I’ve had FND for3 years now but was finally diagnosed last year because my legs randomly stopped working for me. Since then I’ve lost my memory, have shaky arms and legs and also I’ve been deaf for the last 3 years. There’s many more things that have changed my life because of fnd
@@dermlover1 FND has a lower misdiagnosis rate than MS over time, and MS can co-occur with FND so they can be diagnosed in the same person (MS can actually trigger FND). It's standard practice to check for differential diagnoses like MS, but there are positive signs of functional disorder that a case of MS without FND wouldn't normally have. For example, Hoover's sign, which was mentioned in this video, is used to identify functional limb weakness as opposed to other kinds of weakness.
I’ve had FND for almost 4 years now. I started having seizures and later started having numbness in my legs from the knees down. I’ve even had selective mutism. In the last year I’ve been having dystonia and now vocal and motor tics. It’s been pretty scary at times but now I know more about it it’s not as scary.
I also habe FND! It’s great to find someone with similar symptoms. For me I have difficult with regulating emotions, concentrating, sensory issues, tics including complex motor and verbal tics as well as my legs unable to walk because numbness in my lower legs and spasms. But because I’ve had it for a while it hasn’t really brought me down luckily! Hope your doing well
An awful illness to have, it took 7 years for me to be diagnosed. It's very debilitating and can knock your confidence. The severe shaking can be mistaken for an epileptic fit. There are no triggers the shakes, jerks and twitches just happens.
Hi I just started hand dropping body jerking internal trembling and my teeth chatter and I bite my tongue and cheek a lot,so you think I may have something like this?
I had to change 3 doctors because they didn’t believe me when I told them about my stutters, twitches, very bad guy twitching and falling and how they comes and goes. I had to get an on-call job. Because I didn’t know what was gonna happen sometimes in the morning or if I feel it might be coming on sometime they are mow and sometimes they are strong. One day I had a bad episode while at the doctors they thought I was having a stroke. And rushed me to the ER I was telling them what was going on. Hospital did a CAT scan and during that I had an episode and they thought I was having a seizure. They couldn’t find anything really except for something neurology going on with the bottom part of my neck area and they was treating me for a stroke and seizure. They sent me to work you dumb Washington state neurologist doctor and he said it look like FND. But I still have not been treated for it I’m just waiting for I don’t know what they got me waiting for but is really bad I am going to physical therapist for my neck and my nerves been or my my nerves or whatever when they touch me where I start shaking and twitching and stuff so
I've just come back from a&e at hospital from major trauma unit. I had a seizure lasting 45 minutes. I'm waiting to see my neurologist (which takes a while to wait for). The doctor who saw me in majors said it may be FND. So I'm reading about FND as I've never heard of it!
Hello! How are you doing now? I have had a series of bad neurological symptons, but my neurologist insists that they are not related to an illness or damage of neurological organs. So, I have a functional neurological disorder. I want to believe it because I want to be back totally active, but it is difficult. My symtoms are real, oainful, unpleasant. I do no control them.
I have ME and Fibromyalgia, paralysis and severe weakness, Severe short term memory confusion, Cognitive dysfunction. Walk a little better inside but not outside. 24 hour migraine. Also must of the symptoms of ME and Fibromyalgia severe pain stiffness Nausea,fatigue many more. I was told only by one doctor I also have FND.
Does the Hoover test work even when the patient is having a good day with symptoms?? I definitly have more srength when not flared up. I Took an assesment with therapist a couple years ago before my symptoms started. In that assessment I scored positive for markers of FND. About a year and a half ago at first I started developing serious weakness in my quads. About a year ago I started having tremors, other gate issues, body stiffen up, speech issues, much more severe weakness. Was diagnosed with ulcerative colitis (2005) and then Crohn's disease later. The last time I went to the ER after being wheeled in because I had been crawling on the floor for a few days from not being able to walk, the doctor had me push against his hands with my shins and he said "you are very strong!" And then of course I had to be wheeled out because I could still not walk. I have a neurologist appointment in November and am on a cancellation list. And that was after calling three separate offices. That was the soonest I could get in. So I guess my question is do I need to be presenting my worst symptoms when I go in for the specific test that help me find the diagnosis, whatever it is? Thank you so much for the video and for reading!!
