Time stamps and subjects: 4:43 - Effects of testosterone on MS 7:35 - Dr. Boster Briumvi (Ublituximab) thoughts 10:18 - Burning skin 13:49 - Tysabri and the JC Virus 20:11 - Dr. Boster Tecfidera thoughts 23:26 - SPMS non-relapsing non-active - still need DMT? 26:14 - Untreated diabetes cause MS? 28:46 - MS Clinic won’t test testosterone 29:42 - Certified patient expert advocate 31:51 - Seeing patients after advanced disability, when Dr. Boster stops seeing patients 34:52 - How long are lesions “active”? 36:37 - Breathing issues and MS 39:00 - Estrogen and MS 41:48 - Tysabri and cancer treatment 43:28 - levocarnitine and acetyl carnitine - Dr. Boster thoughts 45:30 - Oral steroids vs IV efficacy 48:08 - HSCT and temporary menopause 48:34 - Ocrevus and diarrhea 49:56 - RIVER pup 50:56 - Mammograms 52:24 - Estrogens and blood clot risks 53:54 - Long term Ocrevus observations 56:15 - No fatigue and cog impairment - will it come? 58:40 - Difference between Carbamazepine (Tegretol) and Amitriptyline? 1:00:18 - How much vitamin D for an MS patient 1:02:59 - Biomarkers for MS 1:05:34 - BTK treatment updates? Great live, thanks Dr. Boster! 🔥🔥🔥
Great information as always- Sorry i missed it- I was at church ⛪️ 🙏🏻🤘🏻😷 Catching replay- was able to share when you went live. AMA are always treats for all who get to tap your brain 🧠- ty for educating us. #StrongerTogether
Love the purple door! Love your chickens. Love the outside chats you have posted. That sunset! The artsy style... are stress relievers for me. I love the humor and fun you express, too. I am so glad I found you on RUclips. Your information has been valuable to me and my health concerns. I have no diagnosis, will see a neurologist in September for the first time. I just viewed your view with the link to this one. You spoke about stress and it was the perfect one for me to land on for today! I have added your videos to my "Must See Daily" List and my "Get Well" journey is greatly improved by your sharing and caring. ❗💜❗ THANK YOU SO MUCH -- Keep up the great work!
Loving the recording - I missed it live. I am currently on the Star MS Trial and I am on Kesimpta. I have been on it since March, but I recently had an MRI as I believe I have had a relapse. Fingers crossed that the Kesimpta helps as I have already had two relapses since August last year. I was only diagnosed in December and your videos have been SUPER helpful. Thank you for what you do! :D
This was an excellent show. Of course I missed it live but watched the second time around.i have be happy the last few days I got a report which says. *MS* such a relief now I can get the right meds. March 6 2023 I lost my voice too. I work on it , but have a very unpredictable studder it could be worse ,but I am ashamed to talk in public , hoping I get over it soon. Thank you for being here for all of us.
On the replay tuning in from Newfoundland, Canada. Love how entertaining and informative your channel is. Thank you. What are your thoughts on neck injuries associated with MS? Keep up the good work! -Tonia
Can you post a link or point me in the right direction regarding the article you recently read about the relationship between low or varying estrogen levels and MS symptoms?
Thank you for your indefatigable commitment to educating people on "their" MS! I wonder if could you make a video about MS and HIV and Prep. I.e. The risks incurred when taking Pre-exposure prophylaxis treatments, and risks of changing our HIV status. I am a gay man and such issues are unfortunately commonplace in my cohort. Beside, there is very little information available perhaps due to lack of data with newer DMTs. Perhaps these issues would feed into a video and sexuality in general. Thanks again.
Hi Dr B missed this one but tuned in for the replay Maybe a good Q for another time. Re PML and Tysabri. Did any cases come out during the clinical trials? Ty was taken off market around 2004/5 and put back on with the black label warning. Did Biogen have any cases that came up during trials? Seems like it would’ve have surely if not why?
Thank you so much Dr. Boster for answering my question at 24:02. If possible could you provide a link to the data you cited, where Ocrevus was compared to Rebif with better outcomes in regards to PIRA?
Actually, never mind, I found it. 😀 Instead could I ask, given this data, how would you account for the fact that Ocrevus didn’t demonstrate efficacy in SPMS in early clinical trials?
I’m wondering about radiologists MRI readings…why don’t they relay back from the diagnosing MRI? For instance, my first MRI report had Dawsons Fingers, and it hasn’t been mentioned in the following 9 MRI reports I’ve had.
