I've gone to IEP meeting for my son for 12 years. With a lot of help he will be graduating with a regular diploma this year. It does feel like "us against them" and it is horribly stressful. Remember your final goal is Eve being a successful adult no matter what that looks like. Who knows, she, like my son, might even exceed your own expectations for her. You can request an IEP meeting anytime you want. Right now that probably seems nuts, but in the future, as she grows, you can make sure the school grows with her. I like to schedule a meeting before school starts each year to make sure everyone's starting the year on the same page. Also, you can bring whoever you want to a meeting so long as you give them advanced warning. I've brought my son's therapist, his grandmother, other people who work with him outside the school, all kinds of people. And one of the most helpful was a representative of an advocate group for his disability. I didn't even meet her before the meeting, but she was fantastic because she knew what the school was required to do, and what was commonly done for children like my son. She encouraged me to bring a "wish list" to the meeting, and although some of the things on my lists have been tough sells, for the most part his schools have agreed to almost everything I asked for, or found a way to accommodate him in a similar way. Do extra self care to recover from the trauma of that meeting. That's not an overstatement. But once you've had a few under your belt they will affect you less. And never forget - where it really counts, love and kindness and personality and sociability - Eve's got it in spades.
ck2d my daughter struggle ever with a IEP but did graduate even with some college credits. Stick together in any meetings and if something doesn’t seem right with you for her issues tell them you want a different solution.
Please look at the test as a means to get what you need/want for her, nothing more. The test does not tell you of her potential, and the gifts she will share with the world. Go with your gut, you can always reevaluate and make changes. ❤️❤️
It is always important to understand that while the testing is a means to get services, you will also begin to understand her window of opportunity which the schools avoid discussing. It is very important to understand this.
Just remember that schools aren't the enemy, most of the time they're doing the best they can to help too. Sometimes those not as emotional connected can see more clearly what someone needs. I'm sure Eve has things she's great at that can't be measured, but to improve all her skills you need to know the areas that need work & what needs to be done. . Yes tests don't always paint a complete picture, but they're a starting point.
I hope your IEP meetings get better! I had an IEP from 2nd grade and even still receives services in college. My parents had similar feeling about how the first one is so difficult and they tell you things you may not want to hear. Once I got to high school I was included in those meetings and when every they told me something negative I made it my goal to strive higher then they held me. They want the best for your child just like you want the best for your child. I am now a junior in college, still receiving services to help with my disability but I don't know where I would be without them. I am current study special education, not just because of how many positive sped teachers and teachers I have had in my life but also just to show those negative ones that we can do anything we put our minds to!
I'm the mom of a special needs 28 year old. She had IEPs in place throughout her time in school. She functions at about an 18 month old level and that will not change. IEPs always suck. Always. Even though I knew my sweethearts limitations and what her abilities were, it was horrible each time and right now, while thinking back and writing this, my heart is actually aching. I also have a 6 year old with severe ADHD. He also has an IEP. His are not as bad, because he is like a double edged sword- twice gifted- gifted with ADHD and high intelligence. I still have a panic attack each time we have IEP meetings for him, and my husband has to talk me down. He has a hight IQ and they all love him at this school, but he's difficult to manage during class at times. I try to be an advocate, but when you are faced with such bad news and they give you a bleak picture of the future, it is hard to take. My Alexa is with me all the time, and she loves life. She can say very few words, but one of them is "Hi!" and she says it to literally everyone she sees. Big virtual hugs to you!
My son had an IEP. He has Tourette’s Syndrome. IEP meetings used to be so stressful, especially the first one. I reminded myself to prepare, gear up, and be the advocate my kiddo needed. I used to have written into our IEP required reading for every teacher. A book called Teaching the Tiger. You can ask for certain accommodations. I wanted my son to be able to sit in the back of the class so he could tic without being disruptive. Or leave the classroom when he had to get his tics out. He is now 22 years old and is a Robotics Simulation Engineer. He is happy and successful. All of those years of worry and fear.....and he turned out amazing, living his passions. I have NO doubt your daughter will too. IEP is just a tool to get her what you want her to have and to make sure that those adults caring for her meet those needs and dont fail her. ❤️ You are both amazing and loving parents. ❤️
I was a Special Educator for 25 years and can tell you it is heart breaking and difficult for teachers too. We do not want to put limitations on students, we are forced to follow protocol for state funding. I hated holding IEP meetings and tried hard to let parents and students know your child is so much more to me than a score. The students have character strengths that are immeasurable, styles of learning that are not possible to document or test. I believe in including the student as soon as they start asking questions and allowing them to set some of their own goals and objectives. Hang in there and know educators recognize your child as so much more than the tests show. Cheryl
I think that your input is always a good reminder because sometime we just blame those we see and not those who are running things from behind the scenes.
Cheryl Ownbey I’m a para professional in cdc and so I don’t have to know the test scores and I prefer it that way. I’d rather not know their “numbers” I just want to see them as a person and help them learn from an actual learning perspective not caring about what their IQ is. The main teacher can deal with that. I want each of my kids to succeed in life, I don’t care about the “boring” test scores, because that doesn’t show who a person is:)
I had an I.E.P when I was in school, I had a comprehension problem... They use to always tell my mom I was never gonna graduate, I was never gonna want to work, I was gonna be reading two grades below..... Now I'm a teaching assistant and loving every second of it, graduated high school in 2017 and couldn't be more proud of myself... My mom didn't like the things they sad but she kept pushing me to show them what I could do!!! Testing after testing after testing!! Don't give up, it is gonna take time to really figure out what is best for eve and what's best for you!! ❤️❤️
Eve is beautiful .....smart.......and amazing little girl.......numbers will never define Eve ! She will define herself with the love of her family❤️❤️❤️❤️❤️❤️ !
Wow, my son has an IEP and it was a wonderful experience. I felt supported and felt they loved and cared for my child. This year has been an absolute blessing so far, with the support systems in place. Remember, our children are beautifully and wonderfully made only God knows their future..........and I bet they will achieve much more then we realize.
I think Eve is a very special individual and I think you do a great job in displaying her talents and the joy she brings to other people. Her intelligence, despite her disability does not go unnoticed. She is a large part of the family and well loved by everyone. Therefore, when negative things are said in those meetings, I can see how that would be very difficult to not take it personally, and therefore be frustrated or upset by seeing repeated limitations being laid out in front of you. Ultimately as her parents, you’re the expert in all areas of Eve. The school has expertise in education and learning. I hope that both of your are able to work with the school to bridge the divide and have the ability to be true to yourself and true to Eve when expressing any concern or question with the school. The school wants what is best and you want what is best, but when it comes down to it, you’re in control of the ultimate decisions made for Eve. Do not be afraid to try different methods presented by the school, but you also need to do what you think is right and what you think is best. All the best, Jess Norder
IEP meetings can be a beast! I can’t even count hour many hours my mom has spent prepping for and in and processing them. But every single hour was worth it! My IEP allowed me to graduate with my class with high honors, despite spending well over half of my 4 years of high school in the hospital or sick at home. It gave me all the support services needed to get my work done and get it done well. Yes, my mom had many sleepless nights over it, but I don’t think she regrets a single one. I look at my mom as my hero and the reason I was able to succeed in school. My education wouldn’t have been possible without her being my biggest advocate and always fighting for me. Eve may not be able to communicate that, but I know she’ll feel the same way.
My mom was a special education teacher’s aid. If Eve gets a teacher like the ones my mom worked with, Eve will do great. They were all amazingly caring and knew how to guide each student in their own way.
I have two special needs daughters and have been to approximately 40 IEP meetings. It is no fun but try to work with the school as much as you can because they want the best for your child as well. Let me just say most of the time anyway. They were tougher when the girls were younger but my experience is that they got easier as time went by. Just hang in there.😊
I have had 2 kids go through special ed school and I have nothing but praise for the education and experiences plus life skills they received. It would have been far easier for 'us' to send them to regular school but it was paramount to us for them to have friends that gravitated to them naturally and not orchestrated by us. Self esteem was most important. Dont fear special education it is excellent and your child will thrive at her own pace.
I have a 16 year old with DS. First IEP meetings with new teachers or a new school always feel negative. I promise they get better. The more you do them the more the focus becomes "how can we help her meet her goals" instead of "these are things she can't do". We have been blessed with amazing teachers and an amazing school, but you do have to speak up and advocate for your child to make sure that she is given the best chance to succeed and meet the goals that everyone has. If come to find out this isn't the best place for her and she needs a more specialized class or school that decision can be made when the time comes. It takes more than a few tests for a teacher to truly know if a child will thrive in a classroom or not. A big pat on the back and thumbs up for you and your family for sticking to your guns and doing what you feel is best for not just Eve but all of your kiddos, be it "unschooling" or public schools.
This will probably be an unpopular opinion, but “cluster” classes, which are called self-contained, are not the enemy. Half my time as a SPED teacher is spent talking parents down from that ledge. SC classes allow your child to have the 1:1 care and support that they need to grow. In a classroom with 30+ kids, your child is not going to get the attention they need. SC don’t take away from the socialization aspect. They push for inclusion; those kids get to go into gen ed classrooms and interact with peers, play on the playground, eat lunch with their friends. But their education is paramount, and children with special needs learn in unique ways. They need teachers and curriculum that honors that need. It’s not that the school “doesn’t want her.” I’ve met wonderful amazing children that I would’ve loved to have on my caseload. I’ve cried when I had to transfer them over and not work with them anymore. But I also understood that they needed a higher level of care than what I was able to provide. IEP meetings can suck. But go in to it with an open mind, a firm idea of what you feel is best for your child, but open to the suggestions that professionals are providing.
Oh Momma. The start of the vlog with welling eyes is a feeling I know so well. Our 3yo has autism and we've done testing, more testing, battles with the school district, health insurance, therapists, etc. It seems never ending and it feels no one sees their brilliance like we do. Sometimes our kids can feel like just another kid in the long list of IEPs and that the schools don't really care. I hope you find yourselves with a great team for Eve; shes going to make so many friends! She is such a joy! I don't doubt you'll get her exactly where she needs to be. Mommas (and dads) are the fiercest advocates! Keep it up Knorpps!
