♡ What I Eat in a Day with a PARALYZED STOMACH? | Amy Lee Fisher ♡

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  • Опубликовано: 17 дек 2024

Комментарии • 1,2 тыс.

  • @ejdoug8328
    @ejdoug8328 5 лет назад +2443

    Amy, you only have one life. There are no do overs. Draining is your normal. It has to be very hard to want to taste something and not be able to. I'm so glad you have a tube that allows you to drain and be able to taste things again. To sit down with family and friends and have tea and even if it's just some mashed potatoes and a smoothie at Christmas. You get to partake in the sociality of things and that's wonderful!! You keep doing you girl! Other people dont have to understand or approve because this is your life and your normal. One life, do what makes you happy!

    • @kaitlynmckessy4250
      @kaitlynmckessy4250 5 лет назад +7

      Well technically we will also live in either Heaven or Hell when we die. It all depends on whether or not we are Born-Again Christians or not. Now in order to become a Born-Again CHRISTIAN what you must do first thing happens to be: pray to Jesus Christ, second: ask HIM for forgiveness, and then, third: follow HIS teachings of both The New Testament as well as The Ten Commandments.

    • @sydneyfessenden6119
      @sydneyfessenden6119 5 лет назад +71

      Kaitlyn McKessy u had such a great message and then u had try and convert her😶

    • @shrimpgrll
      @shrimpgrll 5 лет назад +61

      Kaitlyn McKessy this paragraph was very positive and you made it negative. Not everyone will believe in religion and maybe you should live your one life too.

    • @abbiekaitelewin5275
      @abbiekaitelewin5275 5 лет назад +23

      Kaitlyn McKessy maybe not everyone wants to be religious but you do you

    • @notyourdays
      @notyourdays 5 лет назад +12

      @@kaitlynmckessy4250 EW

  • @hannahmyers8270
    @hannahmyers8270 5 лет назад +1095

    I never questioned why you would eat even if you had to drain. I completely understand why you’d still want to eat! It’s a way humans bond together so it’s 100% understandable

    • @elastronaute1198
      @elastronaute1198 5 лет назад +21

      it's also pleasurable to taste and feel food

  • @linmay8074
    @linmay8074 5 лет назад +1619

    I understand why you eat. I have lost my ability to taste food after a small stroke. I really miss the flavor of food. It must be doubly awful to be physically ill after you eat.

    • @makokoro9073
      @makokoro9073 5 лет назад +55

      I had 2 strokes while in the hospital. I did not loose the ability to taste, but i noticed the taste of food has become too strong now.
      Thank goodness i am not completely paralyzed but i started having seizures, which has added to the shock my body has to go thru

    • @rayenelarguet3350
      @rayenelarguet3350 5 лет назад +50

      I’m sorry u had to deal with that.. health problems really suck..
      I was diagnosed last year with a cancer n had to take chemo tablets for the rest of my life which completely changed the taste of food (not even disappeared) for me so I stopped eating for a while and then just kinda ate to survive. I had to stop my meds for a short period before resuming again I literally would binge on a LOT OF FOODS I would just eat untill I feel sick and still eat, most of the times I end up vomiting but just the thought that this is the last time I’ll taste real food pushed me into eating more.. it’s smth we never thought we were blessed with back when we were healthy!

    • @lucyennis5716
      @lucyennis5716 5 лет назад +4

      @@rayenelarguet3350 ❤❤

    • @CM_CM_
      @CM_CM_ 5 лет назад +7

      Can you still smell? Have you ever tried 'blowing' your nose while chewing something?

    • @shendisackett
      @shendisackett 5 лет назад +15

      My Mum was born without a sense of smell and so food is a totally different experience for her. Mum prefers really bland food because she can't taste the flavour of spices, she just gets the heat. When we shop sometimes she'll see me smelling fruit and she'll be like why are you doing that? Also when she asks what do strawberries smell like or anything else how do you answer? I now try to keep my descriptions to things like sweet or sour something that my Mum can understand.

  • @therealchunkymonkythatsmyt6923
    @therealchunkymonkythatsmyt6923 5 лет назад +1193

    If people say “why do you eat and drain” that’s just like saying why do you eat and shit. Honestly some people 🤦🏼‍♀️

    • @Nox_Atra
      @Nox_Atra 5 лет назад +3

      I want to said the same

    • @ShaniOnSinai
      @ShaniOnSinai 5 лет назад +11

      CatsCradle22 i agree with you. Some may be young or just unfamiliar. Love is always the way!

    • @abbiekaitelewin5275
      @abbiekaitelewin5275 5 лет назад +5

      I disagree some people are curious get your facts first

    • @therealchunkymonkythatsmyt6923
      @therealchunkymonkythatsmyt6923 5 лет назад +5

      To Amy that’s her normal so people judging her for something that is normal for her just like shitting she just empty’s her tube instead that’s just my view xxx

    • @lilacerror7413
      @lilacerror7413 5 лет назад +7

      Because she can’t process it. She eats because she wants to eat something and that’s ok. You should argument why people eat junk food instead of healthy food. They eat it bc it tastes good and that’s also mainly the reason why Amy eats. Imagine someone comes to you and says that you’re not able to eat nothing anymore. You’d be craving so hard!

  • @justmeashley7923
    @justmeashley7923 3 года назад +72

    Rip beautiful Amy. Fly high gorgeous girl. Your impact and legacy left behind will be felt forever and I’m so grateful we still have these old videos to watch to still hear your wonderful words. We love you.

