I took Tamoxifen for 5 years and did develop uterine cancer while using. Very important to listen and pay attention to your body - we caught it at very early stage 1 and it hadn't spread. Had a hysterectomy, am doing well 12 years later, save for dealing the Tamoxifen induced peripheral neuropathy. I survived both HER2-/ER+ breast cancer and stage 1 uterine cancer. Happy to be alive, always focusing on staying healthy. BC certainly ain't for sissies.
No ultrasound, but was having a very heavy mucous discharge and also a problematic cyst on my ovary. OBGYN did a biopsy of my uterine lining and it came back negative. I was about to have surgery to remove the ovary and fallopian tube and was given the option to wait and continue to monitor my uterus or to go ahead with the hysterectomy. My gut kept telling me to go ahead with the latter decision and 30 days after that biopsy I had the surgery and the Pathologist found very early stage 1 endometrial cancer. I've learned over the years to listen to my gut instincts and was pretty much knocked off my feet emotionally when I realized what I had just avoided. No regrets whatsoever.
@nancyferrari6743 i m alright. Started feeling better about two weeks after stopping it. I have my one year control today. I went on lower dose 5 mg for a while. It did make a difference but not so much.
I am not “mad at God” because my genetics kicked up cancer in me too. I’m scared to death, now, after hearing in this video a woman is suffering pain and they recommend Tylenol. Excuse me? I’m a hairstylist and HOW am I going to survive paying ALL my financial obligations, and take Tylenol for pain? Jesus help me! This world is SO upside down
my dr basically said tamoxifen is as critical as tamoxifen. i tried it for 53 days and now my knees are arthritic, i ate non stop, i had headaches, joint aches, itching , PMS and horrible hot flashes. I would choose suicide if i'm shamed into taking it. My life is not worth living either way.
I have ER PR+ with bone Mets and Tamoxifen is my best shot at saving my life, I have been on it for 3 months, Slight side effects but worth every pill, I am willing to take the side effects and hope for the best I am living with unmoved cancer.
Vicki; I hope you are well. I really hope that you don't think your life is not worth living because IT IS. Do you have any type of support group or close friends you can talk to? I don't know if the host of this page ever reads the comments or not, but you are very valuable. I've had my own battle with the disease and have often thought of a better way out. Living is the ultimate goal..please take care of yourself and listen to the doctors and know that there is someone who cares. Although, I don;t know you, I can certainly feel your pain. Its easy to say and hard to do "don't give up". I get it, trust me I do; but the best way to handle this process because it is totally overwhelming it to take it " ONE DAY AT A TIME" Take Care.
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I took Tamoxifen for 5 years and did develop uterine cancer while using. Very important to listen and pay attention to your body - we caught it at very early stage 1 and it hadn't spread. Had a hysterectomy, am doing well 12 years later, save for dealing the Tamoxifen induced peripheral neuropathy. I survived both HER2-/ER+ breast cancer and stage 1 uterine cancer. Happy to be alive, always focusing on staying healthy. BC certainly ain't for sissies.
So glad your ok, did you have frequent vaginal ultrasounds? Ive had two since starting tamoxifen
No ultrasound, but was having a very heavy mucous discharge and also a problematic cyst on my ovary. OBGYN did a biopsy of my uterine lining and it came back negative. I was about to have surgery to remove the ovary and fallopian tube and was given the option to wait and continue to monitor my uterus or to go ahead with the hysterectomy. My gut kept telling me to go ahead with the latter decision and 30 days after that biopsy I had the surgery and the Pathologist found very early stage 1 endometrial cancer. I've learned over the years to listen to my gut instincts and was pretty much knocked off my feet emotionally when I realized what I had just avoided. No regrets whatsoever.
Hi @barbschannel2124 Thanks for sharing. May I ask what age or approximate age you were, when you started the Tamoxifen?
@@kb8205 I had just turned 50.
This is very informative. I am waiting for my onco score
of COURSE the dr is going to tell you that Tamoxifen is beneficial because without it she doesn't have a job!!!! :(
I took tamoxifen for 5 days. Awful. Continuous headache, muscle and bone pain. I stopped it.
@nancyferrari6743 i m alright. Started feeling better about two weeks after stopping it. I have my one year control today. I went on lower dose 5 mg for a while. It did make a difference but not so much.
Does Joan ever read any of the comments??
Joan, With all the side affects with tamoxifen, how often were you monitored while on tomox ifen?
I am not “mad at God” because my genetics kicked up cancer in me too. I’m scared to death, now, after hearing in this video a woman is suffering pain and they recommend Tylenol. Excuse me? I’m a hairstylist and HOW am I going to survive paying ALL my financial obligations, and take Tylenol for pain? Jesus help me! This world is SO upside down
my dr basically said tamoxifen is as critical as tamoxifen. i tried it for 53 days and now my knees are arthritic, i ate non stop, i had headaches, joint aches, itching , PMS and horrible hot flashes. I would choose suicide if i'm shamed into taking it. My life is not worth living either way.
I have ER PR+ with bone Mets and Tamoxifen is my best shot at saving my life, I have been on it for 3 months, Slight side effects but worth every pill, I am willing to take the side effects and hope for the best I am living with unmoved cancer.
Vicki; I hope you are well. I really hope that you don't think your life is not worth living because IT IS. Do you have any type of support group or close friends you can talk to? I don't know if the host of this page ever reads the comments or not, but you are very valuable. I've had my own battle with the disease and have often thought of a better way out. Living is the ultimate goal..please take care of yourself and listen to the doctors and know that there is someone who cares. Although, I don;t know you, I can certainly feel your pain. Its easy to say and hard to do "don't give up". I get it, trust me I do; but the best way to handle this process because it is totally overwhelming it to take it " ONE DAY AT A TIME" Take Care.
Wow I felt like that too!!!
Does Tamoxifen cause endometrial cancer?
I developed endometrial cancer one year in.
@@barbschannel2124did you have frequent vaginal screenings?