You are probably 💯% correct lol I jumped straight to the comments and didn't watch the vid yet but knowing she was in a car wreck she most likely has what I have - upper cervical instability. I was diagnosed with FND and CFS but tried to tell the neurologist that I didn't have any of these debilitating symptoms ranging from heart issues to digestion to tremors and twitching until I did certain things to my neck - roller coasters, twisting my neck too far, etc and I am also an artist and would work for hrs and hrs at a time with my head bent down. Upper cervical specialist chiropractor has helped me significantly and now I'm getting prolotherapy in my neck and already much better after just one treatment. Unfortunately most Drs just diagnosed ppl with a disease or disorder and not interested in finding the root cause to actually fix the problem 😡
I just got diagnosed with FND and fibromyalgia.... I'm trying to understand it as I was told I have it by a neurologist and then told to go and research so I'm here trying to understand
Well it’s gonna be hard. My brother has fnd, and i have fibro. it’s gonna be hard but you’ll get through it. Are you alone? Is anyone going to help you?
I got diagnosed with FND but coincidentally I also have cervical instability which neurologists don't know anything about. It can cause all the same things as FND but coming from a structural problem in the neck, usually upper cervical. I started cervical prolotherapy with Caring Medical and already my weakness and tremors upon physical activity have improved after just one treatment
@@JacksonStar4757do you have heds ime trying upper cervical charopracter decades CFS fnd fybromyalgia symptoms since a fall but I now no I have autism.heds to
@@JacksonStar4757Was your CCI diagnosed at Caring Medical or did you get your CCI diagnosis somewhere else beforehand? Also, it’s been 6 months since you wrote this comment, have you had more prolotherapy done? If so, how are your symptoms now?
@@DynamicUnreal sorry long story lol yes Dr Hauser diagnosed me by their digital motion xray and neck ultrasounds and he ordered me 3 additional scans - a brain MRI, cervical flexion/extension MRI and a CT venogram because I had no scans previous to coming there bc other drs would not take me seriously 😡 I have now had 6 prolotherapy treatments and after the 4th and 5th is when I saw the most improvement 😀🙏🙏 I started being able to carry a purse again (not on my shoulders lol) I drove myself back from Florida which was a 6 hr drive one day and 7 the next which I never would've been able to do before and since I got back in mid April I have been working 9 hr shifts 5 days a week and serving all the beer and drinks myself which I could not do before when I struggled to work 6 hrs of just taking money from people and having someone help me serve and stock the beer. And when I get home I still have enough energy to go get dinner and take a walk and play with my cats. Last summer I would sit on my bed and cry after work bc I couldn't do anything not even laundry just bc I worked 6 hrs!? Also can walk for about 15 minutes at a time now opposed to 6 minutes so my "chronic fatigue" has definitely improved. However I am still stuck with some sucky symptoms like my facial sensitivity that still triggers the tremors, headache, dizziness, etc and some of the muscles in my neck and shoulders still tense up and cause symptoms if I do too much physical activity. Dr Hauser said in the beginning that I may need my tmj treated too and I think that's where a lot of my remaining symptoms are coming from and possibly my thoracic too so I will give another update if I'm brave enough to get those areas treated lol. I know my tmj needs addressed but I'm so scared to get needles stuck anywhere in my face bc the sensitivity is so bad that just something stupid like scratching the side of my face or squeezing a pimple gives me such serious symptoms. I've almost passed out before from barely touching my face I think this has to do with the trigeminal cardiac reflex Dr Hauser has a video on that and I'm gon talk to him about this definitely before we even think about treating my tmj
@@DynamicUnreal Yes Dr Hauser diagnosed my by their digital motion xray and neck ultrasounds and he ordered me 3 additional scans - a brain MRI, cervical flexion/extension MRI and a CT venogram since I had not had any of those prior to coming there bc drs would not take me seriously. I have now had 6 prolotherapy treatments and had the most improvement after the 4th one! I started gradually being able to to more with my arms and legs without getting symptoms. I can now carry a purse (not on my shoulders lol) and I do not have to have help selling and stocking the beverages at work as I did before. I now work 9 hrs shifts and can take a walk and play with my cats after work whereas before I struggled to work 6 hrs of just taking money from customers and I would sit on my bed after work and cry bc I could not even use my phone or do laundry or anything bc I worked a 6 hr shift!? Also I can walk faster and farther now I take about 15 min walks opposed to 6 minutes. However I'm still stuck with some miserable symptoms like my facial sensitivity can trigger everything from face twitching, headache and dizziness to tachycardia and near passing out. I think these symptoms what I'm still left with are coming from my tmj (which doc said in the beginning I may need treated in the future) so if I get brave enough to get my tmj and maybe my thoracic or something else treated I will give another update 💚 I'm so scared to get needles anywhere in my face bc omg just scratching the side of my face or barely squeezing a pimple causes such serious symptoms. Think this has do with the trigeminal cardiac reflex which Dr Hauser has a video on so definitely gonna ask him about this before I would get prolotherapy to my tmj. Oh and btw the symptoms I get from facial stimulation - while still bad and highly uncomfortable, are not near as bad as before my treatments. Which is because my vagus nerve is healing bc it's not compressed anymore and when u got trigeminal nerve issues AND vagus nerve dysfunction that makes it much worse than if you just have one or the other
Its not entirely psychological. It causes physical symptoms so in her cause it was her leg weakness so with physical threapy it makes those muscles work again.