    • @kaneezzain5266
      @kaneezzain5266 3 года назад +7

      Rip Amy we all miss you now and for always the world has truly lost a good friend indeed fly high with the angles amy sorry to hear and for your loss tom and her family

  • @alexismathers
    @alexismathers 3 года назад +54

    Currently rewatching her videos. I feel like I've lost a good friend. I'm so sorry to Tom and her family for their loss, she was such a beautiful soul 😭

  • @toetoeangel6137
    @toetoeangel6137 5 лет назад +106

    Hi Amy...thank you so much for your videos. My 9 yr old son has GP & EDS...we are still learning to navigate thru his symptoms and pain but watching your videos gives me such hope that he can live a happy and fullfilled life even with his diagnosis.

  • @ohkaycutie5869
    @ohkaycutie5869 5 лет назад +360

    I love that you try your best to live a “normal” life and do what you want regardless . I live with severe asthma so I know what it’s like to want to do things everyone else can but is difficult for you.
    (Side note. I put normal in quotes because there’s no real definition of normal when it comes to different life styles)

    • @de-vine2168
      @de-vine2168 5 лет назад +5

      I agree! I to suffer from a chronic illness, its called Hypoparathyroidism. Its a rare disease. Its a devastating disease that effects your calcium, magnesium,Vitamin D3 and iron. Having this disease causes tremendous fatigue, fast heart rate,kidney damage/failure, tingling, tetney and twitching. These r the few symptoms that makes living difficult. Now for me its extremely bad so I'm on a hormone replacement therapy. Its called forteo. Its original use was for older people with osteoporosis. But is now being used on patients like myself! Anyways having a chronic illness causes immense depression and severe anxiety! So I understand to a degree!☺

    • @finnsoldies1087
      @finnsoldies1087 5 лет назад +1

      I also have asthma and my asthma is mild and when I get infections it can be hard sometimes and I have a respiratory infection right now which is really annoying .#amy strong #girl power

    • @elastronaute1198
      @elastronaute1198 5 лет назад

      Dairy is bad for asthma

  • @cherylkelly1221
    @cherylkelly1221 5 лет назад +146

    You are my hero! I couldn’t do what you do every day hun. You must be a blessing to your family. I pray that god gives you the patience and guidance to live your life every day as happy and normal as possible!

  • @charli.ward.
    @charli.ward. 5 лет назад +710

    I always appreciate so much that you either don’t show vomit, or if you do, you warn first. I have struggled with emetophobia all my life and even though I personally have made a lot of progress over the past year and could probably handle a video depicting it, I know there would have been a point where I absolutely would have needed to be warned. Not enough people know about or take emetophobia seriously and it makes me happy that you do💕

    • @SejalNoelle
      @SejalNoelle 5 лет назад +56

      Charli Ward I have really bad emitophobia and always get super stressed while watching these kinds of videos. Warning for me are so important because it keeps me from having a bad panic attack. (I skip over parts with vomit) my panic attacks involve nausea to do it all builds up to the point where I have passed out.

    • @charli.ward.
      @charli.ward. 5 лет назад +23

      Cleo my panic attacks make me nauseous too and it just fuels more anxiety, it just spirals. I have passed out and vomited from severe panic attacks on a couple occasions. I don’t have them as often as I used to, thankfully.

    • @SejalNoelle
      @SejalNoelle 5 лет назад +13

      Charli Ward it's so annoying because I'm in school and during health class I had a full blown panic attack because my teacher forgot to warn the class that there was going to be someone vomiting in the video. My fear has only gotten worse and it's exhausting because nothing I do helps. I haven't been to a psychiatrist so I don't know if it's just a fear or if it's related to anxiety or something like that.

    • @KatpurIRL
      @KatpurIRL 5 лет назад +14

      I struggle very badly as well, it always makes me feel better to see others that have this same fear :)

    • @hopejurgens2821
      @hopejurgens2821 5 лет назад +7

      I have emetophobia also

  • @anya5893
    @anya5893 3 года назад +188

    I've been re-watching her videos since last couple of days.
    Can't believe she isn't with us now.

    • @sofiatobyland6283
      @sofiatobyland6283 3 года назад +4

      Did she die?

    • @00kat00
      @00kat00 3 года назад +7

      @@sofiatobyland6283 watch her recent video & read the description, she sadly passed away at the beginning of April.

    • @catherinegaravito9095
      @catherinegaravito9095 2 года назад

      🥺😪

    • @mandybarnett3647
      @mandybarnett3647 2 года назад +3

      Me too…heartbroken still! Her honesty gave me the nerve to face VEDS in all it’s vastness…thanks Amy…I know you made my life better!

    • @microwavedmetal
      @microwavedmetal 2 года назад

      Holy shit

  • @wurlpeez
    @wurlpeez 5 лет назад +56

    I'm glad that popped up in my recommendations because I never knew about this ! Thank you for spreading knowledge

  • @kalnic69
    @kalnic69 5 лет назад +597

    Literally everything is food 😩 ‘want to meet for coffee?’ ‘Lunch tomorrow?’ Urgh. Nooooo.. I hate looking out of place so tend to just eat something and end up in agony and the nausea omg. Yuck.

