Was diagnosed with Prostate cancer at age 47. Had a prostatectomy and after a recovery period including injection for erections I'm 63 and very happy. I had absolutely no signs but my doctor wasn't happy with my PSA numbers. It was molecular disease right in the center of the gland. I suggest everyone get tested for Prostate cancer yearly. Some cancers we can beat. Prostate and Colon cancers can be diagnosed very early. We can beat these two cancers so don't let your families down and get checked! 💪mrwtby
I had a Gleason score 9.5 in 2016. So it was taken out and the general area radiated. Doing very well following Dr. Steven Gundry's guidance that I learn on RUclips. I have learned: 1) Going to the doctor is disease care. 2) Related to food: What you put in your mouth and what you avoid putting in your mouth is health care.
As someone who has just completed my prostate cancer treatment in the UK completely free of charge I am amazed that this gentleman is talking about the different procedures and there cost.!! as if he didn't have enough to worry about, all I can say is thank God for the National Health Service.
I checked this and NHS gives excellent treatment for free but not state of the art treatment e.g. you can't get SBRT and you probably don't get top oncologists like Scholz who are aware of new protocols and treatments. Newer drugs also rated too expensive. Still money worries on top of cancer is a big worry.
Wow, that was a powerful personal story. I'm going to follow the same path . . . oh, wait, I'm not a millionaire. The nurse was great because she didn't keep interrupting and listened carefully.
Wow from me too, but don't see how this would work with all the patronising doctors we have in Europe's public system, at least in the USA you have the option if you have the $$$$$. Even so, the European in me gets left with a strange taste in the mouth, having the "system" as more of an obstacle than an asset
I was diagnosed in April this year and I disagree about taking what you’re offered. Under the NHS it was my choice to have ADT and RT not surgery. I also said I wanted Spaceoar gel which I was given and I was treated at the hospital of my choice out of 3. I didn’t have to request an MRI, that was automatically scheduled after my high PSA so it was a guided biopsy and I’ve had the best of care, start to finish of treatment 6 months. Now monitored for the next 5 years and told if it returns there are other options for me. You don’t have to be a millionaire in the UK.
@@bartram33 I just read what I wrote 5 years ago and I have no idea what I was trying to say. If I wrote anything that implied a criticism of your situation then I apologize. My psa is like .16. it keeps going down each year I get tested. I'll keep you in my prayers - which I mean, not some throwaway line.
Howdy everyone. In March I had a PSA of 343, yes 343 no typo. No biopsies done, just a bunch of scans, MRIs, etc. Doc found I had metistatic cancer. I was on and still on Casadex, Metformin, Flowmax, Healan951 (only had for 2 months until I ran out). Saw a couple of other docs for 2nd opinions. Continued taking the meds. Checked PSA again in June and it was 22.4. Checked PSA again in August and it was 3.7. 3.7 down from 343 five months ago. Ever since the beginning I never had any physical symptoms from the prostate cancer.
thank you so so very much joe. i just had psa of 125. doctor pushing me hard to get biopsy. im 62. have no symptoms at all. feel great and look good. at 60 my psa was 2.4. ive been scared terribly. im not going to do biopsy now. im going to get other opinions. thank you so much !
@@marklamb8199 ask your doctor to order a fusion biopsy. You get an mri and the biopsy doesn’t pass through the rectum so lower chance for infection and very good at targeting the problem areas. I had no symptoms either but part of my cancer was aggressive. If you deal with it when localized, long term survival is 98%. If you delay and cancer travels elsewhere, survival rates drop dramatically. Get the biopsy and you will get peace of mind or timely information to deal with a potential problem. Good luck.
@@richardiandoli7437 My 12 points on biopsy all at 4+4=8 Scans and MRI indicate no spread. 3 weeks post op a lab work confirmed prostrate full of aggressive cancer AND all margins, tissue, nodes and bone all clear. So thankful! The best choice for me. Now managing after effects.
Having lived in Towson, MD, running to Johns Hopkins isn't going to translate into treatment. They will review a medical record and offer an opinion. At the end of the day, you are back with your original oncologist and an opinion. At the outset understand what it is the expert is offering.
@@daisuke6072 I’m in that same pill 💊 now. Started last month. Trying to deal with all the side effects. The hot. Flashes at night are annoying. Constantly waking me up.
I was diagnosed in 2020 with Gleason score 6 and on active surveillance for a year until the second biopsy a year later that showed the Gleason score 7 and 2 months later I got the Radical prostatectomy on March 11 2022. My psa was 10.8 and now 0.00.
It's mind boggling that urologists continue to do random biopsies. It is absolutely foolish to not do an MRI first, which is painless and noninvasive. The MRI tells you two very important things: (1) the size of your prostate, and (2) the location of any tumors. If the MRI comes back positive for enlarged prostate (at a size consistent with the PSA result) and negative for tumors, there is no need to go through the discomfort of the biopsy. If the MRI comes back positive for tumors, this can be followed by a targeted (non-random) biopsy which will give much more accurate results and possibly fewer samples being taken, as evidenced in this video. An MRI should be covered by insurance, even in the USA, so there is really no excuse to jump straight to a biopsy and every reason to do the MRI first.
That is exactly why I am so hesitant on seeking treatment! When you hear stories like that! Having a biopsy without having a PSMAT scan or a MRI is ridiculous! You need to have a targeted biopsy. A lot of these doctors are in for the money. They have a quota to make. Just like a car salesman you have to sell so many cars per month or else you get the ax!
