It’s so weird to hear someone say “I even went to a restaurant for the first time in four years” and know exactly what a triumph that feels like. This was me a few weeks ago. I’m digging my way out of a pit. It’s really good to hear stories like this. My fatigue walloped me today for the first time in a few weeks and it’s a good reminder to stay focused. I don’t know why it happened but hearing someone else describe their similar story and journey out…it’s useful. Thanks, and keep going 🙌😎
Thanks so much, I totally get how you feel! I'm glad you feel like you're making good progress but it is anything but linear. Feel free to reach out if you'd like to chat!
Thanks so much for having me, Raelan! I really hope this information helps people. I wanted to share that I’m ready to start my free mentoring services! My email is in the description of this video - send me a note if you’d like to learn more!
Amazing interview! So glad you’re getting your health and strength back. It’s such a humbling journey that results in so much gratitude and appreciation for life. ❤
Yes, yes, yes, Craniosacral therapy has been amazing in regulating my nervous system. It’s been an amazing help on this journey. Without it, i would probably gave up or got depressed beyond measures.
Wow, so good introduction about the study! Loved it. ❤ Can I say what a great inteviewer you are, honest, respecful, not intrusive and leaving guests to speak up, not indulging too much in excessive comlpliments or comments. And always looking so good, vibrant, smily and like a sunshine! 👏
Raelan!! This is incredible news! I’m so proud of you because you are the one helping us get the stories and experiences out there. Thank you for your dedication and commitment to all of us! ❤❤❤ Chris, you’re doing great and your heart is full of kindness!
Congratulations on the study, Raelan. That's super exciting for you and all of us with these illnesses.This was an awesome interview! I'm based in Japan and have heard some Japanese CFS RUclipsrs mention success with EAT (also called B-spot therapy). I had identified an ENT clinic to go to for it when I'm well enough to leave the house again, but if DIYing it is possible, even better! Thank you, Neal.
Thanks Raelan. Celebrating with you on the research being down from your interviews!!!! Woohoo!!🎉Loved this interview, lots of fresh insights. Seemed like a lovely guy, wishing him all the best on this recovery journey 😊
This is so true. Finding some joy is so important. It dosn't sound huge. My nintendo switch were good audio books. And I could really see a difference. When I had no good book it was so much more difficult to go through rough days. Books and drawing.
Amazing Raelan!!! REsearch is what we need- to push all this work forward. You have shared such amazing stories and worked so hard for all this - you should be so proud of yourself. Would love to share my story soon on vaccine injury and recovery through a mind body approach. Moved out of teaching neuroscience into working with people to now heal from ME CFS/ LONG COVID and VAX INJURY. xx
Can you also talk about Cervical Cranial instabilty? I’m having chronic fatigue after a tonsillectomy in February, and i have read about Cci, which can cause lots if not all of the Cfs symptoms because of the vagus nerve. When i do vagus nerve exercises i’m a lot better, i hope to be one of the recovered on your channel one day
I remember a girl named Rachael Elizabeth that used to have that I think, and got much better through brain retaining techniques. You can search her channel up.
@@inmalikp yes, but if there is a mechanical cause, you have to fix that in order to regain your perfect health shape. I read that after a big infection/inflammation of the throat also your c1 and c2 vertebra can get inflamed leading to CCI. I used to have also a bad posture and i already had an Hernia in L5-S1, so my spine is not very healthy despite my young age :(
@@francescogrossholz8221 I am sorry for that, and I totally agree with you. It's just that I have watched many ppl improve their symptoms even when there were mechanical / physiological causes, so I have to believe that these things help a bit as an addition to the more physical centered therapies. I really hope you find a way to heal ❤
@@inmalikp yes this technics help, another good one is Thiamine. Anyway solving the problem with cervical vertebra is not so difficult, there are a lot of things before doing surgery
Thanks for this interview. Particularly the part about finding joy where you can. I have PEM but for me it's reverse: cognitive effort brings it on (particulary anything that requires executive functioning/task switching) while physically I am fairly capable these days. While it's a scary place to be since I cannot work I do try to enjoy the gift of long walks, paddle boarding and e-biking. All a bit slow motion but nonetheless I used to not have extended periods of time for these activities before I got sick. I also wonder whether I push my exercise too hard sometimes and does that then protract the healing time for my brain. But as you say it would probably just be an even higher mountain to climb if I did nothing.
