[@TheDobbyjones]

Thank you for posting this video, it is the first time I have seen anything on my condition and it has opened my eyes to all the various aspects of Galactosaemia. I am now 47 yr old

[@cmcm7004]

Never meet anyone who also has galactosemia, good to see that there are so many people with it doing well.

[@avishkagupta5919]

Hii will you pls talk to me my girl suffering form glactosemia plss ans me

[@risingphoenix1458]

Hi! My name is Victoria. I am 7 and I have Galactosemia 😺

[@Sarah-ft8jr]

Yep my 4 year old daughter has some of the negative effects of galactosaemia. Learning difficulties, can't talk, can't understand language has tremors, ataxia ect.
In the uk they don't test for it.
They wouldn't even admit her to hospital, she was dying in our arms when they finally admitted her at 16 days old.

[@davewait7346]

Yes. This. Is. Very. Rare. Indeed. Glactocema. No. Milk. Products. At. All. In. Our. Life. Extremely. Rare. !!!! Dave

[@danieltvshowsilike2626]

I've got galactosemia

[@corinneweisbein6679]

I have Galactosemia

[@tiffianyhill8661]

My son has galctosemia.... We gonna be tested on how much of this disease in dec 2020.... He is my first..

[@avishkagupta5919]

My daughter also has glactosemia pls send me your number pls give me information how cantrol this glactosemia

[@ravinirosha7989]

Food pls

[@aneesrehman4543]

Dairy free diet

[@avishkagupta5919]

Pls give me your number

[@avishkagupta5919]

Because my daughter has glactosemia

[@Afgun310]

My son has to