Wow, so many layers to peel away. I’ve always tried to take the holistic approach, it can be so frustrating that the solution is usually to put a metaphorical plaster on the problem, rather than getting to the root. I once had an apartment in the most beautiful (but mouldy) big old house....that’s when my problems started and this is making perfect sense to hear your story...so I thank you and look forward to hearing more. X
I have been going through my own journey much like yours since June. This was so helpful and comforting and encouraging. I've been through the ringer of tests, spent 30k remediating mold in my home (where I've been locked down since march... when all these symptoms occured) and am about to finally go over the Dutch hormones/ organic acid tests. So many different doctors and specialists. I also have had heart palpitations and rapid heart rate that have sent me to the ER. It's encouraging to hear that you're getting well and to feel I'm not alone. Please keep sharing about this. It is hard to find reliable information.
Thanks for the update Stacey, it’s so interesting to hear how much you actually find out from those tests! Especially the acid test and the stool test. When you asked about environment at the start, I actually live in quite an old terrace house so that could be a factor but my family are all fine, but also I have worked alongside other jobs as a casual lifeguard and swimming instructor for 8 years, that environment is very humid and for a better way of putting it “sticky”, we used to have to scrape condensation off the ceiling so lord knows how much chlorine I may have inhaled throughout the years...I’m wondering now if this could be a factor. Update: still trying to find a functional health doctor to suit me, I’m getting there. Again, thank you 🖤
Wow thank you so much. I am beyond blessed to have watched this. I’ve been dealing with this for two years and now I know where to start. I was at a stand still with doctors just treating symptoms. Thank you isn’t even close to the gratitude I feel.
I have a lot of mould in my rented house,the mould grows on my curtains , it's awful, I worry for my children's health more than anything , thank you for this video x
I so agree. I’ve seen all kinds of specialists. They all say different things. I’m finally seeing a functional integrative doctor. Even though it’s costing $. It costs nowhere near what out of country surgery costed me. Glad I found this channel today!
I'm in Florida but my friend in England just sent me this video after me telling her about my story. Your story is so like mine. I've been feeling more and more unwell these past few years, but worse this year. I've been hypothyroid for many years so kept thinking was that and kept messing with different treatments and doses, which helped for a short while only. I thought it was age, or menopause. I kept cleaning up my diet more and more. I tried a Gastroenterologist, my own primary doc (as in GP), an integrative medicine doctor and a Registered Dietitian. I got diagnosed with SIBO and tried to treat that, got some results but not great. I had so little energy. I went from being a cyclist of 125+ miles a week to barely being able to get out of bed for days. I couldn't focus or concentrate and kept forgetting things. I was so bloated and despite a vegan whole foods plant based diet I was still constipated for days. I finaly found yet another doctor, a Functional Medicine MD, who I just wanted to get my guts (SIBO) and my hypothyroid controlled. She listened to me for an hour and at the end said she thinks it's mould! We did a urine mycotoxins test and it came back high for the four they test. I have no idea where the source is, whether it's from previous homes and/or my current. I've never seen or smelled mould anywhere and there's no signs of it where I am now. I'm waiting to start treatment with binders. Infrared saunas are helping a little, as I no longer exercise I need an easier way to sweat. Glad to have found you, because I plan on returning to the UK in the near future and will need any UK specific education I can find
This is a great video. I feel I'm in the same position in the UK, trying to find the right way and the funding for all these tests. It's not easy if we only have the NHS. Was tinnitus an issue for you? I've had it for years aswell as many other symptoms like you
Make your own essential oil spray from cedar, lavender, etc , dehumidifier on and spray multiple times daily, obviously clean any moldy areas and in bad moisture areas just dump some table salt or even epsom salt if it frequently keeps growing in small spaces, also consider consuming things that make it difficult for you body to mold and easy to regenerate
I am 25 and just developed Mold illness, my partner has lived in the house for 8 years I have been there 4 years. I just developed the symptoms 8 months ago he developed them a month ago. We own our house, however, because we can’t afford to fix it our living condition is poor!
The mold debate with CIRS was founded in America. People need be careful comparing symptoms. I thought I had this, but at the same time was on anti depressants and also withdrawing off these. Also, psychological feelings can mimic the symptoms. Like I say, In America, they are obsessed with mold. America also have a big uptake of anti depressants etc. If you are worried about tiny bits of mold, chances are you are suffering psychologically with something. Alot of water damage, I'm not sure but there are studies in new Orleans which say no issues of mold illnesses reported after storms. I'm in the u.k and like I say, for me, medication/anti depressants screwed my mind
Thank you for sharing your experience. I was curious about it because I saw a video of a girl who said she has CIRS and get sick when she is around covid vaccinated people. I am wondering if other people with CIRS has experienced this as well. Thank you!