    • @amyleefisher52
      @amyleefisher52  5 лет назад +69

      Kaleena story of my life 😅

    • @laurigiepmans
      @laurigiepmans 5 лет назад +33

      Yassss! And when you dont eat OTHER people will get uncomfortable... like Dude, I’m the one that is not eating, not you 😅😅 My sister does not want to go eat at a restaurant when we are shopping because i cant eat and I’m like; Uhmm Yeh but you need to eat... But she does not want to do it because she feels uncomfortable when I dont eat with her 😂🙈

    • @kalnic69
      @kalnic69 5 лет назад +14

      Yes.. I have kids so I can avoid those awkward conversations because I focus on them eating. But I do still have moments that make me cringe. Hubby wants to go on a date but that also involves food. I don’t mind him eating, he’s gotta eat.. I just have a drink if I feel I can tolerate it and he’s fine with that.. but the looks you get when you don’t order 🙄

    • @laurigiepmans
      @laurigiepmans 5 лет назад +8

      Kaleena yep! I’m always afraid they think i’m on this weird diet like the other Young skinny blond girls when I say I dont want any food. Nope, I just cant eat 😅

    • @Verihaustel
      @Verihaustel 5 лет назад +9

      Uhhh I hate this . Especially when you are skinny and people tend to ask questions

  • @cassnorman1
    @cassnorman1 5 лет назад +281

    I didn’t find this video boring. Very interesting actually. Thanks for sharing! X

  • @kristinamathias8901
    @kristinamathias8901 5 лет назад +254

    I also get questioned why I drink if I have to go drain it immediately. I’m like “well I’m only human.” So happy you explained it to others that don’t understand why we do what we do. I also have a channel and if it’s okay I’d LOVE to make something similar to this 💜

    • @amyleefisher52
      @amyleefisher52  5 лет назад +27

      Kristina Mathias yes go for it hun! I would love to watch it. I’ve just subscribed ❤️❤️

  • @mariahmacarthur5554
    @mariahmacarthur5554 5 лет назад +419

    So i understand why you eat and how you drain but i am curious does it hurt or feel weird when you drain

    • @ellespoonies
      @ellespoonies 5 лет назад +80

      Mariah Macarthur nope! it should basically just feel like your stomach emptying quickly, kinda like when you're really full and you go poop and feel way better haha. if anything you might feel some bubbles in your stomach but it wouldn't hurt!

    • @ellespoonies
      @ellespoonies 5 лет назад +61

      our stomachs naturally drain into our intestines anyway, so it's basically just helping her stomach do what it's unable to do, in a much faster way!

    • @colterbae
      @colterbae 5 лет назад +12

      she said in another video its extremely painful

    • @colterbae
      @colterbae 5 лет назад +8

      at least i think that’s what she said... sorry if i’m incorrect, i’m not her

    • @Reth_Hard
      @Reth_Hard 4 года назад +4

      Imagine having a plastic tube going through your skin that end up inside your stomach...
      Just on this basis, how could you not feel weird about that?

  • @kittenpetals
    @kittenpetals 5 лет назад +23

    I don't think you need to justify why you eat/drink when you know that you'll just end up draining it later, it's natural for us to all want food and it's great that you have a way to still enjoy it and not suffer as much consequences for it later! Life with chronic illness is really limiting, so you need to indulge in all the things that you can! ❤️also I notice that you drink a lot of tea, which is my current addiction so every time I watch your vlogs I always feel the need to go make another one!! ☕

  • @emilys50629
    @emilys50629 5 лет назад +43

    Your accent is so British but so Australian at the same time and honestly it's the best one going. Your videos inspire me so much and literally love you and your RUclips!x

  • @stoneylibra
    @stoneylibra Год назад +12

    I always find myself rewatching these. Gosh I miss Amy's updates

  • @Judetth
    @Judetth 5 лет назад +66

    How do you feel after draining stuff from the tube ?
    Also, have you ever tried to absorb sugar putting the gummy under your tounge? Sugar will be absorbed quicker

    • @odin4306
      @odin4306 4 года назад +1

      sugar's typically really bad for gastroparesis

    • @odin4306
      @odin4306 4 года назад

      @Andrea Wylie I do as well but I can't handle sugar at all :/ I never know what to do

  • @redjellybelly85
    @redjellybelly85 5 лет назад +106

    I get that too! "Aimee, why do you do this?" "Why do you eat something you know will make you vomit?" My answer is always "because that's my choice!" I love frosty fruits too! :)

    • @lucyennis5716
      @lucyennis5716 5 лет назад

      The food thing about it is that u r able to be super healthy in the foods u eat if u can't taste them❤❤

  • @Sirmellowman
    @Sirmellowman 5 лет назад +165

    Image being in a situation where you have to explain to people why you "choose to eat food".

  • @melanie_kay_6014
    @melanie_kay_6014 5 лет назад +141

    *snorts* at people who critisise Amy for eating drainable foods. I was so, so happy for you when you got that tube and were able to eat & drain stuff like skittles, like, they'd been kicking you around not giving you that tube for MONTHS when they could have. Happy for you with a passion, you go ahead and eat that damn ice lolly, gurl

  • @andrealala1370
    @andrealala1370 5 лет назад +117

    omg how can someone judge you for the draining? Ive got stomach problems and fortunatelly my stomach still works but I cant eat a lot of stuff and its a real problem for me and people around sometimes. So I really understand you for doing that, Id do that too :D you are such a fighter, enjoy your life and dont feel bad for that. :)

  • @samanthakelley1299
    @samanthakelley1299 5 лет назад +142

    You're the FIRST person that I know to put ketchup into mashed potatoes and I love you for it lol. It's SO GOOD.

