I am so sorry he had to go through that . Trust me I've been there . I'm finally opening up after a year and 4 months and am able to be around people again . I'm not 100% by any means but I'm able to talk more with people and get out a little more . When they say these drugs alter DNA they definitely don't lie . Because they definitely change who you are for a time being . Time seems to make things better but there's always that thought that lingers when or if you will be 100% again . My heart goes out to anyone that has been affected by these drugs . Hang in there
I know how much you have been through! It makes me so angry that you, me and anyone had to suffer so much from these stupid pills. But at least we are both recovering (however slowly) and heading in the right direction.
I am 7 years out from levaquin. Almost died, I got really sick head fever. Went to Dr. He did a x ray and CTScan of my lungs. Came back and said I was really sick with pneumonia and asthma. He prescribed levofloxacin and prednisone. I said you think this is ok to take together. I had a check about. I should have listened to myself. Dr said you’re really sick just take it. I took two doses that day and my life changed that day. Next morning woke up to my body being bombed in night. I could not walk , knee blowed and whole body shot, to much to share here. It almost took my life. Come to find out my lungs were perfect , no pneumonia or asthma. This took me on a journey of being mocked and ridiculed by Drs and family. 24-7 terrible pain head to toes. Lost job, family, friends. Found u are never to give these antibiotics with a steroid. No discipline or repercussions with Dr. I relate so much to this man. I still have major issues with my body and walking etc.
Ugh-so sorry to hear this. First, we go through all the pain and limitations, which is hard enough on its own to bear. But then the doctors not believing adds another layer of pain and trauma. Are you getting any better? Have you had your hormones, vitamins, iron and an autoimmune panel done? these might all be able to provide some clues on what you need to improve further.
I just watched this again and wow this was so informative. So sorry he had to deal with all he dealt with . He is so right about the diets . So many feel this condition is all based on diet and that no other medications are good . This is definitely not a good mindset to have and can lead to lots of problems. You guys made a great video here . Thank you for sharing
I dont know why I didnt see this two years ago! So agree-meds have helped me through so much of this-yes the fluoroquinolones are terrible but that doesnt mean all medicien is!
My adult son had adverse reaction to Cipro along with Flagyl almost 8 yrs ago. It affected him from head to toe. My son hasn't been the same since. He is homebound/bedridden
So sorry to hear this! I just spoke with someone who got 100% better at year 12 so there is still hope! What are his symptoms? And what tests has he had done?
His story is somewhat same as mine. I am 2 years out and still suffering. My weight also dropped to 54 kgs im 5 feet 6. My great regret was completing the course as I was not warned nor aware. Damn lost all faith on the medical industry and monster doctors.
Thank you Jayne for doing these videos. I have cipro toxicity, 6 months ago. Took 2 pills. My feet are still very sore tender to walk. What exactly can I do to address my sore feet? Any thoughts?
Hello friends thanks for the great video!! I couldn’t take my anxiety and panic attacks .. so I finally start taking sertraline ssri .this antidepressant don’t have fluoride in it ..
@@overcoming-togetherbyjayne3857 thanks Jayne! He mentioned a numb feeling inside and I had that with Flagyl so he's probably had a bad reaction to both antibiotics
@@coolbreeze5683 I took 5 pills of cipro and I think 10 Flagyl but don't quote me on it it's been a while. I do sometimes feel numbness every once in a while.
Recovery is possible, I'm going 2 years now, only remaining symptoms is sometimes I hear my knees were cracking.,but no more pain. I'm 26 years old now, I did not take any supplements, or even change my diet, I don't have a lot of money to do that though 😂. I'd say I can run 3-5 km ,carry heavy things, push ups sit ups and other physical exercises.
I love hearing this! Yes, I think too many pepole do all of this stuff (diet, supplements etc) because they feel desperate and are afraid to let time take it course. But so many people, especially younger people, do get better on time alone. And then since they are doing certain things when while time is passing, they give credit to those things. I tell people to wait a year or more before spending any sort of significant money. Thank you for sharing!