Unfortunately your GP should have ran the CIRS tests as the first line of diagnosis way back when you first got sick. Its sad how slow medicine is at adopting new understanding. And the mycotoxin test from GPL is not a good place to start, the tests that are covered by insurance are(found on the surviving mold website). The mycotox profile is not scientifically proven like the others are.
@@deidrajones1052 my Naturopath tested me for heavy metals. I have high lead, aluminum, cadmium and some others... I spent $1,600 on chelation therapy but still don't feel well. How about you? Better I hope! 🤞
@@lynnkahle2586 sheesh! I haven’t been tested for anything but we found black mold in our house that has been occuring for a while now. And I am just super terrified about the long term health problems that might occur.
Hey 😔 so I been getting light headed n dizzy tingling in my hands face n back sometimes hard to breath and swollew sometime my ears ring will bad at night brain fog I haven’t really got any pain anywhere my stomach jumps a lot here n there white tounge all the time n my stool is yellow for 4 months my normal GP says it’s normally I don’t think so 😞 this been happening for 8 months I feel tried everyday what test can I get see if I have mold sickness I can’t afford to get the mold test $600 plz help I’m from Australia i moved out of my house me n my dad found black mold so could it be the mold 🤔 I got endoscopy n colon scope blood test urin test breath test stool test MRI scan on the brain ct scans every thing came back good but my bowel came back all inflamed doctor doesn’t know the cause of it so I’m lost at the moment
Wow, so many layers to peel away. I’ve always tried to take the holistic approach, it can be so frustrating that the solution is usually to put a metaphorical plaster on the problem, rather than getting to the root. I once had an apartment in the most beautiful (but mouldy) big old house....that’s when my problems started and this is making perfect sense to hear your story...so I thank you and look forward to hearing more. X
Look into dr. Todd watts of cellcore
I have been going through my own journey much like yours since June. This was so helpful and comforting and encouraging. I've been through the ringer of tests, spent 30k remediating mold in my home (where I've been locked down since march... when all these symptoms occured) and am about to finally go over the Dutch hormones/ organic acid tests. So many different doctors and specialists. I also have had heart palpitations and rapid heart rate that have sent me to the ER. It's encouraging to hear that you're getting well and to feel I'm not alone. Please keep sharing about this. It is hard to find reliable information.
30k! Wow! 😭
Thanks for the update Stacey, it’s so interesting to hear how much you actually find out from those tests! Especially the acid test and the stool test. When you asked about environment at the start, I actually live in quite an old terrace house so that could be a factor but my family are all fine, but also I have worked alongside other jobs as a casual lifeguard and swimming instructor for 8 years, that environment is very humid and for a better way of putting it “sticky”, we used to have to scrape condensation off the ceiling so lord knows how much chlorine I may have inhaled throughout the years...I’m wondering now if this could be a factor. Update: still trying to find a functional health doctor to suit me, I’m getting there. Again, thank you 🖤
Wow thank you so much. I am beyond blessed to have watched this. I’ve been dealing with this for two years and now I know where to start. I was at a stand still with doctors just treating symptoms. Thank you isn’t even close to the gratitude I feel.
I have a lot of mould in my rented house,the mould grows on my curtains , it's awful, I worry for my children's health more than anything , thank you for this video x
I so agree. I’ve seen all kinds of specialists. They all say different things. I’m finally seeing a functional integrative doctor. Even though it’s costing $. It costs nowhere near what out of country surgery costed me. Glad I found this channel today!
I'm in Florida but my friend in England just sent me this video after me telling her about my story. Your story is so like mine. I've been feeling more and more unwell these past few years, but worse this year. I've been hypothyroid for many years so kept thinking was that and kept messing with different treatments and doses, which helped for a short while only. I thought it was age, or menopause. I kept cleaning up my diet more and more. I tried a Gastroenterologist, my own primary doc (as in GP), an integrative medicine doctor and a Registered Dietitian. I got diagnosed with SIBO and tried to treat that, got some results but not great. I had so little energy. I went from being a cyclist of 125+ miles a week to barely being able to get out of bed for days. I couldn't focus or concentrate and kept forgetting things. I was so bloated and despite a vegan whole foods plant based diet I was still constipated for days. I finaly found yet another doctor, a Functional Medicine MD, who I just wanted to get my guts (SIBO) and my hypothyroid controlled. She listened to me for an hour and at the end said she thinks it's mould! We did a urine mycotoxins test and it came back high for the four they test. I have no idea where the source is, whether it's from previous homes and/or my current. I've never seen or smelled mould anywhere and there's no signs of it where I am now. I'm waiting to start treatment with binders. Infrared saunas are helping a little, as I no longer exercise I need an easier way to sweat. Glad to have found you, because I plan on returning to the UK in the near future and will need any UK specific education I can find
Look into dr. Todd watts, cellcore
This is a great video. I feel I'm in the same position in the UK, trying to find the right way and the funding for all these tests. It's not easy if we only have the NHS. Was tinnitus an issue for you? I've had it for years aswell as many other symptoms like you
Make your own essential oil spray from cedar, lavender, etc , dehumidifier on and spray multiple times daily, obviously clean any moldy areas and in bad moisture areas just dump some table salt or even epsom salt if it frequently keeps growing in small spaces, also consider consuming things that make it difficult for you body to mold and easy to regenerate
I am 25 and just developed Mold illness, my partner has lived in the house for 8 years I have been there 4 years. I just developed the symptoms 8 months ago he developed them a month ago. We own our house, however, because we can’t afford to fix it our living condition is poor!
