A Puff of Smoke | S02 E02 | Medical Documentary | All Documentary
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- Опубликовано: 7 сен 2019
- Like most proud parents, Ray and Jenny Moyer are ecstatic when their daughter Daphne is born. But soon after Ray and Jenny bring Daphne home from the hospital, she becomes irritable, has trouble nursing and stops gaining weight. What could be wrong?
People suffering from illnesses un or misdiagnosed, discuss their journey to finding a diagnosis
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I just found Daphne's obituary. She was only 17. Her brain damage did turn out to be quite severe, but otherwise she seemed healthy, and more importantly, happy. Her neighbours wrote very nice things about her. Seems she was a ray of sunshine in the neighbourhood.
May she keep her fighting spirit, even on the other side.
Daphne Elizabeth Moyer, October 7th 2003 - December 28th 2020
Thank you for the update. 🙏
How did she die?
P 9oiuu78y y😅😮
That first case was infuriating, that baby was suffering from textbook seizures. Its disgusting that the first neurologist couldn't even identity it.
And he just went by the mothers diagnosis. As if he didn't want to deal with this case.
@@randomlyboring8358 the first neurologist did not go with the mother's diagnosis. He did not want to watch the video and just said there was nothing wrong, and sent them home. This is very common as doctors are doing less and less clinical exam and relying more and more only on tests and labs. So the baby's quality of life and clinical manifestation is being les and les important to docs. In addition now days we love to classify illness and stress reactions or mental health issues, so he probably just assumed the mom was too stressed out and worrying for nothing.
@@mellie4174 no he did go with the mothers diagnosis the 2nd time it's in the clip, the mom suggested it, and he said will yes it looks like it.
@@randomlyboring8358 That was another neurologist.
@@unaninanine3743 ah i thought he's the same one they saw at the ER. However.. They both didn't do a professional job after all. Sadly
Why would a doctor refuse to even watch the video?? That seems insane
Likely because they went to the ER, which is mainly for life and limb emergencies, trauma etc...The correct thing to do would be to go to their GP and get a referral to a specialist. The specialist would be able to immediately narrow down appropriate tests and further referrals as needed.
Its like if you call out a mobile mechanic for a roadside assist, and when he arrives you try to show him photos of a bit of frayed carpet under your passenger seat. He doesn't want to look, and it seems weird because its a car problem...
Doctors like to direct the consultation.
@@TyPoProteus so wrong ER is for emergency treatment, they are not there just to get you breathing and send you on your way. It is absolutely inexcusable that they refused to look at the video. If that is how ER is operating, it is below par.
Because it straight up did not matter. The description is enough and a single incident is too little to work with. He was right to send them home
Being an aspiring doctor, I totally agree when the mother said that no one knows a child like parents do. I hope that statement inspire future doctors (like me) to never dismiss any sign and symptom that a parent says, no matter how weird it sounds. If we shut our ears the moment a parent says these "weird" symptoms, it might cost a life. We should not think that we know better, because in truth, we don't know better. We're not the one who's with that child 24/7, so it pays to LISTEN. Again, NEVER DISMISS A SYMPTOM! If you don't know, refer to a specialist who you think who knows better.
And for the parents, if you think there's something wrong, please never let any doctor who dismissed these symptoms from discouraging you guys to find the right answer. Sad as it is to hear, there are really doctors who think they know everything and just dismiss it and find some weird symptoms a nuisance for them. (Honestly for me, I think they're just dismissing it because they can't accept the fact that they don't know everything, so they're gonna just pretend that it's nothing and dismiss it). But don't let their pride stop you from acting and knowing what's wrong.
Well said. 💖💖
Thank you doctor for taking the time to listen and watch this video and encouraging parents.
I totally agree with you.
Many doctors think they know everything, that sad and very disappointing for everyone.
Is not only the parents' patient also the patient themselves too... Im also going to be a doctor and I, myself have fibromyalgia and I know it bc im studying but no doctor believes me... Is true. Nowadays doctors, seem like too tired or not passionate at all by their profession or dont take it seriously.... But we can change that. I know myself too much about pain and discomfort... I dont know how a doctor can let the patient suffer that much, honestly... At least if you dont know, you try to refer them to another doctor or have some suspicion and research....