Agreed everyone does recover differently. I am five years out and I recovered a lot but nowhere near I would like to be. But most of the people I have talked to do fully recovery eventually- or at lease revover enough to have a decent quality of life! And I do believe those of us who dont recover have some sort of underlying condition and that we won't get better until we can figure out what the diagnosis is. (which is hard because doctors tend to blow us off-but we have to keep trying.) I have a gene that predisposes me to all sorts of autoimmune disease. Levaquin put it in potion but until I get a handle on which autoimmune disease I am dealing with and how to treat it, I dont know that I will get much better.
oddly my flox muscoskeletal symptoms started 2 years after taking them. but the gut upset was amalgamated with holiday food poisoning (why i was given flox) and the 6 months after cipro was a steady decline in health and gut health. i particularly remember a spell of extreme cold emanating from the bones, a year later i had peripheral neuropathy and gait problems, then the knee, ankle, finger, limb wasting kicked in hard. they are still eviscerated and the intersticial spaces of bones are hollowed out simultaneously with pain. what he says about the brain in a panic state though rings true, your vagus nerve controls motility, and if you're in panic you're in purge, and your food comes out as mush.
There is a solution 5 months straight this doctor with biometrics labs nuclear labs and spectral analysis labs in these advanced labs to see what is happening that normal blood work does not pick up on friend. Have your hormone level testosterone and your thyroid checked that your doctor can do okay. His medicines are things your body produces naturally. Many of our FB group who thought they were getting better but didn't and passed away some given anti depressants a fluoridated med and committed to a mental institution.
I am 7 years out from levaquin. Almost died, I got really sick head fever. Went to Dr. He did a x ray and CTScan of my lungs. Came back and said I was really sick with pneumonia and asthma. He prescribed levofloxacin and prednisone. I said you think this is ok to take together. I had a check about. I should have listened to myself. Dr said you’re really sick just take it. I took two doses that day and my life changed that day. Next morning woke up to my body being bombed in night. I could not walk , knee blowed and whole body shot, to much to share here. It almost took my life. Come to find out my lungs were perfect , no pneumonia or asthma. This took me on a journey of being mocked and ridiculed by Drs and family. 24-7 terrible pain head to toes. Lost job, family, friends. Found u are never to give these antibiotics with a steroid. No discipline or repercussions with Dr. I relate so much to this man. I still have major issues with my body and walking etc.
ugh! this is so awful, yet so familar. I too blew out my knee and legs felt like dead weight and I couldn't walk. Doctor should NEVER let someone take both a steroid and a quinolone (and shouldnt be prescrdibing a fluoroquinolone at all unless there is no other choice and it's life and death) What Chuck and I were saying is that it is fine to take a steroid years out from taking the antibiotic. We both had steroid shots that helped us, but it was years after taking the Fluoroquinolone. I'm so sorry to hear that you are going through this-as I personally know how awful it is. And the doctors dismissing us just makes it so much worse. Do you find you are gettng better? I hope so. I am much better than I was six years ago-but still not where I want to be. Doctors now think I could have Rheumatoid Arthriits. My legs are a lot better but still have pretty bad neck and back weakness. I do find that mild excercise, stretching and strength training is working and so is being treated for RA and other autoimmune diseases
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I am so sorry he had to go through that . Trust me I've been there . I'm finally opening up after a year and 4 months and am able to be around people again . I'm not 100% by any means but I'm able to talk more with people and get out a little more . When they say these drugs alter DNA they definitely don't lie . Because they definitely change who you are for a time being . Time seems to make things better but there's always that thought that lingers when or if you will be 100% again . My heart goes out to anyone that has been affected by these drugs . Hang in there
I know how much you have been through! It makes me so angry that you, me and anyone had to suffer so much from these stupid pills. But at least we are both recovering (however slowly) and heading in the right direction.