Thank you so much for your help so much love for this channel
Yes I’m renting in poor conditions living a nightmare 24 years old
Very good, I’m struggling with mold toxicity. Finally got a diagnosis after 5 months, 5 practitioners. Feeling horrible, on supplements
Yep I’m 25 4th place in and everyone has had mold :( because of poor living conditions because landlords around here do not maintain property
She hasn't suffered with mold illness. She would comment to your questions.
The mold debate with CIRS was founded in America. People need be careful comparing symptoms. I thought I had this, but at the same time was on anti depressants and also withdrawing off these. Also, psychological feelings can mimic the symptoms. Like I say, In America, they are obsessed with mold. America also have a big uptake of anti depressants etc. If you are worried about tiny bits of mold, chances are you are suffering psychologically with something. Alot of water damage, I'm not sure but there are studies in new Orleans which say no issues of mold illnesses reported after storms. I'm in the u.k and like I say, for me, medication/anti depressants screwed my mind
Exactly, this presenter is doing this for royalties. It's pretty obvious
Thank you for sharing your experience. I was curious about it because I saw a video of a girl who said she has CIRS and get sick when she is around covid vaccinated people. I am wondering if other people with CIRS has experienced this as well. Thank you!
wow! can you share the youtube video? I am so intrigued.. im also afraid to get the vacks, i have CIRS
Ready? Lol where did you see this, no way
Yes they be shedding
Omg same story here, doctors are clueless.🤦🏻♀️🤷🏻♀️
Absolutely, so many houses have mould
Unfortunately your GP should have ran the CIRS tests as the first line of diagnosis way back when you first got sick. Its sad how slow medicine is at adopting new understanding. And the mycotoxin test from GPL is not a good place to start, the tests that are covered by insurance are(found on the surviving mold website). The mycotox profile is not scientifically proven like the others are.
What are the other tests that would be covered by insurance? Can’t find it on the website
My testosterone is low too, can you share what helps you so I can talk to my doctor about it, thank you.🙏
Do you think I should get the OAT test, GI map, Dutch hormone test, Mycotoxin test done all at once? Or mycotoxin first in your opinion?
So did you have to move or remediate your home?
I feel like I'm dying I'm so tired and my memory is gone. 😭
How are you doing now??
@@deidrajones1052 no better at all but I learned it's heavy metals, not mold. The two evil twins.
@@lynnkahle2586 okay! What did you do to discover the heavy metals? I understand you 100%. I’m sorry. I hope you have some type of recovery soon!! :(
@@deidrajones1052 my Naturopath tested me for heavy metals. I have high lead, aluminum, cadmium and some others... I spent $1,600 on chelation therapy but still don't feel well. How about you? Better I hope! 🤞
@@lynnkahle2586 sheesh! I haven’t been tested for anything but we found black mold in our house that has been occuring for a while now. And I am just super terrified about the long term health problems that might occur.
Hey 😔 so I been getting light headed n dizzy tingling in my hands face n back sometimes hard to breath and swollew sometime my ears ring will bad at night brain fog I haven’t really got any pain anywhere my stomach jumps a lot here n there white tounge all the time n my stool is yellow for 4 months my normal GP says it’s normally I don’t think so 😞 this been happening for 8 months I feel tried everyday what test can I get see if I have mold sickness I can’t afford to get the mold test $600 plz help I’m from Australia i moved out of my house me n my dad found black mold so could it be the mold 🤔 I got endoscopy n colon scope blood test urin test breath test stool test MRI scan on the brain ct scans every thing came back good but my bowel came back all inflamed doctor doesn’t know the cause of it so I’m lost at the moment
Look into dr. Todd watts of cellcore
Look into dr. Todd watts of cellcore
Dnrs brain training
I am going through exactly all this. Still working on it and in the path to healing ❤️🩹 thank you for your video!