Patient Presentation: Lisa Kokanie

Presented at the 9th Accredited ILC Conference: A Lifetime of Learning on Saturday, November 5th, 2022.
Our mission at The ILC Foundation is to help individuals overcome the challenges of living with Ehlers-Danlos Syndromes and other chronic pain diseases through knowledge, sharing resources, awareness, education, peer support, and research to find cures. Learn more at theilcfoundation.org

[@cagleaf]

You did such a great job explaining the way I feel without a diagnosis after many many years! Thanks for sharing.

[@boolets22]

HI ISAACS MOM! ITS ME JSPONTANEOUS!!!!

[@Butt-thotics_learn]

Cervical instability. Need proper dynamic scan of neck. Brainstem damage possible chiari. Anyone on the hypermobility spectrum is 5 times more likely to be giving themselves a mild traumatic brain injury on a daily basis. Common to have pots, mast cell activation and all sorts of dysautonomias or systemic dysfunction. You are more common than you think. All doctors should know this, but sadly do not.