They gave me $200! I talked with the head of security and he was very nice, saying that he has a staff of 150 or so security staff and those guys didn't do what they were supposed to do. I also talked with my lawyer and what I discovered is the since the casino is owned by a local tribe the land is considered a sovereign nation and you have to go through their courts first. After talking with my therapist I wanted to put it behind and make something good out of it and that's how I decided to create this channel 🥰
So glad I was able to come across your video. I am legally blind, and now am in the process with a Neurologist to getting a Parkinson’s diagnosis, or one of the other Parkinsonian conditions. This reminds me of the Disability Comunity and what we went through in the 70’s, 80’s and ‘90’s. A lot of education was done, and still needs to be done to better prevent situations like you had to endure…this type of discrimination…thank you for starting the wiggle project. I w/ continue to watch u whenever possible, and “thank you”.
Hello Debby!! Thank you so much for your comment and sharing your story. We've got a lot more educating to do and the more we share our stories, struggles, and successes, the less often discrimination for any reason takes place!
Hi Jennifer,thank very much for sharing your experience and I’m so glad that the Wiggles project came out of it! All power peace and Love! to you and your family 🙂🌈👍🏾
Thank you so much for your comment!! I am glad as well that the Wiggles Project was the outcome of this traumatic experience....it's a wonderful thing to turn a negative into a positive 💕
I found out I have Parkinson's disease officially about 5 years but in looking back it has been with me for the last 10 years or more. It been more difficult to walk and now talk along with severa other body functions. I sure wish I had had a therapist like your wonderful lady. At this stage of my life I am 83 years old male and in looking back I can see symptoms going back a long way in my life. I still am able to work part time at a big box store with their understanding of my absences. I really appreciate your web site, thank you!
Hello and thank you for your comment!! I got super lucky finding my therapist, and am thankful!! There are some great books out there on Cognitive Behavioral Therapy and you may find some CBT therapists on RUclips?!?! It's soooo good for you to keep working, even if part-time, and it's great to know that they are willing to work with your needs for time off! Take care and enjoy your weekend! : )
You rock, Jennifer! We need more PWPs like you who are willing to share our stories. It is the only way to end the stigma and shame that if way too often associated with this disease of ours. Keep up the good fight, my friend.
Thank you Laura!! 💕 We absolutely need to end the stigma and bias that we find ourselves up against. It will take time but I believe it can be done! 💃🏻
You are wonderful - to have come through all of that and be able to tell the story with such grace. I wear T shirts that say no I'm not stoned, not drunk...i've just got Parkinson's disease..
Hey there mister Whit! Thank you so much for your compassion 🥰 My goal ultimately is to help people know more about the disease and some of its signals so others know what they are seeing, and to pause before snapping to any conclusions about what may or may not be going on.
Howdy, I've had PD for 10yrs I live in Nevada and I like to ugo play Keno I know that my meds make me move funny sometimes,. So I went an. Had this card made that says. That I'm not drunk or on drugs with my name and I have parkinson's. So sometimes if I see a. Worker checking me out. I'll whip that card out on them then there nice They think. I'm tweaking on crank. ,. Good vedio. ,.
Further proof, as if it were needed, that stress exacerbates our symptoms! At least you got out there 🙂. These days, I hate it when things don't go to plan... whereas I used to quite enjoy a bit of chaos when I was younger (and didn't have PD!) Incidentally, quite unusual for a smoker to have PD 😳
Yes!! The bodies response to stress when you have PD is no joke. I like to think I’ve got a thick skin and can endure quite a bit of the world we live in, especially with year of bartending, it takes a bit to shock me…but this situation was different. Funny that you mention my being a smoker 🙃 when I was in the diagnosis phase I thought…I am a woman, a smoker, coffee drinker, and under 40, and knew how unlikely it was for it to be PD. While rare, not impossible….so here we are 🤗 Thanks for the comment!
Sorry to hear about your negative experience. I often carry a cane when I'm out in public, because my p. d. Causes me to weave a bit when I walk, so I' m looked at as a old man with a cane and not a drunk that has trouble walking.
Thank you for your comment and sharing your story! My negative experience turned into this RUclips channel :) I've never had anything like it happen since, and would wish it upon no one. A cane is a stylish and mysterious way to keep em guessing. We got to do what we got to do! 🥰
Hi, Jennifer, thanks for sharing that horrible experience, I hope it never happens to any of us again. It's really great that your therapist suggested that you take a negative situation and turn it into something positive - well done! On a side note, something that really bothered me about the security team, if they thought you were that bad off, wouldn't they like call an ambulance or something if you are in that bad of shape sitting in your vehicle? Compassion anyone? Just a thought.
