Thriving with Leiomyosarcoma Thanks to Research
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- Опубликовано: 29 сен 2024
- Diagnosed with leiomyosarcoma - a rare type of soft tissue sarcoma - Nancy McGuire is enjoying life once again after treatment with trabectedin (Yondelis), a newly approved chemotherapeutic. Learn how cancer research is improving the lives of patients like Nancy at www.AACR.org/CancerProgressReport.
My mom passed away from LMS in Sept 2014. Her protocol was so hard on her. The cancer was spreading so quickly to other parts of her body so the medicine didn’t have time to work. I’m so happy to see someone thriving with LMS. So much love to anyone affected by this devastating disease.
My mother is suffering from the same disease
@@icon5819 how is she?
@@thevilkids she was fine for about 9 months but the latest ct shows 4 nodules in the left lung due to which her chemotherapy is going on.
My dad died April of 2012 of LMS. Diagnosis to death was 26 months. I'm glad to see that there are better options now and to see someone hopefully beating LMS! All the best!
My mother is in the hospital now with the same cancer in the rectal area and liver but the doctor said it can't be removed through surgery. They only suggested chemotherapy to reduce the tumor's size. I wish it could be removed immediately. 🥺
Yeah we begged my mums doctors to remove it but they said it was too big (she had bleeding for months but ignored it and refused to go to hospital because of Covid and her doctor refused to see her ) when her doctor finally saw her she told her to go to emergency which I wish she could have taken like a minute to listen to her months before and tell her that . Anyways it was too big , they did chemo and said it was working around Valentine’s Day this year and than she came down with a fever and they sent her to hospice a few days later . We begged them to try everything and they refused. I’m hoping your mum is ok and gets better .
Your inspiring what a blessing. I have the same rare cancer could you spell the name of the therapy that helped you. God bless you🙏🙏
I just lost my brother in law to this LMS. Doctors failed to do anything in Fiji. We poor cannot even afford surgery. He was just 41 with 3 small kids
Bula bro, I'm sorry for your loss. I also lost my mother to this sickness 3 weeks ago. She was 55.
I lost my father to this 12 years ago. We had great insurance, but all the insurance in the world couldn't save him. LMS took him from us in 26 months. He had 14 surgeries during that time to remove tumors. When you add up all the treatments and surgeries and radiation and chemo, it maybe bought us a few months....but his last year was hell for him. He was in the hospital more than out, he was sick more than he was well....sometimes I wonder if fighting it at that point was the right call because he had no quality of life his last year.
you give me agreat hope my mother now take adramycin protocol .i hope she will improve
Aml Sayed ...plz can i have ur contact.... i have a patient who have the same disease... can u help me .... i want to know more about the drug u named...and where to go to have it.... plzz help...thank you.
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My mom has this cancer thank you for sharing god bless you 🙏🏻
How is she?
@@thevilkids she passed away 😔 not long ago
@@gabbygomez2732 So sorry for your loss :( . How long did it take for doctors to give a diagnosis and what were her symptoms ?
@@thevilkids the diagnosis about few months the symptom at first was she was bleeding a lot so they did a hysterectomy then after that her stomach was bloated and pain in the kidney by then it had came back again at first the tumors were attached to her uterus when she had the hysterectomy it attached again on her kidney and intestines after second surgery she lasted very little it is super super aggressive when they diagnosed her she passed after a year
@@gabbygomez2732 sorry for your loss my mum died on March 2nd, 2022 from it . She was bleeding for a bit too at least a month I think (post menopausal and in pain ) she thought it was like her bladder from having an operation . She was finally diagnosed in October 2021 but if they had diagnosed her sooner they would probably have been able to operate .
I have the same cancer. I went to my doctor Thursday and I was told that he tried everything and nothing works he has this one chemo that could give me a heart attack after that he told me that I only have a few months.......smh
I hope you are okay??
I hope you are well.
Sending prayers! My dad dies of this disease 12 years ago. He was one of the first in our area to have it and one of the first men to have it. Our best treatment option at that time e was surgery, radiation and a type of chemo that could have given him the heart attack. He had a weak heart anyway so that chemo was out for us. Diagnosis to death was 2 years and 2 months to the day. I'm sending many prayers your way and hope you make it out of this terrible disease 🙏
I hope you have pulled through and the medication is continuing to work. This disease is extremely rare and very hard to treat. My mother died from LMS in Oct. 2005 and 17 months later my grandmother (her mother) died from this disease as well. This disease devastated our family. For my Mom who was pre-menopausal, she lived for 4 years with the disease before she passed. No treatment options were available to her at the time- she was only given medications to treat the symptoms. My grandmother passed only 6 months after her diagnoses. Chemo was tried on her but the cancer was spreading too fast and treatment was stopped. I'm just hoping for a cure so no family has to deal with this menacing disease.
My mom also have the same disease can you please share which part of the body lms was found
@@icon5819 it started in her uterus. her fibroids were really causing problems, and when she got them removed they biopsied the fibroids and found LMS. She got a hysterectomy and removed the cancer but it returned on her lungs about a year and a half later. From there it went to her stomach and intestines and eventually her liver then kidneys. Once her kidneys started to shut down (she had really bad edema) she lived about 3 weeks and passed away in her sleep/ The whole cancer journey started in November of 2001 and she passed away October 2005. She was never offered any treatment like Chemo or radiation because the cancer wasn't responsive to those type of treatments. It was a hard journey for her and our entire family. I am wishing your mother a speedy recovery and Im hoping the treatment options for her are improved from many years ago. I have been in your shoes and its hard and scary- buy stay strong and dont give up on your Mom!
@@diamondis4ever I really appreciate this ...
My mother's lms was found in thigh it was operated successfully but after 3 months it spread to lungs... But in my mother's case chemotherapy was significantly responsive for the treatment as the latest scan show no more active lung nodules in the lungs...
I hope it's a good sign..
Her treatment is going on for 2 years...
@@icon5819 may I know where your mother getting treatment
@@aneeshmc123 rajiv gandhi cancer institute and research centre, delhi
Dr Staton. Correct.. How do I get in touch with him
"WHEN YOUR MORTALITY IS THREATENED.., YOU CHANGE"
FUND DIPG PLZ!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I'm glad to see a good side to this nightmare God bless
Thank You!!!
When a person experiencing health problems why don't they go to God he's the healer of all things but instead she sitting down crocheting where's your Bible at why you're not praying,👉 why you're not reading your Bible, why you're not worshiping the God that saves your life 🤔 I don't get people and their mindset I will be down on my knees every day thanking God for saving me a lot of people forget about God even in the midst of their troubles and pain they still don't acknowledge God how can that be
Please please can you give me the name of the Doctor.
hi there. how are you