Debbie & Adrian's story living with retinitis pigmentosa | Fight for Sight

Siblings Debbie and Adrian White were diagnosed with a rare genetic disorder, called Usher syndrome II. The condition causes hearing impairment and progressive vision loss due to retinitis pigmentosa.

[@aminafzal3376]

I know the feeling of having RP and been told you can't drive anymore 😔

[@Marco-ys2he]

ushers 1 is worse I think.

[@markbeetham5118]

If you want to know about RP, please ask me. Also ushers

[@redtigertrex1542]

Hi .... my son is suffering from this disease 😪 and he is only 11 years old..... according to my readings there is limited solutions for this case like Nanoscope therapy ( still in its second phase of evaluation but thanks God the results are promising ) and the other option is related to a kind of genetic injection in the defected eye but it's is extremely expensive.
Do you have any confirmed and or specific scientific backed recommendations about what to do to at least slow down deterioration progress ?????

[@carmenvaughan4855]

1st