Pumphead Introduction
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- Опубликовано: 17 сен 2024
- Today with astonishing breakthroughs in open-heart surgery, modern medical science enables millions of people around the world to gain relief from heart disease and live seemingly normal lives.
Yet an untold and rarely discussed outcome for a high proportion of patients who benefit from this miracle of modern science is emotional distress, often into the long-term. The distress may manifest itself in a range of ways including cognitive impairment, depression, panic attacks, anxiety, etc. In some medical circles, this outcome is often colloquially referred to as “Pumphead” (referring to the Heart-Lung Pump).
PUMPHEAD will be an essay film designed to give voice to some of the people with this syndrome.
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The film will partly discuss the filmmaker’s own experiences following open-heart surgery, but will include the stories of others who have had such surgery, with the aim of piecing together a prototypical experience common to many people who have the operation.
Many outstanding academic papers have analysed the experiences of patients in the years after open-heart surgery. Yet, the awareness of the “Pumphead” syndrome among some practitioners in front-line clinics seems to be minimal. This is a widely experienced problem that some doctors tackle with great commitment, but many others do not.
This discussion applies to a broad range of medical experiences, and is not limited to the after-effects of open-heart surgery. Our collage of stories will emerge as a broad outline of many people’s encounters with the medical establishment on a range of illnesses.
The film will not be didactic nor will it take a highly structured form, trying to prove a point or seek a resolution. It is not a project seeking to castigate the medical profession or to lay blame. After all, the surgery does save lives!
It is essential to the nature of this exploration of the subject that the film be independent in every sense: we will not seek backing from, nor affiliation with, any health-related organisation, institution, clinic or practitioner, whether mainstream or “alternative”.
Looking forward to your film. I started a support group on Facebook just yesterday for Post-perfusion Syndrome (Pumphead) just yesterday in the hopes of offering support for those of us suffering. Bravo to you for spreading the word. And much luck on your journey.
Wow! I thought i was an only with this issue. I had an aweful experience with pump head after my bypass 5 yrs ago and to this day i suffer but not to the degree i did right after surgery. Thank you for shedding some light on this clandestine subject.
I am six weeks out from a triple bypass, I was having all sorts of symptoms, The Dr. said most were residual from the operation, anesthesia and drugs used then. At 5 weeks out I stopped taking statins and that eliminated most all of my weird symptoms...what I have left is rebuilding muscles and lung function aches and pains.
My only comment at the moment is that technically the bypass operation is not open heart surgery. It is open chest, but then replacement of arteries on the outside of the heart. Open heart surgery means cutting open the heart for repairs inside. ie mitral valve. I am not trying to demean this as I had a quadruple bypass.
Thank you for validating this disorder. I am no longer the same.I don’t like the new me.I miss the old me🫤
I research the 'pump on' procedure before my husband had his surgery. I to,d the doctors I did NOT want the pump on procedure done. They did it anyway! That procedure only benefits the surgeon. I learned, there are more risks for infection, which my husband experienced, and a longer recovery time, which he is still going through after 8 months. And, with his short term memory loss, has been diagnosed as having dementia, at the age of 64. I feel I can no longer trusts doctors. And my husband is not the same as before. I feel so lost. I hope other people research the surgery better than I did. When is this film going to be finished???
Heart surgeons and the team saved my life after heart surgery.
Pump Head has destroyed my life ----what is wrong with me?
Very few people know about this condition. Very important video. The after effects of OHS are brutal: pumphead syndrome, picus, delirium, scar complications, depression, anxiety, stroke, parietal nerve paralysis, using metal wire to close the sternectomy. 30% of OHS patients never recover fully. Researchers think the heart lung machine is either crushing platelets or causing brain danage from frothing or not bringing enough oxygebsted blood to brain. And nobody talks about it.
I lived with parursis for decades . With nothing no books no TV shows .A more popular health problem would be something smart people would study . I know what pump head is short term memory lose cognitive thinking was off . I order a one 3. pound burger thinking it was smaller 1 quarter pound .While I recover from pump head .The parursis went on for decades . I'm 60 years old now my gains are just my own work from paruresis . The doctors an nurses fixed my heart and very great full it . What I can.t understand why they left a kid in school that could not pee when some one else was in bathroom ? I look every ware for help there was nothing .
I am sharing this clip on my page.
I have been suffering from this. What is the status on this film?