I was diagnosed with prostate cancer back in early 2023. An ultrasound showed a lesion the size of a postage stamp in a prostate the size of a tennis ball. The urologist recommended a biopsy but I insisted on requesting an MRI first. She told me the insurance companies might not cover it. But thank God they did. The MRI guided biopsy results included a Gleason 8, and several Gleason 7s. I then heard about Prolaris and the genetic testing that aided in making a final suggestion for treatment. The Prolaris test came back recommending a single modal approach, a prostatectomy. I was leaning in that direction anyway, so my decision was confirmed, and I went with the robotic radical nerve-sparing prostatectomy. I'm now 14 months post surgery, and the incontinence is behind me. The only remaining issue is the ED because of the nerve damage caused by the extra large prostate that was removed. PSA is now
I disagree somewhat, I believe if stories like this spread widely they will add a couple of good years even to the lives of the poor. Funny how the medical pros are almost scared to try new protocols, when in fact it's well known most of protocols for most of the drugs out there have never had proper blind testing behind them. It's like the UK Royal Traditions, every year someone makes up something and then it's a tradition if they remember to repeat it next year!
Absolutely agree! Unfortunately 90% of patients don't have the luxury or the money to do what this guy did. I thought the practice of medicine was to help the suffering of humanity and not about how much money a person has. This message although informative is a bit discouraging for the average person
I agree, this man has the money and time for trainers and extra imaging. We all go through our own journeys, I’m happy for him of course but that’s not me. I have a hard time getting my doctors to see what a difficult time I’m having with my treatment because hey, this guy seems to be ok, what’s wrong with you?
Did anyone suggest testing his vitamin D3 levels? Suggest he start taking 10,000 IU a day? VD3 has been shown to reduce the size of tumors. Taking supplements? Very non-invasive! And what about fasting? Or going Keto to reduce glucose, cancers only food? I've had an elevated PSA for 10 years, starting at 4 or 5. I had no other symptoms and no family history of cancers so I wasn't worried. For the past 12 years my doctors have been after me to have a biopsy but I just didn't see the need. Finally, this year I was told my PSA was 19, which kinda sounded higher than 4 or 5. So I gave in and had a biopsy. Yup! They found two very small, slow growing tumors. I also had a very enlarged prostate (16.1mm) which was probably what was causing my PSA to keep rising. I was given a (Jackie) Gleason Score of 6. My doctor immediately put me on something to reduce my prostate size (I still have no symptoms) and recommended surgery. I told him I needed a second opinion. Well, I'm VA so that's gonna take a while. But I'm not worried. Not only can men in my condition live 15 years or more without treatment (I'm 61), I'm convinced I've had these tumors since 2009 when my elevated PSA was first diagnosed! Plus, thanks to RUclips videos by qualified urologists and oncologists, as well as nutritionists, I've learned about the powerful effects of Vitamin D3 on prostate cancer and that fasting can reduce the size of tumors. I've also learned massively reducing glucose intake can help to starve cancer cells! So I'm feeling pretty good about my future with prostate cancer! Plus, I had a carotid endarterectomy to reduce a blockage last year. Facing possible death on the table, my faith rose up and carried me over the finish line! I'm more confident of my Savior today than the day He reached into my bedroom when I was 15 and saved me from suicidal depression. So it's all good! I can't wait for what comes next!
Cancer Update! I finally got a second and even third opinion. Both doctors, another urologist and an oncologist, agreed with me (without knowing it. I didn't tell them my opinion. Don't ever tell a doctor your medical opinion. You're not allowed to have one). We all agreed "Active Surveillance" was the best course of treatment. I did, however, begin megadosing on vitamin D3 and by my next blood test got my serum level up to 125 ng/mL. That's high normal. Six months later I had a prostate MRI. My oncologist said it showed a 6mm lesion that the radiologist described it as "unremarkable." I asked about the second tumor and he spent a couple minutes looking for it! Finally, he said there was just the lesion. No sign of a second tumor! Vitamin D3 had been shown to reduce tumor size in 17 different cancers. I've been scheduled for another biopsy (every 6 months) since July but the hospital MRI needs a part to do prostate scans. They say they'll call when the part come in! Ha! At my latest primary appointment my vitamin D3 serum level was 235! Fortunately, my new primary is smart. His reply was, "That's great! Perfectly alright. You can probably cut down on your supplements though (I already did when I got the test results)." Later he said, "There's only one negative side effect from too much D3, hypercalcemia, and that is so rare you can say it never happens." So great news. This new doctor is the best PCP I've ever had in the VA. He took an hour to go over my blood test results with me and we still weren't finished. So things are going pretty good. Love my vitamin D3!
Scary having to think of all those things but inspiring he could do so. Obviously it was also essential to have excellent advisors and treatment and that costs money which not everyone has.
Steve, you can use PSA kinetics to see what your PSAV (PSA velocity) and PSA doubling time (PSADT) is to ascertain whether or not there are malignant cells growing. This is more sensitive than even the PSMA PET/CT with Gallium 68. And the key value re PSA nadir is < 0.05, taken from the studies that were initiated by me before Mark Scholz joined my practice in 1995. Good luck on your journey. Nice video.
I’m 67. Was diagnosed with prostate cancer Gleason 6 3 years ago. My PSA was around 18 but in 3 months time I was able to lower it by half to 9 with RSO(Rick Simpson Oil; full spectrum cannabis oil). No bad side effects. Highly recommended.
Great story, supports everything I've read and seen on how to be proactive and smart about your diagnosis. Will NEVER do a random biopsy, will not treat pCa unless I have to, will hopefully be able to do focal treatment, or brachytherapy or proton beam if focal is not an option.