Megan, IEP's are always rough. It may suck but it is what will help Eve. She is definitely who is important. Yes as a parent, you are her advocate but remember they also want what is best for her as well. My son had an IEP and I was a surrogate for foster children who lived in our school district who had IEP's as well. I oversaw the education of those foster children. It is what it is. We wanted the best for our kids. I think when you see improvement in Eve, you will be more satisfied with the whole IEP. I will keep you in my prayers. I remember feeling like I was hit by a Mack truck the first time I went to an IEP meeting. Her limitations are where they start the direction of her education. It will get better, I promise. My son was dyslexic, had ADD and a specific learning disability. He went into a program in 3rd grade and tested out in the 8th grade. He had to repeat first grade. He was on Ritalin just so he could learn in a classroom with 26 other children. They tested him 2 or 3 times and always fell into a gray area. The last time he was tested, I took him off his medicine 2 weeks prior to testing. He got into a Specific Learning class for Reading, Spelling and English. I found out that a child is never suppose to be tested while on medicine because when they do, it is like pulling the wool over your eyes. They do not get a thorough picture of the child when they test them on medicine. Hang tough. Give them a chance to prove they can help Eve. She is worth your heartache if she improves. Her speech is getting a bit better.
Megan i have just watched this episode and feel sad for you but as many other people have said, it is a means to help Eve, you are a wonderful mum and care so much, this is why you have had such a hard time, hope things are easier for you on your next IEP meeting, sending love and hugs x
You and Mike are wonderful parents, I love how creative your family is! Numbers are just that numbers. They can't measure a smile, a dance or how open a heart is or the joy that they bring to others. And that is what makes life worth living.
Eve is so blessed to have you as parents. You are so generous to share your lives in such an open and honest way. You inspire me to be the best I can be, and I know you will always be Eve's biggest advocates, and that under your guidence she cannot fail to reach her full potential. God bless you always.
People should remember how far Eve has already come! Experiences through travel will open your eyes and widen your world. Give her love and experiences and watch her go!
IEP meetings are pretty rough. Don't let their clinical tests define your child. You know what Eve is capable of! Don't let them put her in a box. Be her advocate! Do surprise visits!! Also keep working with her at home on things you know she can learn/do/be!!! Look at it this way Eve isn't her special need Eve is a wonderful,smart little girl who happens to have Downs!! There are so many people who have Downs that live a very successful life! Y'all are doing a great job with her! Keep your head up, Mom n Dad!!
I suspect you are helping many parents deal with this stressful issue by being honest about how you feel. Sometimes just knowing you are not alone is the strength one needs in that moment. God bless.
I am an educator and I rarely left an IEP meeting without crying on my way to the car. It can all be overwhelming and I always felt outnumbered in the meetings. Sadly, I found that teachers and administrators didn’t always have my child’s best interest in their hearts. I always pointed out in the meetings that although they were responsible for my child for the school year, I was responsible for him forever! Keep your chins up and plow forward! Know your rights and don’t be afraid to use them.
❤️❤️❤️❤️❤️ Now Eve can surprise the school. She is so much more. The testing for her was new, and I’m betting she is going to give lots of surprises. And she has a wonderful family. Take heart!
Keeping it in perspective... Schools need to test in order to gauge where they need to start and for funding as well (but you already know this). They receive more funding for special programs. It is just a reality (a good reality in this case because it drives more money to the program). I have learned (with my own kids) that our children (all of our children) will always rise to expectations. Even if strangers are required to measure, you are Not allowed to lower your expectations. She will rise to meet them. She proved it with speech class, I could tell the improvement from a few clips that you shared. Let Eve know what is expected, support her (as you always have) and step back and let her SHINE! Many blessings to you both. It is hard to raise a couple, you have 9, cut yourself some slack. :) Be blessed.
I think you're right about the letting her know what is expected. That is all. Who really cares if she can't read a novel and write an essay? As long as she knows how to be kind and take basic care of herself you will take care of the rest as mom and dad.
IEP meetings always leave me feeling gutted and hopeless and like a total failure as a parent. The walk home afterward is usually a tearful one: I want to kick a wall or throw rocks or scream profanities. The experience just rips my heart open. After I get home and reflect for a while, it really feels like the dust has settled and I can plan for action. My son is now in 6th grade and in his last year in elementary school. I intend to homeschool thru middle school and find the right program for him at our local vocational/technical school once he reaches high school. I've kept him in public school this long because our town's little school is very unique and much more hands on. Once middle school starts there are very many factors that could potentially derail all his progress (behavioral challenges) and this is a crucial time in his life. I really feel that frustration you mentioned. Seeing your child as the individual who has so many gifts to offer the world, and hearing the limitations placed on him/her by the yardstick used to measure "success" or "potential". As hard as I try to ignore or not dwell on those numbers and metrics, they really do feel like a knife in my heart. You are so correct: you are her advocates. Her biggest advocates. Sometimes you have to make things uncomfortable. It's scary and uneasy- but also necessary. Best wishes, Knorpps 💜 You know in your heart what she can accomplish, and you always have her best interests in mind. Shes the luckiest kiddo to have you guys! Much love to you all! 💗
I had an IEP with my oldest from second grade through high school. Yes you are your child’s advocate and know her best regardless of the tests. One of the important things is you are getting her the help and services she needs. The first IEP is always the hardest.
Parenting is not easy. Being 64 now I can look back and say, if I had to do it over, I would worry less. Your little Eve is a pure blessing. I love how animated she is, how loving and kind she is. I believe God will provide friends for her, just like her siblings, who “get her”. I have loved Eve’s dancing, and how happy she is. God has special plans for little Eve and he picked you guys to help make those plans happen. Will Pray you can release the negatives of the testing soon. I continue to see progress in her.
I was personally an IEP student for reading , writing and comprehension from 1st-8th grade! I did the tests every year and I personally loved every minute of it! I understood that the test were only there to set a baseline and allowed us to target exactly what I needed help on. I grew amazing relationships with my one-on-one teachers and they really helped me and my parents understand my individual learning type and gave me tools to over come my learning disabilities! Around the 6th grade I enjoyed reading, something I always hated, and was able to keep up in class and by 8th grade I tested out of IEP! IEP meetings may get you down, but also understanding ones limitations, allows you to try to find ways to work around them! And every time you push past those limitations, it’ll give you the confidence and courage to try to push past others! I wish you all the best with the IEP journey!!!!
Gosh I have so been in your shoes. You do such a wonderful job raising your daughter Eve. Giving her access to other avenues that will help advance her will benefit you all. Thankyou for sharing your family with us!
As a parent of a special kid myself (he is in 10th grade, so I have done this for a long time SINCE KINDERGARTEN)I can say I agree, IEP's can be brutal, but remember they are intended to help your kiddo get the help that will benefit them the most. And that does usually happen. But one thing you must always do and you said it yourself, is be your kiddo's advocate. Do not always take what the school tells you and just accept it, it is alright to disagree, it is alright to fight for your kiddo. I have had other parents come to me and tell me horror stories about their kids and schools, that is why I have chosen to become a parent that helps to educate other parents on what they can do to get results for their kiddo. It is not always easy, but this is your kiddo and they are the number one priority...ALWAYS. Keep standing up for Eve and remember, if you do not like something or Eve is not happy, say something, they are there to work with you to provide the best experience possible for Eve. NEVER BE AFRAID TO SPEAK UP!
So sorry for the rough day. It's always hard to hear what your child can't do. Especially when you can see so much that she can. I see her and am amazed at how smart she is. How capable. And how adaptable she is. She's amazing. Much love to you and your family. Stay strong mama.
Eves speech is coming on so well! : don’t let anyone tell you that she isn’t intelligent or talented, because from what I’ve seen she has so many other qualities aside from academia; she’s creative and kind and gives endless love xx❣️
my grand daughter was born 8-8-18 36 wks 5 day and stayed in the NICU for 27 days. The minutes after she was born, the doctor and nurses notices some of her facial features which could be soft markers for a chromosome disorder. Blood tests were done on her tiny body and after waiting and getting the preliminary report that the baby did have 46 chromosome but she did have micro deletion on one of the 7 and possible one of the 8. Final notice came in on her 11th day of life, she was diagnosed with Williams Syndrome. She has a time feeding and finally after 27 days she was released and was able to come home. This baby will have her challenges and will go to several specialists for life, but she is the best blessing and thrill to have her in our family. I know that special needs parents will have those days, and as grandma, it will be a learning curve for me. My 2 other grandsons are so young 4 and 7, and they will protect her and love her and just like Eve, family, friends and loved ones will always be near here. Testing is just a baseline and we all learn in difficult ways with our children..Eve's special needs disability will not define her or you as parents, but learning with the proper tools and having the best for her is all that matters because she carries a gift and that is unconditional love, no matter how many tests results come in, she is Eve. Blessings to you and your family-Bonnie
I follow a family from Australia who bought a Chateau in France and one of the granddaughters has been diagnosed with William's syndrome too. She is the most beautiful little girl and brings a smile to everyones faces. I'll post a link to their fb page shortly
Hello my friend. As a former social worker, and a mom of an adopted international child, I pray for you and Mike, and Eve. It is so hard to hear the numbers, but when I figured out that my child was not about the numbers, I felt so much better. She needs the extra help, but the real potential will happen outside of school. I was most impressed by the fact that Eve mimicked the boys and made her own fort. School is just a part of her being. Family will be her life-blood. Keep up the great parenting! You are living my dream.
I love your basement! Perfect place for kids to play inside. Also, I love seeing the kids building with cardboard boxes, using their imagination and building/playing together. Hours of fun!
Those meetings can be tough. As a speech-language pathologist for a little over 10 years, that was the hardest part of my job. It's a tough time for families to hear some realities, but I LOVE how you stuck to what you believe is best for Eve right now -- and just like Mike said - they can be changed. You guys are both great parents and you know Eve best. You will be the best source of information for the school!
Fight through the discomfort and remember that it is all about supporting your child and helping her to be the best she can be. I had an I.E.P from the moment I moved north and changed schools with my parents. I excelled in places I shouldn't have (I read at a high school level in 2nd grade) and tanked hard in places I should have soared (I struggled with basic math and couldn't remember how to do something mathematically that I had just been taught). My mom fought for me with tooth and nail to get me the best teachers and staff. If she felt someone didn't care enough about me and my comfort and didn't push me to work hard enough, she would demand for someone new to be brought in; occasionally from other districts as well. I brought my I.E.P with me through all levels of my education. I fought battles in college to get the help I needed, and even transferred to a different college after they failed me in a class I had already told them I could not pass. My parents stood strong against the school systems in our area. They taught me a lot of skills at home to gain confidence and advocate for myself. I tested extremely low IQ-wise the summer between college and grad school. They told me I shouldn't continue and that it would be a waste of time and money. I am now a year and several months out of graduate school with a masters degree in school counseling. Just know that your hard work, stress, tears and frustration will be worth it. Be strong, you guys have this.