Thank you David!! My guess/hope is that had I drove off they might have called the police?!? It was very clear that I was in no shape to drive, and you would hope for the safety of the road they would’ve but there’s no way to know for sure. It took about 30 mins and I was all good…I was still being watched and sat in the back of my open truck until I got better. And when that time came about 30 minutes later I stood up to close the back and was fine…which would be clear to anyone watching. There was no compassion whatsoever in this interaction, nor did they say it’s possible we’ve made a mistake and if so we’re sooty but this will be easy to clear up if that’s the case and here’s the name and number of who to talk to discuss what’s happened.
Just wondering, does a soft touch help you to relax? I'm in a small church and if anyone comes in with Parkinson and starts to wiggle, would it help if I just put a calming tough on the shoulder, and just tried to calm them? What would be the best approach? Thanks for sharing your channel. I have a much healthier understanding of Parkinson because of what you share with us.
Thank you for watching! Because the needs of people vary and touch is a sensitive issue....some people may not mind someone touching them while others may mind very much, no matter the intention. I think the best approach is to be normal and not become uncomfortable, because when dyskinesia's kick in they are no fun, and I know for myself I want anyone with me to be comfortable and not worry that I have them. If I need a hug or hand to hold or drink of water, whatever it might be, I will ask, but a comment such as...."I know dyskinesia's are difficult (if you know 100% that that is what they are having) and want you to be as comfortable as you can be while experiencing them, I am here for you if you need anything, just let me know," could go a long way! I certainly don't have all the answers....but I think a good/safe approach is to empathize and let them know their wiggles doesn't make you uncomfortable and you want them to be comfortable and care for their wellbeing and you are there for them :) I have been planning to do a video about some new experiences I have had. I hope this helps!!
@@ParkinsonsWigglesProject thank you for the response and guidance. I know touch can be uncomfortable for some people. I remember having eye surgery and during the surgery the surgeon made a sound of 'concern' which nearly sent me into a panic, save for the attending nurse who quickly took and held my hand. To me, that had such a calming affect, it was incredible. When i came out of surgery, I thanked her for being there and doing that. I will remember your advise should I ever have the privilege to care for someone with Parkinson. Thanks again and I appreciate all the information you share with us.
Totally agree but here’s something fascinating I learned. When you are at a tribal casino you’re on sovereign land and they have their own court system you have to go through.
It’s seriously no fun!! I actually just left the same casino 🙃 still playing poker and had a great night! But my wiggles kicked in, so it was time to go a winner 💃🏻
With PD Diskinenisia, some security and police officers who are close minded, uneducated, , biased, etc.. will jump to conclusions and assume that the person is on meth, and will react as they would with a person who is under the influence!
Yes and that is what happened! I spoke with the head of casino security at another property and he said they never ever approach anyone who isn't a possible danger to others or themselves or causing a disturbance of some kind...and I wasn't bothering anyone a disturbance. Should have never happened but it did and the silver lining is that is lead me to create this channel ♥
Jennifer, you inspire optimism and a positive can-do attitude in the face of difficulty. Good for you 👏🏻👏🏻 Looking forward to more from the Wiggles Project ❤️
You are admirable. I think they owed you a chunk of change.
They gave me $200! I talked with the head of security and he was very nice, saying that he has a staff of 150 or so security staff and those guys didn't do what they were supposed to do. I also talked with my lawyer and what I discovered is the since the casino is owned by a local tribe the land is considered a sovereign nation and you have to go through their courts first. After talking with my therapist I wanted to put it behind and make something good out of it and that's how I decided to create this channel 🥰
So glad I was able to come across your video. I am legally blind, and now am in the process with a Neurologist to getting a Parkinson’s diagnosis, or one of the other Parkinsonian conditions. This reminds me of the Disability Comunity and what we went through in the 70’s, 80’s and ‘90’s. A lot of education was done, and still needs to be done to better prevent situations like you had to endure…this type of discrimination…thank you for starting the wiggle project. I w/ continue to watch u whenever possible, and “thank you”.
Hello Debby!! Thank you so much for your comment and sharing your story. We've got a lot more educating to do and the more we share our stories, struggles, and successes, the less often discrimination for any reason takes place!
