I Had an Episode and Didn't Recognise Our Cat
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- Опубликовано: 6 сен 2024
- hi everyone🤎a bit of a spontaneous video today. this was filmed on saturday the 11th of november. at first i set up the camera myself, as i thought a tonic-clonic seizure might be coming and i often want to see them afterwards to know what my body did. but the tonic-clonic i was expecting never happened and instead it was a very odd episode, so mum filmed the rest for me to see as afterwards i don't remember everything. these aren't new for me, i've had hundreds but every episode similar to this is slightly different, and because Lottie was on my knee, a lot of this episode revolved around her🐈⬛
why i am choosing to share this:
i have said before that encephalitis can cause a change in character/personality and people have asked me what i meant. i thought this video shows it perfectly. anyone that knows me knows that Lottie and I are peas in a pod, she is always with me and searching for me. i love her so much and so watching me like this and even getting annoyed at her is very strange and was quite hard for me to watch back. (and it obviously started to hit me at the end!)
even my voice is not like mine, the way i stroke Lottie, is all very different to my usual self. not many have heard of encephalitis so as always i show things that are rarely seen or talked about in hope of raising awareness as well as talking you through the episode with me so people can learn🤎🫶🏻
ANNOUNCEMENT: this was very highly requested and now that a medical plan is in place, we have started a gofundme. I will leave the link here: www.gofundme.c... if anyone would like to donate but please don't feel you have to, simply watching and engaging with my content is also a big help. HUGE thank you to those who already have, my first ever infusion has already been covered (WOW) and i can now get a new wheelchair. i am feeling extremely loved and lucky🥰✨🫶🏻
thank you xx
if you're new here i have a condition called Autoimmune Basal Ganglia Encephalitis. this means inflammation of the brain, which causes me to have these episodes. with treatment, they go away🤍🧠
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Your cat understands, she is supporting and keeping an eye on you.
As a med student this is really interesting to see, since its something we barely get to see and I thank you for educating everyone here, and as a fellow human, i want to say it's very brave of you to upload this, thank you very much, wish you the best!
You should show this to your professor, so he or she can teach this more often, theres so many disorders that go unnoticed cause it's not trained or taught
@@LyraPyxisVT well... I say student, but I'm actually doing my social service, so I'm not taking classes nor do I have professors, but this does help my friends and colleagues, but it's just easier to say "med student" so yeah
@@ivandelarosa6267 ah, ok
I never realized how long seizures can last. Iv had two major seizures in my lifetime and many many petite mal where I just kinda look zoned out. This was very different from my experience and I can only imagine being confused and "faded" for such a long moment in time. Let alone forgetting yourself or others around you. You have a wonderful support system! And your mother is right! Everyone likes you and you are very loveable! I wish you only the very best and if I happen upon some extra cash I'll try to remind myself to come donate to your cause! It's hard living like this!
You are the Brave Evie I've seen your videos Love you Evie 😊
Lottie was totally relaxed during the whole video. She really trusts you.
When Evie pulled her fur, she reacted like "What? I'm clean."
I can't imagine how scary it must be to not recognize your family, your cat, or your home. You are so strong, Evie, and we're all here for you ❤💚🐼
I love how your mum comforted you during this, ‘ur very likeable and lovable’ I couldn’t agree more, you are such an inspiration for sharing things like this for awareness. I would have never known that seizures aren’t just the convulsions. ❤
The Mum we all need!
Lottie is so sweet. She didn’t give a flying 💩 about being poked. Animals are the best
Near the end when you were saying sorry to the cat and I saw you Evie getting emotional I also got emotional. I am sitting here with tears rolling down my face. I love you Evie. I am behind you 100000000000000% I felt your emotions near the end. You are so strong! I look up to you!
Same here 😢
watching you be confused about what was happening was hard. but lottie stayed with you. like she knew she was needed. almost cried seeing the loyalty of animals and how your mum was reassuring you.
Lottie loving her human even when you aren't feeling great is a true bond. I hope treatment works well for you encephalitis sucks so much x
Cats know when something isn't right. When I was younger, my then-roommate and I had a cat. After one Thanksgiving, we both somehow ended up with food poisoning. This cat - an outdoor cat who rarely stayed still - stayed curled up on my bed with me for almost the entire day.
