My story of
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- Опубликовано: 4 окт 2024
- My story of #guillain_barre_syndrome GBS syndrome (हिंदी) | gbs syndrome story | GBS | India |
#guillainbarre -Barré syndrome #creatingforindia #gbsstory #mystory #gbs #motivation #gbsattaking @shilpasharma
मुझे 16 सितंबर 2021 को पता चला की मुझे GBS नाम की बीमारी हुई है, इस विडिओ में मेने अपने अनुभव को आप सब के साथ बाँटने की कोशिश की है|
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Other Video Links
👉leg exercise - • Leg exercise for GBS p...
👉hand exercise - • Hand Exercise part - 1...
👉foot drop & finger exercise - • foot drop & finger exe...
👉waist exercise कमर की एक्सरसाइ - • waist exercise for GBS...
👉standing exercise - • Standing Exercise For ...
👉cycling exercise - • cycling exercise ...
👉How to climb up & down stairs ? - • How to climb up & down...
👉Q & A Video - • Q&A Video about GBS|आप...
👉Diet Plan - • Veg Diet Plan For GBS ...
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👉GBS Story Of Sandhya Sharma - • GBS Story Of Sandhya S...
👉waist exercise कमर की एक्सरसाइ - • waist exercise for GBS...
👉standing exercise - • Standing Exercise For ...
👉cycling exercise - • cycling exercise ...
👉How to climb up & down stairs ? - • How to climb up & down...
👉Q & A Video - • Q&A Video about GBS|आप...
👉Diet Plan - • Veg Diet Plan For GBS ...
👉Foot Drop Shoes - • Foot Drop shoes "Fully...
👉Ratnanjali's GBS Story - • Ratananjali's Story of...
👉Micro Yoga गुल्फ घूर्णन - • Ankle Exercise @shilpa...
👉GBS Story Of Sandhya Sharma - • GBS Story Of Sandhya S...
👉Half Butterfly Pose - • Hip Joints Exercise @...
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Muji b kuch nahi hua . Ab 7 years hoo gaye . Aab my thaik hoo . Aur treatment b chal raha hi . Aap b thaaik hoo jaawoo gi . Muji . Ek year ka tume laaga ta . Allah har ek koo seehat ata farmaye . Ameen ...
I m a physiotherapist and I salute u for ur courage
मैडम आपके ऊपर ईश्वर कि कृपा है,हमेशा बनी रहे❤
:=यह आज तक वैक्षानिक युग मे भी सर्च नही हो पाया कि किन कारणो से यह बीमारी बनती है,
हम भी परिवार सदस्य को अथक प्रयास पर भी खो चुके है,
आज तक भी खोजने पर एक प्राणी भी स्वस्थ/ठीक नही पाया?
ईश्वर आपके कृपालु बने रहे❤❤
I had suffered gbs 3 times 2011 2017 and 2019 i recovered properly by the grace of god but it has given me permanent foot drop🙃🙃
I had it in 2021 and now again in 2023... It's really hard for me to bare the cost and treatment as I'm the only person who earns for my Family... I rather pass away than be a burden on my Family... I'm tired
@@blamitdsz How much cost could you specify?
How much cost, could you specify?
@@pratyushsingh-ve6km aprox 3 lacs
@@blamitdsz Kitne time Mein theek hota h insn gbs mera bhi koi admit h 8 din se
I like you ki aap sabhi logo ko jo bimari se pidit h unhe motivate karte h mera brother ka sem bimari h jo aap ko tha lekin aapka video dekhne ke bad lagata hai ki Mera Bhai bhi bilkul thik ho jayega thanks 👍
My father is also suffering from gbs disease😥 from 10 september and he was hospitalised for 41 days. Now there much little improvement in his body movements after gbs treatment hope he will be well soon...
take full care of him, keep exercising at the right time, your father will get well soon, I will pray to God. 🙏😊
@@shilpasharmagbs Virus 🦠 found in poultry specially Chicken causes this problem GBS ..
My father is also suffering same diseases give me details after hospital discharge exercise and physiotherapy to recover treatment give me phone no to call you
Ab tabiyat kaisi hai bhai papa ko
Homeopathy...gelsimium30......try
i am also suffering from gbs and i am 90 percent recovered, actually not gbs but miller fisher syndrome. if anyone is suffering from gbs don't worry cosult doctors immideately. 🙏
I'm suffering from gbs
Did you get ivig for Miller fisher syndrome
Can you give us suggestions in details plz
Good sister, best of luck,
Here in our country a large numbers of doctor haven't proper knowledge. 2 # doctors.