Hi Jennifer,thank very much for sharing your experience and I’m so glad that the Wiggles project came out of it! All power peace and Love! to you and your family 🙂🌈👍🏾
Thank you so much for your comment!! I am glad as well that the Wiggles Project was the outcome of this traumatic experience....it's a wonderful thing to turn a negative into a positive 💕
I found out I have Parkinson's disease officially about 5 years but in looking back it has been with me for the last 10 years or more. It been more difficult to walk and now talk along with severa other body functions. I sure wish I had had a therapist like your wonderful lady. At this stage of my life I am 83 years old male and in looking back I can see symptoms going back a long way in my life. I still am able to work part time at a big box store with their understanding of my absences. I really appreciate your web site, thank you!
Hello and thank you for your comment!! I got super lucky finding my therapist, and am thankful!! There are some great books out there on Cognitive Behavioral Therapy and you may find some CBT therapists on RUclips?!?! It's soooo good for you to keep working, even if part-time, and it's great to know that they are willing to work with your needs for time off! Take care and enjoy your weekend! : )
You rock, Jennifer! We need more PWPs like you who are willing to share our stories. It is the only way to end the stigma and shame that if way too often associated with this disease of ours. Keep up the good fight, my friend.
Thank you Laura!! 💕 We absolutely need to end the stigma and bias that we find ourselves up against. It will take time but I believe it can be done! 💃🏻
You are wonderful - to have come through all of that and be able to tell the story with such grace. I wear T shirts that say no I'm not stoned, not drunk...i've just got Parkinson's disease..
Thank you so much! I occasionally play there and will wear one of my Wiggles Project tees. Thanks for watching and your comments 🥰
Terrible experience but you’ve succeeded in making us compassionate for all who suffer from Parkinson’s.
You certainly suffered that day.
Hey there mister Whit! Thank you so much for your compassion 🥰 My goal ultimately is to help people know more about the disease and some of its signals so others know what they are seeing, and to pause before snapping to any conclusions about what may or may not be going on.
thanks for sharing what was truly a scary, anxiety inducing experience. you rock!
Thank you for your kind words! It was all you said it was but this RUclips channel is the result sooooo 🥰
You are a strong, beautiful woman with incredible strength and courage. I appreciate all of your video's. Much respect and love to you.
Awe, thank you so much!! 🥰
It is so awesome that you made the effort to educate the ignorance out of the staff at that casino. They should really take you up on that!
Thank you!!
Howdy, I've had PD for 10yrs I live in Nevada and I like to ugo play Keno I know that my meds make me move funny sometimes,. So I went an. Had this card made that says. That I'm not drunk or on drugs with my name and I have parkinson's. So sometimes if I see a. Worker checking me out. I'll whip that card out on them then there nice They think. I'm tweaking on crank. ,. Good vedio. ,.
Hi Mike and thank you for sharing how you make your visits to the casino work so you can play some Keno in peace 🥰
We would enjoy interviewing you if you can spare the time. Either way keep up the remarkable work.
Awe thank you! I will check out your channel 🥰
You are so nice.Thank you for your insights ❤
Thank you for your comment! 🥰
Stay strong, and maintain your positive outlook on life ✨️
Thank you so much!! That is my plan for sure 💕
What we need is awareness and you are a great representative!
We seriously need awareness! Thank you : ) 🙏
Further proof, as if it were needed, that stress exacerbates our symptoms! At least you got out there 🙂. These days, I hate it when things don't go to plan... whereas I used to quite enjoy a bit of chaos when I was younger (and didn't have PD!)
Incidentally, quite unusual for a smoker to have PD 😳
Yes!! The bodies response to stress when you have PD is no joke. I like to think I’ve got a thick skin and can endure quite a bit of the world we live in, especially with year of bartending, it takes a bit to shock me…but this situation was different. Funny that you mention my being a smoker 🙃 when I was in the diagnosis phase I thought…I am a woman, a smoker, coffee drinker, and under 40, and knew how unlikely it was for it to be PD. While rare, not impossible….so here we are 🤗 Thanks for the comment!
Sorry to hear about your negative experience. I often carry a cane when I'm out in public, because my p. d. Causes me to weave a bit when I walk, so I' m looked at as a old man with a cane and not a drunk that has trouble walking.
Thank you for your comment and sharing your story! My negative experience turned into this RUclips channel :) I've never had anything like it happen since, and would wish it upon no one. A cane is a stylish and mysterious way to keep em guessing. We got to do what we got to do! 🥰
I have enormous respect for you.
Thank you!!
Hi, Jennifer, thanks for sharing that horrible experience, I hope it never happens to any of us again. It's really great that your therapist suggested that you take a negative situation and turn it into something positive - well done! On a side note, something that really bothered me about the security team, if they thought you were that bad off, wouldn't they like call an ambulance or something if you are in that bad of shape sitting in your vehicle? Compassion anyone? Just a thought.