It’s crazy how differently it affects everyone. But it sounds like you’re doing a good job of running with what you’ve been given! It can take some work to figure out a rhythm but I truly believe there’s a way to slowly ease into the mental stuff just like I’m doing with physical activity. Best of luck and feel free to reach out if you need anything!
I don't think it's classified as surgery, but not 100% sure... there are a few videos of the doctors in Japan doing it that can give you a good idea of what the full treatment is like! I just did my best to replicate it at home from the information I found.
I buy my swabs from Walmart online and my saline (which I use instead of Zinc) from Amazon - the video on my channel shows the specific products I use!
@@Truerealism747 I'm not seeing anything in my reading about it being used for that, but it's still early days so maybe we'll learn more in the future!
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It’s so weird to hear someone say “I even went to a restaurant for the first time in four years” and know exactly what a triumph that feels like. This was me a few weeks ago. I’m digging my way out of a pit. It’s really good to hear stories like this. My fatigue walloped me today for the first time in a few weeks and it’s a good reminder to stay focused. I don’t know why it happened but hearing someone else describe their similar story and journey out…it’s useful. Thanks, and keep going 🙌😎
Thanks so much, I totally get how you feel! I'm glad you feel like you're making good progress but it is anything but linear. Feel free to reach out if you'd like to chat!
Thanks so much for having me, Raelan! I really hope this information helps people.
I wanted to share that I’m ready to start my free mentoring services! My email is in the description of this video - send me a note if you’d like to learn more!
Much appreciated, Neal 🧡 🧡
Amazing interview! So glad you’re getting your health and strength back. It’s such a humbling journey that results in so much gratitude and appreciation for life. ❤
Awww, so lovely you want to share and help others on this journey and for free😊
Congratulations! That's great news that you're now a study 😄😆😄 Really glad to gear that, I hope you're super proud 😄🥳And Thank you!
Thank you! 😃 🧡
So good to hear the brain retraining takes time !! ❤
Yes, yes, yes, Craniosacral therapy has been amazing in regulating my nervous system. It’s been an amazing help on this journey. Without it, i would probably gave up or got depressed beyond measures.
Wow, so good introduction about the study! Loved it. ❤
Can I say what a great inteviewer you are, honest, respecful, not intrusive and leaving guests to speak up, not indulging too much in excessive comlpliments or comments. And always looking so good, vibrant, smily and like a sunshine! 👏
Thank you Neal.. To give is to receive comes to my mind.
Still on the recovery path myself.Great insights.
☘️🙏
Congratulations on the research study 🎉🎉🎉🎉
Amazing! ❤
Yes. Thank you raelan for your work. That is really exciting
Raelan!! This is incredible news! I’m so proud of you because you are the one helping us get the stories and experiences out there. Thank you for your dedication and commitment to all of us! ❤❤❤ Chris, you’re doing great and your heart is full of kindness!
Thank you so much Neal! And HUGE thanks Raelan for doing this. I'm so happy that all of this is going to turned into a scientific study!
Congratulations on the study, Raelan. That's super exciting for you and all of us with these illnesses.This was an awesome interview! I'm based in Japan and have heard some Japanese CFS RUclipsrs mention success with EAT (also called B-spot therapy). I had identified an ENT clinic to go to for it when I'm well enough to leave the house again, but if DIYing it is possible, even better! Thank you, Neal.
It gives you something to look forward to that there is no chance of a set back.It raises your vibration to JOY instead of disappointment.
Thanks Raelan. Celebrating with you on the research being down from your interviews!!!! Woohoo!!🎉Loved this interview, lots of fresh insights. Seemed like a lovely guy, wishing him all the best on this recovery journey 😊
Wow❤❤❤❤research study!!! Raelan you are doing so much for soooo many people. Can't stop thanking you❤
Thank you Neal Cotter, your story so resonates…you should have seen yesterday, I was a basket case!
This is so true. Finding some joy is so important. It dosn't sound huge. My nintendo switch were good audio books. And I could really see a difference. When I had no good book it was so much more difficult to go through rough days. Books and drawing.