I’ve had FND for3 years now but was finally diagnosed last year because my legs randomly stopped working for me. Since then I’ve lost my memory, have shaky arms and legs and also I’ve been deaf for the last 3 years. There’s many more things that have changed my life because of fnd
Were you checked for MS before they made the FND diagnosis?
@@dermlover1 FND has a lower misdiagnosis rate than MS over time, and MS can co-occur with FND so they can be diagnosed in the same person (MS can actually trigger FND). It's standard practice to check for differential diagnoses like MS, but there are positive signs of functional disorder that a case of MS without FND wouldn't normally have. For example, Hoover's sign, which was mentioned in this video, is used to identify functional limb weakness as opposed to other kinds of weakness.
I’ve had FND for almost 4 years now. I started having seizures and later started having numbness in my legs from the knees down. I’ve even had selective mutism. In the last year I’ve been having dystonia and now vocal and motor tics. It’s been pretty scary at times but now I know more about it it’s not as scary.
Did you have a brain and spine MRI to rule out MS?
Yes I did and it came back negative.
I also habe FND! It’s great to find someone with similar symptoms. For me I have difficult with regulating emotions, concentrating, sensory issues, tics including complex motor and verbal tics as well as my legs unable to walk because numbness in my lower legs and spasms. But because I’ve had it for a while it hasn’t really brought me down luckily! Hope your doing well
I have the same issues. I really recommend getting tested for Ehlers-Danlos syndrome and autism.
Wow you are a warrior
I have had FND for 2 years or so now. It is insanity, but busy with lots of therapies. Life is good, just different than I would have expected
How you get it???
@@supremegod1006 not sure, but I think from a head injury, frequent migraines, etc. all tied
An awful illness to have, it took 7 years for me to be diagnosed. It's very debilitating and can knock your confidence. The severe shaking can be mistaken for an epileptic fit. There are no triggers the shakes, jerks and twitches just happens.
I’m trying to get diagnosed for this now. I am so tired of being tired.
Hi I just started hand dropping body jerking internal trembling and my teeth chatter and I bite my tongue and cheek a lot,so you think I may have something like this?
I should think that's what it is indeed. I sympathize with you the internal trembling is really horrible.
I had to change 3 doctors because they didn’t believe me when I told them about my stutters, twitches, very bad guy twitching and falling and how they comes and goes. I had to get an on-call job. Because I didn’t know what was gonna happen sometimes in the morning or if I feel it might be coming on sometime they are mow and sometimes they are strong. One day I had a bad episode while at the doctors they thought I was having a stroke. And rushed me to the ER I was telling them what was going on. Hospital did a CAT scan and during that I had an episode and they thought I was having a seizure. They couldn’t find anything really except for something neurology going on with the bottom part of my neck area and they was treating me for a stroke and seizure. They sent me to work you dumb Washington state neurologist doctor and he said it look like FND. But I still have not been treated for it I’m just waiting for I don’t know what they got me waiting for but is really bad I am going to physical therapist for my neck and my nerves been or my my nerves or whatever when they touch me where I start shaking and twitching and stuff so
I've just come back from a&e at hospital from major trauma unit. I had a seizure lasting 45 minutes. I'm waiting to see my neurologist (which takes a while to wait for). The doctor who saw me in majors said it may be FND. So I'm reading about FND as I've never heard of it!
