Oh my gosh, I want to give you a huge hug right now. You are so strong and brave and such an inspiration. This is so important for people to see, for so many reasons. For one, I've heard this before and even have to remind myself: " Be Kind. Always. Because you never know what someone is going through" And secondly: We all have to live our truth and do what is best for US. I admire your strength! Your vulnerability is admirable. Thank you for sharing yourself and helping us all learn. Take it easy, take care of you!!! xoxo- Carolyn
Vanin' it, that will be a treat for sure! Please be sure to check out my blog when you get a chance. It's a different style than Carolyn's but I'd love your feedback. Have a great day!
Dear Debra. I have depression, I completely understand you and how difficult is for you when people around you have tough time to understand you. I hope by medication or time will heal you. Even God forbidden it is for life, I hope God be with you and bless you.
Deb- Just found your channel, sorry to be late to the show! I just want to tell you how deeply moved I am by your courage and big heart. It is one thing to deal with your TBI- to face it, to integrate it into your life, and to move forward with it- but then you also take on this amazing journey of full-timing, which is something that is too intimidating for most folks to contemplate, much less actually DO. Then you make these amazing videos to share your story, and you give us the gift of deep honesty and connection and love- YOU ARE AMAZING!!! I'm proud of you and I'm so happy that we got to camp together in Leadville and get to know you a little bit. Yolie and I are looking forward to seeing you again at RTR, and I know our paths will continue to cross. You bring incredible light and love into the world. You inspire me with your example. I'm glad we're friends! Big love, Scott
Hi Scott, your comment means the world to me. Thank you! And your kind words leave me speechless. I look forward to seeing you and Yolie. Our time together was so short. I'm honored and humbled to call you two friends. Much love, big hugZ and infinite blessings to you! Always, db&n
I am late to Debra's life too. Am British but love to watch boondocking videos from the US. I applaud your wonderful words and applaud Debra's strength in opting for this life. It's great you got to meet.
I work on a register in a high volume deep discounter retailer and i have been guilty of being snippy. Thank you for sharing your story. I will be working on that snippy bit and thinking of your story.
A very sweet lady and a very sweet video... You are going to be okay. Listen to your body and be gentle and kind with it. On those bad days just embrace them and do the best you can. That is all you can do. With my depression and past abuse issues I seek out the quiet away from the noise of everyday life as it overwhelms me at times. Meditate as much as you can if you can. And, don't beat yourself up. Treat yourself with loving kindness... I think we do that for others throughout our lives and aren't very kind to ourselves most of our lives... Take care beautiful spirit... You are only human... Find your peace...
Thank you R Privette! Beautiful and true words you have shared. I meditate at least once daily. Well, except on seizure or symptomatic days. It wouldn't be very honest if I said I meditated then, but otherwise I do!
I was also a foster parent of an abusive child, but he only left bruises. I'm so captivated by your spirit, and how fitting that you end this episode with the plaque behind you, "put on your brave boots" ,,,my darlin, you have certainly done that!! !
I'm so sorry you went through that Granny Lyn, but I need to clarify (loudly) that my son was NOT abusive. It was one incident with no prior history, and it was because of a situation at his school that never should have happened. When I put pressure on him to talk to me so I could figure out what had him so upset, he blew. He had Down's Syndrome and reacted in the only way he knew how to release all that tension. If he could have processed what he did, he would not have been able to live with himself. He was a sweetheart. I'm so glad you noticed that plaque! :)) My trustee and legal guardian, my bff Leslie, gave that to me as a housewarming bon voyage gift. It's a perfect reminder of my TX roots and to stay courageous. KOKO Granny Lyn. Glad you're here!
oh honey, my heart goes out to you. as a fellow challenged human. good day's, bad day's, we get thru. heck it's just a day, every day I wake I pray for a good day. it's just part of the journey.
Bless you! As someone testing high on the autism spectrum, I can empathize with your struggles. In fact, I am currently in a library and it took me almost an hour to completely watch this video because they had an elementary school class on a field trip here and their combined murmuring/talking/movements pushed me to the point of almost "shutting down" so had to go sit alone in a bathroom stall with noise-cancelling headphones for awhile so I could continue functioning. Not all disabilities/challenges people have to deal with are easily identifiable/addressed.
OMGosh Rocki5pr! That is so me! Over stimulation shuts me down too. My understanding is that it is a mild seizure (complex partial focal). I often have to sit somewhere quiet for awhile and it can be scary, at least for me, waiting for my cognitive skills to return. I used to fear the "what ifs" .... What if I shut down and don't come back, What if I shut down, come to and then don't remember where I am, etc., but I've learned that's not how it works. I always come back. These seizures are always temporary and are directly related to environment. Silence, peace, and stillness is required. The brain is awe-mazing! So complex. Thank you for sharing!
New viewer... I appreciate your authenticity and natural beauty! I have been van dwelling since August 2016... and I'm loving it too!! Keep positive, you are full of strength and heart! Take it easy and try not to stress your health! Maybe one day we will cross paths! You also inspire me to pick up a camera and document how amazing this life can be! Enjoy your journey friend!
"Everybody needs beauty as well as bread, places to play in and pray in, where nature may heal and give strength to body and soul alike."- JOHN MUIR The Yosemite (1912) You are such an inspiration! Thank you for reminding us to BE NICE you never know how someone maybe struggling! I'll be praying for you that those bad days become less and you experience true healing while out in nature. The beautiful outdoors is My Church!
oh gosh is that the series where he talks about the great out doors as his cathedral oh I just loved that,, sooo beautiful thanx for the reminder rhonda.. he was a mystic i think in his own way :)
What a phenomenal message!!! I can't wait to be one of those pictures!! Look forward to meeting you (and the pouches!) someday. Your on the right track as you listen to your intuition. The universe has all the answers if we just listen. Lauri
Dear Debra: I have watched a few of your videos about being in Arizona and loved your spirit and generosity telling everyone all the good places and available resources, little did I know that we have something in common. I am touched by your honesty, I too live with a brain injury, the invisible disability. I remember a wretched day when I couldn't figure out how my gate latch worked, therefore couldn't take my dog for a walk. He was was fine but I was devastated, lots of tears and self recrimination. I spoke about it a few days later and my friend couldn't understand why I didn't just take the dog out the front door...well that's life with a brain injury, we always left through the gate and the gate/my brain didn't work that day. You are strong and courageous, your voice is a much needed ray of sunshine. I am happy to be a new subscriber.
Thank you for the sub Simba Mom! And thank you SOOOO much for sharing! YES!! That is exactly how my brain works (or not as the case may be, lol). I do stuff like that and a workaround, like going out the front door instead of the usual gate, just does not click for me some days. Again, thank you for sharing, and thank you for being here. Happy Holidays!
I am going back and watching all of your videos and I have to tell you, this touched my heart. You are so genuine and such a bright light. I struggle with anxiety and people always say that I am such a social butterfly and they don't get it. The anxiety isn't logical and I find that my routines help to keep it under control. Anyways, you are special and so very much a giver. I love that RUclips has given you the ability to be both giving and self nuturing. ☺️☺️
First let me say "Thank You" for sharing your story, you are a brave and awesome women. You will figure it out. If God bring you to it he will bring you through it. We also live the van life an love it. I have have a stroke and back surgery. No fun at all. God Bless you abundantly!
I saw your video (posted by your friend Roberts) in a vandwellers group on Facebook and rushed right over to sub to your channel. Your message is very inspiring. I have a hidden disability myself and have a tendency to get down and discouraged. Your message is a beautiful one; your spirit shows who you really are. Take good care of yourself. Next spring I'm hoping my van will be ready to go and I'll be out in AZ to see my sister and check in on Quartzite and other areas with my Corgi. Maybe we will run into each other!
PS - Love what we can see of your van. Would you consider doing a tour of it so that we can see? I'm still in the planning stages for mine. Also, another responder suggested meditation and I definitely concur. I find a stillness in it that rests my spirit. I too get confused from too much stimulation and following meditations on youtube have helped me so much.
That was so kind of Robert to share my video. He encouraged me and helped me make it so I am very grateful to him for all that. Thank you for sharing your story. And congratulations on your goals to get a van! Best wishes to you and your Corgi. And yes, it will be my pleasure to share how my van has shaped up over time. I'll try to make that video soon! Thanks!
Thank you sooooo much for posting........I have Huntington's Disease. It is a genetic disease that you have when you are born, but it is common for it to not be a problem until middleage+ altho some do manifest it in childhood or young adulthood. My mother was diagnosed at age of 78. For my mother and I, it effects the way we communicate and process , and the chorea is also evident when we are stressed or emotionally upset. My mother was placed in a nursing home at the age of 78 by my dad.....I agree with you....your choice to live as you do is best choice...I chose to be tested as I have five children and since it does not skip a generation, if I had tested negative then none of my kids would have been at risk ...I tested positive in 2012 and so God willing I have about 20 years before I will be in the position that I can no longer take care of myself due to the chorea . I struggle with saying things inappropriately and not being able to handle multiple distractions..such as tv, radio, talking, all at the same time. I have a van but am not living in it full time , it is a blessing and a lifesaver when I go to visit family to have a place to escape the confusion when it gets more than I can hancle of my kids and grandkids daily life. Yes! you are blessed to have been able to recognize and implement a lifestyle that will allow you to function on your own for as long as possible with the injury you have.....Prayers for you. Jeffery N. Gingold has a book Facing the Cognitive Challenges of Multiple Sclerosis..that helped me understand and give me positive options for the Cognitive challenges that I am facing with HD. I think you would find this encouraging also if you could read it......It gave me courage to put what I am dealing with in writing and to also boldly inform my family and the friends who were interested in knowing on why I was isolating myself from social and group functions and avoiding situations that for me were too much confusing stimulation, it also gave me positive things to do to stay independent as long as possible. God Bless you! and draw you to Himself, and give you peace and strength to do the things you need to do for your own sanity.......Prayers and Blessings!
Oh, Sandra. This was beautiful. Thank you SO much for sharing your story with me. What bravery, courage and determination you have! It is healing in and of itself just to hear from people that get it - really get it. Isn't the brain an amazing thing .... TBI, HD, MS .... all the variations bring their own challenges of dealing with stressors, stimuli and multiple distractions. I will def get that book and will try my best to read it. Reading long passages was one of the first skills to slip away from me, but I sure will try because it sounds amazing. God Bless YOU Sandra. May you too have the peace and strength you need. Thank you again. Love and blessings, d
Thank you Debra for this very inspirational video! I am going into my 12th year of caring for people with profound disabilities and I am totally in awe and understanding of how you have taken your destiny and quality of life into your own hands and in knowing what is best for you. Your bubbly positive personality is so inspiring, honest and you can only inspire everyone to do what our gut instincts tell us is right for us alone. We all have the right answers for ourselves if we are still long enough to listen nomatter where we are in this moment in time. You have a beautiful spirit, take care!