Daphne passed away on December 28, 2020.
"On Monday, December 28, 2020, Daphne Elizabeth Moyer, dearly loved daughter and granddaughter, passed away at the age of 17."
Rest in peace Daphne.
R.I.P 😔😔😔💐🌻💐🌻💐🌻💐🌻
Sorry for the loss of your beautiful daughter. R.I.P❤
Oh no😯😭so heartbreaking 😔R.I.P lil angel🙏🌹💐
She will be missed.
sad
That first neurologist doctor they consulted should be struck off, to dismiss them like that, what is the point of his diploma if he didn't realise the severity of the signs...
Absolutely ,extreme incompetence .
You both are idiots with no clue, wow. The doctor did exactly what he needed to do. A one time incident is no need to worry and far too little to do ANYTHING about. You people have no clue, yet you feel the need to yap and punish someone simply doing their job.
These are all from the early 2000's be great if they ever did some kind of follow up and see how they are now.
100%true
Too much like keeping up with the Kardashians, you watch that right and the Grammys and dr Phil the dill.
@@jojozepofthejungle2655 nope don't watch any of them, I can only take small doses of American tv lol
@@grettabewitched5409 yeah me too
@@jojozepofthejungle2655 Hahahaha you mean DR. PHIL THE PILL! 😂😂😂😂
I was sooo relieved when the grandmother said she didnt die ❤
She did die at age 17
Its so sad that Daphne has died last year(2020)at the age of 17.May the soul rest in peace...😭🙏
She died?? 😭😭
@@Ichisaya2023 Yes 🥺
Daphne was a very adorable child and very special. She will never be forgotten!❤❤❤
The giant tumor doctor deserves more respect, he seems pretty enthusiastic about his job
Yes, but apparently it's an "answered prayer" rather than the surgeon's skill.
What a mum and dad they did not give up and went to the limit and back to save there baby what fantastic people they are
Thank you from a med student. I live for these uploads.
Me too hehe
I saw a ondines curse documentary and a year later a girl with it. Just because of the doc i recognised it
Mothers are the real doctors
thats the love of a mother will never stop until she know whats wrong with her child... even everybody tells her theirs nothing wrong..
How ironic, that the family name is Moyer and the disease Moya Moya
That’s just what I was thinking 🤔
thats exactly what i was thinking
😂😂😂😂😂Am sorry but u sounded funny
So? It's just how we pronounce it in English, that's not how you would transcribe it kn Japanese. Utter nonesense
@@notthedoctor8621 what, moya? Pretty sure romanisation are pretty much phonetic
About two years ago I was diagnosed with eosinophilic gastroenteritis. My ears perked up when Heather’s doctor said her levels were high. It’s an obvious sign that the body is fighting something. I can understand how they wouldn’t diagnose her correctly. I had other symptoms that could indicate my illness was something else. Scary and frustrating.
I was treated with prednisone for months. It was so hard to get off of it. Now I’m finally free of my symptoms and my illness.
How can you be mad at a regular doctor for not coming up with a rare disease diagnosis? When it takes several specialists to come up with such a diagnosis. Yes it is frustrating but give the doctors a break.
how can't you at first glance find this X disease that affect 10 people in this entire planet? doctors are really slacking off !
irony aside my field have nothing to do with medical stuff but come on these conditions are so rare that the best and most busy doctors might never face any of them.
at least in the end, no matter how long it took, they found the issue and solved it.
Amen 🙏
IKR. People just doesn't know how hard to be a doctor. Doctors are Human who's *_trying_* to save another human's life. If they want a guarantee for always right on diagnoses and treatments, they should just ask to their Gods - _who created a human,_ instead asked to another human. LOL.
Absoluty!
I think people are frustrated when a doctor doesn't know the answer but doesn't want to admit it and instead of consulting or referring the patient to specialists they either keep guessing the source of problem or just dismiss it.