@@EsaLena1 Absolutely, I have three cats and even the mean stray knows when someone needs a cuddle
I honestly don’t know how you deal with this, but you’re so brave for posting the good and the bad, I’m sure you know but you are a very inspirational person ❤
Evie: I'm sorry I was mean to you :(
Lottie: **elevator music playing in her head**
(All jokes aside I'm sorry you went through that, I hope the injections give you the life you deserve ❤️)
oh my gosh evie, i saw you talked about this on instagram but watching it is so different. i hope you know how much this helps people all around the world. i personally didnt know anything about PANDAS/PANS or brain inflammation until you started talking about it and now i try and educate people around me about it too. i started tearing up when hearing your mom try and tell you who she was. this must be so hard for you both. my dad has early onset alzheimers and its hard trying to explain who i am to him so i cant imagine your mom having to do that to her own daughter. im sending so much love, i started following in mid 2020 and ive learned SO much. and i hope i keep learning more too. love you evie
Nearly started crying as you noticed that your cat’s still there, I remember that pets stay no matter what’s going on.
Poor Evie. Hope you're feeling better now. You've got a lovely mum and a lovely cat. It's very brave of you to post videos of yourself when you're poorly and vulnerable. Very educational for those of us who know little about the practical effects of PANDAS or encephalitis.
I've had similar episodes due to my dissociative disorder and presyncope episodes, so I know how terrifying it can be to not recognize things that you know should be familiar. The way everything just feels wrong. You're one of the strongest people I've ever seen, and I appreciate you posting this. Sure makes me feel like I'm not alone, so I hope this comment lets you know that you're not alone either.
I was thinking the same! I have osdd b. I keep memories but not emotions however my memories blur and fade if im dissociated a long time or switch too much. Mostly reminded me of DID which is wild
Us too, it sucks :( sending all the love to anyone and everyone who experiences this
I struggle with dissociation as well 🖤 I'm not sure the last time I had an episode, but im always nervous about having another one because I feel embarrassed when I stop being present in front of people. It's scary not remembering things
@@flameepidemic4839 hey! do you get confused for a while after you wake up as well? sorry if its a random question lol
My daughter suffered with all the same types the seizures for years. Doctor's did nothing until we found one who would listen. She had a tumor requiring her right hippocampus to be removed. 100% recovery and no more seizures. I hope this cures you and you can start living a more filling, independent life.
Omg when she apologised to the cat I couldn’t hold back my tears 😭 she’s such a lovely girl, it’s sad to see her so upset and going through this, but she’s handling so well, so brave❤
Such a sad and touching video😢
I cried when her mum answered "mum" when Evie asked her name.
I loved her cat comforting her during the episode. Everyone in this video is so sweet.
Hope you have a peaceful day, Evie.❤
I get dissociative amnesia where I forget things like my cat and close friends. Not being able to recognize things that usually bring me comfort is awful. Im so sorry you go through similar episodes. Thank you for posting this, you always make me feel so much less alone
Aw sweetie, well done for getting through these scary episodes - you are so brave! Bless your lovely mum (and Lottie too) for helping you through these seizures. Fingers crossed on your treatment. Take care.
It never ceases to amaze me the gentleness, kindness, caring, and love your mum shows to you. I know what it is like having a family member that needs constant care and it is exhausting, yet your mum carries on through it all, by your side just being your best support. All children deserve a mum like her she is fantastic.
Evie I am sorry for what you are going through, sharing it with us is very brave but it helps us understand these disorders more. You show yourself at your most vulnerable and it is just a small window into your life. I am thinking of you and hoping for new treatment options that will help you have a better quality of life overall.
I had a tonic clonic last year and also didn't recognise our cat! I remember how disorientating it is cant imagine how hard it must be having frequent ones.
“Everybody likes you darling” 🥹💜 that’s true Evie, we do like you! 💕
Oh man, it’s painful to see you having tough times Evie, but you’re amazing, and so is your mum.
