Thank you so much for this video, I have CFS and i've been in a bad flair up recently and this video was really helpful to me as your channel is the first i've found that I can really relate to. Sending love ❤❤
Watching you and listening to your words reflects so much of my own day to day life. Thank you for being super real. It can be hard to find anyone who truly gets it but i felt understood here just by your video. :)
Ciska I appreciate you so much and am inspired by your brave honesty in sharing with us your life. I love when you read your writing. So much love for you........
Hi Ciska, I have ME/CFS and had to give up work eventually because of it. Thank you so much for making a blog like this, not enough people understand and it’s comforting to those that do. My only advice is try not to push through too much. I definitely made myself worse by commuting for years and working. Sending love ❤
thank you hayley, grateful we are at least in it together ❤️🩹 not pushing so much is definitely something I’m trying to be better at, this crash has really put a lot of things in perspective for me. sending love💘
Sending so much love your way. Your vulnerability and honesty truly is something that I know so many are grateful for, including myself. Hoping and praying this flare up goes away soon 🩷
I can completely relate to dealing with taking sick days or not. I have ME and fibromyalgia, and I struggle with pushing myself too much to get work done. Your writing is so beautiful and raw and real. Thank you for sharing.
it’s very hard to let go of the idea that rest must be earned and that we owe anyone productivity before we owe rest to ourselves. still unlearning it all the time🥲
Yes to outrageously seeking joy. Your thoughts really moved me. Hope you’re feeling somwhat better now. As a fellow chronic illness sufferer I know that’s a bit lame to say, it’s hard to get the sentiment right but I think you’ll know what I mean.
I completely relate to guilt and regret about doing things or not resting properly when you have ME. Pacing feels like an impossible task. It is a really, really shit illness. Like you say, why would anyone choose this or make it up? Just letting you know you aren’t alone though, sending solidarity x
The slow, soft life IS the bes, let's put that on a t-shirt! Feel for you so much! I have EDS, fibro, suspect ME as well and work as a carer but has been of since mars because of illness and pain rehab. Some time ago I also worked with scheduling, getting people in while other where ill and in the intro I was told that this and this person was "unpredictable" because they where ill so much...
I sooooo needed this video man Mental toll. It has on you having chronic illnesses, especially when you have multiple of them.❤😢 soft hugs
I’m on my own chronic fatigue and pain journey, and watching this made me feel less alone, thank you for being so honest
❤️🩹❤️🩹 thank you for being here. so grateful we can feel less alone together !
Don't feel alone. My lupus and chronic pain are terrible, as well. Strength to you and bright light to you.
Thank you so much for this video, I have CFS and i've been in a bad flair up recently and this video was really helpful to me as your channel is the first i've found that I can really relate to. Sending love ❤❤
I’m so glad you found your way here. sending you so much love!❤️🩹❤️🩹
I hope you’re doing okay. Miss seeing you upload but I hope you’re taking the time you need 🩵
more chronic illness vlogs pls! i relate to this so much and idk how to describe it but you just speak about being chronically ill in such a nice way
Watching you and listening to your words reflects so much of my own day to day life.
Thank you for being super real. It can be hard to find anyone who truly gets it but i felt understood here just by your video. :)
I’m so sorry that you relate Karly, but really glad that you can feel less alone in this community. sending you all the love and spoons❤️🩹❤️🩹
Ciska I appreciate you so much and am inspired by your brave honesty in sharing with us your life. I love when you read your writing. So much love for you........
Hi Ciska, I have ME/CFS and had to give up work eventually because of it. Thank you so much for making a blog like this, not enough people understand and it’s comforting to those that do. My only advice is try not to push through too much. I definitely made myself worse by commuting for years and working. Sending love ❤
thank you hayley, grateful we are at least in it together ❤️🩹 not pushing so much is definitely something I’m trying to be better at, this crash has really put a lot of things in perspective for me. sending love💘
Just saying hi! Came over from benjaminjournal, watched this video and subscribed! 🤗
Sending so much love your way. Your vulnerability and honesty truly is something that I know so many are grateful for, including myself. Hoping and praying this flare up goes away soon 🩷
thank you so much for being here ashley❤️🩹❤️🩹
I can completely relate to dealing with taking sick days or not. I have ME and fibromyalgia, and I struggle with pushing myself too much to get work done. Your writing is so beautiful and raw and real. Thank you for sharing.
it’s very hard to let go of the idea that rest must be earned and that we owe anyone productivity before we owe rest to ourselves. still unlearning it all the time🥲
thank you for sharing those words, your writing is beautiful. I relate so much
thank you my love❤️🩹
Yes to outrageously seeking joy. Your thoughts really moved me. Hope you’re feeling somwhat better now. As a fellow chronic illness sufferer I know that’s a bit lame to say, it’s hard to get the sentiment right but I think you’ll know what I mean.
I completely relate to guilt and regret about doing things or not resting properly when you have ME. Pacing feels like an impossible task. It is a really, really shit illness. Like you say, why would anyone choose this or make it up? Just letting you know you aren’t alone though, sending solidarity x
Thank you for sharing this! Your vulnerability is really beautiful.
thank you so much love💘💘
Thanks for sharing your experience.
The slow, soft life IS the bes, let's put that on a t-shirt! Feel for you so much! I have EDS, fibro, suspect ME as well and work as a carer but has been of since mars because of illness and pain rehab. Some time ago I also worked with scheduling, getting people in while other where ill and in the intro I was told that this and this person was "unpredictable" because they where ill so much...
yeah so difficult trying to let go of what people might think and putting that over your body’s needs. I think and hope it gets easier with time!
thank you for this. hoping for a string of better days ahead
Ditto!!! I have adrenal insufficiency I know exactly what you’re talking about….
I have fibro flare s it's awful
I have fibromyalgia