I work with so many families that come out of IEP meetings feeling they just went to war with the people that are suppose to be helping their child. Even as a counselor it is hard to get the school to step out of their comfort zone and look at things differently. But I am glad you stuck to your guns and advocated for Eve. She bring so much light to the world and her IQ is just a number on a test and in no way diminishes the joy and light she brings to the world. I know you know that. Hope things getting better as far as working with the school goes.
About the green peppers- in my country we make 'stuffed vegetables' (it sounds better than that) with rice. So first you cut and carve out vegetables like bell pepper, tomato, potato, onion or cabbage (for the onion and cabbage you roll the rice inside) and without pre cooking you just cook it all together in a pot with light tomato sauce with spices (tomato sauce with a lot of water for the rice) and more rice in the sides of the veggies untill everything softens and the rice is fully cooked. It's supper tasty! Enjoy
I've been to one and only one IEP meeting and my feelings are like yours. I actually cried during it and I'm not a crier. It stayed in my thought process too long. Homeschooling now and I think somewhere in the back of my subconscious I find gratification in proving them wrong each day. After three years I tell you they were SO wrong!!!
Our family did a homeschoolers coop...it was AWESOME...the children are ALL adults now and have been a part of each other's weddings and are the first to know about family accomplishments/changes/challenges...joining with other families is a great idea
Hang in there! You know Eve has abilities and ways to shine and you will find a way to have those acknowledged. There are so many ways she could grow and develop her talents and it's just a matter of time to find the right people to help her through it.
My Daughter Who Also Is Special Needs And Has A Missing Chromosome Disorder Has Always Had An I.E.P And As A Parent We Want The Best For Our Kid's/The Same As All Of The Other Children. She's Actually Graduating Next Year! She Will Be 20 And There's So Many Amazing Programs To Help Them Be Successful Children/Adults!
It’s so hard sitting in those meetings. I know how you feel. Take a deep breath and remember you are the ones who hold the control even if it does not feel that way in the meeting.
I just wanted to tell you that I have been on both sides of what you went through at the IEP meeting. I am the legal guardian for my mentally challenged sister. It is a steep climb some days. Also, I was a one-on-on in special Ed. I can tell you, most, of not all, of the staff love the children they work with. They want to do all they can to help the children blossom and thrive. Most want the very best for 'their kids'. There are smiles and tears shed. There is joy with every goal met.
You are right, it is really hard to hear not so great things about your kids. I got very protective of my son when he struggled in school. Follow your heart! Eve knows you will be near her at ever turn life throws at her. What more could a special sweet little girl need. Take care.
I am a one on one with a child, and the IEP meetings feel so negative sometimes, and it is hard to hear those things. It is always hard to see the parents go through it as well. Every child has SO MUCH potential and that is what should be focused on, not what they can’t do! I always try to point out what they are doing and all their accomplishments. Every child has something they are GREAT at and helping them grow is so amazing!
I’m currently a para educator for a little one who has an IEP. I’ll only reiterate what others have already mentioned. Please try to keep an open mind in that the staff & faculty want what’s best for Eve, too. They’re also her advocates even though it may not seem like it. Certain testing must be done to see where to go from there in developing a plan for Eve so that she can grow to her fullest potential & also get the services that she needs. IEP meetings suck, but I promise they can be beneficial.
My son has multiple Syndromes and I too hated IEP, but learned advocating through multiple surgeries and I fought hard. He is now 25 and a professional Jockey. His surgeries were mostly at Primary Children’s in his youth. at 16 he went to the U OF U. He now goes to Barrow’s and several other dr.s in Phoenix as this is now our home. I am a huge believer & have taught the importance of advocacy. While different schools had different ideas, I fought for what I felt he needs. Yes, IEPs are every parents worse nightmare, I only gave in and Home School his Senior year through a computer and a family friend who is a teacher.. My biggest problem was and still is facing people who judge my decisions. I have learned to STAND MY GROUND. (I never allowed IQ testing). It will always be a challenge, but I had him at 23 and I still have to STAND MY GROUND. Good Luck.
Have two grandchildren that are underneath IEP each child is individual and will grow with or without IQ testing remember just numbers hang in there have all the compassion in the world for you to
Eve is progressing so much, she will definitely achieve more than she is labelled to achieve!! Don't let them impose self- fulfilling prophesy, I was told I couldnt go to a good high school, now am a Social Studies teacher in a high school, you will be surprised to see how well she will performed as long as she is given the support and confidence to do so!!
Sorry, mom. That must have felt so heavy. With your support, I think your full-of-promise kiddo is going to blow everyone away. God has His hand in this. Eve is a promise.
Megan do what you feel like is best for your child. I was a special education teacher. We now travel and homeschool our children. My one child had services from 3-6 years old. He has grown more in the last 2 years of homeschooling. I don't regret school but teachers don't know your child as well as you do. Keep being an advocate for her whether that be inclusion, self-contained, or homeschooling. She has amazing parents and family that will continue to love and teach her every day.
I’m really sorry to hear that the IEP meeting went so poorly. I myself had an IEP from grade 1-12 and even though my learning disability was fairly minor, my parents struggled as well hearing that their child wasn’t meeting their “criteria”. In my experience though, I was so grateful for my special ed teachers. They gave me a place to feel comfortable to learn and speak my mind without judgement from others. I didn’t have to keep up with the other kids because everyone in that class was on same playing field. I hope that gives you a guys a little hope, and always trust your gut because you are her advocate! Love you guys!
Sending feels your way for the rough day you had. Very draining. On a lighter note I loved your "mom" jeans. They look great on you. Love the way you share your heart whether it is the good, the bad or the ugly. ❤
You are amazing, as a mom who also adopted kids with special needs, I u understand how you feel. There is nothing I could say that these super kind and sweet friends have not already said. Your friend base on here ( yes you, you commmentors you are the kindest, most uplifting, most sweetest group ever). The world would be a better place if every one treated each other like all of the time. The only thing I can add I will pray and lift you up to my heavenly father and ask that he guide your paths.
I don't see Eve as limited...they don't know what potential she has but yet, I'm like you, I know they are doing it to be able to get her the help she deserves! She is a very smart child. As are all your children. Happy, loved & smart!
I'm now a grandma to 4 and one thing I know from my experience as a parent is that on the whole kids do well. I was quite worried and stressed when our kids were growing. You want their life to have ease and it's part of a parents remit to give them what they need to succeed. I've learnt that what happens in school is useful, but after they have been out of education for 2 years, their education is irrelevant. All the labels, tests, qualifications fade in significance as it's who they are and what's in their heart that gets them through life. Eve has a wonderful loving heart and she exudes that love. The world needs more people just like Eve, far more than it needs intellectuals. She was born to show the world that love is what will make this world a better place. If they were to measure that, she would be off the scales! Sending hugs to you x
My son has ADHD with some sensory issues, and we started the IEP journey when he was in 1st grade. We were told that he had a barely average IQ, and just ADHD at that time. I tried to act like that was okay, but it really was hard to hear that about my precious son. We could see so much more in him than they did. We have spent years fighting for him and his education, and it’s taken until he was 12 to find out about the sensory issues. Years of me saying that his IEP was inadequate, and being brushed off by schools and therapists. Years of watching my son struggle more and more. But we’ve finally found a school and therapists that listen, and we are finally watching him start to blossom. I don’t know what an IQ test really measures, honestly... but I do know that it’s absolutely not the real measure of a person’s intelligence. It sounds like you guys have a good support system, and that’s at least half the battle. You can do this!
As a mom of two 30+yo sons, you get gut punches as they mature. Some in preschool, some in elementary, then high school,ugh! Baseball, basketball, work, girlfriends, college, so many have been there. You are the best advocate for all your children, just keep believing that you two along with your nine will go through this with love and care to develop Eve to be the best Eve ever. My boys have sweet loving wives and darling children, I am blessed. Praying for you all.
Thank you for sharing your experiences, Megan. I've been where you are and it's so hard. This video had me in tears, but was also very comforting to hear someone else put words to all the frustrations of my heart regarding my special needs kids. After enduring 10 years of those I.E.P. meetings, we quit and brought our oldest home to homeschool. It was such an enormous relief. It's not the right choice for every child or every family, but in our case it was. There are wonderful things about school, too....it's just so individual, isn't it? Hang in there, Mike and Megan. You're doing a beautiful job parenting. :-)
I've attended IEP meetings for my twins over the last 7 years and learned very early on not to go without an advocate who can keep track of everything for future needs. We now are blessed with one advocate who knows my girls and will see them through High School. She has helped in getting the Individual Education Plan that I feel is what they need instead of what the district wants to give them. The districts motives are always questionable and budget related in our experience .
ramgal Best advice! My sister had to hire an education lawyer to get the services she needed for her emotionally challenged child. My sister is a teacher and has helped write IEP’s for students, so already “spoke the language” Hiring an advocate who follows your child through the years is the way to go. The school is under pressure to make the cheapest recommendations. In my sister’s child’s case, her needs were best met at a private school for children with emotional problems. Not only must the public school pay the tuition, they pay for transportation as well to the school. My sister would never have gotten that without a professional advocate.
My husband and I were talking, tonight, about reevaluating our son (14) who has FASD, ADD, and RAD his IQ level. When he was about 8, before his Dyslexia dx, it was 71. It all just hurts my heart. He is SO compassionate and has a desire to enter the military, but I'm not sure that he will be able to do that. Sigh. God speed to you all in this journey.
All the school stuff about Eve sounds tough but I’m so excited to see how she grows and interacts with her new environment! The public school system has its problems but it does provide some amazing opportunities and resources for its students (Me: someone who has been public schooled their whole life)
IEP meetings are never easy ! As a mom of a son who has and IEP and as a teacher I can see both sides of the coin. In the end what’s best for the child is what’s important . You are absolutely right when you stated that you are her strongest advocates. Parents have more power than they know . Keep being her biggest cheerleader and she will definitely go far !
Meghan and Mike, we went through this with my middle son. The schools kept telling us that they didn't see him advancing or being able to learn effectively. Now he has an associates and a bachelor's degree in network systems administration and cyber security. Never let them tell you what the goals for your child should be. You advocate for your child and change the script. This is what I WANT for my child, this is what I EXPECT for my child, this what you can DO to help and ENCOURAGE my child. It is in her best interests for you to set goals for her. YOU KNOW HER BEST. YOU KNOW SHE CAN DO IT. ENCOURAGE POSITIVITY, don't accept their limitations. Huge hugs to all, miss you guys!
