Diane's story of Secondary Raynaud's

Thanks to Diane for supporting #raiseyourhands. Diane shares her story of being diagnosed with Secondary Raynaud's, her advice on staying grounded and hopes for the future.
To find out more about Scleroderma and Raynaud's and managing the condition like Diane visit: www.sruk.co.uk...

[@DrMattiLabbratt]

Much love, respect & support to you Diane lovely.
I have secondary Raynauds only in one hand due to Relapsing Remitting Multiple Sclerosis and I struggle enough to with just that!
I won’t tell you that you’re “brave” etc as we just have to get on with what’s forced on us don’t we?
Given a choice we would just not have these horrid autoimmune diseases and not have to be “Brave’ at all 😂
But you’re doing brilliantly with your lot, and speaking about it helps others so much.
You’re clearly a compassionate, intelligent, beautiful soul & I wish only the very best for you in the future.
The best is yet to come for us my lovely 😊
Rach xxx

[@sharonmcheatham33]

Sorry ! Thank you for sharing and making ppl awear

[@dianesiegroth5789]

Thank you !

[@kusinaniellen8858]

I have also a raynods conditions. Its very hard.

[@dubenheim6216]

I have it in both hands and feet. Lost a toe already. I know it's been more than 5 years, but I'm curious to know to the medication name, and whether or not she still feels it's working. I understand if that's private information.

[@velia222]

Hello, I don't know what she took at the time but I know that many doctors prescribe Nifedipin, you should check with your doctor if it could be an option. It works great !

[@dubenheim6216]

@Velia Thanks, Velia. I appreciate your comment. I did switch to Nifedipine a while ago. Right now I seem to be in remission. Plavix and max dose of Cialis seem to be working. You must have it as well, yes?

[@davidross7208]

I also have secondary Reynolds it’s very painful at times

[@WeAreSRUK]

We're so sorry to hear that David. We have a page on managing Raynaud's, if that's at all helpful: www.sruk.co.uk/raynauds/managing-raynauds/

[@Mmdmade]

Nothing in USA that helps with this really. Such a bummer.

[@sardarkhan1367]

I have bad Reynolds with Scleroderma😪

[@WeAreSRUK]

Sorry to hear that! Do let us know if there's anything we can do to support you - our website (www.sruk.co.uk) has lots of information on both conditions if you're not sure where to start.

[@skinnie2148]

Same here...trying to adapt to this new life

[@kusinaniellen8858]

Same with.

[@crycowgirlcry]

:( my mom has this and im so scared for her