  • @Maturleyglam
    @Maturleyglam 5 лет назад +36

    That is the hardest thing to explain how gasstropariss is. I love your sharing your story it helps me so much. Ive been dealing with it for almost a year now snd the throwing up is horrible. Im going for a gastric pacemaker as soon ad my insurance aproves it.

  • @lorrainec7607
    @lorrainec7607 5 лет назад +7

    Thank you for this, I am now on TPN and about to get a tube in my stomach and you are giving me confidence and encouragement to continue to do it. I was scared but you made it a lot easier for me to choose. Thank you!

  • @xKatiexKaboomx
    @xKatiexKaboomx 5 лет назад +26

    Sometimes I wish I had a tube to drain food when I screw up and eat something I’m not supposed to. But at the same time, I’m lucky to have a milder form of gastroparesis that so far hasn’t necessitated a tube. It’s true though, you never realize how much food impacts life until you can’t eat or you can’t eat certain things. This was my first holiday season with GP and it was awful. #EDSsquad

  • @roshif-tv9xd
    @roshif-tv9xd 4 года назад +10

    Amy...i just found your channel. My name is Ron and i suffer from Ulcerative Colitis and Gastroparesis (non.diabetic). I have been NPO for over 5 years now. My gastric system in now totally paralyzed so I have a surgically placed G/J Tube, and have been on TPN (had in excess of 7/8 different picc lines) during the worst parts. I dropped 75 lbs over the first 1.5 years...and have had multiple transfusions because of the bleeding ulcer issues...
    Just wanted to introduce myself and to let you know that your not alone...

  • @loganthompson2882
    @loganthompson2882 5 лет назад +8

    She’s awesome! She’s so comfortable about telling us about her condition!

  • @lulu_brocc1177
    @lulu_brocc1177 5 лет назад +42

    I remember I was at the airport and I got a coffee and immediately needed to drain it out. So yeah, I was draining in a gross airport public restroom. That has to be the worst place I've had to drain in☠️

    • @marshataylor3703
      @marshataylor3703 3 года назад

      @Caramel Cupcake she was probably catching a flight?

  • @AussieMakeup
    @AussieMakeup 5 лет назад +2

    Medicine is truly amazing. It baffles me how your stomach is paralysed yet you’re still able to eat etc! You’re doing great Amy! X

  • @mandiesimons242
    @mandiesimons242 5 лет назад +24

    I don’t eat allot but I still gain weight and right now I have pneumonia which is hard too!!!! I love you both please don’t ever change

    • @shanneldaigle1610
      @shanneldaigle1610 5 лет назад

      Hope you're doing better. I have hard pneumonia every year for the past 6 years. It is very hard

  • @WilsonsWonderland
    @WilsonsWonderland 5 лет назад +2

    You're a superstar, Amy! You really are! I admire your strength and lighthearted attitude towards dealing with such difficulties in your life!
    I also have EDS type 3, as well as systemic lupus, rheumatoid arthritis, hypothyroidism, epilepsy , spinal problems, and adhesions that cause massive chronic pain. So, needless to say- I know a bit about taking a ton of medication (currently on 22 different medications, several times a day as well as injections) and dealing with chronic conditions since a young age (started at 9) UGH! Right?
    I still find that a really good sense of humor (sometimes a bit of a twisted one at that..lol) is one of the BEST coping mechanisms to have! Am I right?
    You are absolutely beautiful, and i'm learning so much from watching your videos! You're so articulate! Please keep making them- and I'll keep watching them!
    I wish you and Tom all the best, everyday! I'll keep you in my thoughts, in hopes that someday soon, you will be able to eat and digest food through your body once again! ♡

  • @MaeleighMoon
    @MaeleighMoon 5 лет назад +16

    I'm so glad you can snack on some things! It's so natural!

  • @TheSmbrown
    @TheSmbrown 5 лет назад +2

    I also have Gastroparesis, I can still eat some solid food, but mainly I stick to fluid, protein shakes, tea, water, etc. Im grateful that I can still eat to a point, but Im getting to where the pain, nausea, bloating etc afterwards is just not worth it. I'm so impressed and proud of you, you handle your medical needs with grace, maturity, and wisdom beyond your years.

  • @Ashirbani_music
    @Ashirbani_music 5 лет назад +4

    You make me feel strong and positive toward my life as well. You are literally the strongest person I've ever seen. So proud of you and tons of love to you💞

  • @alicialeejohnson1642
    @alicialeejohnson1642 5 лет назад

    You are such an inspiration! So upbeat and positive. I hope no one says anything about what you eat. You eat what you want! No one can ever understand what you go through and you should do what makes you happy! God bless you !!!!

  • @xBelovedxMemoryx
    @xBelovedxMemoryx 5 лет назад +83

    I never really thought how much eating has become a social construct in addition to a life necessity.

  • @unpopularopinions9076
    @unpopularopinions9076 3 года назад +1

    I just found this channel and I’ve got to say that it is so refreshing to see a person living their “normal” life which is completely “abnormal” and simply living. It’s a lovely reminder that I’m not alone with my weird diets and “food evacuation techniques”.