Debra, I think your doing wonderful,just found your utube and looking forward to your RV adventures I will carry you softly in my easily thoughts,thank you, always,linda
Hi Debra, I just found your channel and was so touched by your amazing story. I'm a Canadian heading South to escape winter, and my goal is to make it to the RTR and meet people like you. You are a true inspiration. Bob M
Thank you Debra for opening up and sharing about your TBI, hopefully this will educate others. It's so wonderful you have such amazing friends and family. You just have the most beautiful soul that just radiates from you. Big hug! :) Tina
Such sweetness Tina! Thank you! I am very hopeful that it helps others. And yes, I am blessed by many wonderful people and am very grateful. Big hugZ back at ya!
aaaaawwwww omg this video made me tear up! You're a sweet soul Ms. Debra Dickinson. I can relate to much of what you said, I too have to be alone a lot and get over stimulated by society/"regular" life quickly - not from a brain injury, but from trauma. People don't understand me the same way as you have experienced.. I've gotten snippy curt replies from family and friends who think I'm a loser because I'm not living their life, or fit the mold of what they think I should be doing (marriage, babies, etc.). Mocked, made fun of the whole 9. But it's a point of survival at times and you have to do what you NEED to, to feel better and heal. Nature is very healing, and a must for me too.. some days I feel like I can't get enough, others it fills me up. But it's so necessary to balance out with ... such an inspiring video.. you are more of a light worker than you realize! Take care:)
Awhh, Leanne, thank you for sharing this. A "light worker" - I love that! Thank you! I send you blessings dear heart. Don't ever, ever, ever give up on your dreams. KOKO! Love, db&n
Thank you for sharing that Joe. And again, best wishes to you. For now, we share a lot of the same symptoms I'm sure, and we both face the unknown as to how far and when it will progress. Bless you and your family. Please stay in touch. Blessings, db&n
Hey Debra, I just came from watching your video where you asked people what they want to see in your RUclips Channel. And then I watched this one about balance in life. As someone who struggles with that also I wanted to say, I understand. Due to chronic illness it is a life long struggle and learning process for me. One day I can do x, y, z and be perfectly fine. The next day if I do x, y, z I am laid up for 48 hours. At times there just in no rhyme or reason as to why my symptoms get worse. Then there are other things in life that will trigger symptoms for me no matter what. I doubt I'll ever figure it out and find that balance for good. In part, because I want to do so much more than I'm able. And in part because it is the nature of illness. When I saw you feeling blue in this video I wanted to tell you to be gentle and kind to yourself. You deserve that much at the very least. And because I know how it feels to have a body that doesn't always support you. But buddhism has helped me more than anything in learning how to cope, be kind to myself when I make mistakes and to find balance. Anyway, I brought this up because I thought this video might be a good reminder for you not to push yourself too hard. (This is your mother speaking). ;-) Three videos a week sounds like an awful lot. At least for me. OK. I'll stop nagging. :P Cheers!
This is Thanksgiving weekend, Oct. 2021 in Canada and this Gratitude video from Nov 2016, came up. It is still so relevant. I’ve been a subscriber for a couple of years now and Debra, you are inspiring. God bless you.
Watching the pictures of your friends and family made me drop some tears, because it shows that not the pain and suffering is your main focus but your gratitude is. Thanks for this reminder Debra! God bless you!
Hi Debra! I really love your videos. Short when they can be and longer when they need to be. More importantly, I sensed that there is something special about you and then I watched a few where you talk about your TBI. I'm a recovering alcoholic and addict. When I was in rehab 30 years ago, we would be taken to meetings outside of the rehab. I remember a woman who would introduce herself as "My name is ______ and I'm grateful to be an alcoholic." At first, I thought she was really fruit loops. But, at the last meeting I would be able to attend before I moved on to a halfway house, I got the courage to ask her what she meant. She laughed really hard and told me to keep coming back and someday I'd know for myself what she meant. Well, about five years later and 3,000 miles away, I finally got it. Yes, my disease created a hell that I wouldn't wish on anyone, but I also have become a person that I would never have been if I hadn't had some serious struggle in my life. For that, I will be eternally grateful. So, on some levels, I can relate to what you have been, and continue to go through. I'm so grateful that you are willing to share your life with all of us. I know that doing that helps you face tomorrow, but it still takes courage to do that today. God bless you Debra and I look forward to the day that our paths cross in person, Mark
You're very brave to share your story. Very sweet video. Just remember your illness is not who you are, but it's just a part of you are. You'll find your balance! I look forward to more videos as you post them.
Thank you Linda! I do know that - thank you too for the reminder. It's a fine line sometimes of not letting my TBI define me vs. respecting healthy limitations. I'll keep working on it though.
"Broken in the head." You gave me a laugh too Karl! I remember at one of my many early neuro appointments, they had a place on the medical form where expectations could be listed. I simply wrote, "Fix it." LOL. Best wishes to you. Thanks for sharing about your TBI.
I just will just say good for you, enjoy every ounce of life that comes your way. We have our challenges, like a ship in a storm, we just have to meet it dead on and sail through it. Looks like you have a good crew to support you. Live life and enjoy every bit of it. My wife has had primary progressive Multiple Sclerosis since 2003. She is now in stage 7 where her right side is for most part paralyzed and need me to get her in and out of her chair. We moved from Toronto to Montreal for her to be with her family so she would be near them and get some support from them, other than 2 or 3 visit from them per year and a phone call every once in a while she is on her owned. So get what you can out of life now and live it to the max . Be well Bill
Thank you for visiting my channel, and for writing and sharing your story +Bill haris. Yes, I agree with the living now, to the max. You are earning your angel wings. Big hugZ and many blessings to you and your wife!
Thank you for sharing. I have severe Asthma. At times I can't talk because of it, I don't have the breath to explain what is wrong. Unfortunately, it is a disability that no one takes seriously, even the medical profession. Many people die from it, even while hospitalised. I have been told to calm down by a nurse whilst fighting for breath. It is just like drowning. I feel for you, but you know silence is healing and when you feel better it is obvious to me that you have a lot of people who care about you. You are a people person. May the trails lead you to the peace of mind you seek.
Thank you CocoBunjee! Finding that balance of self-care is always tricky for me. And I hear how challenging yours is! OH MY! Please take care. Blessings to you! KOKO!
I wish you the best, I had a stroke years ago people treated me like I was stupid. Rest when you can, if you can't do something rest, then try again later. I used to have days, I would cry, just out of the blue. I was needing rest. The noise would bother me too. People talking, I thought why do they blab on and on so much. It's almost 20 years ago now. I have learned to play the ukulele, it helps me move my hands, and work on my memory. I was so lucky to recover but recovery so darn slow. I really hope you feel better.
Thank you so much for sharing this Nancy! Yes recovery is slow, but I haven't given up. So many people like you are my inspirations! They tested me for stroke and many other things before they figured out what was going on. The symptoms are very similar. I appreciate your well wishes! You take care too! HugZ, d&n
Debra I appreciate all your video tips and want to encourage you keep going. You re obviously a sharing and compassionate person. We all have good and bad days so please remember you have a host of people who support your lifestyle.
Thank you Gojira61. I had to decide before I even started the channel whether or not I was willing to put myself out there. I created this channel so that others could see that they can do this if they want to. Assisted Living or Long Term Care in 4 walls would kill me. I want others to know there is an alternative. So, it was all in or nothing. Thanks again!
new viewer and now subscriber. I know exactly what you are going through with disabilities. Some days I seem perfectly fine and those are truly great days but other days I dont even get out of bed. I too am about to embark on my own adventure in a shuttle bus I am going to be converting to an rv. I hope to start my vlog on feb 1st. The best I can hope is to help inspire others that life even with disabilities can still be an adventure. I follow a lot of others who are full time rv;ers and van dwellers and I have learned a lot. going to have fun looking at more of your videos. Thanks for the inspiration.
Congrats and good for you Riens Overu! And yes, the drastic ups and downs can be challenging to adjust to. But like you said, even in that, life can be a wonderful adventure. Thanks for sharing. See you down the road!
So many wonderful pictures of friends and family. I too suffer with epilepic seizures so understand where you are coming from. Wishing you well on your journeys. VMT :)
Thank you VMT! I love those pics. They make me happy. I'm going to share with you a blurb I wrote to help others understand my seizures, because I'd love to hear back from you (if you don't mind and are willing). I never knew there were different types of seizures so I'm always thrilled to talk with my peeps (so to speak, smile). In hearing from others I've grown in understanding and courage.Truly, thank you for sharing. Here's my stuff.... My official diagnosis is Impact-induced Hippocampal Sclerosis (HS) that produces Mesial temporal sclerosis with complex partial focal seizures that include staring and/or blackout spells with or w/o reduced or full consciousness. Basically I lose time and/or memory. The seizure always starts in one region but may disperse to other areas (partial focal). That is why the symptoms are different each time, and why the duration and recovery is so varied, but they are not epileptic or convulsive seizures. Instead mine are impaired consciousness, which implies decreased responsiveness and a reduced awareness of self and of one's environment (complex). It's crazy! I never knew there were different types of seizures before. Most people think only of the epileptic, physical kind, but I hope this explains mine.