3. Given that was metastasis, he's not expected to be doing well. Has anyone ever gotten out of metastasis? At least he's at a rather normal "departure age"
@German K many have reversed metastasis. I know a guy whose PSA was 1300. He went red meat-dairy-egg free, began lupron and xtandi, and also went on Jane McLelland's protocol. 9 months later clear bone scan and PSA 0.1.
@@stevef7814 I've looked into the literature. For a hell load of cancers they measure 5 year survivability and many/most conventional treatments reduce a death rate of 80% to 70%. And as this whole channel shows, you never know where the whole thing is hiding or growing. But yeah, my comment was a bit rhetorical. Someone somewhere lives happily ever after. Unlikely that is Steve though!
@German K recent video of Dr. Scholz he states one of his 1st patients from mid 90's with stage 4 is still alive. I know a man from a support group I went to who would come just to say he was 20 years metastatic with no treatment and still alive. You're far more pessimistic than even the doctor who comments on this channel. People who take care of themselves fair much better, but that's an uncommon trait these days.
Doctors can keep you alive beyond nature's time. Being alive and living are two entirely different things. I have learned from the generation that went before me... Living beyond nature's calling is cruel.. Not only to the sick but more cruel to the loved ones who cared for you.
I like that quote bro. Living beyond nature's calling is cruel. I like that so much! Is bringing tears my eyes. I just heard one story that the guy had 5 years to live and the doctors fed him chemo hormone treatments radiation etc and he was sicker than ever! So he lived for maybe three or four years but in total sickness! Ridiculous I might listen to what you're saying refuse all treatments except for pain medication when it gets too bad. Cuz it sure seems to me that nothing works! Nothing! It's so frustrating. They just keep you alive to make money and to make you comments or thoughts thank you.
My story: After PSA going over 4, two TRUS biopsies within 6 months both with (false) negative results, PSA still going up. When PSA was above 10, a new 3D Saturated biopsy (52 samples) out of which 7 with malignant cells (Gleason 4+5). Radical prostatectomy, PSA = 0. After six years still PSA= 0. End of story. Don't wait, the biopsy is a necessity but not random type, ask for MRI or Saturated biopsy. Good luck!
@@jovantasevski5157 'Prostate Cancer PSA from 5.29 to 0.06 by Andy Hurrell' dropped his PSA by 70% in couple of months with change of eating habits and baking soda after his conventional treatment stopped working.
I would rather have listened to someone of more limited financial resources dealing with prostate cancer. Good for this guy but absolutely useless for me.
So he has focal Cryoablation, which means you are still on active surveillance (regular PSA screen and perhaps annual biopsy), and the PC spreads by metastasis during that time. This part is unclear to me since he was so diligent about all this. Did he let down his guard or did the cancer evade an active surveillance protocol? I just had focal cryo a year ago at UCSF and my PSA is starting to rise again. I am done with all this and ready for SBRT. Getting MRI/Biopsy next month to confirm things. I feel focal treatment of PC is a risk, as it is not a cure and has a 20% recurrence rate. I would rather deal with ED issues than metastatic cancer.
USA is very different to UK and even HK where there is a virtually free national health service and medical professionals are on salary and have "no skin in the game". My only costs have been travel to and from urologist for PSA and physical, MRI, MRI guided biopsy, PET CT, hormone therapy jabs and daily RT treatment and follow-ups with oncologist
I had to get in a clinical trial at NIH in 2011 to receive a 3 T MRI guided biopsy. It was and still is unheard of in the rust bucket valley I live in...
Glad he shared that. It was helpful. I just got diagnosed but I’m about to go get a second/third opinion. I would only add that this gentleman seems to have extra “resources” that also make him statistically more likely to survive this than other men. Especially, black men such as myself. That sucks but such is life in AmeriKKKa. I’ll figure it out but thanks again for sharing!
How dare you suggest that the US can be compared to that ignorant pile of scum, the KKK. The overwhelming majority of white people go out of their way to take care to provide a tranquil environment for blacks, and you damn well know it. Many individuals like yourself, merely state those claims to try to blame so many failings by blacks on someone else. Shame on YOU!
Mr Barnes, I hope all is working for you despite your racist concerns. I suspect the quality of care you get is more of an economic issue than a racial issue, and that your care in the US exceeds much of what you would get in most of the world. Please update your case here. Best of luck.
That imaging center is not open anymore. It had the Axumin PET scan which, at the time, was rare and better than all previous scans, but now that scan is more widespread and has been surpassed by the recently FDA approved PSMA PET scan. If you need assistance finding an Axumin or PSMA PET scan, you can contact our helpline here: pcri.org/helpline
Ok my question is were the two spots pet scan seen and deemed not cancer before his focal theropy? That would sugest the cancer had already spread outside the prostate. Now if the pet scan or pelvic scan showed the spots after his focal theropy than that shows the cure rates for focal therapy is not high. Perhaps if the later is the case than radiation therapy might have been a better option. The cure rates for local prostate cancers are the same as a prosectomy. Would you please set the record of events straight. It could help people with prostate cancer make there decisions.
Mr. Schwartz's first Axumin PET scan was "six or seven years" after having focal therapy (at which time such imaging would not have been available). There have been even more advancements in imaging and our understanding of staging since the events described in this story. Please contact us if you would like to discuss further. We could also share the latest literature comparing cure rates and side effect rates for partial-gland and whole-gland ablation. You can find our contact information here: pcri.org/helpline#about-helpline
I contacted pcri regarding latest data comparing cure rates of focul therapy v radiation but was just given a link to an old article. Would be very interested if anyone could provide ir regere me to current data. Thanks.