    • @beebee7538
      @beebee7538 3 года назад +1

      I just found her as well, and I am saddened that she’s deceased 😔😔♥️

  • @amyleefisher52
    @amyleefisher52  5 лет назад +344

    Notification Sqaudddd! 💁🏽‍♀️💁🏽‍♀️💁🏽‍♀️

  • @BrooklynRose386
    @BrooklynRose386 5 лет назад +1

    I deal with a condition where I cannot always swallow food and it gets stuck in my entire esophagus. I sometimes only throw up the food in my esophagus, or it could be a 30-minute session of throwing up. I cannot enjoy a nice meal without worrying if I have to run to the bathroom. I know my condition isn't as bad, but it is miserable. I know what it feels like to struggle to eat. I also deal with stomach pains or constipation. Truly makes me miserable. But, you help me to know that you can only live your best with what you have and any life can be worth living for. Stay strong girl!

  • @SequoiaSleeps
    @SequoiaSleeps 4 года назад +12

    The whole “why do you eat and drain?” Question kinda reminds me of a question I get sometimes as an autistic person, which is “why do you try to socialize if it exhausts you so much?” My answer is just “because I’m human.” It may be tiring, but it’s fun and it’s a fundamental, fulfilling part of being a person.

  • @lindsay9181
    @lindsay9181 5 лет назад +1

    Your point about now realizing how much of an impact food has really hit me. I fought my interstitial cystitis diagnosis for so long and ate “forbidden” foods, only to suffer every time. I’m finally realizing that it just isn’t worth it to “cheat” and I have to stick to the diet. It’s hard and it’s isolating, and I really appreciate you making this kind of video ❤️

  • @user-ow2zy5iw1c
    @user-ow2zy5iw1c 5 лет назад +15

    I love your videos Amy! I seriously binge your vlogs all day! ❤️ You are so funny and have such a great personality, I’ll always watch your videos as long as you post. Take care! Xoxo

    • @amyleefisher52
      @amyleefisher52  5 лет назад

      lol fml thank you so much ❤️❤️

    • @user-ow2zy5iw1c
      @user-ow2zy5iw1c 5 лет назад

      Amy Lee Fisher thanks for replying to both my comments 😱 I’m honoured❤️❤️❤️

  • @nikkijones8055
    @nikkijones8055 5 лет назад

    Just got my first feeding tube in December due to esophageal cancer. Your videos have helped tremendously in me dealing with my illness! Although we are very different, I can relate to what you are going through! Thank you so much!

  • @faithandautism-myjourney264
    @faithandautism-myjourney264 5 лет назад +46

    How do you know if something is drainable? And what happens if you have something that isn’t drainable?

    • @kaande6453
      @kaande6453 5 лет назад +30

      I'm guessing she just throws it up.

    • @julieanna2228
      @julieanna2228 5 лет назад +24

      They probably told her what types of food she can eat. If she can't drain it she throws it up, as explained in the part where she talked about eating before she got a tube to drain

    • @sabrinanicolesanez
      @sabrinanicolesanez 5 лет назад +10

      Probably takes lots of trial and error to find out whats drainable and not

    • @gemmi1
      @gemmi1 5 лет назад +6

      Trial and error. And yep it comes up later on x

  • @SS0431
    @SS0431 5 лет назад +2

    Thank you for sharing so openly and genuinely with us! We by no means deserve or need any explanation, but I so appreciate your transparency. I suffer from digestive issues, nowhere near what you do, but people do often ask me why I eat things which I know will make me sick. And your explanation is what I wish I could articulate! Our lives revolve around food, and it's so hard to feel normal and have fun with family and friends without it. Plus we all have favorite foods why should we not be able to eat our favorite foods too! Thanks again for sharing with us all. Love you lots ❤️

  • @razmcclean2742
    @razmcclean2742 5 лет назад +13

    I have a question! How long do you normally have between eating say a burger, and then throwing up from it? And, awesome videos you've opened my mind up to many things. Thanks for that.

  • @susankilgore6812
    @susankilgore6812 4 года назад +1

    You have helped me so much! Just finding someone who suffers the way I do is fantastic! And your vids help me manage mine better. Thank you for sharing.

  • @soullesswhalien6791
    @soullesswhalien6791 5 лет назад +9

    i had a gastric sleeve surgery and I totally understand you, my recovery is almost like your daily life, but for me is just a matter of time, take care of yourself ❤️

  • @Hannah-hv5pc
    @Hannah-hv5pc 8 месяцев назад +1

    I have just done some research after noticing the video was 5 years old, and I found out that Amy passed away in 2021. She leaves behind an inspiring legacy. Belated condolences to all her family and friends. She helped inspire me with my much easier chronic condition and my life feels much lighter after watching her videos. Her light shines on.

  • @alejandrahinojos
    @alejandrahinojos 3 года назад +33

    ❤️ RIP Amy, beautiful girl 😞, gone too soon

  • @Bringbackemo
    @Bringbackemo 5 лет назад

    My mom has gastroparesis. It’s been a real struggle for years. Lots of hospital stays. You are definitely very strong and I send you so much positivity.

  • @maliawebb3705
    @maliawebb3705 5 лет назад +6

    I know this might not work for you, but I make homemade soups and stews and purée them so that it’s drainable and easy to digest. Just a thought I thought I should share!