Just "basking in the glow" of all of your "great fullness" so beautifully expressed here...right along with my deepest appreciation ...as "always"...of your "beam" and glow of your incredibly beautiful spirit...[yes, even on the rough days...you're still "beaming"... and it shows, Debra. I just want you to know that...some of us can see that so clearly...and "celebrate" your essence, your spirit...which is ALWAYS "on"! = warmest smile = ] So "beyond words" glad to have "found" your channel...and to be invited along for some glimpses of your incredible journey...of being and expressing "you"! And then to feel your immense joy in all of the wonderful people who have and are enriching your life... is such a heart-warming and life-affirming treat! Thank you SO much for creating such a joy-full work of beauty here! = gladdest, grateful-est smile = (Yes, I read your clarification about the TBI...and I so feel your frustration. People have no idea, do they, really...when it comes to our journeys and our challenges...as well as our many blessings. Each of these can only most fully be experienced and hopefully understood by the one living them. That is why I feel that "all of life" is "sacred"...because it is the version of life that we are experiencing....as only we can experience it...for the "gift" that it is...moment by each "gifted" moment...whatever pretty or unattractive "wrapping" it may come in...always still a "gift"...even if sometimes we have to keep "unwrapping" to find it! = grin = It is still very "sacred" to us...and why choosing to share this with others is such an incredible gift...which you so freely dispense here! Just so honored to be among the privileged with whom you're sharing!) [Would it be OK if I share a link here to an all-time favorite song...by a favorite songwriter...that has one of the most wonderful messages I've ever heard? It says what I feel, and am sharing here. I don't know if it would be as special for you...but I SO feel the amazing "specialness" of your journey...and the beautiful triumph of your spirit...through each of the challenges that are part of your experience. It's called "Holy Now". It's not really a "religious" song...because many on a traditional religious path would take exception to its message that "Everything is holy now". But I know what it's saying, and I feel it every day. Every little bird's chirp. Every little slice of this incredible gift of life. I hope it speaks to you. My apologies if this is not appropriate to share here. I've never just shared a song in a comment like this...but, for some reason, it feels "right" to share this with you...in celebration of your most incredible journey! I hope you find it meaningful.] ruclips.net/video/CaGnQc5Vmhs/видео.html
Thank you for this thoughtful comment Steven. That is a lovely song you shared, but for me, perhaps too "religious". That is not meant to be negative. I lean more toward spirituality which does not (again, for me) necessarily equate with religion. Having said that, my channel is about my life on the road and dealing with my TBI, not theology. This is a song by the incomparable Michael Gott that shares my viewpoint. I was blessed to be able to perform this song with him once, translating it into Sign Language. I hope you enjoy: ruclips.net/video/JFIEiB2qSPs/видео.html
Oh, Debra... Thank you so much for taking the time to even listen...and to so thoughtfully and graciously respond. It was just may way of celebrating your journey...with a fave" song...[which I didn't expect would be as special to others... = grin = ] (I just wanted to express my joy and gratitude...for so much of the same that you "spark" whenever I watch your videos...and it makes me feel how so..."beyond special" (I tend to use words like "sacred" or "profound" or "meaningful") ...maybe all the more because of your gratitude and deeply candid way of sharing...and because it's so very much your very own path...and you are pursuing it and sharing it so purposefully and meaningfully...the best you can with the "cards" you've been dealt. I so "hear" you...and "get" where you're coming from (somewhat. I try to never over-estimate my understanding of another's journey...and honor it for what it is to them...and try to be supportive and encouraging from where I'm at. But I've had my share of odd and hard-to-explain health-related issues come along, so I feel like I "know the feeling" just a bit. = grin = I feel that "there is the essence of "sacred" (or just call it chances for "wonder" and seeing the beauty) in...or underlying...everything. It just means that I try to find the "magic" in things....and tend to find "special" everywhere...if I keep looking. A dear "soul-mate" friend who is a photographer by passion helped me see the "smile" of a grasshopper which she felt she had captured...or the "twinkle" in the raccoon's eye...among thousands of other things that she helped me see...more than I'd ever imagined. I feel that your willingness to make the best of your journey maybe keeps you open to wonder and an awareness of things in a new and fresh way...simply because of your surroundings. I know from the extensive, "going with the flow" (non-hotel)car-travels I've done...that delight can find us at every turn when we're open to it. And it feels like the "magic" is there just for us...and that feels like what I might call "sacred". (My spirituality and worldview is more like nature-loving, unity-of-all-things-honoring native American ways...and my path more like a renegade shaman...than any traditional "religious" one...so I tend to shy away from anything that points too much to tiny boxes of perspective...whether they be religious or otherwise. = grin = Maybe that's why I feel like I "get" your free spirit essence that is so obvious in all that you share? Yes, even on those rough days. You still "beam", Debra...because you are doing your best to be true to who you are...and it so enriches all of us. I so honor your vibrant spirit, your deep glow, your bright beam, that seems to shine through always! ) [Please Note: This is what I do. "Honor the spirit" in people. Everywhere I turn I see this...and I want to "fan the flame" of people's "beam"...and encourage those who are being "true" to themselves to keep doing that! Sometimes people mis-constrewdle my way of sharing joy...and think I'm "coming on to" them, or have some agenda or something. (OK, on occasion, I might have a "crush"... =grin = ... but mostly, I really do "celebrate" the journey of the human spirit--especially when it's shining extra bright. That's why I celebrate you.) Thanks for receiving--even if, as a "wordsy" writer-type, I'm a bit over-the-top sometimes! = grin = ]
Debs I know this is an older video, but i think sitting with our pain, our grief , just sitting with that, well it passes cos you remind me of me, your bubbly and so full of life, and joy, and by sharing on this level, you allow others to share their pain too.I admire you, you are living your life with all its ups and downs, not some sort of fake i am happy all the time deal ha ha, fast forward to nov 2019.. hope to see you out there one day. i was sort of stuck a while back with meniers disease, which i wouldnt wish on my worst enemy, laying around, for weeks till i got it under control, but it saved my life as the mri showed I had a brain aneurysm, which I had surgery on and its still holding, with a coil up their , wow the miracle of life , its tough, i know.... do take care, with you sweet puppy giving you love. hugs kazie you cant keep a good woman down no siree :)
Debra, you are so brave and inspiring. Although I don't have a TBI, I can so relate to sensory overload. It kind of amazes me that so many people seem to need a constant barrage of noise (tv, music, videos, noisy restaurants and bars, lots of people around.) I love alone time. I love it quiet, so I can hear a bird sing, or a squirrel chirp. I sailed offshore for many years, and the days and days of quiet routine were salve for my sole. I felt free. I truly believe we should live until we die. You are doing that. You are living life on your terms and that is something to be grateful for. Keep doing what your doing. I love your videos, and God bless.
Thank you for the kind words captlynhall. And thanks for sharing! I can only imagine how wonderful and peaceful it must have been to sail offshore for years. Blessings to you as well.
My disabilities are invisible 99% of the time to most people. I understand your pain, please be gentle with yourself dear Debra. You really are an inspiration to so many people, your life truly counts. I'm very glad you can live the life you love. I understand why you value the wild, quiet places. Healing and rest are vital to us and knowing how to get it is just as important! So pleased I found your channel, goodbye till next time! ❤🌿❤🌿❤
I understand what your saying and hope you have safe, wonderful travels. Glad to see you know what's best for you. I hope you have many friends on your journey that understand and are there for you when you need and want them.
Hi Debra: I ran in to your video and you touched me, You see I'm on disability because of my heart and bipolar depression, I lost my job my wife and now I'm living in a camper truck.. being out in the boondocks has help me deal with my life and I made a promise to my self to enjoy life with what I have and be happy that other people like me might be doing the same I'm 56 years old been on the road for 2 years and single for 4 years I never thought I end up this way but, I have to close the book and begin with a new one. please take care .
Thank You for sharing the raggedy days too. That is SO encouraging to others of us who have them w/ our disabilities. Heck the most organized I'll be when I do my long camp will be a tent & that's going to be fine. You're the BEST, & living proof that God picks up the pieces to make something better than ever before. Many Blessings to a sweet & helpful lady!!!
This is beautiful. Thank you Lisa. Prior to going on disability, I had run out of options and was living in a tent at state parks in Texas - in August and September. Life is good always, nmw. KOKO! :))
I too have brain damage and have seizures. You totally inspired me to move on as I purchased a Ram Cargo Van which means I don't have a lot of space but as I move forward my goal is very close to to yours. Bless you for your honesty
I, too, am disabled and wanting to get out there in God's nature. I believe this is the best medicine. Right now, I have no funds to do this, but I'm determined not to spend the rest of my life in a nursing home :-(. To me, that would be awful. Love watching your videos because you give ppl like me courage. Tyvm..Safe travels ♡♡
Debra, I was just on CRVL and came over here to see your videos. I will be supporting you and watching all of your videos. I have problems with noise and isolate a lot which increases anxiety. Your story gave me inspiration that if you can do it so can I. I have a van already. I need to find a room mate to meet expenses and hope to find one who understands the need for silence. Not ready to give up the condo just yet but I could always take the van out to a quiet place. Really terrified about the whole thing. God bless you and thank you so much for the inspiration.
Good for you Justine! As my health and consequent finances declined I was very blessed to have two back-to-back roommates. How wonderful that you already own a van too. Take your time, do what you need to do to take care of yourself but don't ever give up on your dreams (or on meeting your needs). You've got this! Love and infinite blessings to you, d
Deb, I could really relate to this video. I have an incurable disease called CRPS, sometimes called RSD.(Please Google it so you will know what I deal with on a daily basis.) Like you, people see me and think, "how can you be in that much pain? You look great and you're cheerie and upbeat." Well, what do people expect? Do they think I should go around crying whoo is me?? I've had a family member tell me over and over, "well, you sound like you feel good?" What? How is a person in debilitating pain 24/7 suspose to sound and act? I just push myself, when I can, and grab at every tiny piece of life I can, no matter how small it might be! My heart goes out to you friend. We may not have the same disease, but it seems we deal with the same ignorance of people not understanding chronic illness that you might cannot see. I too am grateful for all the moments in life that are good! Praying your travels take you on awesome adventures and that you can live the life you've been given to the fullness as possible.😊💗 I'll keep watching you going on down the road!
Greetings from New York City! I just found your channel today (12/20/16) and watched all of your videos. I decided to comment on this one. Debra you are a wonderful, beautiful, spirited and brave lady. Your story is so amazing. You've been challenged in an unbelievable way, and yet you make no excuses for not living a full life. Your videos have shown me that I need to get my act together. I aspire to be as brave as you someday. Be well and safe travels. Oh, and of course I subscribed :-)
Thank you for the sub NoProGoPronto! I really appreciate it. And thank you too for the kind words. Wow. Remember this, you are already brave. Believe that. Know that. Blessings to you!
Totally understand what you're saying about cutting back and doing too much. The last year so I have had that problem. I am now 74 years old. I've raised my grandson he's 19 now. He has Asperger's and he struggles. So I understand needing the time to heal. To get the thoughts and to your brain so that you can heal. Going to keep watching you. I lived in a homeless situation for six years on the road. Now I have so much clutter in my house I actually wish I was back there. Good luck
People with disabilities must be brave like you are showing everyone. It is calming out in and around nature. People need to know that you don't have to travel long distances every day. All they need to do is move when their ready and take your time seeing the country. I admire you very much. I am a person with disabilities that are not noticeable and I understand how you feel when people make hurtful comments. We the disabled need to challenge ourselves to do things that might seem difficult. I went through many surgeries to keep on my feet. Now I do pretty well and am enjoying life to the max. I know sometime it will catch up to me but it won't happen one day before it has to because I just keep moving. So my dear you keep on keeping on. I am doing the same and camping when I can and enjoying every minute of it. I have subed you and will look forward to watching your videos.
Well said Nanas Joy! Thank you so much for sharing! And thanks for the sub. Yes, KOKO is a great motto. You'll see that I use it often in my blog posts. I love synchronicity. Thanks again!
It is brave, honest and also very helpful to others for you to put yourself out there for all to see. We all need to be reminded that kindness and tolerance are never over used. You are not the only person to need the solace and solitude of nature. Thoreau, Emerson and others immediately come to mind, they looked to a life similar to what you are living to enhance their lives and thinking and that was long, long before all of the "noise" of modern day life. You have found a lifestyle that works for you....how wonderful! and how wonderful that you can and are willing to share some of that with the rest of us. Thank you so much.
COgal H., these words touch me deeply. Thank you very much. I wrote a blog post just today about needing to write more (link below). I suppose the solace and solitude of nature speaks to me in many ways. Good point about those guys getting away from it all before the "noise" reached the volume it is today. Thanks again, truly. www.debradickinson.com/2016/12/121216-skippy-dee-doo-day.html
Love your channel. Being out in nature is definitely healing. Life is stressful & noisy and everyone is walking fast, driving fast and patience with one another is at a minimum. Sad, really. My husband and I seek out parks and surround ourselves in nature on the weekends to decompress. Do what makes you happy and enjoy yourself.
Great respect for you Debra...thank you for sharing! I have struggled for years with a so-called invisible illness that causes significant cognitive challenges (chronic Lyme disease) and can so relate to your cashier story. Just bought a used truck and truck camper and hope to meet you at RTR 2018! Strength & Courage, Logan
i admire your strength and courage... this is actually the first time i have been motivated to make a comment. but you are amazing! may you be blessed with compassionate purifying light and soothing healing energy. may you be completely, deeply, and permanently healed on all levels. may you be blessed with rapid and proper healing. with thanks and in full faith. so be it and so it is. 💗💜🙏😇
Wow. I'm so glad you shared that with us. I feel that when people are unaware or uneducated about things they don't understand, they can be rude or even mean to people and can cause hurt feeling. It's good for people to learn about things they don't understand so then can be kinder and more Compassionate to there fellow humans. I some what understand how you feel about not being able to do the things you use to. I have resiliently been considered disabled, not with anything like what you have to live with, but It is hard wanting to do things that you will not ever be able to, or even things you know you shouldn't do. You give your self what you need, rather it be time, Help or what ever. I think your a strong and courageous person and you give hope to those that see you dealing with your disability. Keep those video's cumming when you can. Thanks again for sharing.
