I have Hemiplegic Cerebral Palsy too and I have the same problems as you. Thank you for making this video. It makes me feel a lot better that I'm not alone with my disability.
Excellent video, Jon @AbilityStreet, delivered very professionally. I can identify with what was said in the video. I have deplegia cerebral palsy. It does draw attention when falling. I got very annoyed once, because somebody picked me up.after I fell. I fell again because the way I was pick up, my feet weren't on the ground properly and I fell again. People think they are helping, but they're not! I've had this condition from birth. If I fall, I can get up, I'm not paralised. Getting up from a fall is part of retaining one's independence. I was taught this in physio at school. You fall, you get yourself back up on your feet! I now walk with crutches. Another thing I do not like at all is that some people think walking behind me in case I fall is helping me. If I'm in a group I want them to walk with me. I cant see what they are doing behind me, which makes me feel anxious. I have to be quite firm in telling people not to walk at the back of me. I can come across as being rude, because I tell them to back off. But people need to respect that when I say something, I am saying it for a reason.
Mate, I was getting annoyed just reading this! how can someone think that is an ok thing to do you are not incapable of getting up and sorting yourself out and I know if I was you and I fell and someone tried to pick me up. I would feel so humiliated and annoyed, I don't blame you! and as for the walking behind you, I bet that can make you feel anxious. not to mention when you're with a group I would imagine you would want the people to walk with you just so you can be included and have a conversation and just interact with the people you are with. walking behind you makes you feel anxious but also I would think would make you feel not like apart of the group you are with, make you feel quite distant from them. The fact is you are able to get on your feet your self so you should be given the respect and dignity to do so. But thank you mate I am glad you liked the video. Thank you so much for sharing! 👊
@@AbilityStreet One of the things I do now though, is stop, and say "I don't like it when people walk behind me." Thre's no intended malace behind it. But it just winds me up. My best mate says "Fall then!", and we start laughing. He's learning! :)
Thank you mate glad you liked it and can relate. from watching your videos I can see that your balance impedes quite abit, but I also see that you are able to find little ways of coping and I respect that mate I really do think you are awesome!
@@AbilityStreet Cheers Jon, that's kind of you. You're a lot younger than me, and I think that you cope with your condition admirably considering your significant challenges. Loving your channel, keep up the good work! Nearly at 500!!
dean200993 Thank you Dean, I’m honoured that you’re taking time to watch them all. It’s the support of people such as yourself and Jon which inspire me to continue making them. 🙏
hi Jon! I'm an architecture student from Indonesia. Your video is really helpful for me. At my university, there's a 'design meet disability' topic and ofc, there's a project. The project is designing body furniture (like walker) and etc but the design has to be somehow aesthetic and 'camouflage' with the user. The activity is specified ; for walking and climbing stairs. therefore, I want to ask your experience about climbing stairs. thank you jon (ps; also me and my friend were kinda stunned because you are atrractive, and sorry for my broken English)
Hi, thank you for watching and I am glad it helped you out, I can walk up and down stairs relatively well as long as they have a hand rail to hold onto. When the stairs are crowded with people I tend to use lifts because its very easy for me to get knocked and fall over. Lastly if theirs a lot of stairs I can find it difficult as I get tired very quickly. I really hope this helps and haha thank you :)
@@AbilityStreet We are now 80% finished with the design. But our lecturer also asked us whether it is okay for us to design a 'walking assist' that 'forced' the leg to be straight (i dont know how to put it in english, hope you get what i meant) Again, thank you so much for replying :)
I don't make any money really though making the videos. I have set up affiliate links for the products I review, which means that if someone buys the product I review in my videos though the amazon link in the description I earn a small commission... but I have only made a very small amount. To be honest though while it would be nice to earn some money off this because I love it, Money is not the main priority, my whole reason why I do this is because I want the videos to help people. That's my main goal 💙
I have Hemiplegic Cerebral Palsy too and I have the same problems as you. Thank you for making this video. It makes me feel a lot better that I'm not alone with my disability.
Same here
So glad I came across this very informative video. Thank you!
This is wonderful. Thanks for explaining so well. It really important for non-disabled people to understand the challenges you face.
Your very welcome I am glad you found it helpful and interesting thanks for watching!
Excellent video, Jon @AbilityStreet, delivered very professionally.