My son had IEP from 3 years old to 6th grade for speech and language therapy. It was painful keeping him on track and focused, but you’d never know it now. He graduated as a mechanical engineer. Hard work and perseverance...
That was the best vlog ending ever! You made it seem like a one on one conversation. Both of you open your home and your hearts so others may benefit and learn from your journey! You have many supporters who love all that you stand for. I have learned much about Faith, tolerance, and forgiveness from the Knorpps! Carry on and we shall be here lending support where we can!❤️❤️❤️
You are great parents, trust your heart and instincts, I look forward to seeing what a blessing Eve will be to this world. She may never be a great scholar but she will be great at something. She is already great at being a sweet and loving girl.
My daughter has an IEP since the beginning. She has downs also. I am her advocate and %90 of the time I am fighting with schools to get what I want for her and what goals I want her to be at. Even if she doesn't reach those goals that's ok she tries. I feel you handled it perfectly. I cried so much at and after every meeting.
We have been through this journey, and while every path and experience is unique, there are a lot of common emotions involved. We chose a different path for our son after pursuing the school/IEP route. He is now 21, and thriving. I’m happy to share our journey with you if you ever want to explore therapy, services and how to continue with homeschooling with a special needs child. We wish you the best and want to encourage you to follow your heart. I believe our children come to us because our hearts call to them and when we are able to listen to our instincts and our heart... the path unfolds as it should. Eve is just such a lovely young girl, her spirit shines right through your vlogs. Much love guys!
In the mid-90s, I was diagnosed with a learning disability that had only been known for about 11 years. My mom stuck to her guns just like you and was my advocate. She has been my advocate my entire life, even now. It makes me so happy to hear that you will continue to fight for Eve and what she needs! I learned what my numbers were when I was 16 and for some of the categories, the numbers hurt a lot and I understood why my mom was upset sometimes. In one area, I have a 6th grade IQ level and I'm 26. No one wants to hear that their child isn't going to be good at something. But here's the thing: I was told I would never have a vocabulary larger than a 10th grader's and I would never make to University. I'm now in my junior year of University, writing history research papers that my professors have told me I should publish one day. As you said, we are all geniuses in our own ways and Eve is no exception! IQ numbers are arbitrary in the long run and are only used to prove that we need a little extra help sometimes. And remember: It's going to be tough, but you got this Mike and Megan!!
I thought an IEP would help get services my daughter needed. Once tested and deemed eligible we spent 4 years trying to educate the teachers on what her issues were and how they needed to be addressed. We finally pulled her out and are educating her in the real world as we travel full -time. Eve appears to be very bright with a lot of special gifts just waiting to be shared with the world. She's absolutely precious. 🙏🙏🙏Praying with you that God opens the doors for the perfect method and services to be available to meet her needs. Hang in there, you're an amazing mom! 💖
We fought and fought to get our son an IEP, a very rural school. We finally got him on one, and even tho we advocated for him to have this IEP, the early meetings (now in 8th grade) were very rough, we felt like failures, like we had failed him in some way. But I am glad he is on an IEP, and can get the accommodations he needs (only rarely had to use them.) He is thriving at school, and but it was a struggle for a couple of years (He has ADHD). It's good for him in the end. And good for you guys, just remember that little face of Eve!!! Kerry :D
My daughter is on the autism spectrum. She has a wonderful team, her advocates are the best. I'm so glad they are there for her IEP's. I'm glad since it can be overwhelming when they explaine her levels and I sometimes don't know what we want. I guess ever state is different. It was difficult for me to get used to her joining a main stream class, but is pulled couple hours a day to get more of 1 on 1 with another teacher.
mom, you're looking pretty today. Hope you're not feeling too bad, they just don't know how beautiful and smart eve is. Also I love it when you and Mike discuss things about your kids.
Thank you for sharing! IEP meetings are rough, you're have to talk about all the negatives and you have have to stand up for your child and sometimes even fight for their rights and best interest. And not only do you want the best for your kid, but no kid comes with an instruction book, nor have you study academics or psychology. All you can do is to get lots of info and go with your gut and you are very good at that!
It’s hard to hear that your child has limitations because it takes away hope. All parents have hopes for their child from the moment you find out they are on their way to you, and that continues all their lives, no matter what you discover about them along the way, the hopes you have for them are always there even if they change. I can’t imagine how much hearing those ‘numbers’ about Eve would affect your hopes for her, as I don’t have the same challenges with my kids. But just remember that those numbers are just that. Numbers on paper. They don’t mean anything other than how the school juggles funding etc. Your role and responsibilities are exactly the same as they were before that IEP meeting, to love and nurture that child and encourage her to find her potential. PS I have to say I can see an improvement in her communication in the short while she’s been at school, so you are doing the right thing, as hard as you might be finding it at the moment. Sorry you had such a difficult day, tomorrow is sure to be a better one.
I can so empathize with you and your feelings about IEP meetings. Our little guy is often described as one of Childrens Hospitals most complicated patient in 20 years. IEP meetings leave me drained and emotional. I'm so sorry your hurting, it's not fun. We know our kids potential and it's hard when we hear just the opposite for an hour or more...and every time he blows a goal out to the water I do my happy dance and file that under gratitude in my prayer journal. I'm hoping you will do that as well. Set up a binder with everything together - IEP notes, meetings, reports and add a section for how awesome your child is - keep track of the success - it will help after those meetings. Big hugs Knorpp family. Eve will continue to shine!!! Mom to an amazing son adopted from Kunming China that continually shines.
As a former educator now stay at home mom I have a whole different perspective about public education! Keep doing what you’re doing and remember public school doesn’t define you! I went to public school and I taught in it for many many years! I totally support homeschooling! I actually believe it’s better!
Before I had children of my own, I was a special education teacher in the public schools. I regularly administered those tests you are referring to and held IEP meetings to share the results with parents. I think, at the time, I had no idea how difficult many of those meetings must have been for the sweet parents across the table from me. Now, 6 children and 4 adoptions later, this public school teacher turned full time homeschool mom with 2 kiddos on IEPs regrets my lack of perspective in those IEP meetings. I want to go back and tell my former self to be kinder, more sensitive, to emphasize student strength, rather than weakness, to tell those parents that I know full well that these tests are only ONE indicator and do NOT represent who their child is or limit what they can accomplish in life. I have so much more perspective now, both on education in general and on the beautiful, unique and individual God-given gifts each child possesses. My guess is that those well-meaning educators across the table from you lack some of that perspective. Let them do what they need to do to dot their "i's" and cross their "t's" for the purpose of paperwork, hoop-jumping, documentation and setting up a plan. But, as Eve's parents, do not let it affect what you know to be true about her. you know her best and you always will. you see the beauty and gifts and purpose that God put in her, which is why He blessed you to be her parents.
Hi Knorpp family as someone who got special services for my hearing loss was also told I should be in special education class but my parents stuck to their believes that after a while I need to be in general education classes. I worked as a special education assistant for a few years before entering into the early childhood education field of teaching and my belief is all children should be integrated. What you both did was the best decision for her. I agree with the ck2s person who commented below saying that Eve's final goal is to become a successful adult. Good luck and I know it might sound odd at first or hard to hear things but you have a right to stand up and speak your mind. If I did not say that I was bored in special education classes and need to be challenged then I would not be here today at a regular good paying adult job with a BA in early childhood education degree graduating at the top of my college class on top of being in two honors society. I would love to over you a partnership in making a clip and maybe you featuring it on your channel all about I.E.P and all other kinds of information about it since I got to sit in on a few of mines and know all about them from working with children who have I.E.P's let me know. I share this from my experience in working with my last student who is down syndrome like your daughter, reading her I.E.P paper plan that was in her book was hard. It outlined all of these issues that were correctable into positive if only someone would work with that person that she becomes attached to. After working with someone previously she fell in love with me and it worked well with her ending up not wanting me to leave. I just don't understand why they say so much of Eve's limitations when she has so much potential if people would only see how much she can get through. Watch the show born this way and they show you how they become young adults with the capability to adapt into the young adult life.
Right there with you Megan! Our youngest 3 adopted boys all have IEP's. We have had the blessing of seeing how far they have come and we know their history. So to us they are miracles and so it's hard when to the school they are a bunch of numbers! I do my best they their teachers know an appropriate amount of their stories so they can see them as they miracle that we do.
Pearl’s jewelry is great, the bracelet with what looked like flowers were in it is pretty! I would totally buy some of them! Asher’s castle is so creative, how fun!
I know someone with a very low IQ and he is very successful as a manager. His relaxed, friendly way with people is so charming. His dedication to his work and the homework he does to compensate for his slowness at learning new stuff all make a really lovely, happy and successful person.
Our son was in some of the first IEP meetings ever held, so we go WAY back like early 80's. No it isn't fun to hear "negative" things about your child and our son proved them all wrong. Eve will probably do the same. What Cheri said is so very true. Look at the test as the means to get what Eve needs. Our son does not have Downs Syndrome, but I still understand how you feel. Our daughter is an educator and they don't like these kinds of thing either. This all came into being because there are always some parents with unrealistic expectations for their children and refuse to except that some do have limitations.That's just life. Not saying that about y'all. Try to stay positive and continue being good parents. Also, it's SO much better than it use to be. Promise!
We can see from day one when you got Eve. She is growing and you are such awesome parents. Now there is a different dimension what the world sees without a bias measuring stick. This may be good it will give you areas to continue to help her and guide her outside of your little family. This is the larger world she will have to function in to live and succeed. Tomorrow this will not look as dark.
I've gone to IEP meeting for my son for 12 years. With a lot of help he will be graduating with a regular diploma this year. It does feel like "us against them" and it is horribly stressful. Remember your final goal is Eve being a successful adult no matter what that looks like. Who knows, she, like my son, might even exceed your own expectations for her.
You can request an IEP meeting anytime you want. Right now that probably seems nuts, but in the future, as she grows, you can make sure the school grows with her. I like to schedule a meeting before school starts each year to make sure everyone's starting the year on the same page.
Also, you can bring whoever you want to a meeting so long as you give them advanced warning. I've brought my son's therapist, his grandmother, other people who work with him outside the school, all kinds of people. And one of the most helpful was a representative of an advocate group for his disability. I didn't even meet her before the meeting, but she was fantastic because she knew what the school was required to do, and what was commonly done for children like my son. She encouraged me to bring a "wish list" to the meeting, and although some of the things on my lists have been tough sells, for the most part his schools have agreed to almost everything I asked for, or found a way to accommodate him in a similar way.