Couldn't agree more, the therapeutic aspect of joy is so underrated. 🙌✨
Amazing Raelan!!! REsearch is what we need- to push all this work forward.
You have shared such amazing stories and worked so hard for all this - you should be so proud of yourself.
Would love to share my story soon on vaccine injury and recovery through a mind body approach.
Moved out of teaching neuroscience into working with people to now heal from ME CFS/ LONG COVID and VAX INJURY.
xx
Congrats on being included in the study!!!!! Yay 🥰
Thank you for sharing the information🙏🏽
What a nice guy!
Fantastic news about the study. So much needed, so useful!
Incredible news! Congratulations Raelan!!🎉
My kids know Persona 5! My son bought a package with cards, a book, and maybe other stuff.
Nice!! Yes there is so much related Persona 5 merch haha. It’s a world unto its own
Great job Neil , inspirational ❤❤ mate 👍👍👏👏
Thanks Chris :)
Thank you so much for helping us really I appreciate. How can I contact him please?
My email is in the video description! I would write it here but RUclips usually blocks comments with email addresses
Can you also talk about Cervical Cranial instabilty? I’m having chronic fatigue after a tonsillectomy in February, and i have read about Cci, which can cause lots if not all of the Cfs symptoms because of the vagus nerve. When i do vagus nerve exercises i’m a lot better, i hope to be one of the recovered on your channel one day
I remember a girl named Rachael Elizabeth that used to have that I think, and got much better through brain retaining techniques. You can search her channel up.
@@inmalikp yes, but if there is a mechanical cause, you have to fix that in order to regain your perfect health shape. I read that after a big infection/inflammation of the throat also your c1 and c2 vertebra can get inflamed leading to CCI. I used to have also a bad posture and i already had an Hernia in L5-S1, so my spine is not very healthy despite my young age :(
@@francescogrossholz8221 I am sorry for that, and I totally agree with you. It's just that I have watched many ppl improve their symptoms even when there were mechanical / physiological causes, so I have to believe that these things help a bit as an addition to the more physical centered therapies.
I really hope you find a way to heal ❤
@@inmalikp yes this technics help, another good one is Thiamine. Anyway solving the problem with cervical vertebra is not so difficult, there are a lot of things before doing surgery
Do you have hypomobility ime doing CCI.work.no results yet
Amazing!
Great! Thanks!
Thanks for this interview. Particularly the part about finding joy where you can. I have PEM but for me it's reverse: cognitive effort brings it on (particulary anything that requires executive functioning/task switching) while physically I am fairly capable these days.
While it's a scary place to be since I cannot work I do try to enjoy the gift of long walks, paddle boarding and e-biking. All a bit slow motion but nonetheless I used to not have extended periods of time for these activities before I got sick.
I also wonder whether I push my exercise too hard sometimes and does that then protract the healing time for my brain. But as you say it would probably just be an even higher mountain to climb if I did nothing.
It’s crazy how differently it affects everyone. But it sounds like you’re doing a good job of running with what you’ve been given! It can take some work to figure out a rhythm but I truly believe there’s a way to slowly ease into the mental stuff just like I’m doing with physical activity. Best of luck and feel free to reach out if you need anything!
@@NPC_EAT Thanks ❤️ Best of luck to you as well. And all of us who are dealing with these problems.
@@konstanzekiefer3438do you have much pain still and are you hypermobile had this 27 years though fatigue is better pain worst symptom
a lc fb group tried this out intensely last year
Interesting! I thought I was the only one!
What did they find? Any good??
Why is it that there is so much negativity online?
Is this "Epipharyngeal Abrasive Therapy (EAT) " a medical surgery type of therapy?
I don't think it's classified as surgery, but not 100% sure... there are a few videos of the doctors in Japan doing it that can give you a good idea of what the full treatment is like! I just did my best to replicate it at home from the information I found.
Young people talking about how hard it is to recover..try doing it at 59.
Where can you get the nasal swabs with zinc chloride ?
I buy my swabs from Walmart online and my saline (which I use instead of Zinc) from Amazon - the video on my channel shows the specific products I use!
@@NPC_EATdoes it help with fybromyalgia
@@Truerealism747 I'm not seeing anything in my reading about it being used for that, but it's still early days so maybe we'll learn more in the future!
Yay🎉‼️‼️
All this videos are the same 🤷