I have brain fog and confusion, and mixed with overstimulation or anxiety episodes I get like this. I get so so frustrated. In a way, I understand what you’re feeling girl. Thank you for putting your experiences out there. I know I still struggle with feeling ashamed of my episodes. Seeing you take the leap to post this has cured some of that inner fear I think. Proud of you, much love, and thank you from a fellow disability advocate ❤️
You can tell your cat is very content with you other wise she wouldn't of sat on your lap❤
This is so heartbreaking to see but I love watching these types of videos to get informed ❤️
Ur mum was amazingly calm and comforting. It must be scary for both of you to experience that. Big hugs x
I teared up a bit watching this😢 I've been a follower since 2019. It hurt my heart a little to see u so confused and distressed. Ur mum is right. "Everybody likes u" and for good reason❤ ur the sweetest person online I know, and such an inspiration. I'm so happy you finally have a treatment option, u deserve peace❤❤
I hope this video reaches a lot of kind and lovely people around the world and helps you get your life back! I didn't know we had such innovative treatments here in Poland. Greetings! Hope to see you soon
Your mum reminds me so much of mine! She’s so sweet and calming to you. it makes me happy that you’ve got such amazing support, human and furry. ❤
Animals are so awesome, My cat is there for me when I'm having a moment. What amaze me the most is that we can see you are trying to process what's going on, It shows you resilience and the knowledge you have to understand your body. You did your best with what you had, thank you for sharing and sending awareness to this. It is odd for those who don't know but its also such a complex diagnosis to understand, don't blame yourself, you deserve compassion and kindness 💜
i dont know why but this video has me crying. you’re so so strong evie, and so loved. thank you for doing what you do.
“she cant hear anything anyways, shes deaf!”
Awwwww 😖
I really hope you can get the help/treatment that you so desperately need/deserve, Evie. I dont have money right now to donate but ill share your stories to my instagram story, okay? 🤟🏻🤟🏻🤟🏻
I wanted to thank you and say how brave you are to share this with us, help educate people. What you go through and experience looks very similar to my seizures/episodes, it took a very long time to get my diagnosis but 2 years ago now I was diagnosed with FND (Functional Neurological Disorder). Sending you love and strength from Australia 🇦🇺 ❤❤❤❤ ( your beautiful Cat knows you need her and she stays near you, I have a furbaby dog that alerts me when a seizure is coming on and she lays beside me until it has passed, animals are very intuitive and love unconditionally)
It broke my heart how you could recognize you mom or cat, I know that this is something that you've been experiencing for a long time but it's still terrible and I'm sorry that you have to go though it. I really hope that the treatment helps you ❤
*couldn't
This really has just left me sobbing. I am in admiration and awe of you, Evie. And lottie too
She really knew you needed her, she was so tolerant and made sure she didn’t leave your side ❤
I will find ways to raise money to help you with the medical treatment you deserve. 💕
I hope you’re feeling okay today
Wow So much is changed , seeing video's from the years 😢
I have Great Respect for You and your Mum 🫡
Hope the days get better in 2024 🌹
That cat's bond with you absolutely precious. Honestly it makes me appreciate my mini panthers so much more, (I have three). I am so glad she is there for you and your mom to help you through these difficult times. Evie, I love you and thank you for sharing your difficult journey to educate people about it. I may or may have not bawled my eyes out at that bond. She is so tolerant. But the best mini panthers are.