"doctors doesn't know your child like you do", well they may not always know everything but they did save your child...
After how many of them dismissing her?...
I know that it's a rare disease but when a patient keeps having symptoms, search for something else...some doctors still give them the same diagnosis again and again and again
This series triggers my hypochondria and its so satisfying when i get paranoid of ilnesses
hope you went to get a check up.... you never know...
Were definitely all unwell either physically or mentally.
Keep uploading these!
Been binge watching them for weeks. :)
I can sympathise with these poor people as it took a whole year for my illness to be diagnosed and in the meantime it got so bad that the treatment now may not work.
What was your illness?
Hope you get better 😔💙💙💙
Mine took 8 years and like 10 doctors.. . Is not that serious but still suffered a lot... And welp. Im pretty sure I have fibromyalgia too but yeah here we go again with doctors not listening to me and what symptoms I have. The classic, you know?
Moya Moya ?? And the baby’s family name is Moyer. Anyway that baby girl is a mojor lion 🦁 fighter. Bravo to her parents
Thought it was just me that noticed
That's why it sounds in New Zealand and/or Autralian English!
She died last year, aged seventeen.
What an adorable baby....
Ikr she is adorable
I can't imagine how it must feel to be told your child is dying 😥
I believe its the most heartbreaking thing for parents :( father's first kid died early and Daphne passed away last year...i thought for a second that there might be something wrong in genetics with father.
That was so beautiful Daphne behaved herself they must of had the most wonderful feeling in the world when they heard those words 💕
This father has such a crazy glance!,and mother smiles happily,talking about her child screaming...Sick.
Something is wrong with timely diagnostic and inability to connect symptoms.
My daughter had the same you feel like going insane trying get someone to listen to you.If I knew then what do now....my girl is in residential care now people neurological problems...the grief is awful the child that should gone to collage have own family....I wish someone looked into this with my girl
Wow, i hope Daphne is doing well.
She died.
@@DarkDreamsAndMoonlitNights she died on December 2020 at the age of 17 ;((
Thank you for the upload 😊❤️
Hi
Can we all talk about this overdramatic blinking
NO
@@dylanblack8487 🤭🤭
GRRRRRRRR, GRRRRRR LOL
i know just how destressing infantile spasms is, my son had it after having meningitis at 10 weeks old.......i lost him when he was 3 years old.
So sorry to hear that ..
Thank you for another MD episode..hope you keep uploading on a regular basis...This program is my life support (hahaha) 😍😍
I felt like crying it was so sad I was scared for the father mostly no one should ever have to go through that again I'm so glad they still have her I have autism so to me it even move devastating to think that she could have learning disabilitys cos I know what its like it's hard living life like that I wouldn't wish it on anyone that baby girl is so brave and strong with incredible parents my heart goes out to them that baby girl deserves all the peace and happiness in the world no child should ever have to go through harm and suffering I love these protective parents the way they fought for her that's real love
Daphne actually passed away last December at the age of 17.
@@katrinohmann1064 ❤
What's with the overdramatic blinking?
Trademark of this show. Many people complain about it but nothing changes.
it's as much of a mystery as all the diagnoses.
@Twimper exactly what I was thinking
Twimper It's a staple emotional transition on Mystery Diagnosis.
Yessssssssssss
Thank you so much Daphnia your mum dad posting.this has helped me so much
DAPHNIE
The doctor wasn't even conscerned when her eyes were rolling!
I hope she has a full recovery in the long run I don't want that sweet angel suffering I really do hope they're right
She died last year, aged seventeen.
Just watched this today. I was diagnosed with hailey hailey disease and one of my meds is h same as heather... prednisone. Now im having 2nd thoughts about my disease because we have the same thing happened. 😔😔😔😔
Where is yr disease? I just looked up watt you have. My heart goes out to you.
25:20 Definately not something you want to hear from your doctor but that cracked me up.