I can identify with what was said in the video. I have deplegia cerebral palsy. It does draw attention when falling.
I got very annoyed once, because somebody picked me up.after I fell. I fell again because the way I was pick up, my feet weren't on the ground properly and I fell again.
People think they are helping, but they're not! I've had this condition from birth. If I fall, I can get up, I'm not paralised. Getting up from a fall is part of retaining one's independence. I was taught this in physio at school. You fall, you get yourself back up on your feet!
I now walk with crutches. Another thing I do not like at all is that some people think walking behind me in case I fall is helping me. If I'm in a group I want them to walk with me. I cant see what they are doing behind me, which makes me feel anxious. I have to be quite firm in telling people not to walk at the back of me. I can come across as being rude, because I tell them to back off. But people need to respect that when I say something, I am saying it for a reason.
Mate, I was getting annoyed just reading this! how can someone think that is an ok thing to do you are not incapable of getting up and sorting yourself out and I know if I was you and I fell and someone tried to pick me up. I would feel so humiliated and annoyed, I don't blame you! and as for the walking behind you, I bet that can make you feel anxious. not to mention when you're with a group I would imagine you would want the people to walk with you just so you can be included and have a conversation and just interact with the people you are with. walking behind you makes you feel anxious but also I would think would make you feel not like apart of the group you are with, make you feel quite distant from them. The fact is you are able to get on your feet your self so you should be given the respect and dignity to do so. But thank you mate I am glad you liked the video. Thank you so much for sharing! 👊
@@AbilityStreet One of the things I do now though, is stop, and say "I don't like it when people walk behind me." Thre's no intended malace behind it. But it just winds me up. My best mate says "Fall then!", and we start laughing. He's learning! :)
Hello Jon, EXCELLENT video!!👍 I can relate to every one of your balance issues. My balance is completely shot!
Thank you mate glad you liked it and can relate. from watching your videos I can see that your balance impedes quite abit, but I also see that you are able to find little ways of coping and I respect that mate I really do think you are awesome!
@@AbilityStreet I was watching Neil's videos last night. They're great! I started watching form the first one. :)
@@AbilityStreet Cheers Jon, that's kind of you. You're a lot younger than me, and I think that you cope with your condition admirably considering your significant challenges. Loving your channel, keep up the good work! Nearly at 500!!
Thank you mate! I really do appreciate that and I know! 🙌🙌🙂
dean200993 Thank you Dean, I’m honoured that you’re taking time to watch them all. It’s the support of people such as yourself and Jon which inspire me to continue making them. 🙏
hi Jon! I'm an architecture student from Indonesia. Your video is really helpful for me. At my university, there's a 'design meet disability' topic and ofc, there's a project. The project is designing body furniture (like walker) and etc but the design has to be somehow aesthetic and 'camouflage' with the user. The activity is specified ; for walking and climbing stairs. therefore, I want to ask your experience about climbing stairs.
thank you jon
(ps; also me and my friend were kinda stunned because you are atrractive, and sorry for my broken English)
Hi, thank you for watching and I am glad it helped you out, I can walk up and down stairs relatively well as long as they have a hand rail to hold onto. When the stairs are crowded with people I tend to use lifts because its very easy for me to get knocked and fall over. Lastly if theirs a lot of stairs I can find it difficult as I get tired very quickly. I really hope this helps and haha thank you :)
@@AbilityStreet We are now 80% finished with the design. But our lecturer also asked us whether it is okay for us to design a 'walking assist' that 'forced' the leg to be straight (i dont know how to put it in english, hope you get what i meant)
Again, thank you so much for replying :)
The important is you can walk and we are blessed in many ways♥️♥️✔️god bless us 🙏💖 and keep safe
Do u went through surgery during ur young age? I relate to this video very well but after i undergo surgery it helped me alot.
You have no ads in your videos jow do you earn through them?
I don't make any money really though making the videos. I have set up affiliate links for the products I review, which means that if someone buys the product I review in my videos though the amazon link in the description I earn a small commission... but I have only made a very small amount. To be honest though while it would be nice to earn some money off this because I love it, Money is not the main priority, my whole reason why I do this is because I want the videos to help people. That's my main goal 💙
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На самом дее ты просто ленивый парень. Ты можешь научиться нормально ходить. Я легко могу тебе это доказать.