I'm so proud of you for uploading this, I know it's difficult for you. You help to raise awareness. It's heartbreaking to see that you have to go through this almost every day. And I also wish you didn't have to give a reason for simply raising awareness for your illness. All of us that love and support you already know you don't just do this for views or attention and to know there's people that think badly of you for showing what this illness can do is honestly terrible. Stay strong Evie, we love you ❤
We are all here with you ❤
i feel so much empathy for you, my heart was aching this entire video. i’m tight for money at the moment but i will share this video with everyone i know can help. you can do this ❤
As someone who also has absence siezures thank you for posting this and.showing what they can look like in some of us people often think of the full on convulsions when they think of siezures but not the totally put of it staring into space as iff in your own world ones or the becoming extremely confused and often people who witness episodes where you become confused and a little out of it but don't convulse often don't know how to respond your mum responds perfectly to this reassuring you letting you know your ok and where you are who she is who the cat is etc it can be really helpful coming put of a siezure to here "it's OK "x" person is here with you you are "here" you are safe etc having that reassurance really helps
I really hope your fundraising helps get you your infusions ans they help you get well and back to gymnastics ans contorion and all the other things you enjoy
Sending lots of love
ive watched and foud comfort jn your videos for years and i just need to say, you are so brave and i am so sorry that someone with such a kind heart has been through so much, i cant begin to imagine how scary it must feel to not recognize those closest to you. we love you Evie and your cat loves you so much.❤
It's amazing how animals can be so helpful when their owners have illnesses or disabilities. Recently, I had been really scared of falling asleep because I was scared something bad was going to happen to me, and my cat slept next to me the whole night as if he was protecting me. I was extremely grateful, as well as surprised as he hadn't stayed in my room apart from eating, in months. They're very similar to humans and it warms my heart ❤
The kitty is just chilling there and keeping an eye on you is the sweetest thing
the cat is so cuteeeee omg
also lol to 3:57 XD
awww the apology to the cat was so saddd T-T
This is the first video of yours that made me genuinely emotional 🥹.
You are so beautiful inside and out. Your mum and animals too 💜. And even though my illness is nothing like yours (agressive MS), and I've never been in a situation like this, as another young female it means so much to me to see someone spread awareness and be vulnerable about their chronic illness.
Wow, I knew encephalitis coukd do crazy things, but I've never actually seen it. This was very educational, byt also very heartwrenching to watch. The way you got emotional at the end just shows how much you care about animals. I can't imgine gow scary it must be to go through this, for both of you. You are so strong, Evie. I hope treatment the life you deserve. ❤️❤️❤️
this hurt me to watch, I cannot imagine what youre going through it doesnt look easy.. made me tear up a little, sending so much love.
I deal with fairly severe mental health issues from lead exposure and CPTSD. You've been a huge inspiration in the years I've been watching you, but this video in particular really hit home. Twelve years ago I had a total psychotic break and it left me living on constant confusion. I developed narcolepsy from malnutrition, sleep deprivation psychosis, I had paranoid delusions, limited amnesia episodes. It was terrifying and exhausting. Thank you for sharing your struggles with us. It really makes a difference.
Made me emotional, thank you for sharing. I can't donate, but I sincerely hope you'll be able to get the treatment you need
As a chronically ill young person who is cared for by their mum watching this from an outside perspective was so beautiful and touching. I often apologise and feel like a burden when she has to help me or deal with my issues. Your mum was so comforting and loving its clear to see she wouldnt be anywhere else. She loves you and the fact that you are unwell has no bearing on that. It really good for me to see that so thank you so much for sharing ❤
I don't have what you have but I'm the same after an epileptic seizure so I can somewhat relate to the confusion, not recognising anything or anyone, becoming emotional and distressed and childlike. I'm the same after a seizure. Sending you loads of love. You do amazing and your mum is amazing too. She's so calming and reassuring. I wish I had that. I've been following your journey. I'm so glad you finally have answers to what is happening to you. ❤❤
Wow, so sad to watch. What a great mum (and cat) you have. You are super brave. You'll be in my prayers ❤
Evie, you amaze me. Your family amazes me. May you find hope in the struggle. Thank you for sharing.
You are so strong evie. Your cat loves you and I can see that, your mum is themost supportive wom3n ever
I wish i could donate but i cant. You are so strong and im so proud of you for everything. i hope you get the treatment you need for you to live your best possible life. Sending love ❤❤❤
Ur cat is so beautiful and so are u
I have several disorders around 7 including autism and severe social anxiety and watching this is really hard because even though I don’t have the same thing as you i still understand how hard it is to live with a condition that restricts you. Every day is a struggle for me, I can’t work and my partner has to help me with everyday task and is basically a caregiver and to watch u struggle too breaks my heart, I hope the treatment u are getting helps you. Sending love your way ❤
You’re such a beautiful human I really hope you know that❤
I’ve been watching you for a while and I’m so exited to see how you’re treatment goes.