Hello! How are you doing now? I have had a series of bad neurological symptons, but my neurologist insists that they are not related to an illness or damage of neurological organs. So, I have a functional neurological disorder. I want to believe it because I want to be back totally active, but it is difficult. My symtoms are real, oainful, unpleasant. I do no control them.
I’m sorry :( I hope you’re well ❤️
I have ME and Fibromyalgia,
paralysis and severe weakness, Severe short term memory confusion, Cognitive dysfunction.
Walk a little better inside but not outside.
24 hour migraine.
Also must of the symptoms of ME and Fibromyalgia severe pain stiffness
Nausea,fatigue many more.
I was told only by one doctor I also have FND.
I can’t walk outside home either fnd and fibromyalgia
@@teslaandhumanity7383how are you now do you have heds asperger's
my cousin got it this year randomly while at school, i hope she can overcome it.
Does the Hoover test work even when the patient is having a good day with symptoms?? I definitly have more srength when not flared up. I Took an assesment with therapist a couple years ago before my symptoms started. In that assessment I scored positive for markers of FND. About a year and a half ago at first I started developing serious weakness in my quads. About a year ago I started having tremors, other gate issues, body stiffen up, speech issues, much more severe weakness. Was diagnosed with ulcerative colitis (2005) and then Crohn's disease later. The last time I went to the ER after being wheeled in because I had been crawling on the floor for a few days from not being able to walk, the doctor had me push against his hands with my shins and he said "you are very strong!" And then of course I had to be wheeled out because I could still not walk. I have a neurologist appointment in November and am on a cancellation list. And that was after calling three separate offices. That was the soonest I could get in. So I guess my question is do I need to be presenting my worst symptoms when I go in for the specific test that help me find the diagnosis, whatever it is? Thank you so much for the video and for reading!!
The woman was literally in a car accident. Something tells me this isn't just FND.
You are probably 💯% correct lol I jumped straight to the comments and didn't watch the vid yet but knowing she was in a car wreck she most likely has what I have - upper cervical instability. I was diagnosed with FND and CFS but tried to tell the neurologist that I didn't have any of these debilitating symptoms ranging from heart issues to digestion to tremors and twitching until I did certain things to my neck - roller coasters, twisting my neck too far, etc and I am also an artist and would work for hrs and hrs at a time with my head bent down. Upper cervical specialist chiropractor has helped me significantly and now I'm getting prolotherapy in my neck and already much better after just one treatment. Unfortunately most Drs just diagnosed ppl with a disease or disorder and not interested in finding the root cause to actually fix the problem 😡
Dr. John Sarno's books. The Divided Mind
I just got diagnosed with FND and fibromyalgia.... I'm trying to understand it as I was told I have it by a neurologist and then told to go and research so I'm here trying to understand
Well it’s gonna be hard. My brother has fnd, and i have fibro. it’s gonna be hard but you’ll get through it. Are you alone? Is anyone going to help you?
R u suffering from prblm.. like fits...
??? If u r suffering from this problm I can help u without tablets... sorry ... my English is very
Weak...
Passionn Note if you have Instagram search fnd.friends and dm them I have just been diagnosed and it was so helpful
ruclips.net/video/mCCyJPQKPiM/видео.html check out this guy. Iv been following him on Instagram for a while. The results of his experiment are crazy.
@@Jat1111 Your link isnt working
Lots of people have FND. The question is . Is there a cure? Injections? Medication. Tablets Where can patients get this. If available
I got diagnosed with FND but coincidentally I also have cervical instability which neurologists don't know anything about. It can cause all the same things as FND but coming from a structural problem in the neck, usually upper cervical. I started cervical prolotherapy with Caring Medical and already my weakness and tremors upon physical activity have improved after just one treatment
@@JacksonStar4757do you have heds ime trying upper cervical charopracter decades CFS fnd fybromyalgia symptoms since a fall but I now no I have autism.heds to
@@JacksonStar4757Was your CCI diagnosed at Caring Medical or did you get your CCI diagnosis somewhere else beforehand? Also, it’s been 6 months since you wrote this comment, have you had more prolotherapy done? If so, how are your symptoms now?