Hello! Back in 2020 I was diagnosed with RIS with the neurologist I am seeing. Have had a MRI annually and this last MRI showed a need lesion. But my exam was good except for the movement of my eyes from moving side to side. Neurologist is suspicious for MS. The only episode I had was in 2020 with bells pasley but have been fine ever since. Not sure how to feel about all of this. I am 49 and rather surprised this could be MS. I did have a spinal tap in 2020 nothing in my spinal fluid and no lesions on neck or spine. Neurologist felt comfortable with me checking back next year for another MRI on my spine and maybe possibly another spinal tap. Was recommended to start taking vitamin d3 2000 iu a day.. my vitamin D has never been tested. Thanks for all your info.
Missed this. But watching this, I came to the point of active and that got my attention particularly. My MS is highly active. So far, haven't had relapse after Mavenclad (except after COVID-19 infection). Otherwise, I'd get around 3 or more relapses a year.
Sorry I missed it Dr Boster. But... have you ever seen a correlation between M.S. and pneumonia ? My aunt and I have a similar testimony that began with pneumonia.
I had an episode that was very scary to me. I am on pain medicine and they did not have it 16 hours. My body was going through withdrawals and I started having spasms. My spasms were really bad and my body was stiffening up so bad that it made me scream from the pain. The 16-hour when they did get my pain medicine which was from the Pharmacy. Completely stop spazzing. During my spasm episode I was on Tizanidine. That medicine only helps me a little bit. It made the spasms bearable. I am afraid that if the pharmacy delays my medicine I will have another episode. What other things can I do to prevent this from happening? My body still hurts from that episode and it's been three days now. I am so scared.
How do I know which doctor to go to for symptoms? Recently found out I'm anemic. Feeling very off balance and a little dizzy at times. Do I see my PC or neurologist?
So sorry I missed this live stream. About when is the projected timeframe for the BTK Inhibitors to approved? I’m currently on Ocrevus and my IGG is low enough that my neurologist may take me off. TIA
My neurologist said cell transplant is too dangerous n not always successful. Specially if you're progressing independently from new lesions. Soo sad bcuz I had hope of not getting MS cured but have a none active or feeling normal without MS symptoms. Like selma blair appears to have overcome all her challenges MS had, such as speech issues n gait instability after her stem cell transplant.
Sorry I missed your live stream Can I ask you can you do a full stream on the effects of testosterone treatment on ms as I live in the UK and have low testosterone but finding it hard for doctors to take this into consideration as a treatment for my ppms I personally think this is a way of slowing this disease it would be nice to hear you views Thank Chris
Love your videos, very generous of you to share with us !! I have had MS for 30 years, been on many therapies & currently on Rituxan. Tried Ocrevus few years back for 1 1/2 years and went back to Rituxan as it's much better for me. * Not a fan of the cartoon faces , quite distracting . My opinion is you are already a "cool guy" so you don't need this!! I thinks it's juvenile , kind of insulting as MS is very serious topic to me. Just my opinion and NEVER insulting you and you're wonderful content🙌
Time stamps and subjects:
4:43 - Effects of testosterone on MS
7:35 - Dr. Boster Briumvi (Ublituximab) thoughts
10:18 - Burning skin
13:49 - Tysabri and the JC Virus
20:11 - Dr. Boster Tecfidera thoughts
23:26 - SPMS non-relapsing non-active - still need DMT?
26:14 - Untreated diabetes cause MS?
28:46 - MS Clinic won’t test testosterone
29:42 - Certified patient expert advocate
31:51 - Seeing patients after advanced disability, when Dr. Boster stops seeing patients
34:52 - How long are lesions “active”?
36:37 - Breathing issues and MS
39:00 - Estrogen and MS
41:48 - Tysabri and cancer treatment
43:28 - levocarnitine and acetyl carnitine - Dr. Boster thoughts
45:30 - Oral steroids vs IV efficacy
48:08 - HSCT and temporary menopause
48:34 - Ocrevus and diarrhea
49:56 - RIVER pup
50:56 - Mammograms
52:24 - Estrogens and blood clot risks
53:54 - Long term Ocrevus observations
56:15 - No fatigue and cog impairment - will it come?
58:40 - Difference between Carbamazepine (Tegretol) and Amitriptyline?
1:00:18 - How much vitamin D for an MS patient
1:02:59 - Biomarkers for MS
1:05:34 - BTK treatment updates?
Great live, thanks Dr. Boster!
🔥🔥🔥
Thank you!
Great information as always-
Sorry i missed it- I was at church ⛪️ 🙏🏻🤘🏻😷
Catching replay- was able to share when you went live.
AMA are always treats for all who get to tap your brain 🧠- ty for educating us.
#StrongerTogether
Ps- the bald look is in
Hi - was just at my specialist today. Talking to you from Mornington in Victoria, Australia :)
Hello there!
