Baby Iris' Heart Condition Update || Congenital Heart Defects || Right Aortic Arch
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- Опубликовано: 10 ноя 2020
- I finally got around to making an update about baby Iris' heart condition. Her right-sided aortic arch diagnosis was confirmed officially. It is definitely scary being told your baby may have a congenital heart defect. Also trying to book medical appointments during a pandemic is beyond difficult. With hearing loss and a heart condition we really didn’t know what to expect. Having a baby during the pandemic was hard enough let alone needing multiple doctor appointments and tests after giving birth as well.
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Hi, My name is Athina. I am a 29-year-old mama to two beautiful little girls and wife to the best husband a girl could as for, Leonidas. We live in a small Suburb East of Melbourne, Australia. I am a Stay at home mom. I post videos about motherhood, cleaning and everything in between. I love being able to express myself without driving my husband mental :)
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You are ao AMAZING!!! My heart goes out to you!!!! Sending you guys so many hugs and positive vibes right now!!! Thank you for sharing your journey! Love you!!!!
Thank you so much ☺️🥰🥰
Fantastic news!! They believe that heart and hearing issues are connected most of the time. Crazy!! Well you are now in the right hands for care for both of her issues. Normal I consider boring in a way. Challenges are a great way to spice things up. Keep up the good work!!
Really? I had no idea they are connected. That is true. As long as we can manage it normal is overrated 😊
So glad all her tests came back "normal" aside from the aortic arch and isn't expected to have any further issues! So good to hear from you again xx
It was very comforting to know we shouldn’t need to worry about her heart. We already have other things to figure out. ☺️ It’s good to be filming. I really need to pick it up consistently as it makes me feel so much better.
Hi, my wife's 21 weeks scan done and diagnosed right aortic arch and right ductus arteriosus. After listening your experience, now feel relaxed.
Hey, we have the same condition with you. 27 weeks now. How is your baby now? I hope he/she is healthy
Thank you for this video.
I’m glad it helped you in some way
Thank you so much for sharing this! I am 22 weeks and we were just told our baby had a right aortic arch. It helps to hear stories like yours as right now I am still very fearful of everything that is potentially ahead ❤️
I understand exactly how you feel. I am here if you need to talk or have any questions 😊 Know it will be ok. Take it a day at a time. Step by step.
Hi hows baby doing? I am in same boat baby is due in january.please your latest update will be really appreciated how is baby now? Any issues with right aortic arch? Please reply i am so much worried
So far so good. Iris is doing great. We have had no issues at all.
@@tazeemkhan952 also confirming that my little man is doing perfectly fine as well! We saw a cardiologist right after birth in the NICU, then had a 1 month check up and 3 month check up and were cleared until he is 18months! We started purées this week and he has no issues so far!! ❤️
My baby is diagnosed raa and also vsd. Im now 25 weeks. 🙁
I am on my 23 week and we find out our little girl has the same heart abnormality😞 is hard to not feel concerned about it but the cardiologist as same this video gave more hope.Its something totally new for me and I liked to hear from your experience, thank you
I know how scary it can be. Try your best to stay positive and calm. It will all work out in the end.
Baby girl is adorable
🥰
That's such amazing news!!! A variation of normal just makes her extra special and maybe she can confuse some medical professionals in the future lol.
That is for sure. Such a lovely way to look at it thank you 🥰🥰🥰
Any way to link to your previous videos regarding the right aorta arch? I’m 19 weeks and just discovered my baby has this as well and it’s been a emotional roller coaster.
Hello. I hope u are all doing well!! Just a question, did u do amniocentesis?
It is very frustrating when you expect referrals to be sent and they're not correctly done then you end up following up on everyone... 😑
Glad that baby girl is doing well ❤️ stay safe 🙏
Exactly. So frustrating. But as long as all is well now I am happy. Hope you and baby are doing well too. 🥰
my 3 month is going for vascular ring surgery tomorrow! it was diagnosed in Utero!
My daughter is most likely in the same boat, I hope everything went well
Heyyy! My daughter is 10 and is missing half her heart (HLHS) she spent the first 6 months in hospital, had open heart surgery at 6 days, 3 months, 6 months, and 4&1/2 years :)
Oh wow that is amazing. They are so strong and resilient. So happy to know she is now past it.
Thank you for sharing!! I am pregnant and on my 25th week now they told me the some I so worried about it and all the syndrooms that he can have. Please tell me how your baby doing right now.
She is doing very well. Just take it one day at a time
Glad the little one is doing great. It's always nice to see a video from you. Too many commercials in your video 😆. COVID COVID COVID COVID COVID. It's so nice how much hospitals care about their patients no matter what age they are. Did a monkey fill out the email for the referral for baby Iris?
😂 I don’t set the commercials RUclips does. They are multiplying over time. It’s all about COVID.
Did you went through amniocentesis test? I am in the same condition as you were. Doctor has asked for amniocentesis test to be performed?
No I chose not to do that. It was offered as an option so we can see if there are certain abnormalities in regards to her heart etc. but we decided against it. Now that is a personal choice. If you feel it is the best for you and baby you do what you need to do.
have you looked into genetic testing, for the fact that hearing and heart conditions link to some syndromes.
Yes we will be getting genetic testing done. It’s one of the things coming up. I will be making an update video soon.
How is your baby now?? I recently got to know in my 22 weeks that my RAA with vascular ring,..... Can you plz give me update on your health detailss
Iris has a RAA without a vascular ring at this point. So she is clear at this point. We are monitoring for the possibility of it being created as she grows.
@janu8724 how is your baby doing? In the same boat as you right now at 25 weeks pregnant.💕
How is yours Kristen. In the same boat now. We have options. Not sure what to do
So sorry that you had to wait so long for an appointment. I agree with you about Covid, here in the UK before this most recent lockdown pubs and restaurants and kids soft plays were still open but you could only have a telephone doctors appointment! I think they prioritised the wrong things! X
Definitely prioritizing the wrong things. It’s insane.
Dear mam my baby also right arodic arch
Hi guys
Hi 🙋🏻♀️🥰
Hi
Same situation with my baby am 23 week pregnant am very scared 😢😢😢
I took it one day at a time. You really can’t do anything else and this point and it is so scary. I know exactly how you feel. You are not alone. There are so many mamas going through this. I hope you and your partner are supporting each other.