Do extra self care to recover from the trauma of that meeting. That's not an overstatement. But once you've had a few under your belt they will affect you less.
And never forget - where it really counts, love and kindness and personality and sociability - Eve's got it in spades.
My baby also graduated with a regular deploma on time though she is incompetent in daily living and the like.
ck2d my daughter struggle ever with a IEP but did graduate even with some college credits. Stick together in any meetings and if something doesn’t seem right with you for her issues tell them you want a different solution.
Thank you for what you said. Really a teacher just wants their kids to succeed!!
Please look at the test as a means to get what you need/want for her, nothing more. The test does not tell you of her potential, and the gifts she will share with the world. Go with your gut, you can always reevaluate and make changes. ❤️❤️
It is always important to understand that while the testing is a means to get services, you will also begin to understand her window of opportunity which the schools avoid discussing. It is very important to understand this.
Yes, iep is not a means to an end. It's a base to launch from. The first one is awful. But it does not stay awful.
Just remember that schools aren't the enemy, most of the time they're doing the best they can to help too. Sometimes those not as emotional connected can see more clearly what someone needs. I'm sure Eve has things she's great at that can't be measured, but to improve all her skills you need to know the areas that need work & what needs to be done. . Yes tests don't always paint a complete picture, but they're a starting point.
I hope your IEP meetings get better! I had an IEP from 2nd grade and even still receives services in college. My parents had similar feeling about how the first one is so difficult and they tell you things you may not want to hear. Once I got to high school I was included in those meetings and when every they told me something negative I made it my goal to strive higher then they held me. They want the best for your child just like you want the best for your child. I am now a junior in college, still receiving services to help with my disability but I don't know where I would be without them. I am current study special education, not just because of how many positive sped teachers and teachers I have had in my life but also just to show those negative ones that we can do anything we put our minds to!
Gianna C me too
Gianna u sound so awesome
I'm the mom of a special needs 28 year old. She had IEPs in place throughout her time in school. She functions at about an 18 month old level and that will not change. IEPs always suck. Always. Even though I knew my sweethearts limitations and what her abilities were, it was horrible each time and right now, while thinking back and writing this, my heart is actually aching. I also have a 6 year old with severe ADHD. He also has an IEP. His are not as bad, because he is like a double edged sword- twice gifted- gifted with ADHD and high intelligence. I still have a panic attack each time we have IEP meetings for him, and my husband has to talk me down. He has a hight IQ and they all love him at this school, but he's difficult to manage during class at times. I try to be an advocate, but when you are faced with such bad news and they give you a bleak picture of the future, it is hard to take. My Alexa is with me all the time, and she loves life. She can say very few words, but one of them is "Hi!" and she says it to literally everyone she sees. Big virtual hugs to you!
My son had an IEP. He has Tourette’s Syndrome. IEP meetings used to be so stressful, especially the first one. I reminded myself to prepare, gear up, and be the advocate my kiddo needed. I used to have written into our IEP required reading for every teacher. A book called Teaching the Tiger. You can ask for certain accommodations. I wanted my son to be able to sit in the back of the class so he could tic without being disruptive. Or leave the classroom when he had to get his tics out. He is now 22 years old and is a Robotics Simulation Engineer. He is happy and successful. All of those years of worry and fear.....and he turned out amazing, living his passions. I have NO doubt your daughter will too. IEP is just a tool to get her what you want her to have and to make sure that those adults caring for her meet those needs and dont fail her. ❤️ You are both amazing and loving parents. ❤️
could not have said it better myself!!!
I was a Special Educator for 25 years and can tell you it is heart breaking and difficult for teachers too. We do not want to put limitations on students, we are forced to follow protocol for state funding. I hated holding IEP meetings and tried hard to let parents and students know your child is so much more to me than a score. The students have character strengths that are immeasurable, styles of learning that are not possible to document or test. I believe in including the student as soon as they start asking questions and allowing them to set some of their own goals and objectives. Hang in there and know educators recognize your child as so much more than the tests show. Cheryl
L
I think that your input is always a good reminder because sometime we just blame those we see and not those who are running things from behind the scenes.
Heather Mayfield agreed!
Yes!
Cheryl Ownbey I’m a para professional in cdc and so I don’t have to know the test scores and I prefer it that way. I’d rather not know their “numbers” I just want to see them as a person and help them learn from an actual learning perspective not caring about what their IQ is. The main teacher can deal with that. I want each of my kids to succeed in life, I don’t care about the “boring” test scores, because that doesn’t show who a person is:)
I had an I.E.P when I was in school, I had a comprehension problem... They use to always tell my mom I was never gonna graduate, I was never gonna want to work, I was gonna be reading two grades below..... Now I'm a teaching assistant and loving every second of it, graduated high school in 2017 and couldn't be more proud of myself... My mom didn't like the things they sad but she kept pushing me to show them what I could do!!! Testing after testing after testing!! Don't give up, it is gonna take time to really figure out what is best for eve and what's best for you!! ❤️❤️
Wow, Sarah! Bravo for you! What a wonderful Mom, too!
Eve is beautiful .....smart.......and amazing little girl.......numbers will never define Eve ! She will define herself with the love of her family❤️❤️❤️❤️❤️❤️ !
Wow, my son has an IEP and it was a wonderful experience. I felt supported and felt they loved and cared for my child.
This year has been an absolute blessing so far, with the support systems in place.
Remember, our children are beautifully and wonderfully made only God knows their future..........and I bet they will achieve much more then we realize.
I think Eve is a very special individual and I think you do a great job in displaying her talents and the joy she brings to other people. Her intelligence, despite her disability does not go unnoticed. She is a large part of the family and well loved by everyone. Therefore, when negative things are said in those meetings, I can see how that would be very difficult to not take it personally, and therefore be frustrated or upset by seeing repeated limitations being laid out in front of you.
Ultimately as her parents, you’re the expert in all areas of Eve. The school has expertise in education and learning. I hope that both of your are able to work with the school to bridge the divide and have the ability to be true to yourself and true to Eve when expressing any concern or question with the school.
The school wants what is best and you want what is best, but when it comes down to it, you’re in control of the ultimate decisions made for Eve. Do not be afraid to try different methods presented by the school, but you also need to do what you think is right and what you think is best.
All the best,
Jess Norder
IEP meetings can be a beast! I can’t even count hour many hours my mom has spent prepping for and in and processing them. But every single hour was worth it! My IEP allowed me to graduate with my class with high honors, despite spending well over half of my 4 years of high school in the hospital or sick at home. It gave me all the support services needed to get my work done and get it done well. Yes, my mom had many sleepless nights over it, but I don’t think she regrets a single one. I look at my mom as my hero and the reason I was able to succeed in school. My education wouldn’t have been possible without her being my biggest advocate and always fighting for me. Eve may not be able to communicate that, but I know she’ll feel the same way.
I have an IEP and yes it sucks, but I'll forever be thankful for all the accommodations i got! I got through school because of it!
Excellent to focus on accommodations! That's what you want.
Makenzie Nicole I graduated with an iep helped so much
My mom was a special education teacher’s aid. If Eve gets a teacher like the ones my mom worked with, Eve will do great. They were all amazingly caring and knew how to guide each student in their own way.
I have two special needs daughters and have been to approximately 40 IEP meetings. It is no fun but try to work with the school as much as you can because they want the best for your child as well. Let me just say most of the time anyway. They were tougher when the girls were younger but my experience is that they got easier as time went by. Just hang in there.😊
I have had 2 kids go through special ed school and I have nothing but praise for the education and experiences plus life skills they received. It would have been far easier for 'us' to send them to regular school but it was paramount to us for them to have friends that gravitated to them naturally and not orchestrated by us. Self esteem was most important. Dont fear special education it is excellent and your child will thrive at her own pace.
I have a 16 year old with DS. First IEP meetings with new teachers or a new school always feel negative. I promise they get better. The more you do them the more the focus becomes "how can we help her meet her goals" instead of "these are things she can't do". We have been blessed with amazing teachers and an amazing school, but you do have to speak up and advocate for your child to make sure that she is given the best chance to succeed and meet the goals that everyone has. If come to find out this isn't the best place for her and she needs a more specialized class or school that decision can be made when the time comes. It takes more than a few tests for a teacher to truly know if a child will thrive in a classroom or not. A big pat on the back and thumbs up for you and your family for sticking to your guns and doing what you feel is best for not just Eve but all of your kiddos, be it "unschooling" or public schools.
This will probably be an unpopular opinion, but “cluster” classes, which are called self-contained, are not the enemy. Half my time as a SPED teacher is spent talking parents down from that ledge. SC classes allow your child to have the 1:1 care and support that they need to grow. In a classroom with 30+ kids, your child is not going to get the attention they need. SC don’t take away from the socialization aspect. They push for inclusion; those kids get to go into gen ed classrooms and interact with peers, play on the playground, eat lunch with their friends. But their education is paramount, and children with special needs learn in unique ways. They need teachers and curriculum that honors that need. It’s not that the school “doesn’t want her.” I’ve met wonderful amazing children that I would’ve loved to have on my caseload. I’ve cried when I had to transfer them over and not work with them anymore. But I also understood that they needed a higher level of care than what I was able to provide.
IEP meetings can suck. But go in to it with an open mind, a firm idea of what you feel is best for your child, but open to the suggestions that professionals are providing.
Oh Momma. The start of the vlog with welling eyes is a feeling I know so well. Our 3yo has autism and we've done testing, more testing, battles with the school district, health insurance, therapists, etc. It seems never ending and it feels no one sees their brilliance like we do. Sometimes our kids can feel like just another kid in the long list of IEPs and that the schools don't really care. I hope you find yourselves with a great team for Eve; shes going to make so many friends! She is such a joy! I don't doubt you'll get her exactly where she needs to be. Mommas (and dads) are the fiercest advocates! Keep it up Knorpps!
Megan, IEP's are always rough. It may suck but it is what will help Eve. She is definitely who is important. Yes as a parent, you are her advocate but remember they also want what is best for her as well.
My son had an IEP and I was a surrogate for foster children who lived in our school district who had IEP's as well. I oversaw the education of those foster children. It is what it is. We wanted the best for our kids. I think when you see improvement in Eve, you will be more satisfied with the whole IEP.