Thank you so very much! Really appreciate you
Thank you Dr B ❤❤❤❤❤
Thank you so much 💙 For doing what you do Dr.B
Hi Dr Boster. Ridgeway Ohio
Dr vous parlais tres bien le France
Penny from UK
Darn - missed you! Still awesome on replay 😁🔥🔥🔥🔥🔥
Next time!
Well we are here so let’s watch it together , hi I’m from Colorado
I am so sad I missed the live ... again
Paris replay crew 😊
🤩
Your French is FANTASTIC!
Merci bien!
Have my morning coffee
Love the purple door! Love your chickens. Love the outside chats you have posted. That sunset! The artsy style... are stress relievers for me. I love the humor and fun you express, too. I am so glad I found you on RUclips. Your information has been valuable to me and my health concerns.
I have no diagnosis, will see a neurologist in September for the first time. I just viewed your view with the link to this one. You spoke about stress and it was the perfect one for me to land on for today! I have added your videos to my "Must See Daily" List and my "Get Well" journey is greatly improved by your sharing and caring. ❗💜❗ THANK YOU SO MUCH -- Keep up the great work!
So sorry I missed you’re live!!!
Oh missed you, was in bed snoring. I take pregablin and have done since 2015, it doesn't always stop the pain and discomfort of ms symptoms.❤
Sherry in Tennessee
Thank you for the live video on Saturday seen on Sunday morning.,Doug coffee in hand from Lyndhurst Ohio.
Hope you enjoyed it!
Loving the recording - I missed it live. I am currently on the Star MS Trial and I am on Kesimpta. I have been on it since March, but I recently had an MRI as I believe I have had a relapse. Fingers crossed that the Kesimpta helps as I have already had two relapses since August last year. I was only diagnosed in December and your videos have been SUPER helpful. Thank you for what you do! :D
🙋♀️ From Texas💙
Dr. Boster I’m curious what made you decide to be an MS specialist? Great info
Hey Doc, Jeff from Cleveland, Ohio.
The replay I'm from New Jersey
This was an excellent show. Of course I missed it live but watched the second time around.i have be happy the last few days I got a report which says. *MS* such a relief now I can get the right meds. March 6 2023 I lost my voice too. I work on it , but have a very unpredictable studder it could be worse ,but I am ashamed to talk in public , hoping I get over it soon. Thank you for being here for all of us.
Good to see your cat tower - Mine love theirs too. :)
The best!
On the replay tuning in from Newfoundland, Canada. Love how entertaining and informative your channel is. Thank you. What are your thoughts on neck injuries associated with MS? Keep up the good work! -Tonia
Hi Aaron here from lancaster pennsylvania
I so wishes I was there live! But I was able to watch replay. Thank you so much for your valuable information! From Colorado!
Next time!
“I’ll answer a question as ZZ Top.” 😂😂😂 excellent Dr. B
I am in UK love the information you put out here 😀
Awesome! Thank you!
Hi Dr B jacq from Nottingham uk
Hi I’m late but paying attention
Hi from Mikie in Sun City, Aizons
Omg I'm going through perimenopause now and now I have been diagnosed with highblood pressure and a possible enlarged heart.
Lynn, Sebring FL
Sorry I missed the live stream
Can you post a link or point me in the right direction regarding the article you recently read about the relationship between low or varying estrogen levels and MS symptoms?
Hello from Israel love your video thanks
Thanks for watching!
Thank you for your indefatigable commitment to educating people on "their" MS!
I wonder if could you make a video about MS and HIV and Prep. I.e. The risks incurred when taking Pre-exposure prophylaxis treatments, and risks of changing our HIV status. I am a gay man and such issues are unfortunately commonplace in my cohort. Beside, there is very little information available perhaps due to lack of data with newer DMTs.
Perhaps these issues would feed into a video and sexuality in general.
Thanks again.
Hi Dr B missed this one but tuned in for the replay
Maybe a good Q for another time. Re PML and Tysabri. Did any cases come out during the clinical trials? Ty was taken off market around 2004/5 and put back on with the black label warning. Did Biogen have any cases that came up during trials? Seems like it would’ve have surely if not why?
Hi from Michigan
Howdy
Freeland MI
When taking OCREVUS when should you receive immunization shot?
Thank you so much Dr. Boster for answering my question at 24:02. If possible could you provide a link to the data you cited, where Ocrevus was compared to Rebif with better outcomes in regards to PIRA?
Actually, never mind, I found it. 😀
Instead could I ask, given this data, how would you account for the fact that Ocrevus didn’t demonstrate efficacy in SPMS in early clinical trials?
because the early clinical trials were not constructed to answer that question.
@@AaronBosterMD Ah, gotcha. Thank you!
Nooooo I missed it !! 😢
From aspen Colorado
I’m wondering about radiologists MRI readings…why don’t they relay back from the diagnosing MRI?
