Listening to this, I immediately thought liver problems. I suffered similar medical issues and was faced with liver failure. I received a transplant almost 3 years ago and I am so grateful.
I have listened to you Mr Allen for years now and this one had me in tears for the ups and downs they had. Please continue the amazing story telling you do.
What an incredible story. Heartbreaking in some places but hopeful in others. Our medical techniques are improving every day with the research that scientists and doctors do.
I’ve never used the word “tapping” or even heard of it. The procedure is a thoracentesis. And I was wondering. Did they ever do a work-up for the syncopated episode he suffered at the top of the stairs including a cardiac echo since he had a known murmur). Thanks for these great stories!
I have this same condition, minus the murmer. Refractory, idiopathic (🙄). After 7 thoracentesis appointments I told the doctor I was concerned about scar tissue buildup and asked for self draining catheters. I did that for a few months until one of the catheters wrapped around my pericardium. Then I eventually had pleurodesis, which has now led to other problems as the chyle fluid is building up in my tissue😭 it’s been about 5 years since this all started.
what was the point of bringing her to boston... they could have e told her that over email or thr phone.... instead of getting g her hopes up only to dash them like that
Too much scar tissue to drain him? That doesn’t make any sense. They could easily take him into surgery and cut through that scar tissue. I have immense amount of scar tissue throughout my body. And you can push through it. The doctors gave up on him.
Right. Currently they say I have Lymphatic malformations, my case is almost exactly like his, sans heart murmur. Same age when symptoms presented. Going on 5 years of this hell.
Listening to this, I immediately thought liver problems. I suffered similar medical issues and was faced with liver failure. I received a transplant almost 3 years ago and I am so grateful.
You had refractory chylothorax & Chylous ascites due to liver problems?
I have listened to you Mr Allen for years now and this one had me in tears for the ups and downs they had. Please continue the amazing story telling you do.
What an incredible story. Heartbreaking in some places but hopeful in others. Our medical techniques are improving every day with the research that scientists and doctors do.
“Hi, I’m a pulmonologist obsessed with medical mysteries. You might call me… Mr Lung”.
Huh?
@@missbrowniejayit’s a type of Dr/specialist who specializes in The respiratory track aka lungs. 🫁. …..Mr. Lung….i dunno lol. I was like huh to.
@@missbrowniejay I think this is a reference to Seagull Lung🐸
@@missbrowniejay listen to more Mr B, it’ll come to you.
I doubt ol' seagull lung knows much about pulmonology (whatever the hxxl that is) but maybe a distant relative...?@@stargraze
I’ve never used the word “tapping” or even heard of it. The procedure is a thoracentesis. And I was wondering. Did they ever do a work-up for the syncopated episode he suffered at the top of the stairs including a cardiac echo since he had a known murmur). Thanks for these great stories!
I have this same condition, minus the murmer. Refractory, idiopathic (🙄). After 7 thoracentesis appointments I told the doctor I was concerned about scar tissue buildup and asked for self draining catheters. I did that for a few months until one of the catheters wrapped around my pericardium. Then I eventually had pleurodesis, which has now led to other problems as the chyle fluid is building up in my tissue😭 it’s been about 5 years since this all started.
These stories have me bawling as we struggle with my small boys who are mysteries..
Very interesting. As a nurse i haven't heard of this disease.
As a non nurse, I never heard of it either.
Yay
I need Mr Ballen to get me through the day :)
Damn I was so close! Lolz😅
TRIGGER WARNING!!!! Oh my heart hurts, I think that’s the absolute saddest, most heart wrenching story you’ve ever told😭😭😭
Mr ballin for president
what was the point of bringing her to boston... they could have e told her that over email or thr phone.... instead of getting g her hopes up only to dash them like that
Fascinating!
huge fan.
Fantastic!!
Wish gene editing (ie CRISPR) could cure or mitigate this.
Too much scar tissue to drain him? That doesn’t make any sense. They could easily take him into surgery and cut through that scar tissue. I have immense amount of scar tissue throughout my body. And you can push through it. The doctors gave up on him.
What’s the gene? As a genetic counselor I’m super curious
I guess she didn't care about bringing a dusty 3 ring binder into ICU, The picture I have in my head is her blowing it off right over him.
I wish there's a name behind the illness. That would help allot!
A lot
Feel better grammar nazi? 💀@@nicolew4877
Right. Currently they say I have Lymphatic malformations, my case is almost exactly like his, sans heart murmur. Same age when symptoms presented. Going on 5 years of this hell.
Sounds alot like my Medical Mystery atm
Good morning 🌄
❤woohoo
Why is Jocelyn smoking cigarettes, especially knowing her families history?
Hernia?, I had one that did the exact same thing. I was sick for 2.5 years!!!
Hernia caused Chylous effusions??
Did jocelyn make it thru?
She's still alive. If you want to know more about her look up Joselin Linder
Yep, she’s a writer and pro-choice advocate now!
I wonder why they didn't put in some kind of permanent drain? Does that exist?
Yes. You can have catheters placed to self drain. I had them.
Sad.
Do you know how to get to Bells Canyon?
free palestine
Hello
Hi! 👋🏻
Hi have a great day 😊
He should of gone to the Mayo clinic
Here 😂
Free Palestine, stop genocide
G. M. Mm
Free Palestine 🇵🇸 save the children
From the river to the sea ❤
There’s no such thing as Palestine.
There is no such thing as Israel, it's only occupiers and liers
I am sitting in my daughter's hospital room while she's having a couples of lung tests. 🫁
G. M. Mm