His first point is so accurate. The ‘experts’ consistently disagree. From re-reads of the MRI to re-reads of the biopsy. Making anxiety race up and down. Agree that Dr. Epstein’s biopsy re-reads and subsequent Grade Group numbers at JHU are reliable (and quite comprehensible…I’m still not certain of the verbiage MSK used when they re-did the biopsy analysis when I was looking there for radiation therapy …)
It is 2024 and I would love to find out how you are doing currently. If there's any way you received this comment can you please reply. Any reoccurrences or treatments. Thank you.
Thank you for the detailed story!!!! Question: did you have a portion of the prostate removed? You made only a casual reference to that towards the end. Thank you.
I do like Mark Schultz but I'm thinking that he must get compensated by the Cancer institution. Why else would he do so many? Again I love him but I wonder exactly about his.... Motives. He's totally against surgery I know but why? Is it because the chemical companies compensate him because radiation that's all they do is push the medications on you eventually.
@@elsiaedsh Hey Sherif I'm on Elegard,. i get a lot of hot and cold sweats among other things, my last test results came back at 0.04 or somewhere around there. Going okay so far!
@@elsiaedsh hey Sherif, I'm on Elegard,, At my last check up my PSA was 0.04 or something around there my oncologist is happy!! I find the treatment causes hot and cold flushes similar to a women going through menopause. How's your treatment going?
@@RusticatedArt I can relate to the hot flashes. Just completed my first month of Lupron. Try DIM and calcium gluconate to scavenge excess estrogen. What a difference it's made for me. Cheers!
I started taking hormone therapy pill Orgovyx. Hot flashes are real. They interrupt my sleep at night. My testicles shrunk a bit as well. Not to mention I have soreness in them for a week. Now I’m good. I have absolutely no interest in sex anymore. I may be on it for 18-24 months. Having radiation therapy next month (2nd time) because this is my 2nd re accurate of it. This time less radiation sessions and dose. So that’s good. My PSA was only 0.38. Last texted in September. Hopefully I’ll be done with this cancer once and for all after all this
I'm concerned that this patient has an inappropriate treatment for his HIGH RISK prostate cancer which failed. He has now incurable metastatic disease. And still arguing against surgery or radiation??
I was offered radiation seeds but not enthusiastically, full blown radiation was talked down about and radical surgery was queen of the prom, that's it, nothing else was brought up or discussed. And I have limited financial means,,,, if any. SMH.
Or maybe you are looking to actually save your life by doing the biopsy; more specifically do the MRI fusion biopsy, which is much more accurate way to go.
Gave in to biopsy after 24 years psa going gradually up from 4 24 years ago to 19 in 2021.So after radical prostatectomy psa .9 so starting hormone therapy plus radiation therapy.....
@@rafaelcontreras2767 good luck brother. I’m 53 now. First diagnosed in 2010. Gleason score was a 7. Had a radical prostatectomy. Cancer came back about a year later. Had 2 months of radiation therapy alone in 2012. That seemed to work. Was in remission until January 2018 when my blood test revealed activity. PSA been rising ever since. Had PSA blood work done in September 2022. Score was 0.38. Started taking new hormone pill Orgovyx since February. Side effects are real and I’ve only been on the meds for two months. Starting radiation therapy again next month in April. This time it’s only 5 weeks. My cancer moved to a soft tissue area in my pelvic area. I hope this will be the last I deal with this cancer. We’ll see what happens.
@@andrewjones2133 What happens is 100% healing God willing. Keep the faith in God and everything He provides. Never quit. The 5 weeks will come and go fast.I know it's not fun. I load myself up with antioxidants and anti cancer foods and hard workouts. This is now part of my life. Will add you to my prayers for the men fighting cancer.Only requirement stay in the fight. I appreciate your reply. Thank you ! God bless.
Was diagnosed with Prostate cancer at age 47. Had a prostatectomy and after a recovery period including injection for erections I'm 63 and very happy. I had absolutely no signs but my doctor wasn't happy with my PSA numbers. It was molecular disease right in the center of the gland. I suggest everyone get tested for Prostate cancer yearly. Some cancers we can beat. Prostate and Colon cancers can be diagnosed very early. We can beat these two cancers so don't let your families down and get checked! 💪mrwtby
I just got diagnosed at 53 and starting my journey. Thank yuh for sharing it gives me hope!
I m 56 and was diagnosed Gleason 7, starting
@@jonbyers6108 we are all different. Good luck to us
Did your erections come back normal or close to normal?
I had a Gleason score 9.5 in 2016. So it was taken out and the general area radiated. Doing very well following Dr. Steven Gundry's guidance that I learn on RUclips. I have learned: 1) Going to the doctor is disease care. 2) Related to food: What you put in your mouth and what you avoid putting in your mouth is health care.
How is your psa now?
As someone who has just completed my prostate cancer treatment in the UK completely free of charge I am amazed that this gentleman is talking about the different procedures and there cost.!! as if he didn't have enough to worry about, all I can say is thank God for the National Health Service.
He got better care than you did though he had to be his own advocate
@@NETWizzJbirk And you know he got better treatment than me how.?
You get what you pay for
@@debrabarnhardt1103 profit driven in th US which is never good.
I checked this and NHS gives excellent treatment for free but not state of the art treatment e.g. you can't get SBRT and you probably don't get top oncologists like Scholz who are aware of new protocols and treatments. Newer drugs also rated too expensive. Still money worries on top of cancer is a big worry.
Wow, that was a powerful personal story. I'm going to follow the same path . . . oh, wait, I'm not a millionaire. The nurse was great because she didn't keep interrupting and listened carefully.
It's does take a certain amount of money to get around.
Wow from me too, but don't see how this would work with all the patronising doctors we have in Europe's public system, at least in the USA you have the option if you have the $$$$$. Even so, the European in me gets left with a strange taste in the mouth, having the "system" as more of an obstacle than an asset
@@germank7924 Here in Canada as well. You get what you're offered and that's it.