For instance, my first MRI report had Dawsons Fingers, and it hasn’t been mentioned in the following 9 MRI reports I’ve had.
I'm wondering if I should go back to KedimptaI. I need to tell you that I went back to Aubagio
Right arm numbing with pain for ten days now
Need a neurologist in Tampa
Hello! Back in 2020 I was diagnosed with RIS with the neurologist I am seeing. Have had a MRI annually and this last MRI showed a need lesion. But my exam was good except for the movement of my eyes from moving side to side. Neurologist is suspicious for MS. The only episode I had was in 2020 with bells pasley but have been fine ever since. Not sure how to feel about all of this. I am 49 and rather surprised this could be MS.
I did have a spinal tap in 2020 nothing in my spinal fluid and no lesions on neck or spine. Neurologist felt comfortable with me checking back next year for another MRI on my spine and maybe possibly another spinal tap. Was recommended to start taking vitamin d3 2000 iu a day.. my vitamin D has never been tested. Thanks for all your info.
Jacqui from Nottingham UK
🔥🔥🔥🔥🔥🔥🔥
Missed this. But watching this, I came to the point of active and that got my attention particularly. My MS is highly active. So far, haven't had relapse after Mavenclad (except after COVID-19 infection). Otherwise, I'd get around 3 or more relapses a year.
Is autonomic dysfunction connected with my
Sorry I missed it Dr Boster. But... have you ever seen a correlation between M.S. and pneumonia ? My aunt and I have a similar testimony that began with pneumonia.
Tony from London
🔥🔥🔥
Will MRI detect all MS lesions?
Hi lynnsdancers from Corona ca
How do I find out when next live show is?
Is autonomic dysfunction connected to ms
I had an episode that was very scary to me. I am on pain medicine and they did not have it 16 hours. My body was going through withdrawals and I started having spasms. My spasms were really bad and my body was stiffening up so bad that it made me scream from the pain. The 16-hour when they did get my pain medicine which was from the Pharmacy. Completely stop spazzing. During my spasm episode I was on Tizanidine. That medicine only helps me a little bit. It made the spasms bearable. I am afraid that if the pharmacy delays my medicine I will have another episode. What other things can I do to prevent this from happening? My body still hurts from that episode and it's been three days now. I am so scared.
How do I know which doctor to go to for symptoms? Recently found out I'm anemic. Feeling very off balance and a little dizzy at times. Do I see my PC or neurologist?
So sorry I missed this live stream. About when is the projected timeframe for the BTK Inhibitors to approved? I’m currently on Ocrevus and my IGG is low enough that my neurologist may take me off. TIA
Jj in so cal
Huntington Beach, California🇺🇸
How to avoid the wherlchair!!!!
Embrace the wheelchair but don't have to give up. I had a good day , hope you get one soon
Do u patients from other states?
Okay, @ min 40.... why don't we keep women on higher estrogen........oh heck, you just answered it. But I didn't know that we could ask for hormones.
I’m new in the world of MS. I have a question. All the nerves in the back of my legs are dead. Ouch! Any ideas on how to manage the pain?
Have you ever tried keto tape &burn spray it helps me
@@triciasproles5831 neither do much to alleviate the crashing pain…which haunts me all night long
🔥❤️🔥🔥❤️🔥🔥🔥❤️🔥🔥🔥🔥❤️🔥🔥🔥🔥🔥❤️
My neurologist said cell transplant is too dangerous n not always successful. Specially if you're progressing independently from new lesions. Soo sad bcuz I had hope of not getting MS cured but have a none active or feeling normal without MS symptoms. Like selma blair appears to have overcome all her challenges MS had, such as speech issues n gait instability after her stem cell transplant.
Sorry I missed your live stream
Can I ask you can you do a full stream on the effects of testosterone treatment on ms as I live in the UK and have low testosterone but finding it hard for doctors to take this into consideration as a treatment for my ppms
I personally think this is a way of slowing this disease it would be nice to hear you views
Thank Chris
🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥
Sorry I missed it. Watching the replay from Texas.
❤❤❤❤❤❤❤❤❤❤❤❤❤
👍😎❤️🖐️🤣
Love your videos, very generous of you to share with us !! I have had MS for 30 years, been on many therapies & currently on Rituxan. Tried Ocrevus few years back for 1 1/2 years and went back to Rituxan as it's much better for me. * Not a fan of the cartoon faces , quite distracting . My opinion is you are already a "cool guy" so you don't need this!! I thinks it's juvenile , kind of insulting as MS is very serious topic to me. Just my opinion and NEVER insulting you and you're wonderful content🙌
💐 "promosm"
Is autonomic dysfunction connected to ms
Is autonomic dysfunction connected to ms
Is autonomic dysfunction connected to ms
Is autonomic dysfunction connected to ms
Is autonomic dysfunction connected to ms