INSPIRING PARENTS I FAYE PEARSON I STEVIE I OSTRICH MOBILITY I TRULY

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  • Опубликовано: 11 сен 2024
  • Faye Pearson, 30, and her husband Stevie, 27, are parents to 3 year old Rowan. Both Faye and Stevie suffer from genetic diseases which cause muscle wasting and mobility problems.
    Faye was diagnosed with Spinal Muscular Atrophy (SMA) type-2 when she was around 18-months-old. The disease affects her arm and neck muscles, and her breathing.
    Stevie was diagnosed with Duchenne Muscular Dystrophy (DMD) around the age of three, a condition that causes muscle degeneration, affecting his vital organs such as lungs and heart.
    Both of their conditions are progressive, however, neither was passed onto their son, Rowan.
    Stevie and Faye rely on the help of carers around the clock, but are determined that people recognize this does not mean they are in less control when it comes to bringing up their son and providing him with the love and care he requires.
    The video and content belongs to the RUclips channel truly and barcroft.tv
    #musculardystrophy #cerebralpalsy #wheelchair #duchenne #disabled #disability #wheelchairlife #spinalcordinjury #ppec #disabilityawareness #musculardystrophyawareness #raredisease #lgmd #mdawarrnambool #autism #wheelchairtravel #multiplesclerosis #f #spinabifida #specialneedskids #downsyndrome #epilepsy #adhd #occupationaltherapy #limbgirdlemusculardystrophy #physicaltherapy #ehlersdanlossyndrome #cureduchenne #speechtherapy

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