  • @elia2441
    @elia2441 5 лет назад

    You are an amazing person, I only just stumbled on to your videos yesterday and I'm simply amazed by your resiliency and not letting this stop you from living. You're a beautiful person inside and out. Many blessings.

  • @Brandi.65
    @Brandi.65 5 лет назад +12

    It’s a thing humans have to have and it’s normal to want to eat and physically taste food. So you do what you choose to do. You have that right ♥️🙌🏼🙌🏼Great video 🤗

  • @Hannah-hv5pc
    @Hannah-hv5pc 8 месяцев назад

    Amy, you are very inspiring. Today I was feeling down about having to do ISC but after hearing some of your story I feel more able to cope with my daily routine. Thanks very much for sharing your life with the world. Wishing you lots of strength.

  • @MsFuengirolaVlogs
    @MsFuengirolaVlogs 3 года назад +3

    Fly High Amy, it’s my first time here in your channel and you made me realized that life is beautiful, you inspired me to fight my illness. Gone to Soon Lady but you left with us your legacy. Rest In Peace Amy

  • @melodycline8563
    @melodycline8563 4 года назад

    A few yrs ago I had c-diff which was horrible, it shut down part of my bowel. I just relived the feelings as you were talking about it. You are so strong and I totally understand why you eat. I started off with broth and smoothies then to mashed potatoes and acorn squash but after awhile nothing satisfied. When I was at 1 of many Dr visits they had finally diagnosed me and ended up giving me meds that made me feel great.. I went straight to a drive thru and ate sandwich and mozz sticks...lol. Oh that was a bad night but kind of worth it...I'm all better now which I'm very thankful for, but your video made me think back to that time in my life and I'm amazed how strong you are. You are happy and look healthy. Keep up the good work. Never doubt yourself..if it works for you than do it!!

  • @catherinebritton9054
    @catherinebritton9054 5 лет назад +19

    If I was in your situation I'd do what you do, I can't imagine not being able to eat, you handle it so well, your totally inspirational, might be wierd but I just watch your videos because I enjoy them and I'm interested but I'm not in your situation.

  • @gracepearl3379
    @gracepearl3379 5 лет назад

    I am so glad you explained to people why you still eat with GP
    I do the same thing and people always get so confused! A lot of the time I still throw up after eating and I get more pain, but as you said life is so depressing with a chronic illness as it is and is considerably more miserable without food!!! Thank you so much for spreading awareness!!!!!!

  • @ambarrose
    @ambarrose 5 лет назад +24

    It can't be easy at all to have to drain everything that you put into your digestive system.

  • @rochellespeakman
    @rochellespeakman 5 лет назад

    I have just come across your channel by pure chance and my goodness, how you live your everyday life is just incredible. I could never do what you do and you are just amazing. I have watched a few of your videos and will keep watching. You’re incredible

  • @mickeycahill589
    @mickeycahill589 5 лет назад +39

    Um how cool that you can push your stomach muscles and can increase the flow of the drainage!!! Hahaha

  • @lauravietmeier7427
    @lauravietmeier7427 5 лет назад

    You are so strong, amazing and tell it how it is!!! You inspire so many by your honesty, courage, and willingness to share so much about your life and daily struggles!!!

  • @daedae1123
    @daedae1123 5 лет назад +9

    Omg those popsicles remind me of the orange dream sickles they are sooo good. Literally my guilty pleasure. I pretty much eat them for breakfast lunch and dinner aside from my feed lmfao. I have my days when I "eat" tons of snacks. And then I'll go days without oral intake

  • @KyleDGaming
    @KyleDGaming 4 года назад

    Thank you so much for sharing your story and being so open🥰 it has helped me tremendously with this new diagnosis. It's tough to accept right now, It only been 3 days for me, three painful days and I can't imagine enduring this for the rest of my life.

  • @BlitheDream
    @BlitheDream 5 лет назад +3

    I have gastroparesis too! (And EDS)
    I take Movicol though and it really helps me. I still feel really ill after eating but movicol means at least it comes out! I’m so glad I haven’t needed a feeding tube.

  • @nicholekinney9961
    @nicholekinney9961 5 лет назад

    Love your videos....I also have severe GP, EDS among so many other conditions. I have been sick since age 16 ( now almost 35). Thank you for bringing awareness and showing our daily reality of living with a feeding tube and living with this truly awful condition. Sending love from Canada.

  • @smaia101
    @smaia101 5 лет назад +51

    "That woman" I DIED

  • @lacelegends9102
    @lacelegends9102 5 лет назад

    And I thought my life was hard living with Lupus & Fibromyalgia. Chronic pain and fatigue.
    Your so brave because your life is consumed of keeping your self alive and being positive about it all shows how mature you are ♡

  • @smashyabackdoorin
    @smashyabackdoorin 5 лет назад +22

    Id like to know does your TPN give you a full feeling or do you always feel hungry

    • @lulu_brocc1177
      @lulu_brocc1177 5 лет назад +7

      So this is a tricky question. Let's say someone was NPO for whatever reason, if they had a normal digestive system they would feel very hungry. But if you have gastroparesis like Amy you wouldn't feel hungry except rare occasions. For me I was on TPN because I had Median Arcuate Ligament Syndrome and never felt hungry, only felt pain in my stomach. However I did also have a G/J like Amy so I would occasionally taste foods and then drain it out. I was very thankful for my GJ.