Thank you for sharing!
I am 7 years out from levaquin. Almost died, I got really sick head fever. Went to Dr. He did a x ray and CTScan of my lungs. Came back and said I was really sick with pneumonia and asthma. He prescribed levofloxacin and prednisone. I said you think this is ok to take together. I had a check about. I should have listened to myself. Dr said you’re really sick just take it.
I took two doses that day and my life changed that day. Next morning woke up to my body being bombed in night. I could not walk , knee blowed and whole body shot, to much to share here. It almost took my life. Come to find out my lungs were perfect , no pneumonia or asthma.
This took me on a journey of being mocked and ridiculed by Drs and family. 24-7 terrible pain head to toes. Lost job, family, friends. Found u are never to give these antibiotics with a steroid. No discipline or repercussions with Dr. I relate so much to this man. I still have major issues with my body and walking etc.
Ugh-so sorry to hear this. First, we go through all the pain and limitations, which is hard enough on its own to bear. But then the doctors not believing adds another layer of pain and trauma. Are you getting any better? Have you had your hormones, vitamins, iron and an autoimmune panel done? these might all be able to provide some clues on what you need to improve further.
I just watched this again and wow this was so informative. So sorry he had to deal with all he dealt with . He is so right about the diets . So many feel this condition is all based on diet and that no other medications are good . This is definitely not a good mindset to have and can lead to lots of problems. You guys made a great video here . Thank you for sharing
I dont know why I didnt see this two years ago! So agree-meds have helped me through so much of this-yes the fluoroquinolones are terrible but that doesnt mean all medicien is!
My adult son had adverse reaction to Cipro along with Flagyl almost 8 yrs ago. It affected him from head to toe.
My son hasn't been the same since. He is homebound/bedridden
So sorry to hear this! I just spoke with someone who got 100% better at year 12 so there is still hope! What are his symptoms? And what tests has he had done?
His story is somewhat same as mine. I am 2 years out and still suffering. My weight also dropped to 54 kgs im 5 feet 6. My great regret was completing the course as I was not warned nor aware. Damn lost all faith on the medical industry and monster doctors.
Sorry just seeing this now for some reason. How are you doing these days? I hope better!
We are talking about excruciating pain.
Yes the pain was excruiciating. Doctors think I probably had Guilliane Barre those first few years
Thank you Jayne for doing these videos. I have cipro toxicity, 6 months ago. Took 2 pills. My feet are still very sore tender to walk. What exactly can I do to address my sore feet? Any thoughts?
Hello friends thanks for the great video!! I couldn’t take my anxiety and panic attacks .. so I finally start taking sertraline ssri .this antidepressant don’t have fluoride in it ..
Great! please keep us posted on how you are feeling- I hope the anxiety and panic attacks go away soon.
🙏🙏🙏😘🙏🙏🙏
Did Elie from the first story take Flagyl and Cipro together or just the Cipro?
I think he took both, but I dont remember. will ask and get back to you.
@@overcoming-togetherbyjayne3857 thanks Jayne! He mentioned a numb feeling inside and I had that with Flagyl so he's probably had a bad reaction to both antibiotics
@@coolbreeze5683 yes I did take both Flagyl and cipro
@@HanTacOucH how much did you take of each? Flagyl is just as horrible as Cipro. Do you still have the numbness or have you healed completely?
@@coolbreeze5683 I took 5 pills of cipro and I think 10 Flagyl but don't quote me on it it's been a while. I do sometimes feel numbness every once in a while.
Recovery is possible, I'm going 2 years now, only remaining symptoms is sometimes I hear my knees were cracking.,but no more pain. I'm 26 years old now, I did not take any supplements, or even change my diet,
I don't have a lot of money to do that though 😂. I'd say I can run 3-5 km ,carry heavy things, push ups sit ups and other physical exercises.