Wow Debra, how brave of you to be out living in your van. I so want to get out there. You are such an inspiration! I hope I can meet you someday. I appreciate all the information you are sharing! Thank you Cindy
Thank you for this honest and heartfelt video. You've just inspired LOTS of people who think they have too many limitations to be free and on the road. Sending love to you and Nonni and Bentley!
Thank you Debra for telling your story, and for encouraging those of us who have injuries. I love your message about gratitude, and it looks like you have a wonderful group of people on your team! Very moving video, beautifully done.
Thank you for the kind words Ericka, and for sharing part of your story. I do have wonderful, awe-mazing people in my life. I'm glad you liked the video. I am blessed to have my friend Robert as the videographer. He is very talented. Thanks for being here!
Thanks for sharing as a person with many health issues it's hard to slow down and take it easy. I'm moving into my van soon so that I can enjoy life on my terms and at my pace. So glad I found your channel.. God Bless!
Debra, thank you for sharing. I don't have a TbI but I can relate to the memory problems and abilities waxing and waning sometimes without warning. I live with my adult daughter and her husband because of a break in a few years ago. I am grateful to have a roof over my head. The other night I came home and couldn't remember which way to turn the locks on the front door. The screen door is different. The frustration was huge. I've spent some frustrating times forgetting account numbers and passwords that I've remembered daily for several years. I nod yes to directions but barely remember before I leave the givers sight. While I'm happy the doctor says there's nothing wrong I don't believe it. There are abilities I know I've lost. I can't hold multiple ideas in my head anymore. Faces and names don't go together as they once did. Time still is bug bear. I have a clock in all but one room to help me keep track. I see to have showers that I was sure was taking more than hour. A timer helps me keep it down to 10 minutes. I've found a few things that help keep focused thankfully. i may not hit road in a van or Rv but I am inspired to do more. I see with what you are doing Debra there is choice for someone in my situation. Not sure that I will remember exactly what the plan of action was to be. Most days it just is what it is. The other health issues just spice it up a bit. I've become more long-winded when I type. I have subbed before this video and am now more pleased I did. Glad to see you made it to RTR 2017. Maybe there'll be an Aussie contingent one year that I'll be able to join. Thank you.
Thank you so much for sharing your story Narelle! Yes, yes, yes - those are some of the symptoms I deal with every day, all day! It can be so frustrating. One day I will remember how to make coffee; the next day I can't even remember to add the grounds, let alone how much and where. I try to add my "wonky" days and mixups to my Twitter page. That way I can track them. Othewise, when my doctors or family and friends ask me how I'm doing, or what my latest symptoms have been, we can refer to Twitter. Otherwise, I can't tell them! And now, dear Narelle, you have reminded me that I haven't even been doing that. See? We have a LOT in common. Keep trying to find tools that help you focus. Don't give up! Who knows, maybe you'll get to where you can start your own Aussie RTR. Hey, it can happen! We have to believe. KOKO! I'll go back to trying to remember to keep my Twitter log updated. Here's the link in case you want to stroll through some of my frustrating moments: twitter.com/TBIVanGirl Big hugZ and infinite blessings to you!
Debra Dickinson thank you for your reply. Um twitter didn't get to me I'm afraid. Couldn't cope with another chat. Besides it has character limits I've heard. Glad it is useful to you when you remember. I tried using a number of note books for my memory. The result: a lot of notebooks with bold names like Thoughts, Money, To Do, Food & Fitness, etc., neatly stored with the beginnings of greatness in each one followed by and blank pages. I think it's a tribute to my forgetfulness. Good thing I love stationery. An Aussie RTR sounds fabulous. Could do a Skype or whatever it will be by then. We'll have a great time chatting and laughing then when we're done wonder who we were chatting too. 😂 In the meantime, I reckon I should buy myself a surprise to find in a few weeks. I like surprises. 😂 I love your sense of humour. Glad there is more humour than not. I'm sure there are more than a couple of days when it gets too much. But you have and are forming new friends all the time. I'm pretty sure I'm a new friend. 😉💕🇦🇺
Thanks for being here! Love your name(s). Yes, I just wrote in the previous comment that it is def difficult to understand, especially when it changes daily and sometimes hour to hour. If those of us with invisible disabilities were in a cast or a wheelchair or something, it obviously would be more apparent, but we each have to find our own way regardless. There is good in every situation when we look for it. Thanks for being here Old Farmers! :))
Awesome! You are doing absolutely awesome! What a great serene and healing environment that nature provides for you to live in! I sincerely hope someday, to see you down the road! 💕
a big hello from the west coast of scotland. what a lovely, inspirational lady. I see too many people give up and give in. you have a lot of courage and inner strength.
Thank you, and welcome!! I love that you are here all the way from Scotland and took time to comment. I appreciate your kind words too. I seem to have been blessed with resilience since birth. Happy New Year Indigo Traveller!
I just found you channel and subscribed. Good luck on van life and your healing environment take it easy when you have to and it looks like you have an amazing support group.
Hi Rolling Hills, thanks for the sub! And yes, I am very blessed with many awe-mazing people in my life. My next video is about me taking it easy and staying in Q for awhile - thank you for that encouragement!
You are doing it right girl, I had a brain injury in 1979, at the time I had kids at home who did not understand why dad had a problem doing some things. I struggled for many years, learning my limits and things I could or could not do anymore. I think you have found the correct approach to living the best that you can.
Thank you so much for sharing this smokepoler1! And bless you for sharing that. I guess I get impatient with myself - everything is so new - the limits and things I can't do anymore constantly surprise me. You gave me the reminder to be more patient and I appreciate you giving me two thumbs up for my approach. That means a lot to me coming from someone who has been there, done that. Kudos to you!! Happy Holidays to you and your family.
Hi Debra, just found your channel. Its Christmas Day, so merry christmas. hope it was wonderful and peaceful for you. my best friend has brain damage with the white cell matter. she also has epilepsy, she has it under control somewhat. but i know what you are saying about being in the quiet. Sometimes we just hang out and not say anything for the longest time. Anyway, she was supposed to come with me to the rtr in jan, but i dont have a van yet. i will be coming in my car. I figure we need alittle more room. So i am gonna be doing recon out there. I hope we can meet up when i am there. No pressure. We want to do survival type camping,but i am not sure if thats gonna be possible. i think that the rtr and boondocking on lbm land is the ticket. sorry for rambling on. you are doing great!!!!
Ahhh, thank you Vivian! I send you a belated Merry Christmas!! :)) Good for you on coming to the RTR. You will be fine in your car! And I'm not sure what type of "survival camping" you want to do - there are many levels and varying degrees to that style, but you should be okay no matter what you choose. Your friend is blessed to have you in her life, and kudos to you for "getting" her and just spending time with her in quiet when needed. Without scrolling back through I can't really tell whether or not you have seen my videos on Quartzsite and Ehrenberg but be sure to check them out. You can only stay 14 days on BLM land so plan accordingly! I also wrote a blog post about it: www.debradickinson.com/2016/12/121816-look-around-ehrenberg-az.html You can also find a lot of information about specific campsites on my friend Robert's site: rubbertramping.com/ Let me know if you need anything else. See you soon!
Wow, that was powerful! I saw your other video before i saw this one where I commented Attitude of Gratitude. People tell me the same thing; "You don't look disabled." I tell them to stick around as I will at times say something off the wall and not even know it, or forget what i'm doing or saying right in the middle of doing or saying it. Does that make sense? Sometimes i 'll spend the entire day in bed although i'm not sick. I'm glad (like you) I have a few friends and family who love me regardless. Great pics of your family and friends!
Thanks Sunlight! I believe there is always, always, always something to be positive and grateful for - no matter where you are in life, but yes, this lifestyle suits me really well. It is such a blessing. Thanks for being here!
Oh my gosh, I want to give you a huge hug right now. You are so strong and brave and such an inspiration.
This is so important for people to see, for so many reasons. For one, I've heard this before and even have to remind myself: " Be Kind. Always. Because you never know what someone is going through"
And secondly: We all have to live our truth and do what is best for US. I admire your strength!
Your vulnerability is admirable. Thank you for sharing yourself and helping us all learn.
Take it easy, take care of you!!!
xoxo-
Carolyn
This means the world to me Carolyn. Thank you!!!!
Thank you Vanin' it! Yes, Carolyn has a beautiful way with words. And video! Check out her channel. Thanks again.
Debra Dickinson be well, my friend and thank you for the support !
Will see you down the road!
Vanin' it, that will be a treat for sure! Please be sure to check out my blog when you get a chance. It's a different style than Carolyn's but I'd love your feedback. Have a great day!
Oh, derrr me. My blog is at debradickinson.com. :))
Dear Debra. I have depression, I completely understand you and how difficult is for you when people around you have tough time to understand you. I hope by medication or time will heal you. Even God forbidden it is for life, I hope God be with you and bless you.
It is very difficult to explain to people about TBI and PTSD; admire your courage!
Yes it is PDB Long, especially when it changes daily and sometimes hour to hour. Thank you!
Deb-
Just found your channel, sorry to be late to the show! I just want to tell you how deeply moved I am by your courage and big heart. It is one thing to deal with your TBI- to face it, to integrate it into your life, and to move forward with it- but then you also take on this amazing journey of full-timing, which is something that is too intimidating for most folks to contemplate, much less actually DO. Then you make these amazing videos to share your story, and you give us the gift of deep honesty and connection and love- YOU ARE AMAZING!!!
I'm proud of you and I'm so happy that we got to camp together in Leadville and get to know you a little bit. Yolie and I are looking forward to seeing you again at RTR, and I know our paths will continue to cross.
You bring incredible light and love into the world. You inspire me with your example. I'm glad we're friends!
Big love,
Scott
Hi Scott, your comment means the world to me. Thank you! And your kind words leave me speechless. I look forward to seeing you and Yolie. Our time together was so short. I'm honored and humbled to call you two friends. Much love, big hugZ and infinite blessings to you! Always, db&n
I am late to Debra's life too. Am British but love to watch boondocking videos from the US. I applaud your wonderful words and applaud Debra's strength in opting for this life. It's great you got to meet.
I work on a register in a high volume deep discounter retailer and i have been guilty of being snippy. Thank you for sharing your story. I will be working on that snippy bit and thinking of your story.
A very sweet lady and a very sweet video... You are going to be okay. Listen to your body and be gentle and kind with it. On those bad days just embrace them and do the best you can. That is all you can do. With my depression and past abuse issues I seek out the quiet away from the noise of everyday life as it overwhelms me at times. Meditate as much as you can if you can. And, don't beat yourself up. Treat yourself with loving kindness... I think we do that for others throughout our lives and aren't very kind to ourselves most of our lives... Take care beautiful spirit... You are only human... Find your peace...
Thank you R Privette! Beautiful and true words you have shared. I meditate at least once daily. Well, except on seizure or symptomatic days. It wouldn't be very honest if I said I meditated then, but otherwise I do!