    • @smashyabackdoorin
      @smashyabackdoorin 5 лет назад +3

      @@lulu_brocc1177 thanks for this comment its a great help

    • @lulu_brocc1177
      @lulu_brocc1177 5 лет назад +1

      @@smashyabackdoorin Yeah, no problem!

  • @samirajohnson2772
    @samirajohnson2772 5 лет назад

    Your video was not boring at all! It answers a lot of questions
    You are so brave! Keep up the strength! Thnx for sharing a day of your life with us!

  • @raesoup5986
    @raesoup5986 5 лет назад +16

    This is where an everlasting gobbstopper would be nice lol

  • @stephanietougas8377
    @stephanietougas8377 5 лет назад +1

    You poor dear, I cried watching this , your so brave! I just love you! Stay strong!

  • @muppetjedisparklefeet2982
    @muppetjedisparklefeet2982 5 лет назад +18

    Super nosey medical question: how do you manage your acid/base (H+/OH-) balance with the draining?

  • @Saffirance
    @Saffirance 5 лет назад

    Thank you so much for sharing. This is the first video of yours that I have watched. My husband has been very ill for 7 years now. He is on 24 hour TPN and has gastroparesis and has a hole in his colon with 4 fistulas. He just got an iliostomi and we are struggling to find things he can eat. He hasn't eaten much for years now but is now eating a couple of bites a day. Your video helped us to not feel so alone. God bless you. Things can be really hard sometimes but never give up. We put our trust in God and He has never let us down. We have had so many miracles. I don't know why you have gastroparesis but I will watch more of your channel. Thanks again for sharing.

  • @donnaloveall1470
    @donnaloveall1470 3 года назад +11

    Tom, I know how hard it is for you. Amy was beautiful, intelligent, and helped young and old how to live with a disability. We need to hear from you, we are grieving too. I feel like I lost a grandchild. I am a seventy-one-year-old grandma of 10. I loved you two and still love you, Tom......please talk to us. Heaven has a true Angel. I hope you are a believer 🙏🦋

  • @armidillseventeen1703
    @armidillseventeen1703 5 лет назад

    This make me feel so appreciative of my life because I couldn't do what you do because I would suffer from bad anxiety from it ..im glad that you are living the best life you can and staying as postive as you can im very proud of you

  • @kateconnolly1738
    @kateconnolly1738 5 лет назад +35

    this video made me want a popsicle, so i got one and actually clinked it against my screen when you said cheers lol

  • @LeMotMista
    @LeMotMista 5 лет назад

    Wowza… talk about eye-opening. Had no idea this kind of procedure, "draining," existed as a routine part of a person's life. Amy, you certainly have an onerous life and face more adversity than most. You pull this off with more grace than I ever could, and I pray for you strength and fulfilment.

  • @darlingyoullbeokay9314
    @darlingyoullbeokay9314 5 лет назад +6

    I’m just very curious. So if you’re eating these things or drinking them.. then you drain it, do you get any nutrients from it then? How do you get the nutrients you need?

    • @sophxx183
      @sophxx183 5 лет назад

      DarlingYou'llBeOkay Her stomach absorbs the nutrients she needs by the time she drains it

    • @dinoluver12870
      @dinoluver12870 5 лет назад +2

      I believe that her TPN she attaches to her feeding tube twice a day is what gives her the nutrients, at the end of the video she explained that she does not absorb and nutrition and that she is just craving it. It goes in and out, the only place she can absorb the sugar she needs is through her gums! I hope this helps!!

  • @carrieleecrenshaw1069
    @carrieleecrenshaw1069 5 лет назад

    I love watching your videos. I’m earlier on in my journey with GP and I so appreciate your candidness with telling your story and showing the ups and downs of your life. I’m supposed to be getting a GJ soon and I’m honestly terrified but people like you give me hope.

  • @keana1057
    @keana1057 5 лет назад +65

    “I don’t eat I _c o n s u m e_ ” - Amy

  • @almostasoupcan
    @almostasoupcan 5 лет назад

    I am going to use this video to show my friends and family! I am GJ tube dependent, not TPN but I eat the same kinds of things and have the same struggles. Thank you so much for producing this video so I can better explain it to the people in my life who harshly judge my choices. At the end of the day, I'm an adult. I can make the decision to eat something knowing the consequence will be vomiting. I wish you all the best in your recovery and hopefully you get weened off TPN soon!!

  • @s.ez.a.7651
    @s.ez.a.7651 5 лет назад +3

    My Aunt has a paralyzed stomach and intestinal tract from scleroderma. Thank you for making this informational video! Not a lot of people seem to know about these health issues.

  • @sjone9868
    @sjone9868 4 года назад

    I can understand to a point. I have a very mild form of gastroparesis it limits what I can eat to a large degree but not to this point. I am so sorry that you have to deal with this everyday. It is very hard to be around others who want to eat something specific but have to change what they are going to eat for you. You are so brave thank you for putting this out.

  • @lyssab1632
    @lyssab1632 5 лет назад +6

    Not to make light of this but my brain when you showed you draining was like “ah that’s just pre poo “ 🙄😂😂😂 I need help

  • @kristendeaton9481
    @kristendeaton9481 5 лет назад +1

    Love this video... your continued transparency, authenticity, & desire/ability to share your life experiences, (big or small) warms my heart & is a huge source of encouragement for me in mine. You’re the best! Sending love & well wishes from Oklahoma, USA!💞

  • @imthinkingmaybe2615
    @imthinkingmaybe2615 5 лет назад +65

    Once you drain do you feel better immediately?

