Meet "NOAH" | "From My Chair" | A Spinal Muscular Atrophy Type II Story Produced by Sean M Nuanes VR

#Noahsbattlechair #spinalmuscularatrophytype2 #Disabledteen #MSwalk #exoskeleton #spinrazabeforeandafter #spinraza
This is a short story of a kid we wanted to spotlight that wishes to raise awareness about his unique story. In the process, I've learned what true humility means engrained in a child young adult and I have been blown away by how 50 years of life made me understand how the trials of life are truly where the growth and lessons are learned.
Noah was a run-around kid at birth till he turned 10 years old. having a really good baseball season catching an MVP Trophy in Aromona, Ca. one day couldn't move very well. within a couple of months literally had to go home in a chair that would forever change this kid's life forever. Today at 16; Noah has lived less than a third of his life in this new skin. How he handles it, is within this video B-roll. We intend to bring more in about 5 years. with Noah's early start in life and how he manages to ma never we figure much more is ahead.
Noah and his ability to tackle life and its obstacles while remaining completely solid from losing his mobility. Noah had to do this as a teenager; where teens these days are extremely crude. Noah's attitude and class-act charisma managed to win his peers over as they became Noah supporters as he began to somewhat deteriorate.
This reason for a Media Kit is for someone to u understand Noah from a personality standpoint. care is for everyone that needs it in a level of importance order we get. However, there are these certain circumstances where you may have a unique personality with a unique desire to help others understand, Cope & Relate to someone... Noah is NOT inexperienced at life; This RAW uncut footage shows that someway somehow this little kid can be an instrument.
God has a plan and if we didn't capture that here, thank you for at least watching this video.
In appreciation and awe. Thank you Noah for "MY" Lesson in Life! I certainly Will use what you taught me to keep plugging in and never giving up.
"Special Thanks To Tom" for your diligence & shortage in time you've dedicated to carrying this message alongside #NoahsBattleChair.
Sincerely Sean M. Nuanes