0.4 to 1mg/kg/day dose to 100ml 5mg/10mg iv duration 2hour to 4hour after normal saline 500ml after repeated 5-7day
Mai God se prathna karta hu ki aap jaldi se jaldi thik ho jaye aur hamesha hi svasth rahe aap hamesha haste muskurate rahe aapki life me kabhi koi problam na ho .Umiya mata se meri yahi viniti h ki aap aur aapka parivar svasth rahe.
Jai mata ki
I was also a GBS patient ín 2019 , and. Then my family taked me to AHEMDABAD CIVIL HOSPITAL an now I'm perfectly alright now ,all the Grace by God 🙏🙏
How long it took for you to be normal after being discharged from hospital.
Meri beti 6saal ki ha kaise recover Karen hum
How you have recovered sir can u explain me plzz will much helpful for me my daughter 4 yrs also suffering from this
Hello
Muje bhi gbs huva tha, 10 din hospiteL me raha ,abhi muje discharje huve 25 days huve he or sirf 25 days me 80% recover ho gaya,😉👍
Sir yeh GBS 1 ya 2 din me ho jate hai kya ya 10 ya 12 din pura devlov hota hai
@@jatansingh9901 Muje GBS 1 hour me hi ho gaya tha turant, or 7 din me muje dono leg or dono hath puri taraha kam karna bandh kar diye the, meri tretment 8 me din se Suri huvi thi, or aj 3 month muje ho gaye he or me puri tarah thik ho gaya hu, jintni jaldi hosake tretment ho Jani chaye.
Plz send me your no. My husband is also suffy from gbs
Ap ne kaha se thik hua
Pliz ur content no
Thanks God 🙏 for your fast recovery ...you are very positive
Hi sir
Recovery ka kitne time sakte sir
Thanks mam abhi ye meri ma ko h bhagvan kare jaldi thik ho jayaye
We lost our 5 year old sister to this disease on 8th May......If she were much older than she might have survived....🥲
Even my cousin age 21 died within 10 days bcz of gbs so age i think doesnt matter its all about ur body recovery rate and ur luck. Ofcoarse
My mother died by GBS inyear of 38
I was also GBS patient around 2 years ago... My both legs were totally paralyzed after 3 days of fever... But after proper treatment, physiotherapy, acupressure therapy, now l am totally fine😊 and now I am trying to run again😊😊
Hi, my mother is suffering from GBS since August 2022, what type of accupressure treatment u took?
BadHiya
@@nivedhprashanth5263 maine acupuncture karwaya hai. Aap physiotherapy, aur exercise karwate rho.
Plz tell me about diet and exercise for my father
Kia mujhe bta sakti hen ap me gbs kqa safar karhi hun mujhe april me 5 sal hujain ge mgr abi tak me thik se chal nh pati me bht tention me hun koi mri help kre mujhe btai kese recovery hugi
Aap bahot JALDI thik ho jayegi.hum hamesha aap ke liye prayer karenge.❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤
Your video helpful for other people.with the help of this people understand and tack necessary action. God bless u.
मेरा भाई को हुआ ही उम्र 22 है 25 दिन से वेंटीलेटर पर हे फिलहाल कुछ भी रिकवर नजर नही आ रहा है कोई हमारे लिए हेल्प कर सकते हो तो प्लीज रिप्लाई कर ना
Mere bhai ko hua he udaipur me icu me he 2 Mount ho chuka he ventilator par he abhi bhi
@@rabariboy589ab kaise hain ????plzz reply???
Ab kaise h??? Plzz reply???
I just got discharged and was suffering from GBS and both my hands and legs were paralysed. Tests were really painfull. One injection costs around 19000 and got 10 injections for treatment.
