girls with condition like ours either don't get them at all, or are very delayed
Galactosemia is a condition that when you live with it and around it it's easy to understand but the condition is quite rare and not many people have ever met someone with Galactosemia. Lovely video
I have type 2 galatosemia. I am 13 years old and I'm doing quite well
Oh my God you get me everyone called me a psychopath at school and I just come home and I cry and I just think the world is going to end but I'm I have a little bit of Hope and this video really helped me thank you so much
Lm sorry
I love this video my son actually has galactosemia!
miscellaneous michelle thank you so much for your comment, means a lot, sorry it’s taken so long to reply! Xxx
It’s amazing watching this now you have a baby
Thank you so much, i know its amazing isn't it! So crazy at the same time. But i love being a mummy xox
I am David and I have Classic Galactosemia and Schizophrenia too. I live in Australia and am 39 years old...
Nice to meet you David, thank you for watching my video. Hope life in Australia is treating you well. xox
ive had it since 2001 been so hard
I’m Galatosemia too!!❤️❤️ I’m doing quite well to be honest and here’s a question
I’m 12, almost 13 with Galatosemia I’m growing perfectly and puberty is fine but it takes ages to get my period or it’s just delayed but I never got my period. I know I’m young but I would like to know the treatment
Thank you Grace!! ❤️❤️
Hi Grace! I am 13 years old and I have galatosemia as well!! My name is Kendall and my birthday is December 28, 2005. I almost die !! On day three my liver was failing and I had no vision. But I'm ok now!!! I'm still allowed to have da iry, just not a lo t. But I haven't gotten my period either. Girls with condition like ours either don't get them at all, or are very delayed
What kind of galactosemia do you have I have classic
I have classic galactosemia too
i just found out that i had an uncle that passed at 10 weeks old due to this condition :(
Awww sorry to hear that :( it’s so sad x
I have galatosemia and that is so sad😢
So sorry