"1 in 10 Americans Will Face a Rare Disease" Katie Couric, Nasha Fitter, Tania Simoncelli | SXSW 24

Jennifer Canvasser (Founder and Executive Director, NEC Society), Nasha Fitter (Co-Founder, FOXG1 Research Foundation), Monkol Lek (Assistant Professor of Genetics, Yale School of Medicine and Rare Disease Patient), Tania Simoncelli (VP of Science in Society, Chan Zuckerberg Intiative) and Katie Couric (Award-Winning Journalist, #1 NYT Best-Selling Author, & Co-Founder, Katie Couric Media) joined us at the SHE Media Co-Lab at SXSW 2024. They discussed how as many as 10,000 rare diseases affect over 300 million people globally, but many rare disease patients have never met anyone else with their condition. So how do patients connect and drive research in their communities? Our speakers revealed how patients and researchers are partnering to transform the research ecosystem and advance treatments and cures for their communities. Visit www.theflowspace.com for more information.
Video credits
VP, Video: Reshma Gopaldas
Senior Editor: Allie O'Connell
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