Living with a Laryngectomy

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  • Опубликовано: 28 ноя 2024

Комментарии • 73

  • @eman3434
    @eman3434 Месяц назад +2

    My boyfriend got cancer and he did this surgery and now he is starting to talk again and since that he has never stopped telling me how much he loves me I’m so grateful to have him

  • @bustopninja4520
    @bustopninja4520 3 года назад +20

    I realize that this vid is 4 years old but, boy, did it help me out. I am facing a total laryngectomy soon and was scared at the prospect of losing my voice. It has been hard to communicate with a trach now but this Atos prosthesis is the one I'm getting. I hope to be able to give back to the community as well.
    ...and I'm not/never-was a smoker.

    • @fuckoff2937
      @fuckoff2937 3 года назад +1

      How'd it go

    • @bustopninja4520
      @bustopninja4520 3 года назад +2

      @@fuckoff2937 not for 2 more weeks.

    • @fuckoff2937
      @fuckoff2937 3 года назад

      @@bustopninja4520 so your actually not gonna have a voice? If so not telling you what to do but if you got kids record your actual voice for them

    • @trouty7947
      @trouty7947 3 года назад +3

      Honestly, I'm not sure if the show's mics are helping but it just sounds like he has a very sore throat. Like I feel like I can hear his natural voice, just hoarse. And it sounds like he can speak very fluently. And the more I listen, the more it just sounds like his voice and not anything "different" if that makes sense. That device is incredible.
      I hope you're doing better now, friend.

    • @yasminsk3189
      @yasminsk3189 Год назад

      Hey how.arw you now??

  • @Blurbmuz
    @Blurbmuz 4 года назад +38

    Please don’t assume only smokers get this type of cancer and need their voice box removed. My partner has never smoked and is having this procedure!

    • @zQoQz
      @zQoQz 3 года назад +3

      I’m probably late but how did it go or any updates? I’m curious about how they are doing :)

    • @troypostoluk3963
      @troypostoluk3963 3 года назад +2

      I never smoked a day in my life and got it.

    • @boomerang6130
      @boomerang6130 3 года назад

      @@troypostoluk3963 What did they say caused it if you are not a smoker Troy? Thanks for your comment.

    • @troypostoluk3963
      @troypostoluk3963 3 года назад +3

      @@boomerang6130They have no idea. Which makes me wonder was it really cancer.

    • @boomerang6130
      @boomerang6130 3 года назад

      @@troypostoluk3963 Were you hoarse? Did your throat hurt?

  • @JohnM1774
    @JohnM1774 Год назад +4

    Thank You for this segment. I am going for a total laryngectomy this Thursday. I am really concerned about speaking again. This segment is VERY HELPFUL. Thank you again

    • @skyaker8241
      @skyaker8241 Год назад

      I hope that things have gone well for you, and that you'll have the very best outcome.

    • @irenetinaco4134
      @irenetinaco4134 Год назад

      how r u after the surgery?

    • @JohnM1774
      @JohnM1774 Год назад +1

      @@irenetinaco4134 Doing better Thaank you for
      asking. I wil admit, I had NO IDEA how hard it was

  • @troypostoluk3963
    @troypostoluk3963 3 года назад +8

    Fun fact, Any word starting with "H" Cannot be said by a larengectomy lol.........."house" is "ouse" when u say the letter h in a word u need air flow not the vibration sound. it's kinda akward at times but its ok

    • @laurenmontera9516
      @laurenmontera9516 2 года назад

      The person would have a British cockney accent 24-7.

  • @donnagarduno7851
    @donnagarduno7851 3 года назад +8

    I feel so alone so happy to see there really is other people like me..

    • @derrickfeldt6948
      @derrickfeldt6948 3 года назад +1

      I just got this surgery and I’m getting used to is now

    • @donnagarduno7851
      @donnagarduno7851 3 года назад

      @GamerVidz yes I got the surgery Feb 17 2021

    • @irenetinaco4134
      @irenetinaco4134 Год назад

      how old are you now? how are u after the surgery?

    • @ianekkam
      @ianekkam Год назад

      Its nice to hear other people telling about it to keep positivity up :)

  • @alexandraspatz6991
    @alexandraspatz6991 4 года назад +1

    I really enjoyed watching this. Just stumbled across it while trying to learn for my nursing class. The woman interviewing everyone has a kind demeanor and is has done her homework. This was very informative and it had a sweet personal touch. So glad technology has come so far to give patients the tools they need to continue to live fulfilling lives.

  • @simongarlick4384
    @simongarlick4384 Год назад +2

    I had a Laryngectomy 5 weeks ago just about to come out of hospital. I finding so frustrating that not being able to talk but even more frustrating people not willing to give you time to explain what your problem is with speech some times i wish i could shout but all you get is air escaping.

  • @theveterancancersinger5568
    @theveterancancersinger5568 2 года назад +3

    I have just had a Laryngectomy and want to be able to sing, Veterans Cancer Support

  • @troypostoluk3963
    @troypostoluk3963 3 года назад +3

    I'm now 11 years into my Larengectomy, i have COPD now and emphysema. I;m going downhill and have very few years left.

  • @TheBlackromance23
    @TheBlackromance23 3 месяца назад +1

    I have stage 4 laryngeal and had no risk factors im 36 i now face a total laryngectomy inhope i too can get a hands free voice box

  • @laryon
    @laryon 2 года назад +4

    Never smoked but still had this performed. Not being able to talk really sucks. A lot!!