@@DynamicUnreal sorry long story lol yes Dr Hauser diagnosed me by their digital motion xray and neck ultrasounds and he ordered me 3 additional scans - a brain MRI, cervical flexion/extension MRI and a CT venogram because I had no scans previous to coming there bc other drs would not take me seriously 😡 I have now had 6 prolotherapy treatments and after the 4th and 5th is when I saw the most improvement 😀🙏🙏 I started being able to carry a purse again (not on my shoulders lol) I drove myself back from Florida which was a 6 hr drive one day and 7 the next which I never would've been able to do before and since I got back in mid April I have been working 9 hr shifts 5 days a week and serving all the beer and drinks myself which I could not do before when I struggled to work 6 hrs of just taking money from people and having someone help me serve and stock the beer. And when I get home I still have enough energy to go get dinner and take a walk and play with my cats. Last summer I would sit on my bed and cry after work bc I couldn't do anything not even laundry just bc I worked 6 hrs!? Also can walk for about 15 minutes at a time now opposed to 6 minutes so my "chronic fatigue" has definitely improved. However I am still stuck with some sucky symptoms like my facial sensitivity that still triggers the tremors, headache, dizziness, etc and some of the muscles in my neck and shoulders still tense up and cause symptoms if I do too much physical activity. Dr Hauser said in the beginning that I may need my tmj treated too and I think that's where a lot of my remaining symptoms are coming from and possibly my thoracic too so I will give another update if I'm brave enough to get those areas treated lol. I know my tmj needs addressed but I'm so scared to get needles stuck anywhere in my face bc the sensitivity is so bad that just something stupid like scratching the side of my face or squeezing a pimple gives me such serious symptoms. I've almost passed out before from barely touching my face I think this has to do with the trigeminal cardiac reflex Dr Hauser has a video on that and I'm gon talk to him about this definitely before we even think about treating my tmj
@@DynamicUnreal Yes Dr Hauser diagnosed my by their digital motion xray and neck ultrasounds and he ordered me 3 additional scans - a brain MRI, cervical flexion/extension MRI and a CT venogram since I had not had any of those prior to coming there bc drs would not take me seriously. I have now had 6 prolotherapy treatments and had the most improvement after the 4th one! I started gradually being able to to more with my arms and legs without getting symptoms. I can now carry a purse (not on my shoulders lol) and I do not have to have help selling and stocking the beverages at work as I did before. I now work 9 hrs shifts and can take a walk and play with my cats after work whereas before I struggled to work 6 hrs of just taking money from customers and I would sit on my bed after work and cry bc I could not even use my phone or do laundry or anything bc I worked a 6 hr shift!? Also I can walk faster and farther now I take about 15 min walks opposed to 6 minutes. However I'm still stuck with some miserable symptoms like my facial sensitivity can trigger everything from face twitching, headache and dizziness to tachycardia and near passing out. I think these symptoms what I'm still left with are coming from my tmj (which doc said in the beginning I may need treated in the future) so if I get brave enough to get my tmj and maybe my thoracic or something else treated I will give another update 💚 I'm so scared to get needles anywhere in my face bc omg just scratching the side of my face or barely squeezing a pimple causes such serious symptoms. Think this has do with the trigeminal cardiac reflex which Dr Hauser has a video on so definitely gonna ask him about this before I would get prolotherapy to my tmj. Oh and btw the symptoms I get from facial stimulation - while still bad and highly uncomfortable, are not near as bad as before my treatments. Which is because my vagus nerve is healing bc it's not compressed anymore and when u got trigeminal nerve issues AND vagus nerve dysfunction that makes it much worse than if you just have one or the other
would LSD reset it u think?
Can u plzz... explain me... about this problm... R u suffering from fits or another brain related problm... I can help u...
Walker Edward Martinez Donald Rodriguez Angela
I'm so sad behind anxiety I wanna die
Please don't. Seek help.
Seek counseling. Do what you can but dont let it cause you or let people cause you to have breakdowns.
I started falling then now I can't walk far
If it’s psychological, why send to pt
Its not entirely psychological. It causes physical symptoms so in her cause it was her leg weakness so with physical threapy it makes those muscles work again.
Hall Christopher Wilson Edward Lopez Shirley
Hi
BLa bla bla bla aaaaaaa WE do not know what the patient is ill of
shhhhhhh