The Spoon Theory - Living with Chronic Illness
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- Опубликовано: 20 сен 2024
- Spoon theory has been used to explain what it is like living with chronic illness like multiple sclerosis (MS). It was introduced in 2003 by Christine Miserandino. She used it to explain what it is like living with chronic illness. In this video I explain what spoon theory is and offer tips on managing our spoon count.
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Do you try to increase your spoons?
I did a workshop for some of my spoonie friends at a retreat. They had never heard of the theory before so it was fun to teach them what it meant. We also did a craft afterward, everyone got a wooden spoon and got to decorate it with the glitter, bells, tinsel, ribbon, anything they wanted. We all put "My Last Spoon" on it so we had one left for each day, a symbol of never run out of your spoons. It's probably the best explanation I've ever seen for any chronic illness. It works for Lupus, MS, fibromyalgia, and many others. My husband will even ask me if I have enough spoons when we're doing something and he will whisk me away if I'm getting tired. A good partner who understands both your illness and the spoons is a wonderful person to be with. :)
I love that you decorated spoons and called them “my last spoon.”! You are so right, it is key to have a person that understands and can whisk us away!
My neurologist told me about the spoon theory today, as a teen with two different chronic conditions it makes me feel so seen! I like that it explains why I can't do everything my friends can. For anyone else with dysautonomia symptoms, something that really helps is carrying around an ice pack and cold with me in the summer to help regulate my temperature
@@Will_Tree thanks for watching. Carrying an ice pack is a great idea.
Yesrerday, I spent the entire day not being able to do anything because the day before i ran out of spoons and even tried to use a handful of forks to get me through the day. Today, i came across your video and i take it as a sign. I needed to hear your message to remimd me that i cant expect to run 100mph like i did before. I know it sucks, and i do not like being unproductive, but somehow i need to find and make peace with myself amidst my limitations. Thank you for putting things in perspective.
Aw, I am sorry you ran out of spoons (and forks)! It is all about finding a balance of using our spoons and replenishing them isn’t? Have a nice glass of water, a good diner, and a restful sleep. Tomorrow is a new day!
You explained the spoons so well! I can identify with them all, like making a meal and being too tired to eat, & for me showering & washing my hair uses several spoons. And when I run out of spoons, my body just shuts down. I try to plan my day so I can do things in spurts, and rest in between. I have a cup of coffee in the morning, & then drink water for the rest of the day. And I eat a healthy plant based diet, with lots of green veggies!
The showering and washing of hair for sure! Is like the water washes away our spoons.
Had a friend tell me I had ran out of spoons for the day and this is how I heard of this lol.
@@milosheppard7261 time to add more spoons!
Thank You for posting this. This is very true ...barely makin it some days...very hard...i am glad you explained this . Yes i can relate all the time . This stinks. I have MS
Thanks for watching. Yes, some days are very hard.
I take breaks from the news. I need to drink more water. I am constantly working on my diet. I have terrible sleep up every two hours but sometimes lyriica helps that. I always need and want more spoons. Thank you for this informative video. Love your vids! Sending best wishes for good health. ❤
Thank so much for watching! Taking breaks from the news is great idea. I zaps us doesn’t it?
If you can still work, go out with friends, shower daily and leave the house please consider yourself to be VERY fortunate because you haven't experienced the worst aspects of chronic illness.
@@michele0324 thanks for watching. Yes, I do consider myself fortunate. We do the best we can with chronic illnesses and replenish spoons as we can.
Great explanation I love it
Thanks so much for watching! Spoon theory is a great way to visualize living with chronic illness isn't it?
Another informative and inspiring video. How have I never heard of the spoon theory? I will certainly share with many. Thank you for all your great work.
Good morning Ann! Thanks so much!
Using spoons is great to explain MS. People will get it. But I used decorative stones, the kind you find at Walmart. I would count out at least 30 of them, depending on my daily activities. Each stone would represent a daily activity. For example your morning routine(getting up, going to the bathroom, having a shower, getting dressed, brushing your teeth…) having breakfast, making breakfast, would constitute as many as 10 or 12 stones. Those stones would then be taken away from your 30 stones. Each activity you do would take away a stone from the pile. Until finally you’re down to 4 stones, or less, before crawling into bed. And you haven’t even considered reading or medication before closing your eyes. This method got people to understand what a person has to go through on a daily bases. No matter what the decease was. And I have been using this method for years. It’s nice to know my method wasn’t crazy.
I love the idea of decorative stones! Another great way to visualize it.
I've tried explaining this to people but it didn't nearly come out making as much sense 😅 I think moving forward ill just send them this video
Thanks for watching and sharing!!
Now this video hits a homerun to the first pitch to me.I mean a bull's eye shot right on target. I couldn't have described better that analogy for fatigue. Okay well maybe i would choose to use batteries instead of spoons but hey, The Matrix will do just fine. And it reminds us that spoons can be bent if we bend our minds first.
Greetings from Athens 🇬🇷
Thanks so much!! I love the idea that spoons can be bent too! 🥄
@@EvenSoItIsWell
But we need to focus first and make a conscious and consistent effort which is the tricky part. Avoiding doozy steps is an art all by itself. Easy to start and hard to master. (Consistency).
,🍽️🍖🍗🍔🌭🥪🌯🌮🍕
@@GenerationX_GR you write wise words my friend!
@@EvenSoItIsWell
Why thank you!
Well actually to be honest with you i had some days of tutoring in my youth from Master Yoda during my early star-wars years, and those I reckon must have been paid off.
Woot ! Happy Holidays 🎉
Excellent video 👍
I didn’t know how it came about. For me, keeping “on an even keel” is so important, otherwise I end up borrowing spoons from the next day and go into “Boom & bust” - it’s difficult to do, though, as it all seems such a fine balance!!
It really is a fine balance isn't it?
@@EvenSoItIsWell
That’s certainly what I find!! Always a struggle not to do too much, it seems….which limits the increase in spoons 🤔
Yes I’m running out of spoons so early in the day because in my mind I have unlimited supply of spoons but in reality I only have ten.
It is so awesome that you think you have more spoons! Now is the time to make adjustments to get more!
On one of your talks you had mentioned feeling little shocks. Sometimes I get little zaps on the tip of my tounge. Does anyone know anything about that, ever had that?
Thanks for watching. There is something called Lhermitte's sign that typically causes an electrical or zapping down the neck or spine. There is also a condition called Trigeminal neuralgia that affects the nerve along the side of the face that can cause pain. Please check with your doctor and describe the symptoms. I hope you can find relief!
Salt seems to diminish the number of spoons I have, if I have too much by mistake 👨🔧
Oh interesting! I have read that too much sodium may be problematic for people with MS but haven't made the connection to spoons or energy.