  • @nathanjoerndt8804
    @nathanjoerndt8804 7 лет назад +13

    wait you guys forgot one important thing! the electro or artificial larynx!!!!!!!!!!! it too helps laryngeal patients speak again.

    • @tomwhitworth8088
      @tomwhitworth8088 7 лет назад

      Nathan, it was a really quick segment. Meaghan did mention artificial means but did not have time to be specific on each method. I think she did a great job explaining to the novice how a voice prosthesis works.

    • @tvcritic2
      @tvcritic2 7 лет назад +2

      we can always do a follow up segment.

    • @nathanjoerndt8804
      @nathanjoerndt8804 7 лет назад

      Yes please do :D

    • @TimOlsen66
      @TimOlsen66 6 лет назад

      I tried a voice prosthesis but was unable to move the air properly through the valve. I had good success with my electro larynx so I continue to use it today, three years after my laryngectomy. My voice clarity is good and very few people have trouble understanding my speech. It takes some getting used to at first, but it is pretty easy to use. For me, it's a better alternative to a prosthesis for a few reasons that weren't discussed in the video (cleaning, maintenance, replacement, ease of use). Every lary is different because of the tumor location, surgery, chemo and radiation, and physiology, so using a prosthesis or EL is a matter of preference, really. But, usually the patient is able to use the electro larynx within a few days after surgery if healing is going well.

    • @TimOlsen66
      @TimOlsen66 6 лет назад

      Atos doesn't manufacture an electro larynx so that's probably why they didn't cover it... this is a promotional video.

  • @danawilliams4565
    @danawilliams4565 8 месяцев назад

    How much does it cost

  • @venuscayatoc2528
    @venuscayatoc2528 4 года назад +1

    How do we purchase it? My mom also has laryngectomy

  • @ianekkam
    @ianekkam Год назад

    Hello thank you for sharing this, my wife had total larynxjectomy surgery and airway and esophagus parmanently saperated and she is hesitant to have the TEP surgerly put in cause she heard there are trouble with food getting stuck and give issues down the road. I am blind and would love to hear her talk again, the electro larynx are just not doing it and its painful for her to use it. Thanks for reading Mak

  • @janettesim8779
    @janettesim8779 Год назад

    How much

  • @simonma3779
    @simonma3779 Год назад

    I wonder why the quality of the voice of this guy is so good compared to the average. What makes him better is what I'm trying to understand. Is it the equipment? His own method?

  • @kareemwalls9591
    @kareemwalls9591 4 года назад +1

    My name is Kareem walls I am 41 years old I use to have a tracheostomy in my neck but I had reflux really bad and the surgery at temple hospital told me I had to get Larygectomy tub it can help me to breathe and eat better

  • @nomorefood6742
    @nomorefood6742 5 лет назад +5

    Ummm, I think we really should let every type of health institution talk about smoking and losing voice

  • @Nobody-c2i
    @Nobody-c2i 10 месяцев назад

    Can you have a dog after undergoing laryngectomy? Considering the hair being a problem to the stoma

  • @AKmadfishing
    @AKmadfishing 4 месяца назад

    Nice

  • @samuelmartos8423
    @samuelmartos8423 4 года назад

    How much this

  • @ashleywatson1864
    @ashleywatson1864 Год назад

    His voice is fine. Seems like a good option but not sure exactly what its called...

  • @johnmora7069
    @johnmora7069 7 лет назад

    what us the name of the company

  • @user-nt4cl8fn6m
    @user-nt4cl8fn6m 7 лет назад +3

    What about the breath how they can be breathing as the hole is covered with the speech button

    • @angelwood
      @angelwood 6 лет назад +8

      The hands-free speech device allows air to pass inward easily. The device has a membrane inside the cartridge that only closes when a large amount of pressure builds up on the exhalation. When you breathe out normally, the membrane remains open, but when you force air out under pressure to speak, the membrane closes and no air escapes the device. A person ALSO has a TEP (Tracheal-Esophageal Prosthetic) device inserted that is a one-way valve that links the trachea and the esophagus. That's the little blue thing Meaghan from Atos showed near the beginning of the video. When pressure is built up inside the trachea--like when you manually close the hole in the neck or the membrane in the speech device closes, the air is forced through the TEP and into the esophagus. That moving air vibrates the esophagus and acts "kind of" like vibrating vocal cords to allow you to make a sound you shape with your mouth. Sounds way more complicated than it actually is. If you ever meet a laryngectomme, most are quite willing to show you how it all works.

    • @wmcross51
      @wmcross51 6 лет назад

      Nice job Kirk. Explained very well, but no surprise that you would do a great job.

    • @kingsnake5701
      @kingsnake5701 5 лет назад

      I don't know good
      question

    • @kingsnake5701
      @kingsnake5701 5 лет назад

      @@angelwood
      Is gay

  • @RAB-xi1yd
    @RAB-xi1yd 4 года назад +1

    Can you still whisper perfectly fine?

    • @mike140460
      @mike140460 3 года назад +2

      Bit late this but the answer is no. To whisper you need air flow through your mouth and after laryngectomy you have none, I had it done four months ago and unfortunately still can't speak OR eat/drink due to complication during and post surgery. It doesn't always go smoothly.

  • @noahgrossmantrail
    @noahgrossmantrail 5 лет назад

    I'm looking for a very particular narrator for a short film and I'd like to get in touch wth somebody who has voice prosthesis. Any idea where to start?
    REPLY

    • @jimlauder5833
      @jimlauder5833 5 лет назад

      John Ready @ The Foundation for Voice Restoration