Love you so much and as we say I’m the Netherlands “sterkte lieverd”❤
This made me cry I can’t imagine what this must feel like I wish no one had to go through this it’s upsetting having to just watch and not be able to help 😢❤
This video really shows Lottie’s love for you🥹 she stayed in your lap by your side the whole time. Animals are so special❤️ thank you for sharing this vulnerable moment with us all
your mum and lottie are both so sweet. im glad you have them and the others in your life to help through these tough times ❤ wishing you and your family well
I can't imagine how hard this must be for you and your mom to see you like this too. You're both amazing human beings who deserve the best and I look forward to seeing you well soon with your infusions
"nice" at 4:30 was so sweet. your love for her found its way to the front in such an awful time, so remember that instead of the forgetting.
It breaks my heart that you suffer through this. Continuing prayers for relief 💜
Thank you for sharing this, also seeing how your mum is there for you is a learning lesson and both of you have inspired me :)
Well now I’m crying 😭 that is a horrendous thing to watch but you are such an incredible person, and I don’t mean that in like a cringy ableist way. You are just a truly good, kindhearted person. You are so loved!
Evie you are a beautiful and brave person. Your mum is right, everyone does love you! There's a lot to love! I'm so so sorry you have to go through any of what you do and I'm so glad that there's a treatment!
I am in tears, your mum is absolutely amazing she deserves an award! You lovely cat lottie also deserves one for loving you so much ❤❤❤
I love that you raise awareness for seizures, I've started have seizures so I know how scary and horrible they can be, I've been referred to a neurologist as we need answers to why I'm having them
You are an amazing angel! Bubba (my cat) and I both send positive energy and spirit to you. 😻
Recently been having neurological symptoms that came on very fast and I had bouts of confusion not knowing where I was, recognizing my friend and it's like I didn't know myself. The emotions were so strong of being scared, confused and upset knowing it's not always like this especially when it first comes on. Thank you for sharing this
This is so heartbreaking from a parents perspective. You have such a beautiful family evie ❤️🥺
Omg i cried when you started getting emotional. Love the emotional patient support of your mother.
I watched this yesterday when you first uploaded it and sobbed from when you said sorry to Lottie. No idea why I watched it again but here I am sobbing again. Maybe because there's parts of this I can really relate to when my mental health was very bad. I am so sorry you go through all this. Thankyou very much for uploading this I can only imagine how hard it was especially having to upload it twice! Sending you love as always. Shout out to Sam for guiding you through this she is very comforting even through a screen! 💗💞💓💝
Hi Evie I just wanted to say that your mum is an absolute angel the both of you and Lottie have my admiration ❤
Your mum is always so loving, and reasuring you are fortunate to have her.
Can se where your love and kidness comes from, even in a seizure you are upset at maybe hurting your cats feelings.
I'm so glad you've set up the gofundme. Proud of you.
You deserve health.
This video brought me to tears 😢 I'm sorry you have to go through that
Only if everyone could handle their illnesses like you….i admire you so much and only wish the best for you❤️🥰
I had an episode just like this last night it started in a restaurant because I was out to eat with my Mimi and her sisters I started to feel odd and then I went into a seizure when I came out of it I didn’t recognize any of them and was trying to get away they where trying to help me with my stuff to take it out to my Mimi’s car and I thought they where trying to steal it these can be so scary. My doctors don’t believe I have pandas and we kept bringing it up to them but they kept saying no and I have been going through the same thing for a little over 8 year and I’m and out of hospitals we are now going to see an autoimmune doctor to see her opinion on it💚
Not going to lie but this actually made me tear up because ur amazing
ive been following along with all your videos for years and im just barely get the diagnosis and treatment for whatever I have and all your videos help me and im only 17 and it helps a lot I was recently told I might have POTS and we are doing extra testing for that soon I love all your videos and I wanna say thank you for posting for awareness and stuff like that ik how hard it is to post on some bad days because of my RUclips channel as well you are doing great and your an amazing person also your cat is so beautiful 💚
You’re an incredible person, Evie. I’m so sorry you have to go through this. 💚 everyone loves you because you’re incredible. Stay Strong. You’re doing amazing.