    • @amyleefisher52
      @amyleefisher52  5 лет назад +56

      I'm thinking maybe I feel less nauseous for sure! xx

  • @randymiller9515
    @randymiller9515 5 лет назад +1

    Amy, I sincerely appreciate you sharing your life. Your videos are fascinating! You are so upbeat and positive. Thank you!

  • @janadams2978
    @janadams2978 5 лет назад +10

    Haven’t heard that saying in ages. I love it. Wonder where it came from?

  • @nicolefox3567
    @nicolefox3567 5 лет назад

    The not wanting to eat solids thing is exactly why I have an abundance of lemonade mix in the pantry and I freeze it about four times a day and “eat” the ice. It’s my favorite thing on the planet right now that doesn’t have too much potassium/phos for me and doesn’t raise my blood pressure too much and settles my stomach. (I’m on dialysis) I don’t exactly know what you’re going through but I did have a central line for a long time when I first started hemo. Then I moved to peritoneal dialysis and had that catheter in my stomach. As a young girl having to do my treatments I remember setting it up like you have to with a sterile connection and everything and I got infections frequently and also frequent hospital stays. You are so strong and it’s nice to watch your videos bc that’s a little like what I went through too. Now I have a fistula and am back on hemo dilaysis 3 times a week. They both have their pros and cons but for now the freedom i have with having off days and not tons and tons of supplies are sort of working for me right now. It’s hard to travel but what can you do lol. I hope things continue to get easier for you as people start to learn more and more with the medical aspect of things 💕

  • @sidneyoyebola2821
    @sidneyoyebola2821 5 лет назад +19

    Could you do a video on how you have your period because I feel like it would hurt more

    • @jademarie183
      @jademarie183 5 лет назад +3

      Sidney Oyebola you’re period isn’t in your stomach...

    • @Suzifully
      @Suzifully 5 лет назад +3

      Jade Marie It's not, but your whole body is interconnected. When you're on your period, many experience bloat, swelling, and cramps, I think that would definitely affect the feeling in your stomach. For example, many women get cramps so bad, their back also hurts during their period. Or maybe even nauseas. That's probably what the commenter is referring to :)

    • @emmataylor6283
      @emmataylor6283 5 лет назад +1

      I have quite a few of the same diagnoses of her. Can confirm for majority of people with chronic illnesses periods are WAY worse. For me, I can barely get out of bed the whole week. My pain is also way worse than a “normal” persons would be

  • @gracehofferbert5139
    @gracehofferbert5139 4 года назад

    I am so glad I found your video! I am in the hospital but I leave in 2 days, I have a hickman port and I'm on TPN.. I fear that I will never eat again. If I eat or drink, I get sick an hour or so later. I just got a gastric stimulator about a week ago... But it has not began to work as of yet, the drs are not sure it will. Watching your video gives me some hope, maybe Someday I'll be able to eat something and knowing that there is an option to drain, honestly makes me smile. I hate being nauseated and puking, it is painful, but I miss the taste of food. Thank you for making this video!

  • @annsilliman6184
    @annsilliman6184 3 года назад +4

    What a beautiful soul. Hard to believe shes not with us anymore. Rest in peace honey.

  • @juchjaju1965
    @juchjaju1965 5 лет назад

    I am so happy to see you looking better and you're not in the hospital. You are in my prayers love seeing your videos and Thank you for sharing your life with us God Bless you always!!

  • @brittanywoodman6559
    @brittanywoodman6559 5 лет назад +112

    If you’re stomach is paralyzed why does it still produce acid? Am I just terrible with human biology? No hate lovely genuinely curious ❤️

    • @audreybissell7525
      @audreybissell7525 5 лет назад +58

      Brittany Woodman a normal persons stomach squeezes 3 times a minute to pass the food to your intestines. when you have GP, your stomach just doesnt squeeze (either enough or at all). the acid is produced in smaller quantities after a while because your body adjusts to not needing as much because you dont have enough food in it. hope this made sense!

    • @brittanywoodman6559
      @brittanywoodman6559 5 лет назад +7

      Audrey Bissell it does thank you 😊

    • @amyleefisher52
      @amyleefisher52  5 лет назад +88

      Yes my body still produces acid but I can’t digest the acid so I have to drain that aswell! Hope that makes sense 😅

    • @brittanywoodman6559
      @brittanywoodman6559 5 лет назад +14

      Amy Lee Fisher makes sense I just didn’t realize that it would still produce the acid I just assumed it was just at a point where everything would just kind of sit there if you know what I mean 😅

    • @kerryhorrocks4453
      @kerryhorrocks4453 5 лет назад +9

      Brittany Woodman I’ve just been diagnosed with Gastroparesis I have no tubes at all but I’m struggling to keep up my calorie intake I’m losing weight rapid and feel awful I think audrey bissell in the comments explained it more than my gastro team

  • @delphi2475
    @delphi2475 5 лет назад +2

    Great video thanks. I can totally understand the enjoyment you get from eating,
    your smell & taste buds are still functioning & the flavours are still present in the food & drink. It’s just your stomach isn’t digesting it’s contents. 👍 you explained it so well, thanks. Take care