I was also a foster parent of an abusive child, but he only left bruises. I'm so captivated by your spirit, and how fitting that you end this episode with the plaque behind you, "put on your brave boots" ,,,my darlin, you have certainly done that!! !
I'm so sorry you went through that Granny Lyn, but I need to clarify (loudly) that my son was NOT abusive. It was one incident with no prior history, and it was because of a situation at his school that never should have happened. When I put pressure on him to talk to me so I could figure out what had him so upset, he blew. He had Down's Syndrome and reacted in the only way he knew how to release all that tension. If he could have processed what he did, he would not have been able to live with himself. He was a sweetheart. I'm so glad you noticed that plaque! :)) My trustee and legal guardian, my bff Leslie, gave that to me as a housewarming bon voyage gift. It's a perfect reminder of my TX roots and to stay courageous. KOKO Granny Lyn. Glad you're here!
You are a beautiful soul. Debra. Hugs!
Ahhh, thank you Wendy. HugZ right back!!!
Yea, invisible disabilities will slap folks in the face!! Your are a brave, strong and inspiring woman.
Awhh, thank you!
oh honey, my heart goes out to you. as a fellow challenged human. good day's, bad day's, we get thru. heck it's just a day, every day I wake I pray for a good day. it's just part of the journey.
Thank you Marieanne. Yep, you get it. Thanks for sharing. Big, big hugZ to you. KOKO!
I think you are awesome and a woman that has courage. Dont give up. I really enjoy your videos. God bless.
Thanks Vicki! One of my main themes on this channel is to never give up, nmw. KOKO! Always.
Bless you! As someone testing high on the autism spectrum, I can empathize with your struggles. In fact, I am currently in a library and it took me almost an hour to completely watch this video because they had an elementary school class on a field trip here and their combined murmuring/talking/movements pushed me to the point of almost "shutting down" so had to go sit alone in a bathroom stall with noise-cancelling headphones for awhile so I could continue functioning. Not all disabilities/challenges people have to deal with are easily identifiable/addressed.
OMGosh Rocki5pr! That is so me! Over stimulation shuts me down too. My understanding is that it is a mild seizure (complex partial focal). I often have to sit somewhere quiet for awhile and it can be scary, at least for me, waiting for my cognitive skills to return. I used to fear the "what ifs" .... What if I shut down and don't come back, What if I shut down, come to and then don't remember where I am, etc., but I've learned that's not how it works. I always come back. These seizures are always temporary and are directly related to environment. Silence, peace, and stillness is required. The brain is awe-mazing! So complex. Thank you for sharing!
New viewer... I appreciate your authenticity and natural beauty! I have been van dwelling since August 2016... and I'm loving it too!! Keep positive, you are full of strength and heart! Take it easy and try not to stress your health! Maybe one day we will cross paths! You also inspire me to pick up a camera and document how amazing this life can be! Enjoy your journey friend!
Congrats on vandwelling Bryan! And thanks for being here! Best wishes on documenting your journey too.
"Everybody needs beauty as well as bread, places to play in and pray in, where nature may heal and give strength to body and soul alike."- JOHN MUIR The Yosemite (1912)
You are such an inspiration! Thank you for reminding us to BE NICE you never know how someone maybe struggling! I'll be praying for you that those bad days become less and you experience true healing while out in nature. The beautiful outdoors is My Church!
"My Church" indeed Rhonda, I agree. We have a kindred spirit. I love that John Muir quote. Thank you for reminding me of it!
oh gosh is that the series where he talks about the great out doors as his cathedral oh I just loved that,, sooo beautiful thanx for the reminder rhonda.. he was a mystic i think in his own way :)
What a phenomenal message!!! I can't wait to be one of those pictures!! Look forward to meeting you (and the pouches!) someday. Your on the right track as you listen to your intuition. The universe has all the answers if we just listen.
Lauri
Ahhh, what kind words! Thank you Lauri! And you are absolutely correct. Listening, hearing is the key. Take care!
Dear Debra:
I have watched a few of your videos about being in Arizona and loved your spirit and generosity telling everyone all the good places and available resources, little did I know that we have something in common.
I am touched by your honesty, I too live with a brain injury, the invisible disability. I remember a wretched day when I couldn't figure out how my gate latch worked, therefore couldn't take my dog for a walk. He was was fine but I was devastated, lots of tears and self recrimination. I spoke about it a few days later and my friend couldn't understand why I didn't just take the dog out the front door...well that's life with a brain injury, we always left through the gate and the gate/my brain didn't work that day.
You are strong and courageous, your voice is a much needed ray of sunshine.
I am happy to be a new subscriber.
Thank you for the sub Simba Mom! And thank you SOOOO much for sharing! YES!! That is exactly how my brain works (or not as the case may be, lol). I do stuff like that and a workaround, like going out the front door instead of the usual gate, just does not click for me some days. Again, thank you for sharing, and thank you for being here. Happy Holidays!
Just watched your video. Thanks for sharing this video to let people know what you are going through,,thanks again. 💝💕😇
I think it's wonderful that you're doing the full time vandwelling thing!
You seem to me an Amazing Person with Extraordinary Courage. Thank you for sharing a part of your life with all of us!
Still playing catch up on your videos. ❤️❤️ you!
May God bless you and always keep you safe...Hugs
There is no doubt Sarah. Thank you & hugZ right back!
I am going back and watching all of your videos and I have to tell you, this touched my heart. You are so genuine and such a bright light. I struggle with anxiety and people always say that I am such a social butterfly and they don't get it. The anxiety isn't logical and I find that my routines help to keep it under control. Anyways, you are special and so very much a giver. I love that RUclips has given you the ability to be both giving and self nuturing. ☺️☺️
Thank you Nicole! HugsZ and Happy New Year to you!
First let me say "Thank You" for sharing your story, you are a brave and awesome women.
You will figure it out. If God bring you to it he will bring you through it. We also live the van life an love it.
I have have a stroke and back surgery. No fun at all. God Bless you abundantly!
You've got this RVLTD! Thanks for sharing part of your story with me. Infinite blessings to you!
I saw your video (posted by your friend Roberts) in a vandwellers group on Facebook and rushed right over to sub to your channel. Your message is very inspiring. I have a hidden disability myself and have a tendency to get down and discouraged. Your message is a beautiful one; your spirit shows who you really are. Take good care of yourself. Next spring I'm hoping my van will be ready to go and I'll be out in AZ to see my sister and check in on Quartzite and other areas with my Corgi. Maybe we will run into each other!
PS - Love what we can see of your van. Would you consider doing a tour of it so that we can see? I'm still in the planning stages for mine. Also, another responder suggested meditation and I definitely concur. I find a stillness in it that rests my spirit. I too get confused from too much stimulation and following meditations on youtube have helped me so much.
That was so kind of Robert to share my video. He encouraged me and helped me make it so I am very grateful to him for all that. Thank you for sharing your story. And congratulations on your goals to get a van! Best wishes to you and your Corgi. And yes, it will be my pleasure to share how my van has shaped up over time. I'll try to make that video soon! Thanks!
D. Watson I
Thank you sooooo much for posting........I have Huntington's Disease. It is a genetic disease that you have when you are born, but it is common for it to not be a problem until middleage+ altho some do manifest it in childhood or young adulthood. My mother was diagnosed at age of 78. For my mother and I, it effects the way we communicate and process , and the chorea is also evident when we are stressed or emotionally upset. My mother was placed in a nursing home at the age of 78 by my dad.....I agree with you....your choice to live as you do is best choice...I chose to be tested as I have five children and since it does not skip a generation, if I had tested negative then none of my kids would have been at risk ...I tested positive in 2012 and so God willing I have about 20 years before I will be in the position that I can no longer take care of myself due to the chorea . I struggle with saying things inappropriately and not being able to handle multiple distractions..such as tv, radio, talking, all at the same time. I have a van but am not living in it full time , it is a blessing and a lifesaver when I go to visit family to have a place to escape the confusion when it gets more than I can hancle of my kids and grandkids daily life. Yes! you are blessed to have been able to recognize and implement a lifestyle that will allow you to function on your own for as long as possible with the injury you have.....Prayers for you. Jeffery N. Gingold has a book Facing the Cognitive Challenges of Multiple Sclerosis..that helped me understand and give me positive options for the Cognitive challenges that I am facing with HD. I think you would find this encouraging also if you could read it......It gave me courage to put what I am dealing with in writing and to also boldly inform my family and the friends who were interested in knowing on why I was isolating myself from social and group functions and avoiding situations that for me were too much confusing stimulation, it also gave me positive things to do to stay independent as long as possible. God Bless you! and draw you to Himself, and give you peace and strength to do the things you need to do for your own sanity.......Prayers and Blessings!
Oh, Sandra. This was beautiful. Thank you SO much for sharing your story with me. What bravery, courage and determination you have! It is healing in and of itself just to hear from people that get it - really get it. Isn't the brain an amazing thing .... TBI, HD, MS .... all the variations bring their own challenges of dealing with stressors, stimuli and multiple distractions. I will def get that book and will try my best to read it. Reading long passages was one of the first skills to slip away from me, but I sure will try because it sounds amazing. God Bless YOU Sandra. May you too have the peace and strength you need. Thank you again. Love and blessings, d
Sandra Gann twenty years is a long time ... enough time for someone to figure out what triggers it. Keep a good thought, as will I. ❤️
Thank you Debra for this very inspirational video! I am going into my 12th year of caring for people with profound disabilities and I am totally in awe and understanding of how you have taken your destiny and quality of life into your own hands and in knowing what is best for you. Your bubbly positive personality is so inspiring, honest and you can only inspire everyone to do what our gut instincts tell us is right for us alone. We all have the right answers for ourselves if we are still long enough to listen nomatter where we are in this moment in time. You have a beautiful spirit, take care!
Thank you for this Lynn. Love and blessings to you! d
Debra, I think your doing wonderful,just found your utube and looking forward to your RV adventures I will carry you softly in my easily thoughts,thank you, always,linda
Thank you for this Linda! So sweet!
Hi Debra, I just found your channel and was so touched by your amazing story. I'm a Canadian heading South to escape winter, and my goal is to make it to the RTR and meet people like you. You are a true inspiration.
Bob M
Awhhh, thank you, Bob! Welcome! And happy and safe travels to you. See you at the RTR!
Thank you Debra for opening up and sharing about your TBI, hopefully this will educate others. It's so wonderful you have such amazing friends and family. You just have the most beautiful soul that just radiates from you. Big hug! :)
Tina
Such sweetness Tina! Thank you! I am very hopeful that it helps others. And yes, I am blessed by many wonderful people and am very grateful. Big hugZ back at ya!
Blessings Debra! To you and to Rpbert! You both are amazing and I have total faith that you will be able to make your life something beautiful!!!
Beautiful video! Thanks for sharing Debra. Peace
Thanks for being here NatuReal Nomad.
You just impress the heck out of me. You're just amazing!
Wow, thank you Steven! Your words humble me. Welcome to my channel!
