Boston, Massachusetts Highlights - 2024 Myotonic Dystrophy Foundation Regional Conference

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  • Опубликовано: 19 май 2024
  • Check out highlights from our 2024 MDF Regional Conference in Boston, MA in partnership with Massachusetts General Hospital and the Wheeler Muscular Dystrophy Research Lab.
    This one-day conference provided a unique opportunity to bring our local communities closer together: share experiences, connect with local clinicians and researchers, and learn about the latest progress towards treatments and a cure for myotonic dystrophy. After a long pandemic that kept us apart and isolated, MDF was eager to provide a space where families could engage, learn, ask questions, and participate in meaningful conversations - without having to travel long distances.
    Read more about the Boston, MA 2024 MDF Regional Conference at: www.myotonic.org/mdf-regional...
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    The MDF Annual Conference - sometimes called the “family reunion” - brings families, researchers, and other community members from all over the world, to advance the MDF mission of Community, Care, and a Cure! Learn more about previous MDF Annual Conferences at www.myotonic.org/our-annual-c...
    Each 2024 MDF Regional Conference includes participation from local DM experts, researchers, and community members to provide a robust program including popular sessions from our past Annual Conferences. Learn more about the 2024 MDF Regional Conferences and register for our upcoming dates at: www.myotonic.org/2024-mdf-reg...
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    Myotonic dystrophy (DM) is the most common form of adult muscular dystrophy and considered the most variable of all known conditions. It is a rare, multi-systemic, inherited disease that affects an estimated 1 in 2,100 people, or over 3.6 million individuals across the world. Millions of people are living with DM, yet most do not know they have the disease and are in need of care.
    Learn more about myotonic dystrophy at www.myotonic.org/myotonic-dys...

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