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How to diagnose Sjogren's Syndrome affecting the brain and spine?
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- Опубликовано: 14 фев 2023
- In this video, I will present how to diagnose Sjogren's Syndrome, which affects the brain and spine. What tests do we do from laboratory to imaging like CSF studies or MRI tests?
#sjogrens #braindisease #spinedisease
#Rheumatology
#Autoimmune
#autoimmunedisease
#diagnose
#Sjogren's
#symptoms
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👩🏻⚕️ About me:
Dr. Girnita is a physician-scientist double-board certified in rheumatology and internal medicine, trained at Harvard, with a PhD in immunology. She conducted award-winning immunology research and received the "Top Doc in Cincinnati" award before launching her direct-care/direct-pay Rheumatologist OnCall practice.
Dr. Girnita teaches patients about autoimmune disease and arthritis. Dr. Girnita is passionate about rheumatoid arthritis and focuses on cutting edge science but also on proper nutrition, exercise, and stress management.
After all, "You have a disease, but YOU are not the disease."
* The information in this video is not intended nor implied to be a substitute for professional medical advice, diagnosis, or treatment. All content, including text, graphics, images, and information, contained in this video, is for general information purposes only and does not replace a medical consultation. Any comments and/or recommendations made in the comment section by anyone other than Rheumatologist OnCall do not reflect our opinion or recommendation.*
Wow, Sjogren’s is starting to sound a lot worse than I realised - never been told most of the things that come up on your channel! Thank you.
Thanks for listening
It is. I was diagnosed almost 10 years ago. My rheumatologist put me on Plaquenil and told me nothing about natural methods or changing my eating habits. I was basically on my own. I searched on Google and found some things on RUclips. A friend introduced me to a homeopathic doctor and finally I got on the right track and started feeling better.
Thank you Dr Girnita for covering Sjogren’s so extensively. As someone with Sjogren’s, I greatly appreciate your videos.
Thank you 🙏🏻 more will come
Very informative! As someone who is dealing with Sjogren's, I have experienced firsthand many of the systemic effects. Not only have I developed widespread joint and muscle pain, but I've also developed neuropathy, and was quite recently diagnosed with Pulmonary Arterial Hypertension associated with Sjogren's. Too few physician realized or recognized the serious systemic effects of Sjogren's.
This was an excellent summary of an often dismissed or misunderstood topic.
I am just recovering from Spinal Meningitis. The immunosuppressant Arava, lowered my immunity so much that i could not fight off a head cold. The head cold turned into Spinal Meningitis. Im better today after being in ICU, unconscious for about 2 days. Then a stay in hospital for a week. I was too weak to go home, so then i had to go to rehab learning how to walk again. Still needed 6 weeks of Physical Therapy after i was able to go home. Im alive today thanks to great medical care and i take supplements with eating anti-inflammatory foods.
Thank you for watching my video, dont forget to subscribe to my channel for other videos!
Very nice and informative vlog 🌹💞
Glad you liked it
WOW
I would like to be evaluated by a doctor like you. I think I have this instead of fibromyalgia.
My website rheumatologistoncall.com/ you are welcomed to schedule an appointment!
@@rheumatologistoncall you don't take insurance?
I was diagnosed with MS with neurophysiology studies and studies by another Neurologist, finding that everything was Central Nervous System. MRIs never showed anything, except the spinal one showed the arthritis (“degenerative disc disease”). I contacted the MS Society and they sent me literature on how some people do not show up on MRI. Somewhere within all this happening I was diagnosed with Sjogren’s Syndrome. No one ever told me it could affect the neurological system. (I do not want CNS studies, no spinal tap, I’m as non-invasive as I can be!) I know there is brain atrophy with MS, again I was not aware of this with Sjogren’s. It seems like misdiagnosis of these two would be likely. My walking/ balance/ cognitive ability etc. has all been affected. It makes me wonder. With cognitive problems and short-term memory problems, maybe I’ll forget about it!😂 Does make me wonder…..
Thank you for watching my videos!share it with others to help them!
It is well known that differential diagnosis with MS and Sjogren’s is tricky, and often bungled. I believe a search will reveal that. Maybe it was Johns Hopkins. There are risks bec MS meds can worsen Sjogren’s.
stay in nutritional ketosis. dont run your body on glucose
Doctors here run bloodwork then tell you nothing wrong they never check anything you ever mention. I suffer from chronic dry eye mouth pain every where in my body and my mental is declining yet I’ve been on psychiatric drugs for years and they don’t work what’s wrong with me???