4:29 Very creepy indeed especially with the music added but I'm so glad she is better now
Sparx the Dragonfly same music as channel 4s series embracing bodies 🤓
Unfortunately she’s not really well. She is now 15 years old, wheelchair bound, has a tracheotomy due to tumours (so cant speak), epilepsy, neurofibromatosis and can’t even sit on her own. She needs 24 hour care.
@@vanessaorth7834 do you have a source for this? I'd like to read more!
She sadly died in December 2020,age 17
Unfortunately she’s not really well. She is now 15 years old, wheelchair bound, has a tracheotomy due to tumours (so cant speak), epilepsy, neurofibromatosis and can’t even sit on her own. She needs 24 hour care.
Vanessa Orth thats so sad😢
Where do you get this information? I am trying to look it up as well
She passed away recently
RIP Daphne
Why doctors didn't treat this beaitiful baby case as emergency immediately? Why they haven't consult their collegues from all over the world? It is so easy now. Phone calls, sending scans etc.?
SHE SMILES ALL THE WAY!!!!!This mum definitely has her own mystery diagnosis!!!!!
You're more likely to have a *"mistery-mental diagnosis"*
@@wioi you know where to go, don't you?..
shame on you
21:26 How did they record this without the camera reflecting off of it? I don't see it!
I have actually seen a patient with this condition!
Which one though?
Moya means wind in my language....
STOP WITH THE EYE THING!!!!!
KitKat Gaming every time I watch I wonder “how many times will they show their eyes closing??!!!”
*blinks veeeeery slowly*
🤣😂😂😂😂😂😂🤣🤣
Why do some doctors not listen to their patients? Like that’s literally their job
Fly high Daphne ❤ much love to your family from Aotearoa
STOPPPPP WITHHHHH THEEEEE EYEEEEES
Larry seems like a funny guy :D glad he made it :)
1 of the doctors from “The Vet Life” on the animal planet channel took a 16 pound tumour out of a pit bull (that’s the size of 2 full term human babies) & he survived. That’s the only real-world case I’ve ever heard of that’s anything like this guy’s tumour. I don’t count shows like “Grey’s Anatomy” because they’re fake (& because the woman in the episode I’m thinking of died)
So many dramatic effects
This is the fourth reel story medical documentary with a redheaded baby. What is up with that?
Her eyes looked like my sons eyes and he has nystagmus
Ms LMC my son has it too, exactly like this baby, but it’s nystagmus and it’s when you look to the corner of you the eyes will bounce like crazy or if something comes close to the eye they bounce around just like this little girls. My son is 26 now and if you cover one of his eyes the other eye goes nuts bouncing all over the place, it’s neurological and there is nothing they can do for it. Also if you look closely at his eyes you can see the iris moving to focus, it’s almost like a robots eye you actually see them zoom in and out, it’s fascinating
I couldn’t cope with an irritable baby… let alone any living baby in general
Why didn't they say what the medication was in 7:34? Looks like medical marijuana to me, that's exactly what it does, stop seizures in infants
The eyes do the same with nystagmus
Still not something you tell the parents is normal..
Completely off topic but Daphne's dad has really pretty eyes
25:02 did i hear that right?? "i dont want him gone,i just want him out of our lives"
"I don't want him to be gone, I don't want him to be out of our lives"
I new it is CSS 😊😊
Its very inappropriate that the mom is smiling all the time
Last lady is strikingly beautiful. And the couple look alike.
Why Daphne's mother is smiling all the time like she telling jokes
i noticed that too lol
Nerves. Many people smile when they're nervous and she's suddenly telling her story in front of TV cameras.
I looked bad
i looked weird
i looked old!!!
Iv just realized with allot of these real truth documents the doctors don't know what's Rong but the internet does -3-
One of the reasons for that is because this series is more than 10 years old. It was first launched in 2005.
@@jamiececilielange5249 and most of these happen at the beginning of the 00s. And I have also seen older ones
@@necritaknot4219 All the sites I find says it started in 2005. Maybe you're thinking of a similar series?
Did he look like Alan Sugar.or what?!
May I ask WHY the mother is SMILING ☺️ when she speaks about her baby’s symptoms?