I will keep you in my prayers. I remember feeling like I was hit by a Mack truck the first time I went to an IEP meeting.
Her limitations are where they start the direction of her education. It will get better, I promise.
My son was dyslexic, had ADD and a specific learning disability. He went into a program in 3rd grade and tested out in the 8th grade. He had to repeat first grade. He was on Ritalin just so he could learn in a classroom with 26 other children. They tested him 2 or 3 times and always fell into a gray area. The last time he was tested, I took him off his medicine 2 weeks prior to testing. He got into a Specific Learning class for Reading, Spelling and English. I found out that a child is never suppose to be tested while on medicine because when they do, it is like pulling the wool over your eyes. They do not get a thorough picture of the child when they test them on medicine.
Hang tough. Give them a chance to prove they can help Eve. She is worth your heartache if she improves. Her speech is getting a bit better.
Megan i have just watched this episode and feel sad for you but as many other people have said, it is a means to help Eve, you are a wonderful mum and care so much, this is why you have had such a hard time, hope things are easier for you on your next IEP meeting, sending love and hugs x
You and Mike are wonderful parents, I love how creative your family is! Numbers are just that numbers. They can't measure a smile, a dance or how open a heart is or the joy that they bring to others. And that is what makes life worth living.
Eve is so blessed to have you as parents. You are so generous to share your lives in such an open and honest way. You inspire me to be the best I can be, and I know you will always be Eve's biggest advocates, and that under your guidence she cannot fail to reach her full potential. God bless you always.
People should remember how far Eve has already come! Experiences through travel will open your eyes and widen your world. Give her love and experiences and watch her go!
IEP meetings are pretty rough. Don't let their clinical tests define your child. You know what Eve is capable of! Don't let them put her in a box. Be her advocate! Do surprise visits!! Also keep working with her at home on things you know she can learn/do/be!!! Look at it this way Eve isn't her special need Eve is a wonderful,smart little girl who happens to have Downs!! There are so many people who have Downs that live a very successful life! Y'all are doing a great job with her! Keep your head up, Mom n Dad!!
I suspect you are helping many parents deal with this stressful issue by being honest about how you feel. Sometimes just knowing you are not alone is the strength one needs in that moment. God bless.
I am an educator and I rarely left an IEP meeting without crying on my way to the car. It can all be overwhelming and I always felt outnumbered in the meetings. Sadly, I found that teachers and administrators didn’t always have my child’s best interest in their hearts.
I always pointed out in the meetings that although they were responsible for my child for the school year, I was responsible for him forever!
Keep your chins up and plow forward! Know your rights and don’t be afraid to use them.
❤️❤️❤️❤️❤️
Now Eve can surprise the school. She is so much more. The testing for her was new, and I’m betting she is going to give lots of surprises. And she has a wonderful family. Take heart!
Keeping it in perspective... Schools need to test in order to gauge where they need to start and for funding as well (but you already know this). They receive more funding for special programs. It is just a reality (a good reality in this case because it drives more money to the program). I have learned (with my own kids) that our children (all of our children) will always rise to expectations. Even if strangers are required to measure, you are Not allowed to lower your expectations. She will rise to meet them. She proved it with speech class, I could tell the improvement from a few clips that you shared. Let Eve know what is expected, support her (as you always have) and step back and let her SHINE! Many blessings to you both. It is hard to raise a couple, you have 9, cut yourself some slack. :) Be blessed.
I think you're right about the letting
her know what is expected. That is all. Who really cares if she can't read a novel and write an essay? As long as she knows how to be kind and take basic care of herself you will take care of the rest as mom and dad.
IEP meetings always leave me feeling gutted and hopeless and like a total failure as a parent. The walk home afterward is usually a tearful one: I want to kick a wall or throw rocks or scream profanities. The experience just rips my heart open. After I get home and reflect for a while, it really feels like the dust has settled and I can plan for action. My son is now in 6th grade and in his last year in elementary school. I intend to homeschool thru middle school and find the right program for him at our local vocational/technical school once he reaches high school. I've kept him in public school this long because our town's little school is very unique and much more hands on. Once middle school starts there are very many factors that could potentially derail all his progress (behavioral challenges) and this is a crucial time in his life.
I really feel that frustration you mentioned. Seeing your child as the individual who has so many gifts to offer the world, and hearing the limitations placed on him/her by the yardstick used to measure "success" or "potential". As hard as I try to ignore or not dwell on those numbers and metrics, they really do feel like a knife in my heart.
You are so correct: you are her advocates. Her biggest advocates. Sometimes you have to make things uncomfortable. It's scary and uneasy- but also necessary.
Best wishes, Knorpps 💜 You know in your heart what she can accomplish, and you always have her best interests in mind. Shes the luckiest kiddo to have you guys! Much love to you all! 💗
I had an IEP with my oldest from second grade through high school. Yes you are your child’s advocate and know her best regardless of the tests. One of the important things is you are getting her the help and services she needs. The first IEP is always the hardest.
Parenting is not easy. Being 64 now I can look back and say, if I had to do it over, I would worry less. Your little Eve is a pure blessing. I love how animated she is, how loving and kind she is. I believe God will provide friends for her, just like her siblings, who “get her”. I have loved Eve’s dancing, and how happy she is. God has special plans for little Eve and he picked you guys to help make those plans happen. Will Pray you can release the negatives of the testing soon. I continue to see progress in her.
I was personally an IEP student for reading , writing and comprehension from 1st-8th grade! I did the tests every year and I personally loved every minute of it! I understood that the test were only there to set a baseline and allowed us to target exactly what I needed help on. I grew amazing relationships with my one-on-one teachers and they really helped me and my parents understand my individual learning type and gave me tools to over come my learning disabilities! Around the 6th grade I enjoyed reading, something I always hated, and was able to keep up in class and by 8th grade I tested out of IEP!
IEP meetings may get you down, but also understanding ones limitations, allows you to try to find ways to work around them! And every time you push past those limitations, it’ll give you the confidence and courage to try to push past others! I wish you all the best with the IEP journey!!!!
Gosh I have so been in your shoes. You do such a wonderful job raising your daughter Eve. Giving her access to other avenues that will help advance her will benefit you all. Thankyou for sharing your family with us!
You both are amazing parents, and Eve is so blessed to have people around her that give her the support she deserves.
As a parent of a special kid myself (he is in 10th grade, so I have done this for a long time SINCE KINDERGARTEN)I can say I agree, IEP's can be brutal, but remember they are intended to help your kiddo get the help that will benefit them the most. And that does usually happen. But one thing you must always do and you said it yourself, is be your kiddo's advocate. Do not always take what the school tells you and just accept it, it is alright to disagree, it is alright to fight for your kiddo. I have had other parents come to me and tell me horror stories about their kids and schools, that is why I have chosen to become a parent that helps to educate other parents on what they can do to get results for their kiddo. It is not always easy, but this is your kiddo and they are the number one priority...ALWAYS. Keep standing up for Eve and remember, if you do not like something or Eve is not happy, say something, they are there to work with you to provide the best experience possible for Eve. NEVER BE AFRAID TO SPEAK UP!
So sorry for the rough day. It's always hard to hear what your child can't do. Especially when you can see so much that she can. I see her and am amazed at how smart she is. How capable. And how adaptable she is. She's amazing. Much love to you and your family. Stay strong mama.
Eves speech is coming on so well! : don’t let anyone tell you that she isn’t intelligent or talented, because from what I’ve seen she has so many other qualities aside from academia; she’s creative and kind and gives endless love xx❣️
I feel you pain and heart ache with the results. Eve is pure joy. Her smile shines brightly.
my grand daughter was born 8-8-18 36 wks 5 day and stayed in the NICU for 27 days. The minutes after she was born, the doctor and nurses notices some of her facial features which could be soft markers for a chromosome disorder. Blood tests were done on her tiny body and after waiting and getting the preliminary report that the baby did have 46 chromosome but she did have micro deletion on one of the 7 and possible one of the 8. Final notice came in on her 11th day of life, she was diagnosed with Williams Syndrome. She has a time feeding and finally after 27 days she was released and was able to come home. This baby will have her challenges and will go to several specialists for life, but she is the best blessing and thrill to have her in our family. I know that special needs parents will have those days, and as grandma, it will be a learning curve for me. My 2 other grandsons are so young 4 and 7, and they will protect her and love her and just like Eve, family, friends and loved ones will always be near here. Testing is just a baseline and we all learn in difficult ways with our children..Eve's special needs disability will not define her or you as parents, but learning with the proper tools and having the best for her is all that matters because she carries a gift and that is unconditional love, no matter how many tests results come in, she is Eve. Blessings to you and your family-Bonnie
I follow a family from Australia who bought a Chateau in France and one of the granddaughters has been diagnosed with William's syndrome too. She is the most beautiful little girl and brings a smile to everyones faces. I'll post a link to their fb page shortly
@@nonirosie Thank You😀
Hello my friend. As a former social worker, and a mom of an adopted international child, I pray for you and Mike, and Eve. It is so hard to hear the numbers, but when I figured out that my child was not about the numbers, I felt so much better. She needs the extra help, but the real potential will happen outside of school. I was most impressed by the fact that Eve mimicked the boys and made her own fort. School is just a part of her being. Family will be her life-blood. Keep up the great parenting! You are living my dream.
I love your basement! Perfect place for kids to play inside. Also, I love seeing the kids building with cardboard boxes, using their imagination and building/playing together. Hours of fun!
Those meetings can be tough. As a speech-language pathologist for a little over 10 years, that was the hardest part of my job. It's a tough time for families to hear some realities, but I LOVE how you stuck to what you believe is best for Eve right now -- and just like Mike said - they can be changed. You guys are both great parents and you know Eve best. You will be the best source of information for the school!
Evie is so blessed to have you as parents. No matter what she will grow up knowing love.
Fight through the discomfort and remember that it is all about supporting your child and helping her to be the best she can be.
I had an I.E.P from the moment I moved north and changed schools with my parents. I excelled in places I shouldn't have (I read at a high school level in 2nd grade) and tanked hard in places I should have soared (I struggled with basic math and couldn't remember how to do something mathematically that I had just been taught).
My mom fought for me with tooth and nail to get me the best teachers and staff. If she felt someone didn't care enough about me and my comfort and didn't push me to work hard enough, she would demand for someone new to be brought in; occasionally from other districts as well.
