From feeling alone to making an effort to change the BBS world: Bendert De Graff
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- Опубликовано: 12 сен 2024
- Bendert de Graaf is the president of the Bardet-Biedl Stichting Association in the Netherlands, and board member of BBS International.
He shares his family's story of having a child with #bardetbiedlsyndrome and why it's so important for the BBS community to work together internationally.