A patient's experience with hypertrophic cardiomyopathy.

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  • Опубликовано: 2 янв 2014
  • Karen talks about her hypertrophic cardiomyopathy diagnosis and treatment at the Swedish Heart & Vascular Institute. For more information, call 206-215-4545 or visit www.swedish.org/heart.
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Комментарии • 36

  • @kingdavid3721
    @kingdavid3721 2 года назад +4

    19 received this death sentence 24 expected to be dead

  • @activemusickid
    @activemusickid Год назад +1

    Is this lady still alive 8 years later? That’s what I want to know. Prayers 🙏

  • @thefractured_butwhole
    @thefractured_butwhole 8 лет назад +6

    I've been there, sister. Still there, actually. I was supposed to get a catheter ablation, but I wasn't receiving enough oxygen while I was under. I ended up with a defibrillator implant. One month ago, it fired 12 times because my heartbeat reached 180 BPM. Yikes! I immediately went to see my electrophysiologist. They changed the settings to 200 BPM. It was quite the painful experience and I'm hoping to never experience it again. I've had two cardioversions performed on me. One put me in sinus rhythm for a couple of months, the second one only kept me in sinus rhythm for a few weeks. Right now, I'm in sinus rhythm again, but I don't know how long it will last. I still feel flutters. I know what it's like, not being able to walk the dog, not being to enjoy doing regular activities because the beats in your chest leaves you immobilized. I'm taking full advantage that I'm back in sinus rhythm. Stay strong, sister.

    • @davidrobinson9528
      @davidrobinson9528 4 года назад

      What is sinus rhythm?

    • @F1.4the-moment
      @F1.4the-moment 4 года назад +1

      @@davidrobinson9528 where there is the full set of waves/complexes.. If you're heart isn't beating properly, it can show in an ecg as a missing wave or increased space between the waves etc.. For example, a junctional rhythm is a heart beat that is instigated at the atrio ventricular node/junction, rather than the SA node which is where it's meant to start from..
      You can have varying heart issues while still having sinus rhythm, like tachycardia and bradycardia.. Conversely, your bradycardia or tachycardia can be caused by a non-sinus rhythm like a junctional rhythm.
      ruclips.net/video/FThXJUFWUrw/видео.html
      Here is a basic video on ecg interpretation..

    • @biddrickbidmen4774
      @biddrickbidmen4774 4 года назад +1

      I have HCM also. I'm having the catheter ablation done to me this month.

    • @F1.4the-moment
      @F1.4the-moment 4 года назад

      @@biddrickbidmen4774 the best of luck to you.. I sincerely hope you recover quickly, and it's a success.

    • @piper2768
      @piper2768 4 года назад

      @@davidrobinson9528 it's rhythm that will makes you dance all night long.

  • @zye3629
    @zye3629 4 года назад +13

    My dad passed away 2 days ago from this 😭

    • @naseel6371
      @naseel6371 4 года назад +2

      Hi I am really sorry to your loss
      Did your dad undergone any treatment for this .

    • @naseel6371
      @naseel6371 4 года назад

      I am really sorry for your loss.
      Did your dad undergone any treatment for this condition .

    • @cheese1360
      @cheese1360 3 года назад

      I’m sorry 😞

    • @AmitDas-oh4bz
      @AmitDas-oh4bz 2 года назад

      Sorry, your dad's age

    • @activemusickid
      @activemusickid Год назад

      Sorry for your loss. My dad also passed away from this in his early 50s

  • @indiesthlm
    @indiesthlm 8 лет назад +1

    Why is the institute called Swedish Heart and Vascular? More precisely: why Swedish?

    • @markr1461
      @markr1461 3 года назад +2

      It is part of a healthcare company founded by Swedish immigrants in the late 1800s.

  • @derekpersky8178
    @derekpersky8178 4 месяца назад +1

    Now there’s camzyos, there is a cure after all these years…

  • @marlboroslim
    @marlboroslim 3 года назад +12

    Don’t let her fool you. HCM isn’t curable at all!

    • @nirmalnazeem
      @nirmalnazeem 3 года назад +2

      In HOCM, Alcohol septal ablation significantly reduce the hypertrophic mass in the heart, it will improvise the symptoms in the patient to a great extend!

    • @talhaiftikhar8548
      @talhaiftikhar8548 Год назад +4

      I was a hocm patient 6 months ago with a svere chest pain my age is 25 and After open heart Surgery in Pakistan now I am 100 percent fine and can do whatever i want to do how can you say no cure at all ?

    • @ShahNawaz-hy1rt
      @ShahNawaz-hy1rt Год назад

      @@talhaiftikhar8548 Bhai Jan ap bilkul fine ho Kia Apne konsi surgery karwai please bataye name Kia haii

    • @talhaiftikhar8548
      @talhaiftikhar8548 Год назад +1

      @@ShahNawaz-hy1rt jee mein bilkul theek hon mene hocm ki surgery krwai thi open heart lahore mein umar hospital dr mazhar-ur- Rehman sa

    • @habiburrehman36
      @habiburrehman36 Год назад +1

      @@talhaiftikhar8548 bhai mujhe aaj he saray tests se pta chala k main bhi HOCM ka patient hon can you pls guide me I really need guidance please Thanks