I was diagnosed in April this year and I disagree about taking what you’re offered. Under the NHS it was my choice to have ADT and RT not surgery. I also said I wanted Spaceoar gel which I was given and I was treated at the hospital of my choice out of 3. I didn’t have to request an MRI, that was automatically scheduled after my high PSA so it was a guided biopsy and I’ve had the best of care, start to finish of treatment 6 months. Now monitored for the next 5 years and told if it returns there are other options for me. You don’t have to be a millionaire in the UK.
@@bartram33 I just read what I wrote 5 years ago and I have no idea what I was trying to say. If I wrote anything that implied a criticism of your situation then I apologize. My psa is like .16. it keeps going down each year I get tested. I'll keep you in my prayers - which I mean, not some throwaway line.
Howdy everyone. In March I had a PSA of 343, yes 343 no typo. No biopsies done, just a bunch of scans, MRIs, etc. Doc found I had metistatic cancer. I was on and still on Casadex, Metformin, Flowmax, Healan951 (only had for 2 months until I ran out). Saw a couple of other docs for 2nd opinions. Continued taking the meds. Checked PSA again in June and it was 22.4. Checked PSA again in August and it was 3.7. 3.7 down from 343 five months ago. Ever since the beginning I never had any physical symptoms from the prostate cancer.
thank you so so very much joe. i just had psa of 125. doctor pushing me hard to get biopsy. im 62. have no symptoms at all. feel great and look good. at 60 my psa was 2.4. ive been scared terribly. im not going to do biopsy now. im going to get other opinions. thank you so much !
@@marklamb8199 ask your doctor to order a fusion biopsy. You get an mri and the biopsy doesn’t pass through the rectum so lower chance for infection and very good at targeting the problem areas.
I had no symptoms either but part of my cancer was aggressive. If you deal with it when localized, long term survival is 98%. If you delay and cancer travels elsewhere, survival rates drop dramatically.
Get the biopsy and you will get peace of mind or timely information to deal with a potential problem.
Good luck.
@@richardiandoli7437
My 12 points on biopsy all at 4+4=8
Scans and MRI indicate no spread.
3 weeks post op a lab work confirmed prostrate full of aggressive cancer AND all margins, tissue, nodes and bone all clear.
So thankful!
The best choice for me. Now managing after effects.
@@georgeins.c.494 can you tell me, what was you PSA level?
@@georgeins.c.494 did you get surgery?
It’s nice if you somehow have access to the most prominent prostate experts in the country. This man strikes me as having significant financial means.
My thought exactly. You literally buy life. I looked at the cost of Orgovyx recently! I just paid a fortune just to have a biopsy.
Having lived in Towson, MD, running to Johns Hopkins isn't going to translate into treatment. They will review a medical record and offer an opinion. At the end of the day, you are back with your original oncologist and an opinion. At the outset understand what it is the expert is offering.
That's a very valid point Ransom...
This is all fine if you have the money to visit these top physicians.
@@daisuke6072 I’m in that same pill 💊 now. Started last month. Trying to deal with all the side effects. The hot. Flashes at night are annoying. Constantly waking me up.
Your lucky to be able to get 2nd opinions, where I live in Ma. I was turned down for a 2nd opinion.
I was diagnosed in 2020 with Gleason score 6 and on active surveillance for a year until the second biopsy a year later that showed the Gleason score 7 and 2 months later I got the Radical prostatectomy on March 11 2022. My psa was 10.8 and now 0.00.
It's mind boggling that urologists continue to do random biopsies. It is absolutely foolish to not do an MRI first, which is painless and noninvasive. The MRI tells you two very important things: (1) the size of your prostate, and (2) the location of any tumors. If the MRI comes back positive for enlarged prostate (at a size consistent with the PSA result) and negative for tumors, there is no need to go through the discomfort of the biopsy. If the MRI comes back positive for tumors, this can be followed by a targeted (non-random) biopsy which will give much more accurate results and possibly fewer samples being taken, as evidenced in this video.
An MRI should be covered by insurance, even in the USA, so there is really no excuse to jump straight to a biopsy and every reason to do the MRI first.
That is exactly why I am so hesitant on seeking treatment! When you hear stories like that! Having a biopsy without having a PSMAT scan or a MRI is ridiculous! You need to have a targeted biopsy. A lot of these doctors are in for the money. They have a quota to make. Just like a car salesman you have to sell so many cars per month or else you get the ax!
I was diagnosed with prostate cancer back in early 2023. An ultrasound showed a lesion the size of a postage stamp in a prostate the size of a tennis ball. The urologist recommended a biopsy but I insisted on requesting an MRI first. She told me the insurance companies might not cover it. But thank God they did. The MRI guided biopsy results included a Gleason 8, and several Gleason 7s. I then heard about Prolaris and the genetic testing that aided in making a final suggestion for treatment. The Prolaris test came back recommending a single modal approach, a prostatectomy. I was leaning in that direction anyway, so my decision was confirmed, and I went with the robotic radical nerve-sparing prostatectomy. I'm now 14 months post surgery, and the incontinence is behind me. The only remaining issue is the ED because of the nerve damage caused by the extra large prostate that was removed. PSA is now
If you live in an area with top-flight medical resources and have enough money you can tell a story like this. That leaves out most of us.
If that was a regular person they would be dead already
😂🤦🏻♂️
I disagree somewhat, I believe if stories like this spread widely they will add a couple of good years even to the lives of the poor. Funny how the medical pros are almost scared to try new protocols, when in fact it's well known most of protocols for most of the drugs out there have never had proper blind testing behind them. It's like the UK Royal Traditions, every year someone makes up something and then it's a tradition if they remember to repeat it next year!