Lottie never took her eyes off you during the whole video Evie. Such love between the two of you there.
I love how your mother was there, taking care of you all the time. It was so sweet
I'm so sorry you have to go through this. This must be terrifying!
Lottie knew something was up and clearly wanted to be there with you through it. Sending my love
oh Evie ❤ sending so much love. I laughed when you said "there's a cat on my knee" 🤣 I thank you for sharing and spreading awareness as well. you are so unbelievably strong!
Man, that was one of the harder ones to watch for some reason. I've got kids and I got so emotional when you didn't recognize your mom. And I started crying when you were apologizing to your cat 😭❤.
I say this as respectfully and empathetically as I can. This is absolutely heart breaking to watch. Your distress and you're mom keeping you oriented as best she can. These videos are SO important for people to see! You're such an incredible and intelligent woman and still struggle with disability. I'm AuDHD myself and have been a disability advocate for YEARS (worked in the field for many years in various capacities) and I wish more people saw how much these things impact a person's life. Around the time my dad got his liver transplant (it'll be 10 years ago on January 4) he experienced a lot of confusion. These experiences are so difficult to go through and too few people can empathize with it. Thank you for your vulnerability in sharing such an intimate episode. I hope it gets enough attention that you're able to cover costs for treatment.
I started tearing up at the end of the video, cause I can so relate to being in similar situations during PANS flares. Man, Evie, thank you for being so brave in sharing and helping raise awareness. People just don’t understand without going through it and sometimes they have to see it to be able to empathize. You are one brave girl! Praying for your treatment to go well and heal you! ❤
😢Your mom is the absolute best. Her compassion, calming voice and reassurance is heartwarming. U are truelly bleased with an amazing mom. Im so glad u started the fundraiser,u deserve it as u are an absolute inaporation. All the best Evie
I can’t imagine how scary it could be to not recognise familiar things and people, I’m so sorry you have to go through this. You’re such a sweet and beautiful human being. Thank you for spreading awareness. Your cat is adorable.
Your cat is very cute, I bet she knows what ur going through cuz cats are very smart like that, im autistic and whenever I have a meltdown my cat Norman is always there to comfort me 😸
spent most of my life having seizures. from teen to adult. i know this feeling all to good. very scary and confusing. never had the guts to show the world what it is really like. you or very strong lady. and thank you for this videos. stay strong and never give up. my warning signs where my left leg. it would twitch and feel like i need to stand up and pop my joint. or my eyes would twitch giving me that odd vision and itchy feeling before going into a seizure. that was if i got a warning. slurring voice talking confusing. i would not know unless someone told me. i no longer have them or at least i have not had one in a bit over 10 years now. was in a coma after a car crash for a year. was hit by a drunk driver. woke up and i only had 8 seizure since then. yes all we keep track of them. crazy tho. how a car crash stopped mine. my seizures started back when i was 12 from a head trauma. they did not know if it came from me fighting in tournament's or from falling out a tree and landing on my head. swollen brain. but then again hospital technology has changed a lot since then.
Get well soon! Thank you for showing the world the signs of encephalitis!
Breaks my heart to see you struggle so much. Hope they find a solution for the many troubles you have. I'm happy your mum is such a beautiful person and helps you through. Bless her ❤
I'm reading from what I see -
Tics takes a lot of energy physically & mentally & it takes its toll on the body & mind. There's not enough energy to power her brain properly & Evie is so sick & tired of it , I can read it in her eyes. Her mum is a legend, love to Evie & her mum❤
The more I watch, the more I'm picking up on her loss of senses, her body feels like a slightly misty, sluggish humming vibrato, I can picture her brain warping in & out of consciousness
I'm feeling a lot of love for Evie & I'm glad that she isn't suffering while being alone, somebody is always there to catch her❤
Seeing other videos of her smiling & laughing, enjoying life, & I like when she giggles, watching this video seeing her soul & body has temporarily misaligned, just makes me wish that I could offer anything I can to spread awareness, & shut up these doubters who leave negative & naive comments & who lack cognitive thinking skills.