My experience with pudendal nerve blocks for pudendal neuralgia

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  • Опубликовано: 29 ноя 2024

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  • @RobertRemlinger-mq8iy
    @RobertRemlinger-mq8iy 3 месяца назад +1

    Everything you say makes sense. Unfortunately, the blocks are just diagnostic. Even if it’s these nerves, it doesn’t reveal why these nerves are flaring. Why have a test, if there is little benefit in effective treatment. What is the root cause, is there some bone structure that is shifting and causing pressure on these nerves, perhaps from loose ligaments? Thanks for your honesty, I hope we can hear some success stories, it would be wonderful to get relief for those who are suffering.

    • @mysecretlifeofpain
      @mysecretlifeofpain  3 месяца назад

      Yes, nerve blocks definitely don't treat most of the root causes of PN. I wish my doctors had not acted like they were a treatment. I've seen articles suggesting that sometimes people experience relief from a block more due to the action of the needle puncturing the muscle, where it would act similar to dry needling and cause a twitch response and release of spasm or hypertonicity. If you had PN from PFD that could potentially create some lasting relief. But just applying lidocaine, which wears off in a day... doesn't make a ton of sense to me as a treatment. They say it can "desensitize' nerves but if lidocaine were so successful in that, nerve pain would not still be a major medical issue

    • @RobertRemlinger-mq8iy
      @RobertRemlinger-mq8iy 3 месяца назад

      @@mysecretlifeofpain True, I’ve been wondering why this is so prevalent these days. Do you think it’s because of so many exercise programs that are too strenuous? As a senior, I don’t recall anyone experiencing this. I don’t have it but I’m watching a close relative suffering terribly from it. The doctors really don’t know what to do except these nerve blocks. I couldn’t see the sense in them unless leading to good treatment. I would worry that poking around might make it worse, and it’s bad enough already.

  • @matthewprzystup998
    @matthewprzystup998 3 месяца назад +1

    Hi I like what u are saying

  • @martinmalloy8264
    @martinmalloy8264 2 месяца назад +3

    Hi everyone I've had this curse for 5 years I've tried all the tablets and nerve blocks I've been seeing a pelvic floor phisio I'm currently doing stretches and tens and an acupressure matt and deep belly breathing you need to calm your body and nerve down the mates amazing anxiety is causing it even though you can't get your head around it the pelvic floor absorbs all the anxiety in your body give them a try their not expensive hope this helps

    • @mysecretlifeofpain
      @mysecretlifeofpain  2 месяца назад

      @@martinmalloy8264 this is definitely the case for some people, but it is not applicable for me unfortunately. I have been discharged from pelvic PT with a perfectly normal pelvic floor. Also tried multiple rounds of pelvic muscle Botox, muscle relaxers that had no effect. I have nerve damage from a tissue crush/stretch injury in a surgery, no muscles involved.

    • @riyas7953
      @riyas7953 2 месяца назад +1

      Yes. I do those exercises it reduces the pain. Not at sudden it may takes some time.

  • @Raiders555
    @Raiders555 Месяц назад

    If u got a shot of just numbing medicine it's to see if it stops ur pain. If it does you know that's the right area and you get a steroid shot. I had mine done vaginally and it is working very well. My bladder works better my clitoris has no more PGAD and I don't have rectal pain. My issue is that my SI joints need to be shot up as it is pressing on the Pudendal nerve. So I'm anxious to see if that helps.

    • @mysecretlifeofpain
      @mysecretlifeofpain  Месяц назад

      Did you watch the whole video? It did not work for me. I have had numerous injections with steroids. I’m glad it helped you.

  • @amandavidler304
    @amandavidler304 Месяц назад

    Have you gone down the Nicole Sachs/dr Sarno/Dan Buglio route and looked at their success stories with all things pelvic pain?

    • @mysecretlifeofpain
      @mysecretlifeofpain  Месяц назад +1

      Yes! I address that in a few videos and in around 2 mins on this one. I think they are able to help the folks who have these issues from pelvic floor muscle dysfunction who just need to learn to relax their PF muscles. Or as it often turns out, people who are simultaneously also addressing other route causes medically like with hormone replacement. Or as I’ve noticed, the success story isn’t actually the whole story and people’s pain isn’t really gone or it comes back.

    • @amandavidler304
      @amandavidler304 Месяц назад

      I really hope you find something that helps you soon ❤

  • @kostaborojevic498
    @kostaborojevic498 Месяц назад

    How do you survive this?

    • @mysecretlifeofpain
      @mysecretlifeofpain  Месяц назад

      @@kostaborojevic498 Some people do get better. It seems to happen in a few different ways. Some people get treatments and medications that reduce the pain and symptoms enough that they feel okay. So far I am none of the above and surviving by thinking with just a shred of hope that there is still something I can find somehow that will make this improve…it helps me to think “if this is going to kill me, let it kill me trying to get better.” That makes me feel like I cannot give up until I’ve tried literally everything