Abhi kaisa hai
Abhi kaisa hai
Now how it is
ડોકટરની ભાષા વધારે તો કઈ સમજાતી નથી... પણ ભગવાને હૃદયથી એટલી પ્રાર્થના કરીશ કે જલ્દીથી સાજા થઈ જાવ ને; પાછા તમારી routine life માં આવી જાવ...🙏🙌🙏
🙏🙌""જય_શ્રી_કૃષ્ણ""🙌🙏
My niece is also suffering this disease please pray for her
Ur all GBS videos are so helpful for all of us ... Jazakallah 4 sharing these videos
thank you 😊
Young student is suffering from gbs ,but stucked in lungs ,icu,on ventilator
Pray for him
ruclips.net/user/shortsoc2wncvd0FU?feature=share
didi IGIV me injection lagte hai kya
meri bua ko bhi hua hai unko injection lag rhe hai 60gm
Injection are so costly 14000/- per injection
Mam plz guide me I suffering now from gbs
Ye mere wife ko hua tha isme jaldi recovery ke liye hath aur per ki ki exercise karna jaruri hota hai agar aap khud nahi kar sake to aapke relative ko aapse karvani hogi.ye bilkul thik hota hai. Abhi meri wife bilkhul thik hai aur duty par security guard ka kam karti hai
Hy sar AP ka no mil sakta h plz bat karni h
Sir mera bhai ko ye bimari hui hai please aap mere se 1 baar baat kar lijiye
Kya bhai muscles bhi bilkul gal jati hai
I was diagnosed with GBS 4months back
N i am on my recovery mode
The problem is every day i am getting these panic attacks that abhi bhi kuch dikkat h
Every time I feel pain in my feet I get scared
Ke koi dikkat phir na aa jye phir
MY 2 YEAR ISON IS ALSO SUFFERING FROM GBS PLEASE PRAY FOR HIM
Your experience is really help other people's ❤️
God bless u
Sister how many days for the recovery my father same gbs
I am from Pakistan
Please reply me I wait you
take care, got to know about you after your comments. Such information is really very helpful, thanks a lot
Ab aap puri trike s thik h kya?
Plz reply mam
Ma'am apko chalne me kitna time laga tha aur apke hatho ko kitna time laga tha kaam karne me... Kyuki mere father ki bhi same condition hai jesi apki thi aur unko bhi IVIG injection lage the 300g per day..
Hii, apke father kaise hai ab, mere father ko aaj hi admit kiya gaya hai hospital me, ivig injection chal raha hai
Your video is helpful,,,, from last 12 days iam suffering from GBS,,, but by weight is 60kg and doctor recommends 25 gram medicine is it correct?
I'm suffering from GBS please give valuable suggestions
My brother is currently admited in hospital suffering from same disease.
I am also sufferings from gbs started from hands
Mam... Mujhe injection diye hai igi ke 30 mera wait 65 tha mujhe abhi mam.. 1 month ho gye mere sirf mam.. Per aor.. Hath hi gye te bs..
Right now my mother is facing same issues ye bhot critical hota hai and isme thoda himmat rkha na jaruri hota hai because ye bhot time leta hai and ventilator pr hota hai
Same case mera pass kal aaya tha .but 15year old boy no service.......
I think iske liye age bhi important hai for recovery..
Yes
My father is suffering from this disease right now ... First session of plasma exchange hua hai abhi
आपने बहुत अच्छे से इस बीमारी के बारे में बताया
Physiotherapy play imp.role to improve GBS condition
nerve conduction study
Mere bhai ko huva GBS 15/06/22 plasma therapy ho gai fir bhi koi improvement nahi hai.. Plz bataiye hame kuch.. 🙏🏻treatment ke bare. Me
Vo ap ki situation par depend karta hai Kuch logo ko 5 Kuch o 7 session kai baad bhetry hoti hai aur in session kai baad almost 3 sy 4 month lagty hai completely recovary mai
I hope he will recover soon
Because I suffered on16 march 2022
Mere 8 sal ki larke ki vi hoya hai gbs par apka condition thora kom hai. Bache ka bhentiletion me hai or sas lene me puri taraha se osaksam hai 14din hogaya. Sob se parthona hai ki bache ke liye duya kere 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏
भगवान से यही प्रार्थना है की आपका बेटा जल्द से जल्द ठीक हो जाए🙏
@@shilpasharmagbs 🙏🙏🙏🙏
Mera beta abvi vetilation me hai
I'm Also The patient Of GBS & i got By Virus Since I Was 4 Years Old, When Got Recover & It Took Almost 1/2 Years To Recover Me Come From Sitting On My Own To Standing & Now I Fells stablke Till I Was in class 9, After 9 Class my Problem Certainly Started Increase In Left Leg.. now i can walk Even Without Splints..
is bare me to mai bhi itna nhi janti hu. aap ek achche neurologist se milkar is bare me consult karen. meri bhagwan se prarthna hai ki aap jaldi se thik ho jao. aur apna experience hamare viewers k sath share karo ki aap kaise thik hue.
Muje thik karne vale dr. Amit l udani sir he,, thenk you amit sir🙏🙏🙏
Love you dear since you cured & i still i maintain with my own my way & if i couldn't i defnetly go for ivig
Praying for your good health
Bhagvan aise logo ko jaldi thik kare
🥰
mery beti ko bhi gbs huva hai vah 11sal ki hai .hamne uska nagpur colors hospital me ilaj kiya hai abhi ek mahina huva Hai,chal fhir sakti hai lekin sholder aur nise mey pain aur akdan hai phijio therpy chal rahi hai ,didi apka vidio acha laga mery beti ke liye bhi prathna kiji ye please.