I love hearing this! Yes, I think too many pepole do all of this stuff (diet, supplements etc) because they feel desperate and are afraid to let time take it course. But so many people, especially younger people, do get better on time alone. And then since they are doing certain things when while time is passing, they give credit to those things. I tell people to wait a year or more before spending any sort of significant money. Thank you for sharing!
please what dosage did you take
I am not sure saying you will get better is accurate. I have terrible fatigue and I am in my 7th year. Eli is correct, everyone recovers differently.
Agreed everyone does recover differently. I am five years out and I recovered a lot but nowhere near I would like to be. But most of the people I have talked to do fully recovery eventually- or at lease revover enough to have a decent quality of life! And I do believe those of us who dont recover have some sort of underlying condition and that we won't get better until we can figure out what the diagnosis is. (which is hard because doctors tend to blow us off-but we have to keep trying.) I have a gene that predisposes me to all sorts of autoimmune disease. Levaquin put it in potion but until I get a handle on which autoimmune disease I am dealing with and how to treat it, I dont know that I will get much better.
oddly my flox muscoskeletal symptoms started 2 years after taking them. but the gut upset was amalgamated with holiday food poisoning (why i was given flox) and the 6 months after cipro was a steady decline in health and gut health. i particularly remember a spell of extreme cold emanating from the bones, a year later i had peripheral neuropathy and gait problems, then the knee, ankle, finger, limb wasting kicked in hard. they are still eviscerated and the intersticial spaces of bones are hollowed out simultaneously with pain. what he says about the brain in a panic state though rings true, your vagus nerve controls motility, and if you're in panic you're in purge, and your food comes out as mush.
The Dr’s take no responsibility with this either
Agreed! They should NOT be presccribing these antibiotics at all unless there is no other choice!
There is a solution 5 months straight this doctor with biometrics labs nuclear labs and spectral analysis labs in these advanced labs to see what is happening that normal blood work does not pick up on friend. Have your hormone level testosterone and your thyroid checked that your doctor can do okay. His medicines are things your body produces naturally. Many of our FB group who thought they were getting better but didn't and passed away some given anti depressants a fluoridated med and committed to a mental institution.
Yes my hormone levels were practically undetectable, so was my iron. I'm working on all of that.
Hi what did these individuals pass away from ?
I am 7 years out from levaquin. Almost died, I got really sick head fever. Went to Dr. He did a x ray and CTScan of my lungs. Came back and said I was really sick with pneumonia and asthma. He prescribed levofloxacin and prednisone. I said you think this is ok to take together. I had a check about. I should have listened to myself. Dr said you’re really sick just take it.
I took two doses that day and my life changed that day. Next morning woke up to my body being bombed in night. I could not walk , knee blowed and whole body shot, to much to share here. It almost took my life. Come to find out my lungs were perfect , no pneumonia or asthma.
This took me on a journey of being mocked and ridiculed by Drs and family. 24-7 terrible pain head to toes. Lost job, family, friends. Found u are never to give these antibiotics with a steroid. No discipline or repercussions with Dr. I relate so much to this man. I still have major issues with my body and walking etc.
ugh! this is so awful, yet so familar. I too blew out my knee and legs felt like dead weight and I couldn't walk. Doctor should NEVER let someone take both a steroid and a quinolone (and shouldnt be prescrdibing a fluoroquinolone at all unless there is no other choice and it's life and death) What Chuck and I were saying is that it is fine to take a steroid years out from taking the antibiotic. We both had steroid shots that helped us, but it was years after taking the Fluoroquinolone. I'm so sorry to hear that you are going through this-as I personally know how awful it is. And the doctors dismissing us just makes it so much worse. Do you find you are gettng better? I hope so. I am much better than I was six years ago-but still not where I want to be. Doctors now think I could have Rheumatoid Arthriits. My legs are a lot better but still have pretty bad neck and back weakness. I do find that mild excercise, stretching and strength training is working and so is being treated for RA and other autoimmune diseases