Keep doing what is making you happy, there will always be some bad days but the good days are the only ones to remember. See you down the road.
aaaaawwwww omg this video made me tear up! You're a sweet soul Ms. Debra Dickinson. I can relate to much of what you said, I too have to be alone a lot and get over stimulated by society/"regular" life quickly - not from a brain injury, but from trauma. People don't understand me the same way as you have experienced.. I've gotten snippy curt replies from family and friends who think I'm a loser because I'm not living their life, or fit the mold of what they think I should be doing (marriage, babies, etc.). Mocked, made fun of the whole 9. But it's a point of survival at times and you have to do what you NEED to, to feel better and heal. Nature is very healing, and a must for me too.. some days I feel like I can't get enough, others it fills me up. But it's so necessary to balance out with ... such an inspiring video.. you are more of a light worker than you realize! Take care:)
Awhh, Leanne, thank you for sharing this. A "light worker" - I love that! Thank you! I send you blessings dear heart. Don't ever, ever, ever give up on your dreams. KOKO! Love, db&n
You inspire me so much! Oh God love you..... He will watch over you, always!!!
i have Huntington disease witch is a issue with the brain I i am home with family in eureka ,calif i loved your story.
Thank you for sharing that Joe. And again, best wishes to you. For now, we share a lot of the same symptoms I'm sure, and we both face the unknown as to how far and when it will progress. Bless you and your family. Please stay in touch. Blessings, db&n
Hey Debra, I just came from watching your video where you asked people what they want to see in your RUclips Channel. And then I watched this one about balance in life. As someone who struggles with that also I wanted to say, I understand. Due to chronic illness it is a life long struggle and learning process for me.
One day I can do x, y, z and be perfectly fine. The next day if I do x, y, z I am laid up for 48 hours. At times there just in no rhyme or reason as to why my symptoms get worse. Then there are other things in life that will trigger symptoms for me no matter what. I doubt I'll ever figure it out and find that balance for good. In part, because I want to do so much more than I'm able. And in part because it is the nature of illness.
When I saw you feeling blue in this video I wanted to tell you to be gentle and kind to yourself. You deserve that much at the very least. And because I know how it feels to have a body that doesn't always support you. But buddhism has helped me more than anything in learning how to cope, be kind to myself when I make mistakes and to find balance.
Anyway, I brought this up because I thought this video might be a good reminder for you not to push yourself too hard. (This is your mother speaking). ;-) Three videos a week sounds like an awful lot. At least for me. OK. I'll stop nagging. :P
Cheers!
Inspiring! Counting my blessings instead of my woes! 👍🏻 ❤️
That was beautiful ! Thank you for sharing......Hugs !
Thank you for being here allewal. And hugZ right back at you. :))
This is Thanksgiving weekend, Oct. 2021 in Canada and this Gratitude video from Nov 2016, came up. It is still so relevant. I’ve been a
subscriber for a couple of years now and Debra, you are inspiring. God bless you.
Lovely video Debra thank you so much for sharing you are an inspiration.
Watching the pictures of your friends and family made me drop some tears, because it shows that not the pain and suffering is your main focus but your gratitude is. Thanks for this reminder Debra! God bless you!
Thank you for understanding that Tina. I am very blessed by those people and others too. Thanks for watching my video. Blessings to you too!
Hi Debra!
I really love your videos. Short when they can be and longer when they need to be. More importantly, I sensed that there is something special about you and then I watched a few where you talk about your TBI.
I'm a recovering alcoholic and addict. When I was in rehab 30 years ago, we would be taken to meetings outside of the rehab. I remember a woman who would introduce herself as "My name is ______ and I'm grateful to be an alcoholic." At first, I thought she was really fruit loops. But, at the last meeting I would be able to attend before I moved on to a halfway house, I got the courage to ask her what she meant. She laughed really hard and told me to keep coming back and someday I'd know for myself what she meant. Well, about five years later and 3,000 miles away, I finally got it. Yes, my disease created a hell that I wouldn't wish on anyone, but I also have become a person that I would never have been if I hadn't had some serious struggle in my life. For that, I will be eternally grateful.
So, on some levels, I can relate to what you have been, and continue to go through. I'm so grateful that you are willing to share your life with all of us. I know that doing that helps you face tomorrow, but it still takes courage to do that today.
God bless you Debra and I look forward to the day that our paths cross in person,
Mark
This touched my heart deeply Mark. Thank you for sharing your story. Blessings to you!
Bless your heart. 🙏
You're very brave to share your story. Very sweet video. Just remember your illness is not who you are, but it's just a part of you are. You'll find your balance! I look forward to more videos as you post them.
Thank you Linda! I do know that - thank you too for the reminder. It's a fine line sometimes of not letting my TBI define me vs. respecting healthy limitations. I'll keep working on it though.
Nice, warm video. What you say/do makes so much sense. Sending a cyber hug. Stay safe, and smile on.
Thanks again for the kind words and support Peter. :)) "Cyber hug" - I like that!
I have a TBI and when I told someone I was broken in the head he laughed. Thank you for your time.
"Broken in the head." You gave me a laugh too Karl! I remember at one of my many early neuro appointments, they had a place on the medical form where expectations could be listed. I simply wrote, "Fix it." LOL. Best wishes to you. Thanks for sharing about your TBI.
I just will just say good for you, enjoy every ounce of life that comes your way. We have our challenges, like a ship in a storm, we just have to meet it dead on and sail through it. Looks like you have a good crew to support you. Live life and enjoy every bit of it.
My wife has had primary progressive Multiple Sclerosis since 2003. She is now in stage 7 where her right side is for most part paralyzed and need me to get her in and out of her chair. We moved from Toronto to Montreal for her to be with her family so she would be near them and get some support from them, other than 2 or 3 visit from them per year and a phone call every once in a while she is on her owned.
So get what you can out of life now and live it to the max .
Be well
Bill
Thank you for visiting my channel, and for writing and sharing your story +Bill haris. Yes, I agree with the living now, to the max. You are earning your angel wings. Big hugZ and many blessings to you and your wife!
Thank you for sharing. I have severe Asthma. At times I can't talk because of it, I don't have the breath to explain what is wrong. Unfortunately, it is a disability that no one takes seriously, even the medical profession. Many people die from it, even while hospitalised. I have been told to calm down by a nurse whilst fighting for breath. It is just like drowning. I feel for you, but you know silence is healing and when you feel better it is obvious to me that you have a lot of people who care about you. You are a people person. May the trails lead you to the peace of mind you seek.
Thank you CocoBunjee! Finding that balance of self-care is always tricky for me. And I hear how challenging yours is! OH MY! Please take care. Blessings to you! KOKO!
I wish you the best, I had a stroke years ago people treated me like I was stupid. Rest when you can, if you can't do something rest, then try again later. I used to have days, I would cry, just out of the blue. I was needing rest. The noise would bother me too. People talking, I thought why do they blab on and on so much. It's almost 20 years ago now. I have learned to play the ukulele, it helps me move my hands, and work on my memory. I was so lucky to recover but recovery so darn slow. I really hope you feel better.
Thank you so much for sharing this Nancy! Yes recovery is slow, but I haven't given up. So many people like you are my inspirations! They tested me for stroke and many other things before they figured out what was going on. The symptoms are very similar. I appreciate your well wishes! You take care too! HugZ, d&n
Great video! Thank you for sharing!
Glad you liked it. Thank you Tim.
Debra I appreciate all your video tips and want to encourage you keep going. You re obviously a sharing and compassionate person. We all have good and bad days so please remember you have a host of people who support your lifestyle.
Thank you Ray! :)) d&n
I am a survivor of two TIA episodes as well. I appreciate your sharing your experiences good and bad with us. Good Luck
I'm amazed by the vulnerabilities that people put out here on youtube. I admire your courage.
Thank you Gojira61. I had to decide before I even started the channel whether or not I was willing to put myself out there. I created this channel so that others could see that they can do this if they want to. Assisted Living or Long Term Care in 4 walls would kill me. I want others to know there is an alternative. So, it was all in or nothing. Thanks again!
new viewer and now subscriber. I know exactly what you are going through with disabilities. Some days I seem perfectly fine and those are truly great days but other days I dont even get out of bed. I too am about to embark on my own adventure in a shuttle bus I am going to be converting to an rv. I hope to start my vlog on feb 1st. The best I can hope is to help inspire others that life even with disabilities can still be an adventure. I follow a lot of others who are full time rv;ers and van dwellers and I have learned a lot. going to have fun looking at more of your videos. Thanks for the inspiration.
Congrats and good for you Riens Overu! And yes, the drastic ups and downs can be challenging to adjust to. But like you said, even in that, life can be a wonderful adventure. Thanks for sharing. See you down the road!
You are a brave and amazing woman! Blessings, you inspire me!
You are a inspiration to me Debra . I love your videos . I keep hope in my dreams because of you thanks! God bless you always
So many wonderful pictures of friends and family. I too suffer with epilepic seizures so understand where you are coming from. Wishing you well on your journeys. VMT :)
Thank you VMT! I love those pics. They make me happy. I'm going to share with you a blurb I wrote to help others understand my seizures, because I'd love to hear back from you (if you don't mind and are willing). I never knew there were different types of seizures so I'm always thrilled to talk with my peeps (so to speak, smile). In hearing from others I've grown in understanding and courage.Truly, thank you for sharing. Here's my stuff....
My official diagnosis is Impact-induced Hippocampal Sclerosis (HS) that produces Mesial temporal sclerosis with complex partial focal seizures that include staring and/or blackout spells with or w/o reduced or full consciousness. Basically I lose time and/or memory.
The seizure always starts in one region but may disperse to other areas (partial focal). That is why the symptoms are different each time, and why the duration and recovery is so varied, but they are not epileptic or convulsive seizures. Instead mine are impaired consciousness, which implies decreased responsiveness and a reduced awareness of self and of one's environment (complex). It's crazy! I never knew there were different types of seizures before. Most people think only of the epileptic, physical kind, but I hope this explains mine.
Just "basking in the glow" of all of your "great fullness" so beautifully expressed here...right along with my deepest appreciation ...as "always"...of your "beam" and glow of your incredibly beautiful spirit...[yes, even on the rough days...you're still "beaming"... and it shows, Debra. I just want you to know that...some of us can see that so clearly...and "celebrate" your essence, your spirit...which is ALWAYS "on"! = warmest smile = ] So "beyond words" glad to have "found" your channel...and to be invited along for some glimpses of your incredible journey...of being and expressing "you"! And then to feel your immense joy in all of the wonderful people who have and are enriching your life... is such a heart-warming and life-affirming treat! Thank you SO much for creating such a joy-full work of beauty here! = gladdest, grateful-est smile =
(Yes, I read your clarification about the TBI...and I so feel your frustration. People have no idea, do they, really...when it comes to our journeys and our challenges...as well as our many blessings. Each of these can only most fully be experienced and hopefully understood by the one living them. That is why I feel that "all of life" is "sacred"...because it is the version of life that we are experiencing....as only we can experience it...for the "gift" that it is...moment by each "gifted" moment...whatever pretty or unattractive "wrapping" it may come in...always still a "gift"...even if sometimes we have to keep "unwrapping" to find it!
= grin = It is still very "sacred" to us...and why choosing to share this with others is such an incredible gift...which you so freely dispense here! Just so honored to be among the privileged with whom you're sharing!)