Second time Hua Mujhe GBS 10 months se bimar hun recovery hui hai abhi last 3 month Ab Mujhe sirf Kalaiyan aur ghutne aur read ki haddi bus Thodi dikkat a Rahi
Nsmste mem. Apka ye video j hmne dekha bas me bhi sabhiko ye GBS ke pesent ko titment de raha hu to ap krupya apko jo therapy ki vo hme video ke madhyam se ser kare taki hame bhi thodi himmat mile..
Nutritional foods which you havetaken please make me known.
Meri mother in law ko Gb syndrome hua h or vo 35 din ho gye ventilator me hi h unko abhi or abhi kitna time lgega kuch pta ni chal rha unke body me blood bhi kam ho rha h 1 week me 1 point blood chadhana pdhta h 7 point blood chadh chuka h abhi bhi kuch aram ni h 25 feb 2023 ko vo admit hui thi 28 feb 2023 se ventilator me hi h abhi tk
Muje to saans takh nhi ati thi thik se bahut pain hota tha ek mahine takh bahut buri condition rahi h meri. Steroids lene se ab thoda fyeda h m
My brother is also grapelling with GBS disease since 5th June'23, The same treatment is being given by Fortis Memorial hospital, Gurgaon.
Can you advise that we should keep this intact or take any Ayurvedic treatment.
And how are you feeling now as compared to earlier?
if you want you try Ayurvedic treatment you can. I feel much better and normal than before
I also suffered in 2016 I took treatment of plasma exchange in jaslok hospital mumbai
@@shilpasharmagbs.. Ayurvedic me kya kya treatment len
Ayurveda me koi treatment nhi h GBS ka even IVIG/Plasma exchange ke baad allopathy me b koi treatment nhi.. Sirf aur sirf excercise achhi diet ke sath apne time par thik hoti h GBS
Ayurved me cjd ka deases h ??
Maire friend ko hua h abhi 10ivig k injection lge h abhi koi advice
Meri beti 17 sal ki thi. 25 din ssg hospital me ventilator par rahne ke bad 20/11/2021 ko deth ho gayi.
mera beta 9 salka tha use gbs huvatha vo 8 din ventilator par rha tha vo aab nahi raha
aap kahaa se ho
hame sunkr bhut dukh huaa, bhgwan unki aatma ko shanti de.
Sister meri mother ki bhe same situation or vo abi aiims reshikesh mai admit hai aaj he unka test hua or pta chla gbs hai unko
میری بہن GBS کی مریضہ ہیں ۔4 مہینے ہو گئے ۔ابھی ریکوری شروع ہے الحمداللہ👏🇵🇰
Mera beta gbs ka patient ha
Mera brother ko thi 2005 mein aik sal mein theek ho ge thi
Ivig ka price kitna hota hai please reply me 😢😢😢
Great confident good recovery 👌. Wish you speedy recovery
Please medicine Ka naam bataiye
I would recommend not going for these accupressure related treatments for something serious like this. You were not able to feel your legs for a whole day. Usually these नस दबना type of feelings go away in minutes after standing up or a little bit of movements. If these doesn't happen as it shud be, seek medical advice immediately. Not only gbs your initial condition can also be paralysis.
Trust me I'm a doctor
ठीक है बिल्कुल स्वस्थ होने में कितना समय लगा आपको
Mai bhi esi bimari se bahar aai hu.. 1 month ho gaya he
❤❤❤ Allah pak slamat rkhe ap ko
Kitne time me recovery hue apki
You are tough I can say that ......get well soon. I am glad that you were under great team in the hospital .
Hath Ki Kalai Aage Kam Nahin kar rahi Mutthi Nahin bech jaati aur ghutne se niche blood circulation Nahin chal raha Jo pair ka ankle Kam Nahin kar raha food drop Is Tarah Se Ho Raha Hai uske liye kya karna hoga
👍👍👏
Plzzz reply ki ventilator se patient k thek hone k kitne percent chances h?????
100% chance hota hai.
God bless you little sister 🙏 🙏🙏
Aapko thik hune men kitna time laga?? Or ausadhi me kitna kharcha laga??
