Ella's story - Epidermolysis Bullosa | Sydney Children's Hospitals Foundation
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- Опубликовано: 4 май 2024
- Baby Ella was born with skin as fragile as butterfly wings. 🦋
Ella lives with a rare condition called Epidermolysis Bullosa, a rare genetic condition where a specific protein responsible for gluing layers of skin together is missing. This means layers of skin easily separate from each other with any friction.
With the help of world-class specialist care at Sydney Children's Hospital Randwick, Ella can enjoy more of the joys of childhood. To a family like Ella's, a donation during our Sydney Sick Kids Appeal means so much more than financial support. It helps kids like Ella lead a fulfilled life and experience things they might not be able to without specialist care.
A child in hospital is a childhood on hold. Visit the link and donate today, to help kids like Ella live a childhood they deserve.
DONATE TODAY
🔗 www.schf.org.au/sska24
DEAR MS. ELLA, MR. TOM, MRS. ERICA, MRS. REBECCA & EVERYONE AT SYDNEY CHILDREN'S HOSPITALS FOUNDATION,
GOD BLESS YOU MY FRIENDS. I AM VERY PROUD OF YOU AND VERY HAPPY FOR YOU. I HOPE ALL OF YOUR DREAMS COME TRUE.
I LOVE YOU SO VERY MUCH.
I LOVE SYDNEY CHILDREN'S HOSPITALS FOUNDATION SO VERY MUCH.
SINCERELY PETER