Absolutely agree! Unfortunately 90% of patients don't have the luxury or the money to do what this guy did. I thought the practice of medicine was to help the suffering of humanity and not about how much money a person has. This message although informative is a bit discouraging for the average person
I agree, this man has the money and time for trainers and extra imaging. We all go through our own journeys, I’m happy for him of course but that’s not me. I have a hard time getting my doctors to see what a difficult time I’m having with my treatment because hey, this guy seems to be ok, what’s wrong with you?
Did anyone suggest testing his vitamin D3 levels? Suggest he start taking 10,000 IU a day?
VD3 has been shown to reduce the size of tumors. Taking supplements? Very non-invasive!
And what about fasting? Or going Keto to reduce glucose, cancers only food?
I've had an elevated PSA for 10 years, starting at 4 or 5. I had no other symptoms and no family history of cancers so I wasn't worried. For the past 12 years my doctors have been after me to have a biopsy but I just didn't see the need.
Finally, this year I was told my PSA was 19, which kinda sounded higher than 4 or 5. So I gave in and had a biopsy.
Yup! They found two very small, slow growing tumors. I also had a very enlarged prostate (16.1mm) which was probably what was causing my PSA to keep rising. I was given a (Jackie) Gleason Score of 6. My doctor immediately put me on something to reduce my prostate size (I still have no symptoms) and recommended surgery. I told him I needed a second opinion.
Well, I'm VA so that's gonna take a while. But I'm not worried. Not only can men in my condition live 15 years or more without treatment (I'm 61), I'm convinced I've had these tumors since 2009 when my elevated PSA was first diagnosed!
Plus, thanks to RUclips videos by qualified urologists and oncologists, as well as nutritionists, I've learned about the powerful effects of Vitamin D3 on prostate cancer and that fasting can reduce the size of tumors. I've also learned massively reducing glucose intake can help to starve cancer cells!
So I'm feeling pretty good about my future with prostate cancer!
Plus, I had a carotid endarterectomy to reduce a blockage last year. Facing possible death on the table, my faith rose up and carried me over the finish line! I'm more confident of my Savior today than the day He reached into my bedroom when I was 15 and saved me from suicidal depression. So it's all good! I can't wait for what comes next!
Good on you. I think it takes more guts to not be sucked into the medical roundabout.
Cancer Update!
I finally got a second and even third opinion. Both doctors, another urologist and an oncologist, agreed with me (without knowing it. I didn't tell them my opinion. Don't ever tell a doctor your medical opinion. You're not allowed to have one). We all agreed "Active Surveillance" was the best course of treatment.
I did, however, begin megadosing on vitamin D3 and by my next blood test got my serum level up to 125 ng/mL. That's high normal.
Six months later I had a prostate MRI. My oncologist said it showed a 6mm lesion that the radiologist described it as "unremarkable."
I asked about the second tumor and he spent a couple minutes looking for it! Finally, he said there was just the lesion. No sign of a second tumor!
Vitamin D3 had been shown to reduce tumor size in 17 different cancers.
I've been scheduled for another biopsy (every 6 months) since July but the hospital MRI needs a part to do prostate scans. They say they'll call when the part come in! Ha!
At my latest primary appointment my vitamin D3 serum level was 235! Fortunately, my new primary is smart. His reply was, "That's great! Perfectly alright. You can probably cut down on your supplements though (I already did when I got the test results)." Later he said, "There's only one negative side effect from too much D3, hypercalcemia, and that is so rare you can say it never happens." So great news.
This new doctor is the best PCP I've ever had in the VA. He took an hour to go over my blood test results with me and we still weren't finished.
So things are going pretty good. Love my vitamin D3!
Scary having to think of all those things but inspiring he could do so. Obviously it was also essential to have excellent advisors and treatment and that costs money which not everyone has.
Steve, you can use PSA kinetics to see what your PSAV (PSA velocity) and PSA doubling time (PSADT) is to ascertain whether or not there are malignant cells growing. This is more sensitive than even the PSMA PET/CT with Gallium 68. And the key value re PSA nadir is < 0.05, taken from the studies that were initiated by me before Mark Scholz joined my practice in 1995. Good luck on your journey. Nice video.
I’m 67. Was diagnosed with prostate cancer Gleason 6 3 years ago. My PSA was around 18 but in 3 months time I was able to lower it by half to 9 with RSO(Rick Simpson Oil; full spectrum cannabis oil). No bad side effects. Highly recommended.
Great story, supports everything I've read and seen on how to be proactive and smart about your diagnosis. Will NEVER do a random biopsy, will not treat pCa unless I have to, will hopefully be able to do focal treatment, or brachytherapy or proton beam if focal is not an option.
Please do a follow-up with Steve. Interested how he's doing 2 years later.
3. Given that was metastasis, he's not expected to be doing well. Has anyone ever gotten out of metastasis? At least he's at a rather normal "departure age"
@German K many have reversed metastasis. I know a guy whose PSA was 1300. He went red meat-dairy-egg free, began lupron and xtandi, and also went on Jane McLelland's protocol. 9 months later clear bone scan and PSA 0.1.
@@stevef7814 I've looked into the literature. For a hell load of cancers they measure 5 year survivability and many/most conventional treatments reduce a death rate of 80% to 70%. And as this whole channel shows, you never know where the whole thing is hiding or growing. But yeah, my comment was a bit rhetorical. Someone somewhere lives happily ever after. Unlikely that is Steve though!