Coping mechanism or simply camera shy.
This are called spasms infants
"Trygve"???
Scandinavian name
eye
Ichigo Cutie nose
Rainbow Flashlight *ZOOOOOM*
Surely if your baby had brain surgery literally 6 months ago you would not be jumping around like that😕
It's a old series. From 2005 or so. But it is sad that they had to go through it.
Babies heal really fast. 6 month means she is al right by now and healed completely. In fact she would be in about 8 weeks.
42:44 where have I heard this stock library song before
I am sorry but does one need to be a university doctor to be able to use a stethoscope and examine the patients chest? Wow
Yes, cuz they have learned what to listen for exactly.
Astigmatism.
Their last name would continually reminded of the disease that took thief daughter from them
How sad 😢
pls 23
Typical doctors, go home, nothing is wrong.
I know this is old but I can’t believe there’s a few real nasty ppl on comments . You sound mean and cruel . All you’re doing is showing how unfair and ignorant you are .
we are all dying inside
And again ther is no better doc from you or youre mother...i dont geht why doctors are ther when they can't help and finde whats goin on
I was born in October 2003
I was born in december 1920
Cyka
WHO FECKING CARES
4
ill bite my self
moyer has moya
That lady’s gotta do something for her overly irritating shaky voice. Cry, if you want to, don’t make it look like you’re crying lol
I was in spirutual healing workshops on chyong pyong in south Korea and saw many pregnant mothers who participated in clearing evil spirits from their wombs. We don t know what is the reson for our sicknesses
Sure we do, vaccines, chemicals in water, chemicals in fake food, chemicals in furniture, chemicals in air, chemicals in hygiene products, chemicals in grass and ground, but mostly vaccines.
@@petrasomeone6963 vaccines saved humanity. Please research more before believing conspirancy theories.
@@mariposadelaire5390 so your saying that injecting mercury and glyphosate directly into people is lifesaving ? .. but break a mercury thermometer and a guy in hazmat suit shows up to wipe the spill due to health and safety.. Bill gates said that with all the vaccines he is supplying he will be able to reduce the world population by 10 to 15%.
@@petrasomeone6963The dosis makes the poison. Your comparisons are laughably bad, braking a thermometer is very different, injections and absorption by touch or breathing are vastly different.
*Oh wow. So because they think that she is too weak for surgery they thought it's better to just wait for her CERTAIN death instead of trying to do the surgery that she could survive? These doctors are nuts! Makes me truly angry!*
If you have zero chance to survive a life-saving surgery at the moment, but there is a chance you could gain a bit of strength and then have surgery later. What is the smarter choice? Immediately killing you or hoping for improvement and then doing it?
Additionally, the surgeons were right. The child got well enough for surgery.
How were the doctors wrong in saying 'no'?
So you're angry because of your own stupidity? That surgery would've been lethal. Waiting for her status to improve is the only solution there was.
this is all so sad. My name is Bluey my friend Cupcake had a Tumour the size of a baseball , she died today
Yet another of these programmes, with yet another very young bottle-fed baby!!!! I can't understand it.
You again? I believe I already told you to brush up on infant care 101. Just because a baby is drinking from a bottle doesn't mean they're not having breast milk. Even if they're not having breast milk, baby formula is an excellent alternative for mother's who are unable to produce enough breast milk as well.
@@wendillon92 Thank you. My son was bottle fed on advice from the hospital. Nothing wrong with bottle .
Oh what, so she must have had Moya-Moya because she wasn’t breast fed. Okay Carol.
DAPHNE'S DAD LOOKS HELLA OLD LARRY'S STEPDAUGHTER IS CUTE
Jaybee landeg bit rude
Who would name their kid Daphne?
Debra Harrison bit rich isn’t it debra
@@soupysoph No not really Daphne is a granny's name
@@debrak8521 Lol ok?? I think it's a beautiful name.
@@Springfairy92 Probably named her after their Grandma or maybe their Great Grandma
@@debrak8521 And Debra isn't? You're making fun of a disabled baby's name, you absolute loser. Get a hobby.