[Would it be OK if I share a link here to an all-time favorite song...by a favorite songwriter...that has one of the most wonderful messages I've ever heard? It says what I feel, and am sharing here. I don't know if it would be as special for you...but I SO feel the amazing "specialness" of your journey...and the beautiful triumph of your spirit...through each of the challenges that are part of your experience. It's called "Holy Now". It's not really a "religious" song...because many on a traditional religious path would take exception to its message that "Everything is holy now". But I know what it's saying, and I feel it every day. Every little bird's chirp. Every little slice of this incredible gift of life. I hope it speaks to you. My apologies if this is not appropriate to share here. I've never just shared a song in a comment like this...but, for some reason, it feels "right" to share this with you...in celebration of your most incredible journey! I hope you find it meaningful.] ruclips.net/video/CaGnQc5Vmhs/видео.html
Thank you for this thoughtful comment Steven. That is a lovely song you shared, but for me, perhaps too "religious". That is not meant to be negative. I lean more toward spirituality which does not (again, for me) necessarily equate with religion. Having said that, my channel is about my life on the road and dealing with my TBI, not theology.
This is a song by the incomparable Michael Gott that shares my viewpoint. I was blessed to be able to perform this song with him once, translating it into Sign Language. I hope you enjoy: ruclips.net/video/JFIEiB2qSPs/видео.html
Oh, Debra... Thank you so much for taking the time to even listen...and to so thoughtfully and graciously respond. It was just may way of celebrating your journey...with a fave" song...[which I didn't expect would be as special to others... = grin = ] (I just wanted to express my joy and gratitude...for so much of the same that you "spark" whenever I watch your videos...and it makes me feel how so..."beyond special" (I tend to use words like "sacred" or "profound" or "meaningful") ...maybe all the more because of your gratitude and deeply candid way of sharing...and because it's so very much your very own path...and you are pursuing it and sharing it so purposefully and meaningfully...the best you can with the "cards" you've been dealt. I so "hear" you...and "get" where you're coming from (somewhat. I try to never over-estimate my understanding
of another's journey...and honor it for what it is to them...and try to be supportive and encouraging from where I'm at. But I've had my share of odd and hard-to-explain health-related issues come along, so I feel
like I "know the feeling" just a bit. = grin =
I feel that "there is the essence of "sacred" (or just call it chances for "wonder" and seeing the beauty) in...or underlying...everything. It just means that I try to find the "magic" in things....and tend to find "special" everywhere...if I keep looking. A dear "soul-mate" friend who is a photographer by passion helped me see the "smile" of a grasshopper which she felt she had captured...or the "twinkle" in the raccoon's eye...among thousands of other things that she helped me see...more than I'd ever imagined. I feel that your willingness to make the best of your journey maybe keeps you open to wonder and an awareness of things in a new and fresh way...simply because of your surroundings. I know from the extensive, "going with the flow" (non-hotel)car-travels I've done...that delight can find us at every turn when we're open to it. And it feels like the "magic" is there just for us...and that feels like what I might call "sacred". (My spirituality and worldview is more like nature-loving, unity-of-all-things-honoring native American ways...and my path more like a renegade shaman...than any traditional "religious" one...so I tend to shy away from anything that points too much to tiny boxes of perspective...whether they be religious or otherwise. = grin = Maybe that's why I feel like I "get" your free spirit essence that is so obvious in all that you share? Yes, even on those rough days. You still "beam", Debra...because you are doing your best to be true to who you are...and it so enriches all of us. I so honor your vibrant spirit, your deep glow, your bright beam, that seems to shine through always! )
[Please Note: This is what I do. "Honor the spirit" in people. Everywhere I turn I see this...and I want to "fan the flame" of people's "beam"...and encourage those who are being "true" to themselves to keep doing that!
Sometimes people mis-constrewdle my way of sharing joy...and think I'm "coming on to" them, or have some agenda or something. (OK, on occasion, I might have a "crush"... =grin = ... but mostly, I really do "celebrate" the journey of the human spirit--especially when it's shining extra bright. That's why I celebrate you.) Thanks for receiving--even if, as a "wordsy" writer-type, I'm a bit over-the-top sometimes! = grin = ]
Debs I know this is an older video, but i think sitting with our pain, our grief , just sitting with that, well it passes cos you remind me of me, your bubbly and so full of life, and joy, and by sharing on this level, you allow others to share their pain too.I admire you, you are living your life with all its ups and downs, not some sort of fake i am happy all the time deal ha ha, fast forward to nov 2019.. hope to see you out there one day. i was sort of stuck a while back with meniers disease, which i wouldnt wish on my worst enemy, laying around, for weeks till i got it under control, but it saved my life as the mri showed I had a brain aneurysm, which I had surgery on and its still holding, with a coil up their , wow the miracle of life , its tough, i know.... do take care, with you sweet puppy giving you love. hugs kazie you cant keep a good woman down no siree :)
Debra, you are so brave and inspiring. Although I don't have a TBI, I can so relate to sensory overload. It kind of amazes me that so many people seem to need a constant barrage of noise (tv, music, videos, noisy restaurants and bars, lots of people around.) I love alone time. I love it quiet, so I can hear a bird sing, or a squirrel chirp. I sailed offshore for many years, and the days and days of quiet routine were salve for my sole. I felt free.
I truly believe we should live until we die. You are doing that. You are living life on your terms and that is something to be grateful for. Keep doing what your doing. I love your videos, and God bless.
Thank you for the kind words captlynhall. And thanks for sharing! I can only imagine how wonderful and peaceful it must have been to sail offshore for years. Blessings to you as well.
My disabilities are invisible 99% of the time to most people. I understand your pain, please be gentle with yourself dear Debra. You really are an inspiration to so many people, your life truly counts. I'm very glad you can live the life you love. I understand why you value the wild, quiet places. Healing and rest are vital to us and knowing how to get it is just as important! So pleased I found your channel, goodbye till next time! ❤🌿❤🌿❤
I'm glad you found my channel too! :)) Blessings to you and your invisible disabilities J. T! KOKO dear one! :))
I understand what your saying and hope you have safe, wonderful travels. Glad to see you know what's best for you. I hope you have many friends on your journey that understand and are there for you when you need and want them.
I definitely do Cheryle, and am very, very blessed.
What a very touching video this is. Beautiful.
Thank you! Glad you're on the journey with me here Bob. KOKO!
Hi Debra:
I ran in to your video and you touched me,
You see I'm on disability because of my heart and bipolar depression, I lost my job my wife and now I'm living in a camper truck.. being out in the boondocks has help me deal with my life and I made a promise to my self to enjoy life with what I have and be happy that other people like me might be doing the same I'm 56 years old been on the road for 2 years and single for 4 years I never thought I end up this way but, I have to close the book and begin with a new one.
please take care .
Thank you for sharing your story Wally! Best wishes to you! And kudos for your self care. KOKO!
Thank You for sharing the raggedy days too. That is SO encouraging to others of us who have them w/ our disabilities. Heck the most organized I'll be when I do my long camp will be a tent & that's going to be fine. You're the BEST, & living proof that God picks up the pieces to make something better than ever before. Many Blessings to a sweet & helpful lady!!!
This is beautiful. Thank you Lisa. Prior to going on disability, I had run out of options and was living in a tent at state parks in Texas - in August and September. Life is good always, nmw. KOKO! :))
I too have brain damage and have seizures. You totally inspired me to move on as I
purchased a Ram Cargo Van which means I don't have a lot of space but as I move forward my goal is very close to to yours. Bless you for your honesty
I, too, am disabled and wanting to get out there in God's nature. I believe this is the best medicine. Right now, I have no funds to do this, but I'm determined not to spend the rest of my life in a nursing home :-(. To me, that would be awful. Love watching your videos because you give ppl like me courage. Tyvm..Safe travels ♡♡
So Happy for all the good people in your life. They are such a blessing. You, Are also a blessing to them and many more people.
Much Love & Light 💜💜💜💜
Debra, I was just on CRVL and came over here to see your videos. I will be supporting you and watching all of your videos. I have problems with noise and isolate a lot which increases anxiety. Your story gave me inspiration that if you can do it so can I. I have a van already. I need to find a room mate to meet expenses and hope to find one who understands the need for silence. Not ready to give up the condo just yet but I could always take the van out to a quiet place. Really terrified about the whole thing. God bless you and thank you so much for the inspiration.
Good for you Justine! As my health and consequent finances declined I was very blessed to have two back-to-back roommates. How wonderful that you already own a van too. Take your time, do what you need to do to take care of yourself but don't ever give up on your dreams (or on meeting your needs). You've got this! Love and infinite blessings to you, d
Deb, I could really relate to this video. I have an incurable disease called CRPS, sometimes called RSD.(Please Google it so you will know what I deal with on a daily basis.) Like you, people see me and think, "how can you be in that much pain? You look great and you're cheerie and upbeat." Well, what do people expect? Do they think I should go around crying whoo is me?? I've had a family member tell me over and over, "well, you sound like you feel good?" What? How is a person in debilitating pain 24/7 suspose to sound and act? I just push myself, when I can, and grab at every tiny piece of life I can, no matter how small it might be!
My heart goes out to you friend. We may not have the same disease, but it seems we deal with the same ignorance of people not understanding chronic illness that you might cannot see. I too am grateful for all the moments in life that are good!
Praying your travels take you on awesome adventures and that you can live the life you've been given to the fullness as possible.😊💗
I'll keep watching you going on down the road!
Greetings from New York City! I just found your channel today (12/20/16) and watched all of your videos. I decided to comment on this one. Debra you are a wonderful, beautiful, spirited and brave lady. Your story is so amazing. You've been challenged in an unbelievable way, and yet you make no excuses for not living a full life. Your videos have shown me that I need to get my act together. I aspire to be as brave as you someday. Be well and safe travels. Oh, and of course I subscribed :-)
Thank you for the sub NoProGoPronto! I really appreciate it. And thank you too for the kind words. Wow. Remember this, you are already brave. Believe that. Know that. Blessings to you!
Totally understand what you're saying about cutting back and doing too much. The last year so I have had that problem. I am now 74 years old. I've raised my grandson he's 19 now. He has Asperger's and he struggles. So I understand needing the time to heal. To get the thoughts and to your brain so that you can heal. Going to keep watching you. I lived in a homeless situation for six years on the road. Now I have so much clutter in my house I actually wish I was back there. Good luck
People with disabilities must be brave like you are showing everyone. It is calming out in and around nature. People need to know that you don't have to travel long distances every day. All they need to do is move when their ready and take your time seeing the country. I admire you very much. I am a person with disabilities that are not noticeable and I understand how you feel when people make hurtful comments. We the disabled need to challenge ourselves to do things that might seem difficult. I went through many surgeries to keep on my feet. Now I do pretty well and am enjoying life to the max. I know sometime it will catch up to me but it won't happen one day before it has to because I just keep moving. So my dear you keep on keeping on. I am doing the same and camping when I can and enjoying every minute of it. I have subed you and will look forward to watching your videos.
Well said Nanas Joy! Thank you so much for sharing! And thanks for the sub. Yes, KOKO is a great motto. You'll see that I use it often in my blog posts. I love synchronicity. Thanks again!
It is brave, honest and also very helpful to others for you to put yourself out there for all to see. We all need to be reminded that kindness and tolerance are never over used.
You are not the only person to need the solace and solitude of nature. Thoreau, Emerson and others immediately come to mind, they looked to a life similar to what you are living to enhance their lives and thinking and that was long, long before all of the "noise" of modern day life.
You have found a lifestyle that works for you....how wonderful! and how wonderful that you can and are willing to share some of that with the rest of us. Thank you so much.