Best you seek advice of another doctor. Maybe the doctors that treated you earlier were not informed superwell?
I have RA and the dry eye that comes with it. I have an eye doc that does an exam every 6 mos, I see my RA doc every 4. I have found that plant based foods hurt my joints. I try to eat meat most meals and it is helping. Basically an anti inflammitory diet. No sugar, no grains. Dr Ken Berrys channel has plenty of info. Meat based eliminates the triggers that cause anxiety etc.
@@TheFloatingflower I had to move away from my superior rheumatologist. When I see my new rheumatologist, I'm printing all my test results AND lists of what Dr Garnita recommends. Most doctors, even rheumatologists, minimize Sjogrens. Seek another doctor! Get multiple opinons!
I agree with flower. Go for a second and even a third opinion.
I’ve seen 4 rheumatologists
I just had discs replaced in my cervical and they say I need 2 replacements in my lumbar I’m in pain from head to toe and my parents have different forms of rheumatoid arthritis
So sorry to hear of your troubles. I hope that you are getting multiple opinions regarding surgery and what type and procedures are suitable for you. Take care of yourself.
Śledzę ten kanał. Dużo się dowiedziałam i dziękuję. Choruję na pierwotny Zespół Sjögrena od wczesnej młodości. Pół ciała drętwieje i boli (polineuropatia), ledwo chodzę przy balkoniku, suche oczy, suche usta, uczulenie na słońce itd. Czy można prosić o napisy do tego filmu, bym mogła lepiej zrozumieć neurologiczne powikłania?
Glad it was helpful! Thank you for watching my videos, please share them with others!
I’d suggest doing an internet search for each of the neuro signs she lists. Best to you.
Have you seen LUCHEN Planus in the esophagus?
Oh, I would be interested in an answer to that, too.
I have a question. I have Sjogrens. Dx through a skin biopsy. Would the tests that u mention here always be present? Or should they be done during a flare up?
Thank you for watching my videos!share it with others to help them!
I'm in the UK. I have dry mouth, itchy and occasionally dry skin, muscular and large joint pain. GI issues, brain fog dry nose, swollen ankles,, parasthesia, difficulty sleeping, indigestion, occasional small joint pain.
Rheumatology won't see me as PRC, ESR and ANA bloods all normal. GP says she'll treat my symptoms. She's sending me to the pain clinic. My mum has Sjogrens and PBC. My sister has Psoriatic Arthritis. I already have hypothyroidism.
Should I be pushing for a rheumatology appointment?
Thank you for watching my videos!
What if you have metal and. Cant have. An MRI? 😢 i was diagnosed with sjogrens and classical ehlers danlos.. experiencing lots. Of tingling. In my left leg and muscle atrophy.
❤
How is neurosjogrens treated?
ruclips.net/video/ia3jGVzg3CY/видео.htmlsi=FagLMJ1uONPERyFq
ruclips.net/video/IhEw1BPbmCU/видео.htmlsi=EKSEGo4kgZKcuB3I
check my other videos! I do have one specific for neurosjogrens!
I have Sjogren's (SSA consistently positive, SSB positive once and since then not) & Celiac diseaseI am RF positive and ANA speckle. My ESR and CRP are always good. I was diagnosed with Small Fiber Neuropathy and some dysautonomia. My sfn came from clinical presentation- not biopsy confirmed. Is there something I'm missing by not having spinal fluid checked?
you need to be evaluated, I cant answer this question without knowing more...
Thank you for watching my videos!
I'm trying to get a diagnosis...it isnt going well
Thank you for watching my videos!please feel free to share the knowledge with others!
What are the symptoms please. I have pain my temples, back of head, pressure, verigo, twitching ,etc
I have Sjogrens SSA ro but dr says my neuropathic symptoms are not related to Sjogrens
Thank you for watching my channel! Share the information with others in need!
@@rheumatologistoncall am in need, can you help me?
how long have you had the pressure?
@@sleepersix Oct 2021 since my covid shots
En français ? Merci !
Done! added !!Thank you for watching my videos!
I'm not letting my doctor do a spinal tap. Hell to the no
I completely understand, it may be a frightening procedure.
I’ve had three spinal taps done looking for illness and multiple epidural injections over my lifetime. The scariest and most painful thing about any procedure or injection into your spine is the WORDS spinal tap along with the anticipation. I’m being completely honest when I tell you I’ve had more painful IV’s.