@German K recent video of Dr. Scholz he states one of his 1st patients from mid 90's with stage 4 is still alive. I know a man from a support group I went to who would come just to say he was 20 years metastatic with no treatment and still alive. You're far more pessimistic than even the doctor who comments on this channel. People who take care of themselves fair much better, but that's an uncommon trait these days.
Doctors can keep you alive beyond nature's time. Being alive and living are two entirely different things. I have learned from the generation that went before me... Living beyond nature's calling is cruel.. Not only to the sick but more cruel to the loved ones who cared for you.
I like that quote bro. Living beyond nature's calling is cruel. I like that so much! Is bringing tears my eyes. I just heard one story that the guy had 5 years to live and the doctors fed him chemo hormone treatments radiation etc and he was sicker than ever! So he lived for maybe three or four years but in total sickness! Ridiculous I might listen to what you're saying refuse all treatments except for pain medication when it gets too bad. Cuz it sure seems to me that nothing works! Nothing! It's so frustrating. They just keep you alive to make money and to make you comments or thoughts thank you.
My story: After PSA going over 4, two TRUS biopsies within 6 months both with (false) negative results, PSA still going up. When PSA was above 10, a new 3D Saturated biopsy (52 samples) out of which 7 with malignant cells (Gleason 4+5). Radical prostatectomy, PSA = 0. After six years still PSA= 0. End of story. Don't wait, the biopsy is a necessity but not random type, ask for MRI or Saturated biopsy. Good luck!
How old are you and do you now have to wear diapers and how about ED ?
@@loisfaruolo6932 Now 70, ED/incontinence after the surgery. Pads yes, no diapers.
@@jovantasevski5157 'Prostate Cancer PSA from 5.29 to 0.06 by Andy Hurrell'
dropped his PSA by 70% in couple of months with change of eating habits and baking soda after his conventional treatment stopped working.
I would rather have listened to someone of more limited financial resources dealing with prostate cancer. Good for this guy but absolutely useless for me.
So he has focal Cryoablation, which means you are still on active surveillance (regular PSA screen and perhaps annual biopsy), and the PC spreads by metastasis during that time. This part is unclear to me since he was so diligent about all this. Did he let down his guard or did the cancer evade an active surveillance protocol? I just had focal cryo a year ago at UCSF and my PSA is starting to rise again. I am done with all this and ready for SBRT. Getting MRI/Biopsy next month to confirm things. I feel focal treatment of PC is a risk, as it is not a cure and has a 20% recurrence rate. I would rather deal with ED issues than metastatic cancer.
Hi , hope you are doing well. How did your SRBT go ? any post procedure symptoms?
It's 2024 now. How are you doing now? To the dude that had the cryo.
USA is very different to UK and even HK where there is a virtually free national health service and medical professionals are on salary and have "no skin in the game".
My only costs have been travel to and from urologist for PSA and physical, MRI, MRI guided biopsy, PET CT, hormone therapy jabs and daily RT treatment and follow-ups with oncologist
Yeah..here in USA the poor get free healthcare. Many programs for them. If your middle class, have insurance.
Thank you for sharing. Given me some hope 👍🏽
GOOD LUCK AND GOD BLESS YOU STEVE 😊
I had to get in a clinical trial at NIH in 2011 to receive a 3 T MRI guided biopsy. It was and still is unheard of in the rust bucket valley I live in...
Hello sis, use Dr omo herbal medicine very active with no side effects it will help you get rid of them fast
Wish they'd push this video on new oncologist
What was the name of the medical facility / the doctor in Arizona who provided the second opinion on MRI images ? Thanks, Alex
Glad he shared that. It was helpful. I just got diagnosed but I’m about to go get a second/third opinion. I would only add that this gentleman seems to have extra “resources” that also make him statistically more likely to survive this than other men. Especially, black men such as myself. That sucks but such is life in AmeriKKKa. I’ll figure it out but thanks again for sharing!
How dare you suggest that the US can be compared to that ignorant pile of scum, the KKK. The overwhelming majority of white people go out of their way to take care to provide a tranquil environment for blacks, and you damn well know it. Many individuals like yourself, merely state those claims to try to blame so many failings by blacks on someone else. Shame on YOU!
"AmeriKKKa". STOP electing bigots that support KKK .
Mr Barnes, I hope all is working for you despite your racist concerns. I suspect the quality of care you get is more of an economic issue than a racial issue, and that your care in the US exceeds much of what you would get in most of the world. Please update your case here. Best of luck.
Could you please provide the Dr. info in Arizona who has the advance imaging?
That imaging center is not open anymore. It had the Axumin PET scan which, at the time, was rare and better than all previous scans, but now that scan is more widespread and has been surpassed by the recently FDA approved PSMA PET scan. If you need assistance finding an Axumin or PSMA PET scan, you can contact our helpline here: pcri.org/helpline
Thank you! I will contact the helpline
@@investorguy633 Hello sis, use Dr omo herbal medicine very active with no side effects it will help you get rid of them fast
Excellent perspective!
Ok my question is were the two spots pet scan seen and deemed not cancer before his focal theropy?
That would sugest the cancer had already spread outside the prostate. Now if the pet scan or pelvic scan showed the spots after his focal theropy than that shows the cure rates for focal therapy is not high. Perhaps if the later is the case than radiation therapy might have been a better option. The cure rates for local prostate cancers are the same as a prosectomy. Would you please set the record of events straight. It could help people with prostate cancer make there decisions.
Mr. Schwartz's first Axumin PET scan was "six or seven years" after having focal therapy (at which time such imaging would not have been available). There have been even more advancements in imaging and our understanding of staging since the events described in this story. Please contact us if you would like to discuss further. We could also share the latest literature comparing cure rates and side effect rates for partial-gland and whole-gland ablation. You can find our contact information here: pcri.org/helpline#about-helpline
I contacted pcri regarding latest data comparing cure rates of focul therapy v radiation but was just given a link to an old article. Would be very interested if anyone could provide ir regere me to current data. Thanks.
