Glioblastoma Caregiver Journey
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- Опубликовано: 18 сен 2024
- Glioblastoma caregiver, Barbara, shares her experience caring for her husband, Bob. He had standard of care treatment at NIH and was stable for three-and-a-half years and then, had a recurrence, surgery and participated in a clinical trial. Learn more at ccr.cancer.gov....
This story really impressed me. My mom has had a galionlastoma, she gad a surgery and then went through radiotherapy and currently she is doing Chemotherapy. She finds it hard to speak although she knows what she wants to say. She lives in Iran and I live here in the USA. My depression is getting worse, I can't see my mom going through chemo. I know she is a tough strong woman but I have read that median survived length time is 16 months. Please, pray for my mom. We still need her.
Hi Nastaran, we are sorry to learn of your mother’s diagnosis with glioblastoma and what you are going through as a result. It can be difficult to be away from a loved one who has cancer. Support information can be found at www.cancer.gov/about-cancer/coping/caregiver-support. Several organizations provide free support services to those who are affected by cancer. Contact information for those organizations can be found at supportorgs.cancer.gov/home.aspx?lang=1. We also invite you to contact the NCI’s Cancer Information Service for further information www.cancer.gov/contact. Take care.
The chemo they give for GBM isn't as bad as others. My husband didn't get sick etc. However the 16 months was spot on for us so if you can find a way I would go and see her. Or call her every day❤️
My deepest condolences on the loss of your husband. You are a tough lady. Thank you so much for sharing your story. I suppose it’s comforting to hear how others had similar struggles. What a rotten evil disease.
Sorry for your loss this is a very helpful video thank you.
Thank you for sharing your story. I’m so glad you did get a dog.
Thank you for sharing ,my mom has this GBM diagnosis after Thanksgiving no longer waking or getting out of bed each day I see something different.
Hi Nina, We are so sorry to hear about your mom’s diagnosis. Watching a loved one change can be very challenging. You may be interested in the following resource for friends and family members of someone with cancer: www.cancer.gov/publications/patient-education/when-someone-you-love-is-being-treated. If you have any questions, we have cancer information specialists available to help at www.cancer.gov/contact. Take care.
My brother beat all the bell ccurves. Has survived for 3 and a half year battle with glioblastoma. He did so very well, for so so long. However the past 9 or 10 months has been a horrifying downfall for him. Incontinence been the WORST! On and off speech problems. Radiation did its damage. Can't stand or walk now. Currently is In hospital for past 35 days and they still cannot stop his 100 seizures a day hes having locally. He's suffering so much. Glioblastoma is really the devil himself.
Hi Michael, We are so sorry to hear about all your brother is going through. It is such a difficult thing to watch a loved one suffer. If you have any questions we can help with, reach out to the NCI’s Cancer Information Service at www.cancer.gov/contact. Take care.
@National Cancer Institute unfortunately my brother ended up passing away on 11/20/22 while he was on hospice. Such a sad ending, to a 4 year roller coaster emotional experiences. It was a somber Thanksgiving and Christmas
My wife passed February 7th 2022 from gbm grade 4 and we got diagnosed in august of 2020. I’m guilty of thinking I had more time with my wife and that’s something no matter what anyone says I will think about till I pass. She had favorable mutation we were young she was in decent shape and she wore the optune head gear. The tumor came back and from that point on I never truly had my wife 100% she struggled with words math and on Sunday night boardgame night I did her math for her. The tumor came and after resection I had my wife for another 8 months then she had severe brain swelling when the tumor returned and I never saw the detriment in her health and well-being because I lived with her her parents have since pointed out the problems and the fact she went quick completely unaware is about the best blessing I could wish on her. I want and always will more time but my wife went painlessly and that helps too. The last hair dresser she had has become mine for the souls reason KayLee’s hair was coming back and that hair dresser made my wife feel beautiful in her last weeks alive and I will never forget that since KayLee was so self conscious about her being bald from chemo and optune.
We offer our sincere condolences for the loss of your wife due to glioblastoma. Thank you for sharing your experience during her treatment and after she passed. Take care.
My husband went in the hospital with metastatic cancer which they didn’t know where it was coming from they kept giving him radiation to his hip for 28 days and then he died without explanation plus they made sure that he signed a do not resuscitate which had never done before he always wanted to live and be resuscitated I feel so cheated my husband was treated so poorly poorly
My husband could not walk after radiation at all and they kept doing it to him and then they wanted to do it was brain what she had a non-growing bubble and his bright I am a non-active aneurysm a small one in his brain and I refuse to let them put radiation on his brain but he died anyway 28 days after come in the hospital he was dead
Hi Cceleste, We are very sorry to learn of your husband’s passing and all that he went through prior. We offer our heartfelt condolences on your loss. If you would like any support during this time, contact information for organizations that offer support to those impacted by cancer can be found at: supportorgs.cancer.gov/home.aspx?js=1. Take care.