I brought my I.E.P with me through all levels of my education. I fought battles in college to get the help I needed, and even transferred to a different college after they failed me in a class I had already told them I could not pass. My parents stood strong against the school systems in our area. They taught me a lot of skills at home to gain confidence and advocate for myself.
I tested extremely low IQ-wise the summer between college and grad school. They told me I shouldn't continue and that it would be a waste of time and money.
I am now a year and several months out of graduate school with a masters degree in school counseling.
Just know that your hard work, stress, tears and frustration will be worth it. Be strong, you guys have this.
I work with so many families that come out of IEP meetings feeling they just went to war with the people that are suppose to be helping their child. Even as a counselor it is hard to get the school to step out of their comfort zone and look at things differently. But I am glad you stuck to your guns and advocated for Eve. She bring so much light to the world and her IQ is just a number on a test and in no way diminishes the joy and light she brings to the world. I know you know that. Hope things getting better as far as working with the school goes.
About the green peppers-
in my country we make 'stuffed vegetables' (it sounds better than that) with rice. So first you cut and carve out vegetables like bell pepper, tomato, potato, onion or cabbage (for the onion and cabbage you roll the rice inside) and without pre cooking you just cook it all together in a pot with light tomato sauce with spices (tomato sauce with a lot of water for the rice) and more rice in the sides of the veggies untill everything softens and the rice is fully cooked.
It's supper tasty! Enjoy
I've been to one and only one IEP meeting and my feelings are like yours. I actually cried during it and I'm not a crier. It stayed in my thought process too long. Homeschooling now and I think somewhere in the back of my subconscious I find gratification in proving them wrong each day. After three years I tell you they were SO wrong!!!
Our family did a homeschoolers coop...it was AWESOME...the children are ALL adults now and have been a part of each other's weddings and are the first to know about family accomplishments/changes/challenges...joining with other families is a great idea
Hang in there! You know Eve has abilities and ways to shine and you will find a way to have those acknowledged. There are so many ways she could grow and develop her talents and it's just a matter of time to find the right people to help her through it.
My Daughter Who Also Is Special Needs And Has A Missing Chromosome Disorder Has Always Had An I.E.P And As A Parent We Want The Best For Our Kid's/The Same As All Of The Other Children. She's Actually Graduating Next Year! She Will Be 20 And There's So Many Amazing Programs To Help Them Be Successful Children/Adults!
It’s so hard sitting in those meetings. I know how you feel. Take a deep breath and remember you are the ones who hold the control even if it does not feel that way in the meeting.
I just wanted to tell you that I have been on both sides of what you went through at the IEP meeting. I am the legal guardian for my mentally challenged sister. It is a steep climb some days. Also, I was a one-on-on in special Ed. I can tell you, most, of not all, of the staff love the children they work with. They want to do all they can to help the children blossom and thrive. Most want the very best for 'their kids'. There are smiles and tears shed. There is joy with every goal met.
You are right, it is really hard to hear not so great things about your kids. I got very protective of my son when he struggled in school. Follow your heart! Eve knows you will be near her at ever turn life throws at her. What more could a special sweet little girl need. Take care.
I am a one on one with a child, and the IEP meetings feel so negative sometimes, and it is hard to hear those things. It is always hard to see the parents go through it as well. Every child has SO MUCH potential and that is what should be focused on, not what they can’t do! I always try to point out what they are doing and all their accomplishments. Every child has something they are GREAT at and helping them grow is so amazing!
I’m currently a para educator for a little one who has an IEP. I’ll only reiterate what others have already mentioned. Please try to keep an open mind in that the staff & faculty want what’s best for Eve, too. They’re also her advocates even though it may not seem like it. Certain testing must be done to see where to go from there in developing a plan for Eve so that she can grow to her fullest potential & also get the services that she needs. IEP meetings suck, but I promise they can be beneficial.
My son has multiple Syndromes and I too hated IEP, but learned advocating through multiple surgeries and I fought hard. He is now 25 and a professional Jockey. His surgeries were mostly at Primary Children’s in his youth. at 16 he went to the U OF U. He now goes to Barrow’s and several other dr.s in Phoenix as this is now our home. I am a huge believer & have taught the importance of advocacy. While different schools had different ideas, I fought for what I felt he needs. Yes, IEPs are every parents worse nightmare, I only gave in and Home School his Senior year through a computer and a family friend who is a teacher.. My biggest problem was and still is facing people who judge my decisions. I have learned to STAND MY GROUND. (I never allowed IQ testing). It will always be a challenge, but I had him at 23 and I still have to STAND MY GROUND. Good Luck.
Have two grandchildren that are underneath IEP each child is individual and will grow with or without IQ testing remember just numbers hang in there have all the compassion in the world for you to
Eve is progressing so much, she will definitely achieve more than she is labelled to achieve!! Don't let them impose self- fulfilling prophesy, I was told I couldnt go to a good high school, now am a Social Studies teacher in a high school, you will be surprised to see how well she will performed as long as she is given the support and confidence to do so!!
Sorry, mom. That must have felt so heavy. With your support, I think your full-of-promise kiddo is going to blow everyone away. God has His hand in this. Eve is a promise.
Eve has two great advocates...mom and dad. You will all get through it. Prayers for you all.
Megan do what you feel like is best for your child. I was a special education teacher. We now travel and homeschool our children. My one child had services from 3-6 years old. He has grown more in the last 2 years of homeschooling. I don't regret school but teachers don't know your child as well as you do. Keep being an advocate for her whether that be inclusion, self-contained, or homeschooling. She has amazing parents and family that will continue to love and teach her every day.
I’m really sorry to hear that the IEP meeting went so poorly. I myself had an IEP from grade 1-12 and even though my learning disability was fairly minor, my parents struggled as well hearing that their child wasn’t meeting their “criteria”. In my experience though, I was so grateful for my special ed teachers. They gave me a place to feel comfortable to learn and speak my mind without judgement from others. I didn’t have to keep up with the other kids because everyone in that class was on same playing field. I hope that gives you a guys a little hope, and always trust your gut because you are her advocate! Love you guys!
I hope that school is just another marvelous adventure for Eve and I hope her joyful spirit will infect everyone surrounding her.
Sending feels your way for the rough day you had. Very draining. On a lighter note I loved your "mom" jeans. They look great on you. Love the way you share your heart whether it is the good, the bad or the ugly. ❤
You are amazing, as a mom who also adopted kids with special needs, I u understand how you feel. There is nothing I could say that these super kind and sweet friends have not already said. Your friend base on here ( yes you, you commmentors you are the kindest, most uplifting, most sweetest group ever). The world would be a better place if every one treated each other like all of the time. The only thing I can add I will pray and lift you up to my heavenly father and ask that he guide your paths.
I don't see Eve as limited...they don't know what potential she has but yet, I'm like you, I know they are doing it to be able to get her the help she deserves! She is a very smart child. As are all your children. Happy, loved & smart!
I'm now a grandma to 4 and one thing I know from my experience as a parent is that on the whole kids do well. I was quite worried and stressed when our kids were growing. You want their life to have ease and it's part of a parents remit to give them what they need to succeed. I've learnt that what happens in school is useful, but after they have been out of education for 2 years, their education is irrelevant. All the labels, tests, qualifications fade in significance as it's who they are and what's in their heart that gets them through life. Eve has a wonderful loving heart and she exudes that love. The world needs more people just like Eve, far more than it needs intellectuals. She was born to show the world that love is what will make this world a better place. If they were to measure that, she would be off the scales! Sending hugs to you x
My son has ADHD with some sensory issues, and we started the IEP journey when he was in 1st grade. We were told that he had a barely average IQ, and just ADHD at that time. I tried to act like that was okay, but it really was hard to hear that about my precious son. We could see so much more in him than they did. We have spent years fighting for him and his education, and it’s taken until he was 12 to find out about the sensory issues. Years of me saying that his IEP was inadequate, and being brushed off by schools and therapists. Years of watching my son struggle more and more. But we’ve finally found a school and therapists that listen, and we are finally watching him start to blossom. I don’t know what an IQ test really measures, honestly... but I do know that it’s absolutely not the real measure of a person’s intelligence. It sounds like you guys have a good support system, and that’s at least half the battle. You can do this!
As a mom of two 30+yo sons, you get gut punches as they mature. Some in preschool, some in elementary, then high school,ugh! Baseball, basketball, work, girlfriends, college, so many have been there. You are the best advocate for all your children, just keep believing that you two along with your nine will go through this with love and care to develop Eve to be the best Eve ever. My boys have sweet loving wives and darling children, I am blessed. Praying for you all.
Thank you for sharing your experiences, Megan. I've been where you are and it's so hard. This video had me in tears, but was also very comforting to hear someone else put words to all the frustrations of my heart regarding my special needs kids. After enduring 10 years of those I.E.P. meetings, we quit and brought our oldest home to homeschool. It was such an enormous relief. It's not the right choice for every child or every family, but in our case it was. There are wonderful things about school, too....it's just so individual, isn't it? Hang in there, Mike and Megan. You're doing a beautiful job parenting. :-)
I've attended IEP meetings for my twins over the last 7 years and learned very early on not to go without an advocate who can keep track of everything for future needs. We now are blessed with one advocate who knows my girls and will see them through High School. She has helped in getting the Individual Education Plan that I feel is what they need instead of what the district wants to give them. The districts motives are always questionable and budget related in our experience
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ramgal Best advice! My sister had to hire an education lawyer to get the services she needed for her emotionally challenged child. My sister is a teacher and has helped write IEP’s for students, so already “spoke the language” Hiring an advocate who follows your child through the years is the way to go. The school is under pressure to make the cheapest recommendations. In my sister’s child’s case, her needs were best met at a private school for children with emotional problems. Not only must the public school pay the tuition, they pay for transportation as well to the school. My sister would never have gotten that without a professional advocate.
My husband and I were talking, tonight, about reevaluating our son (14) who has FASD, ADD, and RAD his IQ level. When he was about 8, before his Dyslexia dx, it was 71. It all just hurts my heart. He is SO compassionate and has a desire to enter the military, but I'm not sure that he will be able to do that. Sigh. God speed to you all in this journey.
All the school stuff about Eve sounds tough but I’m so excited to see how she grows and interacts with her new environment! The public school system has its problems but it does provide some amazing opportunities and resources for its students (Me: someone who has been public schooled their whole life)
HeyKyraMae ii
IEP meetings are never easy ! As a mom of a son who has and IEP and as a teacher I can see both sides of the coin. In the end what’s best for the child is what’s important . You are absolutely right when you stated that you are her strongest advocates. Parents have more power than they know . Keep being her biggest cheerleader and she will definitely go far !
