Potocki-Lupski Syndrome PTLS - Living with Potocki Lupski Syndrome (PTLS)

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  • Опубликовано: 15 ноя 2024

Комментарии • 11

  • @ahmadolabisiamal3484
    @ahmadolabisiamal3484 9 месяцев назад

    well done to you. i am a medical student and i was studying PLS when i came across this. you are doing amazing. also i give great accolades to your mum who was patient with you and has made you into a beautiful person.

    • @PTLSfoundation
      @PTLSfoundation  9 месяцев назад

      Thank you so much! We are happy to talk with you more. Julie@ptlsfoundation.org

  • @BlackF35
    @BlackF35 2 года назад

    Chris we love you! Your italian family Roberta, Dave and Little Vicky

  • @jorgebotero5874
    @jorgebotero5874 6 лет назад

    Well done, thanks for this helpful comments. You are a brave guy

    • @PTLSfoundation
      @PTLSfoundation  6 лет назад

      Thank you very much, Jorge. Life is happy and full of potential!

  • @reflectionsinthebible3579
    @reflectionsinthebible3579 7 лет назад

    goos speaker :) well done :) p.s. I do not have ptsd, but as a kid I sure had some anxiety as a kid and I still do sometimes but I have mastered it. :) Do you have a hard time with weight? did you have a hard with weight as a baby and child? how do you keep your weight up?

    • @PTLSfoundation
      @PTLSfoundation  6 лет назад +1

      As a baby, they do not put on weight, even when they eat. They will add weight as they get older. Some of the teens and adults have trouble with too much weight, and others remain skinny.

  • @shaileshshah2202
    @shaileshshah2202 6 лет назад

    hi
    i m shailesh shah from india.
    my daughter has a protoki lupski syndrome
    is there any cure of these ?

    • @shaileshshah2202
      @shaileshshah2202 6 лет назад

      my number is 94288 41668

    • @PTLSawareness
      @PTLSawareness 6 лет назад

      Thank you for reaching out. This disorder does not have a "cure", however, the children, teens and adults have great potential in life.