Excellent'..More informed ,detailed testimonials please.
This was helpful and informative. Thank you.
Missed this video before! Absolutely great, sometimes i wished i lived in the usa, you guys are the best!
Did you have any symptoms before diagnosed?
Thank you so much for your help
Thanks!
👏🌹 Greeting from Nepal !
🇳🇵Hail Nepal !!!
His first point is so accurate. The ‘experts’ consistently disagree. From re-reads of the MRI to re-reads of the biopsy. Making anxiety race up and down. Agree that Dr. Epstein’s biopsy re-reads and subsequent Grade Group numbers at JHU are reliable (and quite comprehensible…I’m still not certain of the verbiage MSK used when they re-did the biopsy analysis when I was looking there for radiation therapy …)
AI will be our Savior. Or our epitaph :)
It is 2024 and I would love to find out how you are doing currently. If there's any way you received this comment can you please reply. Any reoccurrences or treatments. Thank you.
Gleason Scoring depends on the Histopathologist’s assessment, which is undisputed not more than 45%.
Very pleased for this gentleman but how awful to live in a country where healthcare is the preserve of the rich.
Not sure what your talking about. The poor get free healthcare
And the final takeaway : It works "and they don't even know why". Yet alternative treatments are demonized. And they don't even know why.
Thank you for the detailed story!!!! Question: did you have a portion of the prostate removed? You made only a casual reference to that towards the end. Thank you.
Yes, around 5:25 Mr. Schwartz discusses his initial treatment of partial-gland ablation with cryotherapy.
Thank you
One big add for The Prostate Cancer Research Institute (PCRI).
I do like Mark Schultz but I'm thinking that he must get compensated by the Cancer institution. Why else would he do so many? Again I love him but I wonder exactly about his.... Motives. He's totally against surgery I know but why? Is it because the chemical companies compensate him because radiation that's all they do is push the medications on you eventually.
But I don't understand, did he get surgery and got a part of his prostate out?
Just finished radiation treatment, Im on hormone treatment for the next 18 months 2 years, made a video about it on my RUclips page rusticated art
hope you well , I'm receiving IMRT would you tell me which hormone treatment you are on . thanks
@@elsiaedsh Hey Sherif I'm on Elegard,. i get a lot of hot and cold sweats among other things, my last test results came back at 0.04 or somewhere around there. Going okay so far!
@@elsiaedsh hey Sherif, I'm on Elegard,, At my last check up my PSA was 0.04 or something around there my oncologist is happy!! I find the treatment causes hot and cold flushes similar to a women going through menopause. How's your treatment going?
@@RusticatedArt I can relate to the hot flashes. Just completed my first month of Lupron. Try DIM and calcium gluconate to scavenge excess estrogen. What a difference it's made for me. Cheers!
I started taking hormone therapy pill Orgovyx. Hot flashes are real. They interrupt my sleep at night. My testicles shrunk a bit as well. Not to mention I have soreness in them for a week. Now I’m good. I have absolutely no interest in sex anymore. I may be on it for 18-24 months. Having radiation therapy next month (2nd time) because this is my 2nd re accurate of it. This time less radiation sessions and dose. So that’s good. My PSA was only 0.38. Last texted in September. Hopefully I’ll be done with this cancer once and for all after all this
Don't stop weight training any way.
I'm concerned that this patient has an inappropriate treatment for his HIGH RISK prostate cancer which failed. He has now incurable metastatic disease. And still arguing against surgery or radiation??
Can you please provide Dr Bonds contact info and Dec Schulz contact info
I got PSA got radiation here I am
I was offered radiation seeds but not enthusiastically, full blown radiation was talked down about and radical surgery was queen of the prom, that's it, nothing else was brought up or discussed. And I have limited financial means,,,, if any. SMH.
Tumeric and black pepper 4 Time a Day
Turmeric destroys red blood celled
Really works ❤
What has all your drugs done to your kidneys
Forget biopsy !..your lookin for trouble
Or maybe you are looking to actually save your life by doing the biopsy; more specifically do the MRI fusion biopsy, which is much more accurate way to go.
Gave in to biopsy after 24 years psa going gradually up from 4 24 years ago to 19 in 2021.So after radical prostatectomy psa .9 so starting hormone therapy plus radiation therapy.....
@@rafaelcontreras2767 good luck brother. I’m 53 now. First diagnosed in 2010. Gleason score was a 7. Had a radical prostatectomy. Cancer came back about a year later. Had 2 months of radiation therapy alone in 2012. That seemed to work. Was in remission until January 2018 when my blood test revealed activity. PSA been rising ever since. Had PSA blood work done in September 2022. Score was 0.38. Started taking new hormone pill Orgovyx since February. Side effects are real and I’ve only been on the meds for two months. Starting radiation therapy again next month in April. This time it’s only 5 weeks. My cancer moved to a soft tissue area in my pelvic area. I hope this will be the last I deal with this cancer. We’ll see what happens.
@@andrewjones2133 What happens is 100% healing God willing. Keep the faith in God and everything He provides. Never quit. The 5 weeks will come and go fast.I know it's not fun. I load myself up with antioxidants and anti cancer foods and hard workouts. This is now part of my life. Will add you to my prayers for the men fighting cancer.Only requirement stay in the fight. I appreciate your reply. Thank you ! God bless.
@@rafaelcontreras2767 amen to that brother 🙏🏾. Thank you for the prayers