Meghan and Mike, we went through this with my middle son. The schools kept telling us that they didn't see him advancing or being able to learn effectively. Now he has an associates and a bachelor's degree in network systems administration and cyber security. Never let them tell you what the goals for your child should be. You advocate for your child and change the script. This is what I WANT for my child, this is what I EXPECT for my child, this what you can DO to help and ENCOURAGE my child. It is in her best interests for you to set goals for her. YOU KNOW HER BEST. YOU KNOW SHE CAN DO IT. ENCOURAGE POSITIVITY, don't accept their limitations. Huge hugs to all, miss you guys!
My son had IEP from 3 years old to 6th grade for speech and language therapy. It was painful keeping him on track and focused, but you’d never know it now. He graduated as a mechanical engineer. Hard work and perseverance...
That was the best vlog ending ever! You made it seem like a one on one conversation. Both of you open your home and your hearts so others may benefit and learn from your journey! You have many supporters who love all that you stand for. I have learned much about Faith, tolerance, and forgiveness from the Knorpps! Carry on and we shall be here lending support where we can!❤️❤️❤️
You are great parents, trust your heart and instincts, I look forward to seeing what a blessing Eve will be to this world. She may never be a great scholar but she will be great at something. She is already great at being a sweet and loving girl.
My daughter has an IEP since the beginning. She has downs also. I am her advocate and %90 of the time I am fighting with schools to get what I want for her and what goals I want her to be at. Even if she doesn't reach those goals that's ok she tries. I feel you handled it perfectly. I cried so much at and after every meeting.
We have been through this journey, and while every path and experience is unique, there are a lot of common emotions involved. We chose a different path for our son after pursuing the school/IEP route. He is now 21, and thriving. I’m happy to share our journey with you if you ever want to explore therapy, services and how to continue with homeschooling with a special needs child. We wish you the best and want to encourage you to follow your heart. I believe our children come to us because our hearts call to them and when we are able to listen to our instincts and our heart... the path unfolds as it should. Eve is just such a lovely young girl, her spirit shines right through your vlogs. Much love guys!
In the mid-90s, I was diagnosed with a learning disability that had only been known for about 11 years. My mom stuck to her guns just like you and was my advocate. She has been my advocate my entire life, even now. It makes me so happy to hear that you will continue to fight for Eve and what she needs!
I learned what my numbers were when I was 16 and for some of the categories, the numbers hurt a lot and I understood why my mom was upset sometimes. In one area, I have a 6th grade IQ level and I'm 26. No one wants to hear that their child isn't going to be good at something. But here's the thing: I was told I would never have a vocabulary larger than a 10th grader's and I would never make to University. I'm now in my junior year of University, writing history research papers that my professors have told me I should publish one day.
As you said, we are all geniuses in our own ways and Eve is no exception! IQ numbers are arbitrary in the long run and are only used to prove that we need a little extra help sometimes.
And remember: It's going to be tough, but you got this Mike and Megan!!
I thought an IEP would help get services my daughter needed. Once tested and deemed eligible we spent 4 years trying to educate the teachers on what her issues were and how they needed to be addressed. We finally pulled her out and are educating her in the real world as we travel full -time. Eve appears to be very bright with a lot of special gifts just waiting to be shared with the world. She's absolutely precious. 🙏🙏🙏Praying with you that God opens the doors for the perfect method and services to be available to meet her needs. Hang in there, you're an amazing mom! 💖
We fought and fought to get our son an IEP, a very rural school. We finally got him on one, and even tho we advocated for him to have this IEP, the early meetings (now in 8th grade) were very rough, we felt like failures, like we had failed him in some way. But I am glad he is on an IEP, and can get the accommodations he needs (only rarely had to use them.) He is thriving at school, and but it was a struggle for a couple of years (He has ADHD). It's good for him in the end. And good for you guys, just remember that little face of Eve!!! Kerry :D
My daughter is on the autism spectrum. She has a wonderful team, her advocates are the best. I'm so glad they are there for her IEP's. I'm glad since it can be overwhelming when they explaine her levels and I sometimes don't know what we want. I guess ever state is different. It was difficult for me to get used to her joining a main stream class, but is pulled couple hours a day to get more of 1 on 1 with another teacher.
mom, you're looking pretty today. Hope you're not feeling too bad, they just don't know how beautiful and smart eve is. Also I love it when you and Mike discuss things about your kids.
Thank you for sharing! IEP meetings are rough, you're have to talk about all the negatives and you have have to stand up for your child and sometimes even fight for their rights and best interest. And not only do you want the best for your kid, but no kid comes with an instruction book, nor have you study academics or psychology. All you can do is to get lots of info and go with your gut and you are very good at that!
We have 2 special needs kids so I compleatly understand how you feel . Eve is beautiful and lovely and has her own path God has set out for her.
It’s hard to hear that your child has limitations because it takes away hope. All parents have hopes for their child from the moment you find out they are on their way to you, and that continues all their lives, no matter what you discover about them along the way, the hopes you have for them are always there even if they change. I can’t imagine how much hearing those ‘numbers’ about Eve would affect your hopes for her, as I don’t have the same challenges with my kids. But just remember that those numbers are just that. Numbers on paper. They don’t mean anything other than how the school juggles funding etc. Your role and responsibilities are exactly the same as they were before that IEP meeting, to love and nurture that child and encourage her to find her potential. PS I have to say I can see an improvement in her communication in the short while she’s been at school, so you are doing the right thing, as hard as you might be finding it at the moment. Sorry you had such a difficult day, tomorrow is sure to be a better one.
I can so empathize with you and your feelings about IEP meetings. Our little guy is often described as one of Childrens Hospitals most complicated patient in 20 years. IEP meetings leave me drained and emotional. I'm so sorry your hurting, it's not fun. We know our kids potential and it's hard when we hear just the opposite for an hour or more...and every time he blows a goal out to the water I do my happy dance and file that under gratitude in my prayer journal. I'm hoping you will do that as well. Set up a binder with everything together - IEP notes, meetings, reports and add a section for how awesome your child is - keep track of the success - it will help after those meetings. Big hugs Knorpp family. Eve will continue to shine!!! Mom to an amazing son adopted from Kunming China that continually shines.
As a former educator now stay at home mom I have a whole different perspective about public education! Keep doing what you’re doing and remember public school doesn’t define you! I went to public school and I taught in it for many many years! I totally support homeschooling! I actually believe it’s better!
Before I had children of my own, I was a special education teacher in the public schools. I regularly administered those tests you are referring to and held IEP meetings to share the results with parents. I think, at the time, I had no idea how difficult many of those meetings must have been for the sweet parents across the table from me. Now, 6 children and 4 adoptions later, this public school teacher turned full time homeschool mom with 2 kiddos on IEPs regrets my lack of perspective in those IEP meetings. I want to go back and tell my former self to be kinder, more sensitive, to emphasize student strength, rather than weakness, to tell those parents that I know full well that these tests are only ONE indicator and do NOT represent who their child is or limit what they can accomplish in life. I have so much more perspective now, both on education in general and on the beautiful, unique and individual God-given gifts each child possesses. My guess is that those well-meaning educators across the table from you lack some of that perspective. Let them do what they need to do to dot their "i's" and cross their "t's" for the purpose of paperwork, hoop-jumping, documentation and setting up a plan. But, as Eve's parents, do not let it affect what you know to be true about her. you know her best and you always will. you see the beauty and gifts and purpose that God put in her, which is why He blessed you to be her parents.
Hi Knorpp family as someone who got special services for my hearing loss was also told I should be in special education class but my parents stuck to their believes that after a while I need to be in general education classes. I worked as a special education assistant for a few years before entering into the early childhood education field of teaching and my belief is all children should be integrated. What you both did was the best decision for her. I agree with the ck2s person who commented below saying that Eve's final goal is to become a successful adult. Good luck and I know it might sound odd at first or hard to hear things but you have a right to stand up and speak your mind. If I did not say that I was bored in special education classes and need to be challenged then I would not be here today at a regular good paying adult job with a BA in early childhood education degree graduating at the top of my college class on top of being in two honors society. I would love to over you a partnership in making a clip and maybe you featuring it on your channel all about I.E.P and all other kinds of information about it since I got to sit in on a few of mines and know all about them from working with children who have I.E.P's let me know. I share this from my experience in working with my last student who is down syndrome like your daughter, reading her I.E.P paper plan that was in her book was hard. It outlined all of these issues that were correctable into positive if only someone would work with that person that she becomes attached to. After working with someone previously she fell in love with me and it worked well with her ending up not wanting me to leave. I just don't understand why they say so much of Eve's limitations when she has so much potential if people would only see how much she can get through. Watch the show born this way and they show you how they become young adults with the capability to adapt into the young adult life.
Right there with you Megan! Our youngest 3 adopted boys all have IEP's. We have had the blessing of seeing how far they have come and we know their history. So to us they are miracles and so it's hard when to the school they are a bunch of numbers! I do my best they their teachers know an appropriate amount of their stories so they can see them as they miracle that we do.
Pearl’s jewelry is great, the bracelet with what looked like flowers were in it is pretty! I would totally buy some of them! Asher’s castle is so creative, how fun!
I'm so glad that your precious eve has you both for her parents......your u see her value and worth -God bless xx
Eve can make anyone smile on their worst day and that is worth more than any test can measure
I know someone with a very low IQ and he is very successful as a manager. His relaxed, friendly way with people is so charming. His dedication to his work and the homework he does to compensate for his slowness at learning new stuff all make a really lovely, happy and successful person.
Our son was in some of the first IEP meetings ever held, so we go WAY back like early 80's. No it isn't fun to hear "negative" things about your child and our son proved them all wrong. Eve will probably do the same. What Cheri said is so very true. Look at the test as the means to get what Eve needs. Our son does not have Downs Syndrome, but I still understand how you feel. Our daughter is an educator and they don't like these kinds of thing either. This all came into being because there are always some parents with unrealistic expectations for their children and refuse to except that some do have limitations.That's just life. Not saying that about y'all. Try to stay positive and continue being good parents. Also, it's SO much better than it use to be. Promise!
We can see from day one when you got Eve. She is growing and you are such awesome parents. Now there is a different dimension what the world sees without a bias measuring stick. This may be good it will give you areas to continue to help her and guide her outside of your little family. This is the larger world she will have to function in to live and succeed. Tomorrow this will not look as dark.