COgal H., these words touch me deeply. Thank you very much. I wrote a blog post just today about needing to write more (link below). I suppose the solace and solitude of nature speaks to me in many ways. Good point about those guys getting away from it all before the "noise" reached the volume it is today. Thanks again, truly.
www.debradickinson.com/2016/12/121216-skippy-dee-doo-day.html
What a great video for the rest of us who are either on the road, or planning to be, for the very same reasons.
Thank you.
Love your channel. Being out in nature is definitely healing. Life is stressful & noisy and everyone is walking fast, driving fast and patience with one another is at a minimum. Sad, really. My husband and I seek out parks and surround ourselves in nature on the weekends to decompress. Do what makes you happy and enjoy yourself.
Thank you for getting me Tygerlady99. Kudos to you and your hubby. KOKO!
Great respect for you Debra...thank you for sharing! I have struggled for years with a so-called invisible illness that causes significant cognitive challenges (chronic Lyme disease) and can so relate to your cashier story. Just bought a used truck and truck camper and hope to meet you at RTR 2018! Strength & Courage, Logan
Congrat on your new rig Logan! And thank you so much for sharing your story. KOKO!
i admire your strength and courage... this is actually the first time i have been motivated to make a comment. but you are amazing! may you be blessed with compassionate purifying light and soothing healing energy. may you be completely, deeply, and permanently healed on all levels. may you be blessed with rapid and proper healing. with thanks and in full faith. so be it and so it is. 💗💜🙏😇
What a lovely blessing. Thank you! Much love, hugZ and infinite blessings right back to you, Lut.
I realize this video is several years old. However, it was exactly what I needed today. I am always inspired by you. 💗
Glad it helped Sharonica. KOKO!
Wow. I'm so glad you shared that with us. I feel that when people are unaware or uneducated about things they don't understand, they can be rude or even mean to people and can cause hurt feeling. It's good for people to learn about things they don't understand so then can be kinder and more Compassionate to there fellow humans. I some what understand how you feel about not being able to do the things you use to. I have resiliently been considered disabled, not with anything like what you have to live with, but It is hard wanting to do things that you will not ever be able to, or even things you know you shouldn't do. You give your self what you need, rather it be time, Help or what ever. I think your a strong and courageous person and you give hope to those that see you dealing with your disability. Keep those video's cumming when you can. Thanks again for sharing.
Thank you Rory! I appreciate your thoughtful comment and positive words.
Wow Debra, how brave of you to be out living in your van. I so want to get out there. You are such an inspiration! I hope I can meet you someday. I appreciate all the information you are sharing! Thank you Cindy
Awwhhh, thank you Cindy! Yes, that would be great! See you down the road!
Thank you for this honest and heartfelt video. You've just inspired LOTS of people who think they have too many limitations to be free and on the road. Sending love to you and Nonni and Bentley!
Thank you very much for your kind words Julie!
Thank you Debra for telling your story, and for encouraging those of us who have injuries. I love your message about gratitude, and it looks like you have a wonderful group of people on your team! Very moving video, beautifully done.
Thank you for the kind words Ericka, and for sharing part of your story. I do have wonderful, awe-mazing people in my life. I'm glad you liked the video. I am blessed to have my friend Robert as the videographer. He is very talented. Thanks for being here!
Thanks for sharing as a person with many health issues it's hard to slow down and take it easy. I'm moving into my van soon so that I can enjoy life on my terms and at my pace. So glad I found your channel.. God Bless!
Good for you The Nomad Sharpner! Glad you're here. Take care and we'll see you down the road!
Debra, thank you for sharing. I don't have a TbI but I can relate to the memory problems and abilities waxing and waning sometimes without warning. I live with my adult daughter and her husband because of a break in a few years ago. I am grateful to have a roof over my head. The other night I came home and couldn't remember which way to turn the locks on the front door. The screen door is different. The frustration was huge. I've spent some frustrating times forgetting account numbers and passwords that I've remembered daily for several years. I nod yes to directions but barely remember before I leave the givers sight. While I'm happy the doctor says there's nothing wrong I don't believe it. There are abilities I know I've lost. I can't hold multiple ideas in my head anymore. Faces and names don't go together as they once did. Time still is bug bear. I have a clock in all but one room to help me keep track. I see to have showers that I was sure was taking more than hour. A timer helps me keep it down to 10 minutes. I've found a few things that help keep focused thankfully. i may not hit road in a van or Rv but I am inspired to do more.
I see with what you are doing Debra there is choice for someone in my situation. Not sure that I will remember exactly what the plan of action was to be. Most days it just is what it is. The other health issues just spice it up a bit. I've become more long-winded when I type.
I have subbed before this video and am now more pleased I did. Glad to see you made it to RTR 2017. Maybe there'll be an Aussie contingent one year that I'll be able to join. Thank you.
Thank you so much for sharing your story Narelle! Yes, yes, yes - those are some of the symptoms I deal with every day, all day! It can be so frustrating. One day I will remember how to make coffee; the next day I can't even remember to add the grounds, let alone how much and where. I try to add my "wonky" days and mixups to my Twitter page. That way I can track them. Othewise, when my doctors or family and friends ask me how I'm doing, or what my latest symptoms have been, we can refer to Twitter. Otherwise, I can't tell them! And now, dear Narelle, you have reminded me that I haven't even been doing that. See? We have a LOT in common. Keep trying to find tools that help you focus. Don't give up! Who knows, maybe you'll get to where you can start your own Aussie RTR. Hey, it can happen! We have to believe. KOKO!
I'll go back to trying to remember to keep my Twitter log updated. Here's the link in case you want to stroll through some of my frustrating moments: twitter.com/TBIVanGirl
Big hugZ and infinite blessings to you!
Debra Dickinson thank you for your reply. Um twitter didn't get to me I'm afraid. Couldn't cope with another chat. Besides it has character limits I've heard. Glad it is useful to you when you remember.
I tried using a number of note books for my memory. The result: a lot of notebooks with bold names like Thoughts, Money, To Do, Food & Fitness, etc., neatly stored with the beginnings of greatness in each one followed by and blank pages. I think it's a tribute to my forgetfulness. Good thing I love stationery.
An Aussie RTR sounds fabulous. Could do a Skype or whatever it will be by then. We'll have a great time chatting and laughing then when we're done wonder who we were chatting too. 😂
In the meantime, I reckon I should buy myself a surprise to find in a few weeks. I like surprises. 😂
I love your sense of humour. Glad there is more humour than not. I'm sure there are more than a couple of days when it gets too much. But you have and are forming new friends all the time. I'm pretty sure I'm a new friend. 😉💕🇦🇺
Thank-you for sharing, this is an inspirational & educational video. TBIs are hard for ppl to understand, as they are a disability that can't be seen
Thanks for being here! Love your name(s). Yes, I just wrote in the previous comment that it is def difficult to understand, especially when it changes daily and sometimes hour to hour. If those of us with invisible disabilities were in a cast or a wheelchair or something, it obviously would be more apparent, but we each have to find our own way regardless. There is good in every situation when we look for it. Thanks for being here Old Farmers! :))
may the Lord bless you always
You too Charla! Thanks for being here!
Lovely heart felt video. Peace be with you ❤️
And peace with you as well Sue. Thank you!
Awesome! You are doing absolutely awesome! What a great serene and healing environment that nature provides for you to live in! I sincerely hope someday, to see you down the road! 💕
Nature is definitely healing. I love it. Thanks Tami!
a big hello from the west coast of scotland. what a lovely, inspirational lady. I see too many people give up and give in. you have a lot of courage and inner strength.
Thank you, and welcome!! I love that you are here all the way from Scotland and took time to comment. I appreciate your kind words too. I seem to have been blessed with resilience since birth. Happy New Year Indigo Traveller!
I just found you channel and subscribed. Good luck on van life and your healing environment take it easy when you have to and it looks like you have an amazing support group.
Hi Rolling Hills, thanks for the sub! And yes, I am very blessed with many awe-mazing people in my life. My next video is about me taking it easy and staying in Q for awhile - thank you for that encouragement!
You are doing it right girl, I had a brain injury in 1979, at the time I had kids at home who did not understand why dad had a problem doing some things. I struggled for many years, learning my limits and things I could or could not do anymore. I think you have found the correct approach to living the best that you can.
Thank you so much for sharing this smokepoler1! And bless you for sharing that. I guess I get impatient with myself - everything is so new - the limits and things I can't do anymore constantly surprise me. You gave me the reminder to be more patient and I appreciate you giving me two thumbs up for my approach. That means a lot to me coming from someone who has been there, done that. Kudos to you!! Happy Holidays to you and your family.
Hi Debra, just found your channel. Its Christmas Day, so merry christmas. hope it was wonderful and peaceful for you. my best friend has brain damage with the white cell matter. she also has epilepsy, she has it under control somewhat. but i know what you are saying about being in the quiet. Sometimes we just hang out and not say anything for the longest time. Anyway, she was supposed to come with me to the rtr in jan, but i dont have a van yet. i will be coming in my car. I figure we need alittle more room. So i am gonna be doing recon out there. I hope we can meet up when i am there. No pressure. We want to do survival type camping,but i am not sure if thats gonna be possible. i think that the rtr and boondocking on lbm land is the ticket. sorry for rambling on. you are doing great!!!!
Ahhh, thank you Vivian! I send you a belated Merry Christmas!! :)) Good for you on coming to the RTR. You will be fine in your car! And I'm not sure what type of "survival camping" you want to do - there are many levels and varying degrees to that style, but you should be okay no matter what you choose.
Your friend is blessed to have you in her life, and kudos to you for "getting" her and just spending time with her in quiet when needed. Without scrolling back through I can't really tell whether or not you have seen my videos on Quartzsite and Ehrenberg but be sure to check them out. You can only stay 14 days on BLM land so plan accordingly! I also wrote a blog post about it:
www.debradickinson.com/2016/12/121816-look-around-ehrenberg-az.html
You can also find a lot of information about specific campsites on my friend Robert's site: rubbertramping.com/
Let me know if you need anything else. See you soon!
Wow, that was powerful! I saw your other video before i saw this one where I commented Attitude of Gratitude. People tell me the same thing; "You don't look disabled." I tell them to stick around as I will at times say something off the wall and not even know it, or forget what i'm doing or saying right in the middle of doing or saying it. Does that make sense? Sometimes i 'll spend the entire day in bed although i'm not sick. I'm glad (like you) I have a few friends and family who love me regardless. Great pics of your family and friends!
Thank you Garth! Yes, all of that makes PERFECT sense to me and I'm right there with you. KOKO!
Team Debra! You are lovely. Keep listening to your inner voices.
Hi butterfly! Yes, Team Debra rocks. Thanks! And I'm def working on it. ;))
So sorry that you are having some bad days, my wife is bi-polar and also has bad days. Glad you are a strong person and are doing your best.
Thank you for "seeing" me Robin. Best wishes and blessings to you and your wife.
You are such a dear person and you have angels all around you. Peace.
Blessings Debra. I'm praying for you. Enjoy your life.
Thank you Suga Bear Radio! Happy New Year!
I'm so happy you found joy and comfort !
Thanks Sunlight! I believe there is always, always, always something to be positive and grateful for - no matter where you are in life, but yes, this lifestyle suits me really well. It is such a blessing. Thanks for being here!
What a fantastic video! I am glad I found it!
Thx Sue! Much love to you.