Maire ajj 34 ivig injection complete huye mainu app ji mild fever 🥵 c maire app hun legs and hand ✋ work nhi krde ji
Same to you mera bhi vahi huwa tha
I am also a patient of GBS which starts from left leg after both legs & hands .... I also went to doctor and started treatment from 11 days,legs and arms were working but not full power ...
Neurology ke doctor ko dikhaye the ap??
@Surendra Jadhav ji ap physiotherapist ko dikhaye ya ghr pe hi exercise kre or sathe hi diet ka bhi dhayn rkhe. ap bhut jldi thik ho jayenge.
मैं CMC VELLORE में पेसेंट को एडमिट किया हिवा हु IVIG का 30ML 5दीन दीए है पर सुधार नही है
और अब बलड़ को प्यूरीफाइव किया जा रहा है
मेरी मदर को 4 महिने हुए हैं उन्हें नर्व कंडक्शन टेस्ट के बाद CIDP confirm kara hai Doctor nai
Or ivig prescribed kiye h unko dono hath Or dono per me dikkat h lekin unko sensation hai puri tarah se kya vo ivig therapy se improve ho payengei..
After Being what should we do😓
Hi mam in dino meri grand daughter is suffering frm this desease.she has been Discharged 1week before.taking exercise regularly.she is 6yrs old.please give me some imp tips for fast recovery.waiting eagerly your suggestion.
@Zaibunnisa Khan aap unko daily 3 time Exercise kraye or diet bhi achhi de usme protin ki matra jyada rkhe.
Me 2mothe 15 day icu me vintelator 2mothe me abhe tak thik nhi howa hu 80% recover howa hai GBS bimari bhot khatarnak hai mere papa ka 20 लाख mojhme lag gya😭😭😭🥲🥲😭🥲😥😢
Abhi kaise ho bhaiya
Mere bhai ko GBS hua h sarkari hospital mai admit h kya wo tik ho jayega please reply
Mere bhai ko bhi hua tha GBS
Kya aap ke bhai ji fully recover ho gaye @@PriyanshuguptaGupta-sb3rm
Haa achcha hoga
Mere bete ko bhi G.B.S huva Hain abhi ICU main Hain abhi vo 3 sal ka Hain d.r ne 8 lakh kharcha kaha Hain abhi vo ventilettr par Hain.
Muje v huee thi 2013 me 🥺 GB SYNDROME 🥺 mera treatment SGPGI Lucknow me hua tha aur muje 14 injection lage the immuno rel reliance muje bahut jada complications hue thi meri total body ni kaam karti thi only neck ke uper kaam karta tha 🥺
Abhi kesa hai bhai
How is it now
Very Nice Medam Nice Information
Mam same conditions meri h 10 December se muje GBS hua
Did u have knee buckling issues?
Thnx. ..mam...mere beti ko bhi ho gyaa .2years ki hai. Uski kamr or per kaam nhi kar rahi hai...main dawa karwa rha Hun...
भगवान आपकी बेटी को जल्दी ठीक करे 🙏
मेरे पापा को GBS hua है
👉🏻पिछले Friday को symptoms दिखने लगे.
👉🏻 Saturday को सुबह अपने पैरो पे चलकर Neorologist के पास गये treatment के लिये.
👉🏻 8 IV IG Injection के बाद कल 6 दीन के बाद डॉक्टर ने discharge दिया हैं. उनको ventillation की जरुरत नहीं पडी.
👉🏻 अभी वो बेड पर है. चलने और अपने पैर पर खड़े होने में दिक्कत है.
आपको क्या लगता है कितने दिन में ठीक हो सकते है ?
need physiotherapy
Ivig ka injection ki kya kimat hai
@@rajeshghosh4973 18000 10gm
Didi aapko kitna time Laga tha theek hone Mein Kyunki mujhe bhi GB Syndrome hai
Intas Globucel 10gm Inj
यही इंजेक्शन है क्या
किंमत किती है
Good 👍👍👍👍👍
Intas ka HUMAN NORMAL IMMUNOGLOBULIN 10% wala he injection lo result acha hai mere bhanje ko hua tha wo 8 din me pair pe khada hua ... recovery ko time lagta hai
Mam mujhe bhi gbs hua hai or mai bahut tension se gujar rahi hu mai pregnant bhi hu
सबसे पहले तो आप अपना ख्याल रखिए ओर अच्छे से न्यूरोलॉजिस्ट को दिखाइए।
Abhi mere bhai ko bhi Hui Hai Jo Indore ke Arvindo Hospital mein admit hai uska Ilaaj abhi vartman mein chal raha hai usko 10 injection Lage Hain 80% usko Fark Hai Jo Kuchh aap advice Dena chahti ho to de dijiye