Thank you David!! My guess/hope is that had I drove off they might have called the police?!? It was very clear that I was in no shape to drive, and you would hope for the safety of the road they would’ve but there’s no way to know for sure. It took about 30 mins and I was all good…I was still being watched and sat in the back of my open truck until I got better. And when that time came about 30 minutes later I stood up to close the back and was fine…which would be clear to anyone watching. There was no compassion whatsoever in this interaction, nor did they say it’s possible we’ve made a mistake and if so we’re sooty but this will be easy to clear up if that’s the case and here’s the name and number of who to talk to discuss what’s happened.
@@ParkinsonsWigglesProject It seems like a weekend in their best room with some meals included might have been in order?
@@LifewithParkinsonsA massage would be sweet!! 🤗
@@ParkinsonsWigglesProject Good idea!
Have you ever researched mucuna for natural dopa?
Oh wow!!😢 this would be awful. I would have had the same reaction.
Yep, it was awful! But it lead me to start this channel 🥰 Thank you for watching and your comment!
Just wondering, does a soft touch help you to relax? I'm in a small church and if anyone comes in with Parkinson and starts to wiggle, would it help if I just put a calming tough on the shoulder, and just tried to calm them? What would be the best approach?
Thanks for sharing your channel. I have a much healthier understanding of Parkinson because of what you share with us.
Thank you for watching! Because the needs of people vary and touch is a sensitive issue....some people may not mind someone touching them while others may mind very much, no matter the intention. I think the best approach is to be normal and not become uncomfortable, because when dyskinesia's kick in they are no fun, and I know for myself I want anyone with me to be comfortable and not worry that I have them. If I need a hug or hand to hold or drink of water, whatever it might be, I will ask, but a comment such as...."I know dyskinesia's are difficult (if you know 100% that that is what they are having) and want you to be as comfortable as you can be while experiencing them, I am here for you if you need anything, just let me know," could go a long way! I certainly don't have all the answers....but I think a good/safe approach is to empathize and let them know their wiggles doesn't make you uncomfortable and you want them to be comfortable and care for their wellbeing and you are there for them :) I have been planning to do a video about some new experiences I have had. I hope this helps!!
@@ParkinsonsWigglesProject thank you for the response and guidance. I know touch can be uncomfortable for some people. I remember having eye surgery and during the surgery the surgeon made a sound of 'concern' which nearly sent me into a panic, save for the attending nurse who quickly took and held my hand. To me, that had such a calming affect, it was incredible. When i came out of surgery, I thanked her for being there and doing that.
I will remember your advise should I ever have the privilege to care for someone with Parkinson. Thanks again and I appreciate all the information you share with us.
Wow! That's terrible!!! Kinda makes a person not wanna leave the house.
Hey Jeremy!! It was terrible but nothing is stopping this girl from getting out there and doing my thing :)
@@ParkinsonsWigglesProject Good for you!
Sounds like a disabilities act lawsuit to me, nobody should have to experience that
Totally agree but here’s something fascinating I learned. When you are at a tribal casino you’re on sovereign land and they have their own court system you have to go through.
@@ParkinsonsWigglesProject I wondered if it was tribal owned, sorry that happened to you
Terrible! I was stopped by security in Amsterdam; they thought i was high or drunk.
It’s seriously no fun!! I actually just left the same casino 🙃 still playing poker and had a great night! But my wiggles kicked in, so it was time to go a winner 💃🏻
Have you ever thought of authoring a book Entitled "PD for dummies" ?
@@spiritsciences2012 I sure have 😂 🩷
With PD Diskinenisia, some security and police officers who are close minded, uneducated, , biased, etc.. will jump to conclusions and assume that the person is on meth, and will react as they would with a person who is under the influence!
Yes and that is what happened! I spoke with the head of casino security at another property and he said they never ever approach anyone who isn't a possible danger to others or themselves or causing a disturbance of some kind...and I wasn't bothering anyone a disturbance. Should have never happened but it did and the silver lining is that is lead me to create this channel ♥
Sometimes people think i am on meth
Sorry to hear this, I know it feels and in an ideal world it wouldn't happen.
Yes! Yes! Yes!
Jennifer, you inspire optimism and a positive can-do attitude in the face of difficulty. Good for you 👏🏻👏🏻 Looking forward to more from the Wiggles Project ❤️
Thank you so very much!! 🥰 I believe in the mind body connection and that optimism and a can do spirit helps with my Parkinson’s symptoms. 🌸